Ep. 1 - Talking Diabetes with Ce'Onna Meilani

Debut episode. Talking Diabetes with Ce'Onna Meilani

Episode Transcript

(00:00):
This is the FCB Radio Network,come of the best personalities and we are
real Tileste online at FCB radio dotcom. FCB Hello, Welcome to our

(00:31):
podcast, Talking Tadlers with Type oneDiabetes. I am your host, doctor
Dianna Handcock Johnson, where we discussall things tadlers with type one diabetes.
And today we have a special guestwho is my daughter, Cianna Milani Johnson,
who was diagnosed at just three yearsold with type one diabetes. Okay,

(01:04):
guys, so we are back andI'm gonna ask Sana some questions to
remind her for her to draw hermemory on what it was like the day
she got diagnosed. Um, ifyou're here, that means you already saw
the documentary where I explained what itwas like the day that she we found
out she was dive at it,and so you can go back and watch

(01:25):
that. If you haven't watched thatyet. While we're in the midst of
it, I might as well saywhat like comments, subscribe and put your
post notifications on so you don't missanother video from me, doctor Diana Life
Coach, or from Sianna Milani onher channel. Now, first question I
got for you, you ready.Do you remember being diagnosed because you were

(01:47):
a little small. Okay, Ionly remember when I was at Children's and
I got my shot shot my thingon my arm. Well, Children's,
I don't remember been putting that onyour money. So we've been to Children's
a couple of times. We've hadto go and rush Sianna to the emergency

(02:07):
room before, which is another storytime we'll share with you guys later,
And so we had to change hersupplies out that time we went. But
yeah, she vomited, which isthe reason why now listen to that,
Sianna. When you first got diagnosed, they didn't give you a pump and
all that stuff. You didn't haveit. You had needles. And since

(02:29):
you don't remember that day, I'mgonna tell you when we took you to
the hospital, you was not asafraid of needles. But then you all
of a sudden became afraid of needlesbecause it was almost from one needle for
a dock's appointment here and there,it's almost fifteen twenty thirty needles within the
span of the week that we wasthere, and it was so heartbreaking to

(02:50):
a point where I was like,please stop, bring us some numbing cream.
I don't want anybody else touching mybaby. I felt so helpless and
it was so painful to see mybaby goes through that because she was definitely
much younger. She was definitely muchyounger, and she just don't remember that
time. So go ahead and tellthem what you're gonna tell them. So

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I remember, like one thing,what I used to do. I used
to always say indolent, please,insulent please, but now I stopped doing
that. But now I'm not afraidof needles. Yes, because I got
my COVID shot right here and notears. Then the first time I didn't

(03:38):
cry, Emma, and I saidI had tears and Mom said, you,
I don't see a single tear.So forgive us if Sianna goes off
talking, because I was trying towork with her, remembering to stay focused
on where we are. But yes, so basically, she was in a
place where she was starting to becomeafraid of needles. She wasn't afraid of

(04:00):
first, and then we had thatday when we got went to the emergency
room and then went to the hospitalend up keeping us and so many needles
was in her at one time.And one of the things I don't I
don't like is that they were like, this is before I understood what this
was for her. Knowing that mydad was diabetic and he was going through
it. I understood some of it, but I didn't understand it to the
depth of what it was doing toher body and what she needed and her

(04:24):
body required. So they were saying, Oh, let her eat whatever she
want to eat, and we'll justgive her insolent. For me, I
was thinking, why we do that. It sounds like torture, Like we
should give her what she should eator she need to eat her body needs,
and not have to worry about pokingher so many times, not understanding
that she needed so much insulin thenbecause back then her pancreas was still working.

(04:46):
So I was in denial that thiswas even what was going on until
I got a second opinion and thenmonths later. I think it goes through
a honeymoon stage. It's what theycall it when your pancreas doesn't begin It
acts normal before while until it goesdownhill. One thing I did not share
in the video from the documentary isthat the day that we found out Sianna
was diabetic, her primary care doctorhad tested her through a p test and

(05:12):
he called me that morning to say, you need to bring her back in
and I'm like, you know what, I'm busy doing what I'm doing.
I was like, she's at daycare. I'll just bring her when I can
bring her. He's like, no, you need to bring her in.
We need to retest her to makesure the test is not wrong. And
so, come to find out,Sianna sugar in her pee was at five
hundred, which is now walking testimony. But back then, you know,

(05:36):
she could have been walking dead prettymuch. You know, it was really
high, and she was just likeyou see her now. And so I
was really in denial. And I'mso thankful that she is the child that
she is, because she's one personthat's been tackling this and being really strong.
Doing the process of this diagnosis hasbeen really more hard for me than

(05:57):
I think her, besides the factthat she's the one to get poked every
seven days and every ten days versusevery day she was getting poked in her
fingers. You remember getting poked inyour fingers, pricked in your fingers with
your finger pricker. Yeah, guys, we gotta do a video on the
type of finger pricker we use aswell. Do you remember getting poked in
your legs? But guys, Ithink we might start a diabetic channel so

(06:21):
all my diabetic stuff, guys cango on there. That's possible. We're
definitely gonna do our podcasts coming upsoon, but for now, we're just
going to be talking about it withyou guys here until we get to that
part of our journey on YouTube.Now. And guys, we might get
a finger channel. We're probably notdoing that, guys, but anyway they

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do. But we have so manychannels that we have separate that I don't
know it would be easier to doa family channel, but I do different
things on my channel that's related tomotivating others. I don't know. We
may think about it. I'm trytrying to see, um see on my
next question for you, I'm ready. Where are you going? I tell
you bring your water over here before? Just bring it? Do you water

(07:13):
bottle? Please? All right?So have a seat. Um, the
first time we went to the hospital, do you remember that? Remember that's
not when they had us change yourstuff out. Do you remember staying there
for a long time? Do youremember like meeting nurses and you drew that

(07:34):
picture that's over there. Yeah,I remember when I when I had to
do that little thing my tone,what thing on your toe? Remember that
right thing mad to put on mytoe? And I had to put like
stuff all over my head. Oh, they were putting stickers all over to
me on my chest, in myhead. They usually do that in cardio,

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So I can't remember why they wasdoing it. Then, Um,
I guess to make sure everything wasbeating correctly in all the right places if
I had to guess, but Ishould actually ask her into why would they
do that? What else do youremember from that time? I remember that
I had some fun stuff to do, Okay, some fun stuff like they

(08:20):
did their best to keep se ona calm outside of giving her needles.
They put stuff here on my onmy chest, my face, and they
put a little thing on my toelike a red thing but flashes. Yeah,
that I do remember. I thinkthey do that to baby's too when
they first come out as well.So yeah, they I think they had

(08:43):
a thing over my nose what helpsmay breathe and they can check how I
breathe things. Yes, okay,so I do remember, And one of
those stickers was probably to check howI sleep in how I moved, because
that's those cameras in there. Areyou sure that happened to you or did
you see that on YouTube or something? Okay, Okay, that's her experience

(09:05):
and her memory. I'm not goingto take that from her. But some
of that stuff, I'm thinking,do I remember all that? Because I
would listened, I was there,but mentally I was gone, guys.
And it took me a couple ofdays where I had to shake out of
my shake out of my shake outof my U you're messing me up,
mamma, stop shake out of mymental state where I was in a place

(09:33):
of shock and denial. And whenI finally woke up, I was like,
Okay, what do I need toknow? Let me know, because
I got to get out of here. I'm losing my mind in here.
Every doctor's coming in. There wasso many doctors and nurses and psychologists and
social workers and everybody coming in theroom. Oh, welcome to me,
you know, the diabetes family andDA da da DA, And I'm like,
welcome. That's like an understatement forhow I really feel, you know

(09:54):
what I mean? Like I wasnowhere near feeling that welcome I was like,
I didn't want to be in thisjourney, and you know this,
I don't even believe Siana please thatyou didn't know how the pump. We're
gonna do a whole video on yourpump. It was making noise, guys,

(10:15):
so I had to grab it.But then Sianna took the opportunity to
really want to show it off.We got so many videos for you guys
coming that Sianna has to remember tojust stay calm and let us do one
thing at a time and said theywere answering all your initial questions on all
my initie questions for other people.I want to share this with other people,
guys, I do have a questionform like well wait one secon let

(10:37):
me finish tell them so you know, they said, you know, we
didn't. No one asked to bein this journey, but they become a
part of it. And that kindof hit home for me and registered for
a while, and then I startedto get myself together. But it wasn't
until weeks afterwards that I started toadjust. And it took me almost a
year before I could even talk abouther diagnosis without crying. It was just

(10:58):
really really bad and not it wasn'tlike an experience that you whatever thing happened
to you. You know, Inever even thought, stop, mamma,
you're gonna mess you hear him.I never even thought that you could.
Um kids could get diagnosed. Andonce she was diagnosed, I started seeing
more kids and hearing about it andrealizing that it was more normal than we

(11:20):
think. Um So it was stilla shocker. But okay, So see
Ona, what did you like aboutyour visit at the hospital and what did
you hate about it? I hategive me needles, but I love that
get to do some stuff, andit was fun. I get d you
get to drunk. So they tookSeana out of the room and let her

(11:43):
paint. They did a very goodjob keeping her and together, stuff like
cold stuff around my body and stuff, but it was very fun for her.
It ended up being fun. Wewere there for almost a week and
day, no, almost a week, and it was a journey, but

(12:05):
they did the best after getting pastthe initial stages of pricking her in her
fingers that was every two hours,and then her legs was pricked anytime she
wanted to eat something. And Siannais not an eater that eats on the
schedule she used to, but nowit's more like a freelance eater. I
guess they say free eater. Shewant my puppies the same way, but

(12:26):
she she eats all day sometimes andsnacking. She's a snacker. So with
that said, needles are going intoher body all the time. So it
was so good that she did gether instant pump because she finally got a
proof of that within three or fourmonths. And I ended up buying a
desk coom out of my pocket atCostco in the order for me to get

(12:48):
her started at least with her phone. So that was that. But I
couldn't wait, and it's very expensive, but you still need a doctor's prescription.
So anybody who's thinking about doing that? So what do you like about
being diagnosed as type one? Isthere anything you like? I like that
a diabetic and it's fun because wait, like sometimes when I go low,

(13:13):
I get chocolate and candy. Yeah, that's her choice to get that start
off. We do appe juice too, but she prefers that if it works
quick. I like the sweet appdue, not the McDonald Appijude. Oh now
you don't like the McDonalds apporjuice anymore. So I bought some sweet, some
expensive appejude. So now you don'tlike the mcdonals. You love the mcdonals.

(13:35):
Appe dude, you don got no, you can't, Okay. Is
there anything you hate about being diagnosistype one? Well? I hate when
I go high because then I can'teat anything. And I hate when I
go very low and very high becausethen and I go very high, I
can die, and they go verylow, I can die. Yeah,

(13:56):
sorry, that is right. Thatis so right. You understand that.
That's good. You understand that whenon that media, then eat whatever I
want. And when your numbers aregood numbers? Do you know what your
numbers are when they're when they're ina good place, when they're gray,
Yeah, they need like like agood place. Can you give us a
number for example, like one five, one five zero maybe or one uh

(14:24):
five? Those are good places forSianna's learning her numbing to like three zero
zero zero. Well know, assoon as you get the three hundreds,
you're high, and sometimes that happensbecause it's like seven to six. Yes,
she got it, guys. Sowe've teaching her her numbers on her
pump through punching numbers into the microwavethrough learning her cards, cards and everything.

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No, because your double arrow's goingdown, that just means you didn't
eat up all your chicken like you'resupposed to, so you're not low enough.
So sometimes Sianna goes up been downas a snacker, that's what happens.
Or she gets into the cabinet andgrab something that I did not approve
of. Or I'm in the roomworking in my office and she got food
I get insulin for like chocolate everythingand but nanas a salad because I realized,

(15:18):
guys, when my mom made likea fruit salad. I tried it
and Nick was busy. Yes,so she started And that's another thing we're
going to talk about foods in thefuture too, guys. Because she I'm
trying to get her to vegan.Sit back then, I'm trying to get
her through the vegan stage where Iam and eating more salad, saying green
vegetables. She got away from alot of that stuff as she got older

(15:41):
and started picking her own stuff andher own food. But as I was
saying, when you're a picky eater, your numbers can go up and down
a lot because of the fact thatsometimes Siana grabs something that nobody knew.
But as the rule is no insulin, no what, no inflant, no
food, that's it. That's allmantos. So first of all, if
you don't get insolent, you candie. Second of all, if you

(16:04):
don't get insulince, then no food. Second of all, insulin is important.
If you don't have insulin, youcan either die or either not eating
anything. M. So what doyou like about wearing a pump versus the

(16:26):
needles? You like which one better? Um? Pump? M. We
do have pump issue sometime where it'sbeing pools like this, and then we
didn't know, like we had thisissue the other day where it was used
here. So Sianna wasn't getting anyinsulin and that caused her to have keytones
and her peep, which is anothersubty. This is so many things to

(16:49):
this level. So I hope thatshe vomited. I hope that people UM
that are watching us is not onlyjust diabetics, but everybody who knows somebody
that's diabetic. Everybody knows somebody's dibetedbasically, But we're trying to help other
people understand the journey that was justdiagnosed, or those that have been diagnosed

(17:12):
for a while but didn't know whatto do for this situation or that situation.
Because when Siana was diagnosed, Idid not do everything that the doctor
said because I pray first, Iread upon everything, I researched everything.
I just wasn't putting anything into herbody. And I can tell you what
I did from my child worked forme based on where my higher power led

(17:34):
me. But I can't say that'ssomething everybody should do when they first diagnosed.
So it's a special thing that youhave to really know more what your
kid needs and what your kid don'tneed. And I believe every parent knows
that. Nobody can tell you that. But with her, it was the
thing for me where I was like, I know my child and I need

(17:57):
to be better care for at whatI put in her body. Um,
there's no one else that's going tobe able to do that beside me at
the time. So next thing,Mama, what do you already tell them?
Okay? I wanted to tell youguys, God, I love sessed
with being diabetic. You're obsessed withit? Are you sure? Because you

(18:21):
know you're not happy about your stuffon your butt? All the time.
But um, guys, I metone friend who's diabetic. Yes, it's
been amazing for us too. Shegot her thing on her arm. Did
she have a painting? No,she didn't. She has a different device
than the desk calm. So Wronkotells them, why did you like?

(18:47):
How did you get to have aphone? I got a phone because,
um, I got two phones.The other phone. The first phone was
CJ's, which is my brother there. The second one is my not my
diabetic phone because they switched it upcamera versus. But if you wasn't diabetic,

(19:11):
you know you wouldn't have a phone, right, And guys, I
can do cool stuff. Okay,wait, mama, this is not about
all the cool stuff or your phone. So what happens if you don't have
your phone? If I don't havemy phone? That if I don't have
my phone, it won't pop upmy numbers, and I have to keep

(19:34):
my phone next to me for thirtyminutes and maybe less because sometimes I'll pick
up within five second. Skies,But excuse me, Siana is all for
her numbers sometimes. Okay, Idon't know. I'm just doing it from
right now. Are you happy thatwe did the Pocket Underwear Company, because

(19:55):
if it wasn't for you, wewouldn't have the Pocket Underwear Company. And
it's made because of you, andyou're going to be the face of the
company, the owner of the company. Are you happy we did that?
Why? Why did we have thePocket Underwear Company? We had the pocket
of we have we have the PocketUnderwear Company because they make pocket underwears for

(20:21):
other kids. So if kids don'twant to wear underwears, they don't have
to. They they can play.If they don't want to wear underwear,
don't wear underwear. Explain that again. If no honey wants to wear this
which is a spy belt, guys, and right now it's the only thing
on the market that holds an insulinpump for If you don't don't want this

(20:45):
thing for all that better because youdon't want a spy belt, unstrap it,
put it down and get the pocketunderwears because it has the pocket,
it can go. It's side thisside, this side, this side.
How are you back? And what'syour favorite out the pocket underwear? Um?
I like the front me too,It's pretty, don't I don't lay

(21:08):
on my front, I only layon my back on my side. Yeah.
Basically Siana saying that you know,we created the pocket underwear to help
other diabetic families and other kids,and to help change lives for everybody who
is um diabetic and it's insolent pronetwenty for seven and wants to wear their
pump in private until they feel comfortable, comfortable to just to share that to

(21:33):
anybody else. Yes, mama,few um so I think they hurt you
because the microphone is right here.Okay, Oh I don't the most secret,
Well, you didn't be quiet enough. So basically it's all the only

(21:53):
option we have to provide people withthe confort I mean some people say that
they don't even like to share withothers or not ready, just like that
whole first year when Sianna was diagnosedand I wasn't ready to share, but
I noticed there was nothing on themarket like this, and I'm like,
you gotta be kidding me. Sheasked the word this twenty four seven and
in public. So we've had peoplewho will mistake your pump for what because

(22:18):
like people think it's a sanny pack. Then I went to your children and
we was walking down the hallway.The girl said, I like your fanny
pack right, and at the doctor'soffice, the girl said that. To
the nurse who took you in theback, she said the same thing.
They think it's something with lipstick andsomething something she might carry as a taller,

(22:44):
but they don't realize it is medicineto save your life. And that's
just people to not knowing more aboutthis lifestyle. And that's why we're here
to share with others. Right,excuse me? Okay, So the last
few questions, Sianna, what wouldyou tell other kids who just went to
the hospital and got diagnosed. Iwould tell them you always get insulin when

(23:08):
you eat stuff. If you don'tget insolent, then you can't do anything.
You can't eat, you would gohigh and die. What about Okay,
So if it might not be yourfault, if your thing has a
crack, it can be the pumpsflat or your parents fault if they don't

(23:34):
realize it. There's good points there. But it's a good point if you
ever see a crack, tell yourparents. Because when I was diabetic,
wait, you're still diabetic. WhenI was over there the other side of
the table eating, I was havingmy breakfast and I realized that there was

(23:59):
a crack here. But I didn'ttell my parents, and that becomes bad.
If you don't tell me stuff likewhat you eat, what you see,
anything that's gonna affect your health isbad. So what would you tell
kids to not do that? Right? Yeah? And the first time my
dad gave me the pasta and itmade me sick. The second time,
Um, the pump did the fault, So probably did. Third time.

(24:22):
It's not hope it is not gonnabe no one my fault the third time
is what she's trying to say.Probably the third time. Let's hope there's
not a third time. Watch yourmama, they can't see me. Um
what an apple? Sad um?One of the favorite things I like is
Carmel Apple can make her own.We all talk about on another video,

(24:45):
guys, what she likes to eat, because you know, if your diabetic,
you're definitely probably picky on certain thingsthat you like that you don't like.
Taste buzzs are different. My mom, she is going to be Um,
we're going to make a video abouther her vegan stuff. We're going

(25:06):
to be you know, in herVegian stuff. Yeah, Siana don't like
most of my vegan stuff. ButI don't like. We'll get her.
I'm not eating the vegan egg Youdon't eat Reglar eggs, So that's why
you don't like vegan eggs. Yeah. And I don't eat vegan bacon,
vegans salt fruit. Yeah. Andguys, one of my favorite things is

(25:34):
sugar. But guys, sugar,you know you gotta say, what are
you talking about sugar? You can'ttell people who are diabetic that you like
sugar, because sugar is not goodfor people who dibetic. Well, tell
us what you meant you like sugarfor something. What are you saying?
Maybe sprinkled on your strawberries, that'swhat you mean, instead of saying you
just like sugar. That's not agood thing to share with people. Okay,

(25:57):
but guys, I wouldn't talk.You know what I need? Like
one of my favorite things is start. I need some You know why I
need serve us because they got ourdogs, Cooper and Chance. They're kind
of started. They had a frappuccino. You just think all these people are
starting the channel. I hope you'regonna sit there and addit everything, all

(26:19):
right, sit back, See you'repulling on this as well. Let's put
this up so it's a hard thing. Okay, can you start waving a
hand to me, because that's notgonna work with me. We're in the
middle of film in a video.Please cut all that out, all right?
What I'm asking you? The lastthing we were saying, people who

(26:40):
are just going to the hospital andgetting diagnosed, Sianma, what would you
tell them? Those are the peoplewho are scared. Those are people who
are going to go in, don'tknow that they're gonna get all these needles.
What would you tell them? I'lltell them don't be scared, because
when I first there, I wasscared. But since I got all these
cold things and I get to drawa picture, it was so fun.

(27:03):
I even get to watch TV inbed. Yeah she did. But the
worst part about it is that,well you can't see your friends. That
when you feel better, you cansee your friends, or they can just
come visit you as doctors. Yes, true, that's a good point.
Now what about people who already beendiagnosed like you? Do you have any

(27:26):
good advice for them? Anything youwant to share about your experience to help
them get through it. And guys, you couldn't go low or high.
And if you want, like youcan go low if you run around the
home to her house like I do, and I'm when she wants to really

(27:48):
get something and I'm like, no, you're too high. She'll run and
emphasise as much as like lightning flashthrough the house just to get her numbers
to come down. But that's nolonger working as much because she's getting older.
But before when she first was diagnosed, oh my gosh, she was
all through thous because she was stilla much smaller tallers. I can get
something very fast and one we done, yeah, not related to doctetes.

(28:19):
And your number didn't go down becauseyou went that fast. So your numbers
okay. So that's basically it.So you're also telling people not to be
scared and you're not telling them,and you're telling them not to worry.
All right, last words, becausewe're gonna get done and we're gonna sign
out. So guys, I justwanted to say, be sad. Well,

(28:48):
guys, that's all we have today on talking talkers were type one
diabetes. I think you call fortuning in. I think you all for
the support. I think you callfor the love and we look forward to
hearing from you guys and seeing youin the next episode. The FCB Radio

(29:12):
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