Stories of Vision Loss

A collection of voices who share how vision loss is just a piece of their story. Each episode is one person's story about how they navigate their experiences. Record an Audio Message! Join Supporter's Club - $5/month Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests

Episodes

Anne's Passing (1986-2025)

December 5, 2025 • 24 mins

Today, we share the heartbreaking news of Anne Peters’ passing. Anne was more than a guest on Stories of Vision Loss—she was an author and storyteller whose vibrance and laughter were a gift. Anne’s creative talents shone brightly in the young adult book, "The Dragon Who Would be King," touching the hearts of readers young and old.

Her Christian faith was the cornerstone of her life, and she embodied its principles through her acti...

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Lisa - Pain is real, but so is hope

October 31, 2025 • 45 mins

Lisa shares her story of the unbearable loss of a child and how she came to grieve her vision loss through learning to grieve the loss of her son. She gracefully gives practical advice for anyone struggling with any type of loss. We invite you into a community of people learning to live fully and build lives worth living.

Facebook: Dalton's Difference

Crisis Hotline: Text TALK to 741741
Call or Text: 988

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Jason - Farming Blind with Duck

October 2, 2025 • 36 mins

Jason "Duck" Barber is an 8th generation farmer in Tennessee. He shares his discovery of AI and ChatGPT, and how he uses tech as a solo farmer with Retinitis Pigmentosa (RP). Check out his YouTube channel: Farming Blind with Duck to learn more!

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Check out a list of our guests: www.storiesofvisionloss.com/guests

https://buymeacoffee.com/storiesofvisionloss

Become a supporter of this podcast: https://www.spreake...

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Qusay's Passing (1988-2025)

August 1, 2025 • 27 mins

Today, we share the heartbreaking news of Qusay Hussein’s passing with heavy hearts and deep reverence for the extraordinary life he lived. Qusay was more than a guest on Stories of Vision Loss—he was a beacon of resilience, a storyteller whose wisdom transcended his blindness, and a man who carried himself with unwavering dignity.

Qusay’s legacy lives on in countless ways—through the Qusay Hussein Humanitarian Award at UT Austin’...

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Lisa - Celebrating the Nothing Moments

July 11, 2025 • 30 mins

Lisa is a Diabetes Care and Education Specialist passionate about helping others, which started with helping her mother with diabetes. She shares her experience developing diabetes, diabetic retinopathy, and strokes. She has a wealth of professional and personal experience with diabetes, and she hopes that sharing her experience will allow others not to feel so alone on their parallel journey.

Lisa.Golden@twc.texas.gov

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Nazanin - Without Labels, You're Just You

June 27, 2025 • 31 mins

Nazanin shares her journey as a research professor studying health disparities and equity in various populations (including diabetic retinopathy). She describes her visual experience as always legally blind, but not a label that defines her life. Though, it has helped make her an excellent problem solver! She talks about parenting and learning to ride a bicycle again as an adult.

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Mary Tyler Moore Vision Initiative

June 6, 2025 • 23 mins

Mary Tyler Moore is a cherished figure in the hearts of many with her enduring joy for life. She was a graceful and talented award-winning actress, producer, author, media executive, and advocate for diabetes research. Her husband, Dr. Robert Levine, shares information about the Mary Tyler Moore Vision Initiative that was created in her honor along with some personal moments they shared.

https://www.marytylermoore.org

https://www.b...

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Debra - The Blind Kitchen

May 23, 2025 • 28 mins

Debra shares her vision for The Blind Kitchen after learning about RP at the age of 28 as a single mother of two small children.

Record an Audio Message!

Website: The Blind Kitchen

YouTube: @theblindkitchen

Check out a list of our guests: www.storiesofvisionloss.com/guests

https://buymeacoffee.com/storiesofvisionloss

Become a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-vision-loss--5626029/support.

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Steve - Blind Endeavors

May 9, 2025 • 37 mins

Veteran, Steve Baskis, shares his experience turning his focus to outdoor adventures after losing his vision while serving in the military. He shares techniques for sailing, biathlon (skiing and shooting), climbing, and how to prepare for an adventure through gathering a good team.

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www.stevebaskis.com

www.blindendeavors.org

Check out a list of our guests: www.storiesofvisionloss.com/guests

https://buymeacoffee....

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Qusay - Can You Open My Eyes?

April 4, 2025 • 25 mins

Qusay Salih Hussein Al-Mamari shares his memoir and story of becoming a refugee from Iraq to the USA after a suicide bomber took his vision and changed the course of his life as a teenager while playing a volleyball match in a stadium with his brothers.

Despite incredible challenges and physical trauma that resulted in more than 70 reconstructive surgeries, Qusay shares his story with unforgettable positivity, strength, humor, and c...

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Jeanne - Good Eye, Bad Eye

March 21, 2025 • 27 mins

Jeanne shares her story of healing her trauma through truth as we discuss her memoir Good Eye, Bad Eye. She has lived her life as a monocular since the age of two, and has worked as a journalist and psychotherapist. Her insights into her personal healing journey are valuable for anyone.

Record an Audio Message!

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.c...

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Wayne - Deep Dive

March 7, 2025 • 21 mins

Wayne Tuttle "The Blind Guy" and Titanic historian, shares his experience adjusting to RP, reclaiming his enjoyment for scuba diving, and the difficult decision to stop driving while continuing to love his hobby of snowmobiling.

www.thatblindguy.ca

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

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Up Close: with MJ Jefferson

February 21, 2025 • 10 mins

Introducing MJ Jefferson, Exectutive Producer and Creative Director of Stories of Vision Loss podcast.

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Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

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Brianna - Birds of a Feather

February 7, 2025 • 16 mins

Brianna "Nana" Hnilo shares her love of birds and animals, and tells us about being born with Fraser Syndrome. She also shares how she got into writing ghosts stories through her love of Braille.

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!

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David - Vision and Justice

January 24, 2025 • 16 mins

Judge David S. Tatel shares his RP journey throughout a lifetime of accomplishments. He served nearly 30 years on America's second highest court, the United States Court of Appeals for the D.C. Circuit, where many of our most crucial cases are resolved—or teed up for the Supreme Court. His story of fighting for justice over many decades, with and without eyesight, is an inspiration to us all - and the book he wrote about it is a ...

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Happy New Year

December 27, 2024 • 1 min

Happy New Year!

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

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Ashley - Static

December 6, 2024 • 42 mins

Ashley King shares her story of International travel, methanol poisoning, building her acting career, and producing a play with a companion podcast, Static: A Party Girl's Memoir.

Apple Podcast: Static - A Party Girl's Memoir
YouTube: Static

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!

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Prabath - Power of Heart

October 11, 2024 • 27 mins

Prabath Wickramanayake takes us through his RP journey growing up in Sri Lanka, going to school in New Zealand, and living in Australia. He encourages everyone to get out and do the things they love.

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!

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Sara - Blind Nomadness

August 30, 2024 • 35 mins

Sara shares her story of being a blind nomad traveling throughout the USA, her passion for astrology, reiki, and self improvement.

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/month

Record an Audio Message!

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Michael - Unstoppable Mindset

August 9, 2024 • 34 mins

Michael shares his experience growing up as a ham radio operator, studying physics at university, assisting with the development of Kurzweil's assistive tech devices, and escaping the twin towers on September 11th with his guide dog, Roselle.

Apple Podcast: Unstoppable Mindset

Stay connected and share your story: storiesofvisionloss@gmail.com

Check out a list of our guests: www.storiesofvisionloss.com/guests

Join Supporter's Club - $5/...

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Stories of Vision Loss

Episodes

.css-14f5ked{margin:0;word-break:break-word;display:-webkit-box;-webkit-box-orient:vertical;box-orient:vertical;-webkit-line-clamp:2;overflow:hidden;}Anne's Passing (1986-2025)

.css-r6mb8g{margin:0;word-break:break-word;display:-webkit-box;-webkit-box-orient:vertical;box-orient:vertical;-webkit-line-clamp:1;overflow:hidden;}Lisa - Pain is real, but so is hope

Jason - Farming Blind with Duck

Qusay's Passing (1988-2025)

Lisa - Celebrating the Nothing Moments

Nazanin - Without Labels, You're Just You

Mary Tyler Moore Vision Initiative

Debra - The Blind Kitchen

Steve - Blind Endeavors

Qusay - Can You Open My Eyes?

Jeanne - Good Eye, Bad Eye

Wayne - Deep Dive

Up Close: with MJ Jefferson

Brianna - Birds of a Feather

David - Vision and Justice

Happy New Year

Ashley - Static

Prabath - Power of Heart

Sara - Blind Nomadness

Michael - Unstoppable Mindset

Popular Podcasts

Anne's Passing (1986-2025)

Lisa - Pain is real, but so is hope