Parenting a Child with Disability and Facing Loss: Julie Henderson’s Journey

Send us a textIn this episode of The Redeemed Podcast, host Lauren Burns sits down with Julie Henderson—wife, mother, author, vocal coach, and passionate advocate for families living with special needs. Julie shares the powerful and emotional story of her son Robert, who was diagnosed with a rare mitochondrial disease and seizure disorder and passed away at just 18 years old.Julie opens up about the heartbreak of navigating a complex diagnosis, the challenges of caregiving, and the raw emotions of grief and anger toward God. But she also reveals the incredible strength found in faith, family, and community—and how God brought redemption even in the deepest pain.This conversation is filled with encouragement for parents, caregivers, and anyone walking through loss. Julie’s journey reminds us that while grief is real, hope and purpose can still rise from suffering.👉 Whether you’re a caregiver, a parent of a child with disabilities, or simply someone searching for hope in the middle of heartbreak, this episode will encourage and equip you.Topics We Cover

• Julie’s background and family life
• Robert’s diagnosis with mitochondrial disease and seizure disorder
• Navigating medical complexity and the unexpected length of his life
• The emotional journey of grief, denial, anger, and acceptance
• How faith reshaped Julie’s walk with God through loss
• Advocacy for families raising children with special needs
• Balancing caregiving, marriage, and parenting siblings
• Encouragement and resources for caregivers and grieving parents

Episode Timestamps00:00 Welcome to The Redeemed Podcast
00:23 Introducing Julie Henderson
01:52 Julie’s family and background
05:25 Robert’s story: love, life, and loss
07:04 From grief to advocacy
08:58 Finding strength in faith and community
11:43 Facing denial and acceptance
15:45 Wrestling with anger and trust in God
21:23 Discovering purpose in pain
21:54 The challenges of caregiving
23:58 Marriage and disability dynamics
26:50 Raising siblings of a child with special needs
28:47 How faith sustained Julie
33:59 Encouragement for caregivers
37:35 Resources and community support
40:57 Final thoughts and prayerContact Lauren:Website laurenburns.netInstagram https://www.instagram.com/laurenburnsredeemed/Facebook https://www.facebook.com/laurenBredeemed/Redeemed Newsletter: subscribepage.io/eft4YTMerch  https://www.hiscollectionapparel.com/ Disount Descript https://get.descript.com/DescriptRedeemed
Contact Juli:Website https://www.inourarms.blogEmail  [e-mail] /https://www.facebook.com/InOurArmsBlogIG https://www.instagram.com/inourarmsblog/
Disclaimer:The purpose of the Redeemed Podcast is to share the love of Jesus. The views, thoughts, and opinions expressed on behalf of guest do not necessarily represent the thoughts of the host. This podcast does not constitute services or medical advise. Pease pray and thoroughly research options for medical needs. Listeners and viewers consume this content on a voluntary basis and assume all responsibility for resulting consequence and imp