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November 26, 2024 18 mins

Hey Heart Buddies! I welcome back Robyn Peacock for an update on her incredible journey for “Hope for the Holidays." This conversation is packed with Robyn’s reflections on her battles with an aortic aneurysm and bicuspid aortic valve. Learn about her physical triumphs and the often-overlooked mental health challenges that many heart patients face post-treatment. Robyn shares her newfound purpose working with Heart Valve Voice and how she brings hope and support to fellow heart patients. Plus, a special revelation about the rising buzz around mental health at cardiac conferences. Tune in to find out why this episode could be the emotional boost you need this holiday season. Subscribe and join Boots and Robyn as they dive into the importance of community, self-advocacy, and listening to your body’s signals.

You can hear Robyn's original interview here.

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**I am not a doctor and this is not medical advice. Be sure to check in with your care team about all the next right steps for you and your heart.**

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Email: Boots@theheartchamberpodcast.com

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Boots Knighton

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Transcript

Episode Transcript

Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:01):
We're all so lucky to have each other. I do want to share something that
I've been hearing in my work with Heart valve Voice at these conferences I've
been attending. Mental health is starting to get a buzz
post treatment mental health. We're really trying to get
the buzz going because it is a common theme
in all the patients I talk to and no one is made aware

(00:23):
of the potential mental processing that you need to
do after you go through any type of a
treatment that, you know, we all process differently.
Welcome to Open Heart Surgery with Boots. I am
your host, Boots Knighton and I'm excited to
bring back Robin Peacock today for our

(00:45):
Hope for the Holiday series. This has been such a
great series. If you're just now finding us, welcome.
I am honored that you have found this podcast and it
is such a privilege to bring this
to heart patients every week. And so please do find us
on social media. You can find me on LinkedIn, go back and

(01:08):
listen to previous episodes. I'm building a spoken
library for heart patients and their caregivers
and healthcare providers. So thank you for being part
of this podcast. But today I am
so happy to bring Robin Peacock, who has become a friend of
mine, back to give us an update on her

(01:30):
bicuspid journey. Robin, you are such a
force of nature at 61 years old and
you are thriving. You're giving back to heart
patients. It really is amazing to
see some heart patients just go about with their
lives and that's fine. We're all here to do different things in the

(01:51):
world. But you have made it a mission now to serve
fellow heart patients like myself. And so it was just a no brainer
trainer to bring you back for the series. So welcome.
Thank you, Boots. It's, it is my pleasure to come back
and just knowing you has enriched my life. And I'm just
like I've told you, I'm in awe of what you're doing for all heart patients

(02:13):
around the world and letting everyone have access to
all these great interviews. It's just I enjoy listening to them and so
thank you. So here we are a year later. I think I was on your
show a year ago and just to give a brief overview
of my journey, in 2007, I
was diagnosed with an ascending aortic aneurysm and a bicuspid

(02:35):
aortic valve. And I was watched for, you know,
the next 15 years until my valve became severely
stenotic, aortic stenosis. And I started feeling horrible.
I started having extreme fatigue six months leading
up to the surgery and my brain fog, you know,
definitely I was forgetful and tired, and I just

(02:57):
felt like I was 30 years older and I didn't understand what was
happening. I ended up having surgery in June of
2022. Now, really quick going back in 1998,
when I was pregnant with my first child, they heard a murmur. And
in the 90s, mitral valve prolapse was kind of a
thing that people were being diagnosed with when they heard a murmur. So I was

(03:19):
diagnosed with that. I did not have that. They missed the bicuspid
valve, and they missed the aneurysm. So two full
cardiac workups in 1998 and 2002, they missed
it both times. And so it wasn't until I did a coronary
calcium scan in 2007, and that's how it was
diagnosed. That's where they found the aneurysm. And then

(03:41):
through that, we found the bicuspid valve. So that just kind of brings you up
to speed to 2022. 2022, I had open
heart surgery at Cedars Sinai. It was super successful. I have
recovered 100% physically, mentally.
It's something that I think what I'm learning two and a
half years out, I thought that I was one and done, and I had recovered

(04:02):
and moving forward. And recently I participated in a
therapeutic support group, and they brought me to tears because I
think I still have some reconciliation to do about the magnitude of
what I went through. And I'm a super positive,
upbeat person, and I think I'm not allowing myself to
feel some of the fear that I think

(04:25):
I need to process now. So I'm. That's kind of where I'm at in,
you know, the end of 2024. I'm starting to feel like I need
to do some more introspection, some more therapy, work
on kind of releasing. The fear of what
I went through never allowed me to have. Never allowed it to happen.
So, anyways, that's kind of where I'm at now on the

(04:48):
mental side. Physically, I'm great. Physically, I'm great. I go for my
checkup next month, and I'm looking forward to another
great echo and another year of no
appointments. But the greatest thing. Can I just share with you what I'm
so excited, and I know you know about it, Boots, but I'm so excited to
share with all of your listeners, is that through this journey, I

(05:08):
have found a new purpose. I have found something that gives
me such great fulfillment. And
I am so excited to wake up every day because I get to Talk to
patients. I get to go out and reach out to people. I accepted a
role with Heart Valve Voice Us, and I am the director of patient
engagement, which means I get to go out and talk to people. I get

(05:31):
to listen to stories, I get to share resources,
I get to make connections. And
it's so fulfilling to me. I've always been in the
nonprofit world and now focusing on
heart health and women heart health, men heart
health. It just makes me so happy when I hear someone

(05:53):
come back to me and say, oh my gosh, I shared your story with
my neighbor. And she ended up getting an
appointment because she wasn't feeling well. And she's
now, you know, having tavr because her valve was failing
or. I just love it. I just absolutely love
that I get to be out in the world meeting people and talking

(06:15):
to people. And I feel like, I mean, I was super
grateful after my open heart surgery in terms of just
getting my, quote, second heart start is what I've always called it. But
now I just feel like I'm. There's a reason
why my heart got started the second time,
and I get to just be out there and listen and help

(06:38):
others through their journey. A lot of people I speak to are newly
diagnosed and there's a lot of fear and
uncertainty. And so between
our other organization, Women Heart and Heart Valve Voice,
you know, I pretty much have all bases covered. I can talk to people all
over the country, all over the world, and just be a

(07:00):
shoulder for some people. Yeah, so it's, it's super
exciting. So there's, there's kind of where I'm. At today, and you turn
into a glow bug when you talk about all of that. So it's very obvious
that you are in your purpose. And, you
know, it's interesting. I'm glad you bring up that. Processing the
fear piece. Through my own journey of

(07:22):
processing a variety of traumas, physical
traumas in my life, what I've noticed is when an
emotion is ready to be processed, it comes up.
And when I think about facing heart
surgery, you know, you and I and those listening
who are going through the same thing, we don't have time

(07:43):
necessarily to feel all our feelings because we're trying to
survive. We, you know, we have to get to right to
business of surviving, then healing. And
then there's the expectation that we're going to
return to our lives and get on with our lives.
And I want to give permission to

(08:05):
a feel whatever's coming up, but be just
recognized that 2022 wasn't that long
ago. No, no, you make a great
point. And the emotion will come up when it.
When you're. When it's ready or when you're in. A space to feel
it, when the soul, the body, feels safe. And so

(08:27):
you just mentioned all these incredible people that you get to.
To mentor and network with. And
you're working for Heart Valve Voice. We're heart buddies.
You've made heart buddies through other avenues. And
so, dare I say it, your body is probably finally
feeling safe enough to allow that fear to come up.

(08:49):
That's. That's good. When I'm in a room filled with
heart patients, it does feel safe. It's very
interesting you bring that up. I know we just saw each other at the Mayo
Clinic for the symposium. And one of the
things I always come away from those meetings is
I'm surrounded by people who get it. And it's

(09:12):
very therapeutic to listen to other stories and how they
overcame certain things and how they processed.
And we're all in this life together.
And I don't know, there's just such value to
be able to share stories and to listen to other stories
and be able to kind of help process your own

(09:33):
journey. It's definitely helpful. So that's a. That's interesting
you say that. That it's because. Remember my. I think I said
it in the first episode, all Faith, no fear.
May 6. I was told I was having surgery in 30 days, and I just
went on this high plane of all faith, no fear. And I just didn't allow
it. I had no other option, no other choice. I had to get

(09:56):
to business, like you say, I had to get through open heart surgery. I had
to survive it. I had to prepare my family. I had to prepare
the household. For me to be, you know, not able to
maintain it for a month or two, there was just so much to do. I
went on this higher plane, and I do. I do believe in God, and
I do believe that he and the angels were with me. And so

(10:17):
that is a very big part of my story, is my
faith. But I. Interesting. I am in a
much safer space now. You are correct, and I'm
so grateful. And that's one of the many purposes of this
podcast, is also to provide a safe space. Right. And
so we helped you tell your story

(10:39):
a year ago, and that started you on a really
interesting path. But then reaching out to other heart patients,
and if I may pat myself on the back here,
you're not the only heart patient that I've helped find.
Like, several heart patients have found their purpose through this
podcast. And that is what this is all about. It's

(11:02):
like we are going to carry each other
over the finish line of open heart surgery because we
can't expect the medical community to do it for us. Yes,
they can save our lives. They can fix our valves and our
myocardial bridges and clogged arteries, and thank
goodness for that. But then we have to hug each other

(11:24):
afterwards. We have to help with the mental spiritual part that
the, that the Western medical community just isn't trained to do, nor do
they have the time or the bandwidth. We need to know what we're getting
when we go there. And it's not necessarily an empty well for
water, but it's close. Right. And so. Right. Just enough
to quench our thirst, Just enough to save our lives. And then,

(11:47):
and then this podcast, Heart Valve Voice,
Women, Heart achd, American Heart association,
all these other nonprofits are, are here to
help educate us and help us, teach us how to advocate for
ourselves. You know, that's absolutely. A hundred percent. That is.
You know, one of my greatest takeaways is because, you know,

(12:09):
my husband calls me the hypochondriac who's always right. Because I'm a
huge advocate for myself and I
pursue it until I'm satisfied with the answer or satisfied
that I've pursued enough of the options out
there, not just for open heart surgery, but for anything that I've experienced over
my life. You know, definitely, I am the expert on me.

(12:32):
So we're also lucky to have each other. I. I do want to share something
that I've been hearing in my work with Heart Valve Voice at these conferences
I've been attending. Mental health is starting to get a
buzz post treatment. Mental health. We're
really trying to get the buzz going because it is a
common theme in all the patients I talk to.

(12:53):
And no one is made aware of the potential
mental processing that you need to do after you go
through any type of a treatment that, you know,
we all process differently. So what. What affects me might not
affect you. And. But there is a mental health buzz starting, and
I'm super excited about it because I'm bringing it up with

(13:15):
every physician I talk to, every conference I attend. Like, well, what about
the mental health piece after you see the patient? Are you referring. Is
there a questionnaire? Can we develop a questionnaire? Can we start a
module to train on, you know, a CME
basis to look out for certain things?
Yeah. And I know when I was pregnant with my second

(13:37):
child, I went through a Super deep postpartum depression after
I gave birth. And thankfully, my OB was trained in
the signs and called me in because
he knew something wasn't right and I didn't
see it at all. And I'm so grateful that he had
that training is what I'm saying. And I think if we can continue to work

(13:59):
in the cardio world for that training, that would be great. And
that's a great segue. To wrap this up is to wrap up the
series. I interview Dr. Laura
Suarez Pardo, who you and I had the pleasure of
meeting at the Mayo Clinic together. Oh. And
she and I. I've already interviewed her. I'm going to air

(14:22):
it in December of 2024. And we
had a brilliant conversation on the
connection between mental health and cardiovascular
outcomes. And so I thought that would be a great way
to bookend Hope for the Holidays. Oh, I'm so
excited. It's a brilliant conversation. So for

(14:43):
those listening, you know, in real time, her
episode comes out after this one, so be
sure to be looking out for, if you haven't already subscribe to the
podcast number one, and then number two, then be
looking for that episode. And you know what? Not only is
she just brilliant, but just the nicest human

(15:05):
and is really, really deeply
invested in our mental health. We heart
patients. And it shows. So
fantastic. That gave me hope for the holidays.
Good, good. Holidays are hard. They're not easy.
Golly, get me through these things. But when January

(15:27):
2nd rolls around, I'm, like, made it through another one.
Hallelujah.
Well, Robin, any, like, quick advice you'd like
to give heart patients now that you've had a year to reflect since
our last recording? Listen to your heart,
listen to your body. I mean, that's, that's. We can't drum

(15:49):
that loud enough and we just can't. Just
listen to yourself and trust yourself, trust your gut, trust that you
know something is off. I just heard someone yesterday talking about sharp
pain between her shoulder blades, and she knew
something was off. And sure enough, something was off.
And you just know, you have an instinct, you

(16:11):
know? So please, please, please listen. And I hope everyone
takes good care of themselves for the next year and every year after that.
Thanks, Robin. Thanks for coming back. Thank you. It's always good to see you. All
right. Happy holidays. Yes, and thank
you, listeners. Like I said, be sure to tune in
for as the series wraps up. And then I'm going

(16:34):
to re air a couple of episodes episodes to round out 2024,
the ones that have been downloaded the most in 2024. So
our greatest hits. And I want to thank
listeners in Peru, Lebanon
and Paraguay. I've been on the Apple
charts all the way up to number four in Paraguay,

(16:56):
actually just this week. And so I am seeing you in
Peru, Lebanon and Paraguay way. Thank you for finding me. I'm
so glad you're here. Do let me know what you need in those
countries. You can send me an email bootsheartchamber
podcast.com and most importantly,
know that you aren't alone. I love you and your

(17:18):
heart is your best friend. Come back next week.
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