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May 31, 2022 22 mins
Diabetes is something that has hit the African-American community hard but even harder with our toddlers. We are finding that more and more toddlers are being diagnosed with Type 1 Diabetes, faster than we can find additional diabetic knowledge and supplies to support them.
In this week’s episode, I will be joined with my 6-year-old daughter Ce’Onna Meilani who is a Type 1 Diabetic and was diagnosed at just 3 years old. In light of it being Valentines Day we will be working together coloring some valentine’s day items for our bonding time while also discussing what she remembers about being diagnosed and how she feels she is adjusted; she will also share her tips for other little kids on what they should do or how they should handle their diagnosis during the painful times she has experience while dealing with her own diagnosis.
This two-part series is going to really open your eyes to what a toddler goes through as it comes straight from a toddler going through the pain on a daily basis. ​

To learn more about Ce’Onna Meilani Johnson, you can follow her here​
https://www.instagram.com/ceonnameilani/?hl=en
https://www.youtube.com/c/CeOnnaMeilani​

If you like to learn more about Dr. Dionna, you can follow her here​
https://drdionna.com​
https://www.instagram.com/drdionnalifecoach​
https://www.youtube.com/drdionnalifecoach​

You can also purchase her two bestselling books titled​
Be Your Own Life Coach: How to Life Coach Yourself Into What You Want here
https://drdionna.com/product/be-your-own-life-coach/​

Where Did My Half Brother Come From here https://drdionna.com/product/be-your-own-life-
coach/
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Transcript

Episode Transcript

Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
This. It's the FCB Radio Network, comb of the best personalities and we're
a real time left see funline atFCB Radio dot com FCP. So,

(00:27):
basically, guys, we didn't haveanybody to take care of Seanna. She
had to come home for a fewyears, and I just decided to give
up everything I was on. Isaid, if anybody's gonna have my baby's
best interest is her mama. Ineed to learn everything. I need to
do what I gotta do. Ineed to make sure she stays a lot.
Forget everybody else, Forget people whoare not there to want to learn.
It's my baby, and at theend of the day, my responsibility

(00:48):
is her and her life depends onme, and so I'll make sure that
she gets whatever she needs to getdone and we'll worry about school later.
So then I have to transition mylife to take care of her full time
from work and stuff. And Iretired from my teaching position after twenty two
years of teaching and being in thatfield just to be sure she was going

(01:11):
to get the care and love sheneeded, because it was a hard process
to see your baby go through stufflike that at such a young age.
All Right, I'm done purple.And so for me, ah, you're
trying to copy your mom up.Ha ha ha ha. You're gonna beat
me. You're gonna beat me becauseI ain't moving that fast. I'm love

(01:33):
to do this. What So itwas a process and so basically I want
to see on her to tell youguys that she had to be home full
time with me. And at thetime, CJ was already whole school.
So I ended up having two kidsat home full time, going from my
life of having some kind of speakpeace in space, speace, how's a
good piece and space guys, Okay, having some kind of peace in space

(01:57):
to having her home full time withCJ. So that right there was a
huge adjustment, guys, like tonot have the mental capacity to do this
all day and now you have todo it all day. Because at first,
when they first told that she neededto get a needle, I was
like, oh, I'm not theone to do that. I'm not giving
my baby no needles and stuff likethat, Like why would they even think
that I would do something like that, you know, like that's just I'm

(02:19):
not putting I don't feel like theother want to do well. You definitely
gonna. Oh, you're not sayingyour time doing your as you already took
your time doing the other one,so you like kind of over it.
Okay, I'm missing a part youand use none of these pretty colors.

(02:46):
I'm getting down some of the aaunchin the purple. I'm really taking the
serious guys, I'm not playing Okay, Yeah, you too too close?
Girl, move going zone. Okay. So that was one change for us
that we had to get used to. Then there was like providing food and
care every day all day was alot, you know, And then she
eventually had to go to school likereal school. And when she got into

(03:08):
real school, that was another adjustment. So one of our next episodes were
going to talk about what the sleeproutine is like and what I do all
night to stay up to hear herphone or just my process for that,
and just sharing with you guys,just that and seeing if it's anything you
guys can tell me that I don'tknow as another parent, or if I

(03:29):
can answer any questions of how Ihandle things. As I said, I
think in the other video, whenSantia got first diagnosed, I did do
everything that they said to do.I felt like what was best for my
child was taking it slow and learningwhat I needed to do for her health.
A lot of things they wanted togive her I felt like was not
good for her body, and Ifelt like it was just something that she

(03:53):
really didn't meet. And again Iwas in that little bit of denial because
her body was still active, fine, her pancres was still working good.
She walked into the hospital that daywith her sugar over five hundred guys,
which is really really bad. Butshe was just like you see her now
and even more preppy and excited andhype. And I was scared on the

(04:14):
way to the hospital, like,please don't those sleepers are both sleep because
I don't know what's going to happen, which nobody never told me if something's
gonna happen if she falls asleep.But because I was still not sure,
I didn't sleep. Who you're thinkingyou could die or something, or go
into a coma. I didn't knowcommas when you are knocked out and you
can't hear or see your family,and then you forget some No, that's

(04:34):
the other thing that we were talkingabout. It's not forgetting well. When
you're on the coma, baby,you don't talk for your sleep and you
just don't hear him sleep. Butsome people can hit nine one one.
Yeah. When we watched My ownone, Yep, there we go just
like on there when people are inthe hospital and they can't hear the stuff.
I love with that boy we werewatching the guy that was like that,

(05:00):
all right, So that was thatguys on that situation. I mean,
we're gonna have so many more storiesto share about this process, and
as we grow, we're gonna sharemore stories as well. Um, we
want you guys to like, comeand subscribe, hit that post notification so
that you don't miss all the videofrom us, and also let us know
if there's anything we can share withyou guys that we have not shared about
the situation about how we've adjusted.Um, what are some other good things

(05:26):
to share with them now that weadjusted to We did we talked them about
daycare. You tell them what wasgood to eat? It wasn't good to
eat. I think a lot ofmeat and this is from Seanna's perspective what's
good to eat and not eat?Guy's not from minds, But I think
a lot of meat is okay becausethere's no carbs as long as it's not
fried and cheese. How are youtalking about teachers? Miss Kaya? I

(05:51):
have that other girl Forgardens Seas Interview, and I have miscare this carries your
current teacher, the teachers that youhad in Utah. Miss Gene is really
as you're a teacher, Miss Carrie. Mommy sent her one of my books
because she asked for for her class. When we're gonna read that, Yeah,

(06:14):
we can when we go see somebody, We're going a tour. We're
gonna do a tour one day whenwe visit people and show them, you
know, who you are in personand everything you got going on, because
people always want to meet you.I don't know how to fix this little
corn on let's sleep here, Okay, So I'm sorry, y'all. I
was really into that. Look atthat, Look how mine's coming at baby?

(06:34):
So what else can we share?Like I think we can share my
about your we can share my sleeping, well, how she sleeps, So
let's talk about how you sleep.We're talking about I want to talk to
them about. We're gonna do awhole video on what we do at night.
We're gonna do a nineteen routine andanna morning. Yeah, we're gonna

(06:57):
just talk about it, though Idon't have to really sit down. I
forgot White was right here. Wedon't have to do a video showing that
we can just sit down and talkto him about it. So I'm trying
to figure out what color I'm missing, guys, the black Jake and work.
I think for the most part that'sif it is video. I mean,
is there anything else we can tellthem seeing about your process? Like
how are you do you deal withbeing diabetic? How do you deal with

(07:23):
being diabetic? Like you remember whenwe went to the doctors and a girl
It's like, oh, is thata fanny pack? What's in If you
don't know that this is a diabeticthing, that your pump is for insulin,
or that your spy belt, whichis what people think is a fanny
pack is for insulin, show themNew York. It's kind of dark,

(07:48):
all right. I gotta turn thisaround, Guys. I touched the red
and it's like, oh, messingme is so what how goes after this?
Guys? Is on another video andsee Alma's trying to be slick and
get her so far before we getthere. Okay, she's just trying to
be slicky slicky, schlicky, shlicky. I really want to do some more

(08:11):
show. I'm gonna let this dry. You want to do the other one
for me? Yeah? All right? Look at this? Can you get
so? Look at this? Guy? O? Why does this beautiful?
That little part right there that youthink it's not? It's brown baby?
Okay, all right, let's putthis here. That's just my or you
want us to do it together?Favorite color. I'll look at see on

(08:33):
us the other one. I wishwe could flip them over and do it,
but you can't. That's not bad. She try to copy your mama.
Though, you try to copy yourmama. You try that. Okay,
now come on, I want todo that together. Yeah. Well,
let's do someone with this. Wait, let's do it different sides.
You can do this side, now, I do this side perfect, let's

(08:56):
do it. Oh, So,what did you want to tell the lady
when she asked you about your artum fanny pack that she thought was a
fanny pack and my hat? ThenI want to tell her, but she
got a run. Yeah it salewas like mom that like ask me about
my my own insolent pump. AndI wanted to tell her, girl,
it is insolent to save my life. I thought that was so hilarious.

(09:22):
Did you start craping up? Idid crack up the shoe. Okay,
so this is not coming out tobe the best or right now. To
see it's got the little lines init, because that's the way to see
it. So we're gonna fix thatout. I want to use these colors,
well them all right, So let'smake this. I gotta fix this
purple dough because I messed it uplife. Adjusting to being a diabetic was

(09:43):
really hard. I remember Matt beingable to get out the big guys the
first day coming home. After thatat the hospital almost a week being at
the hospital. When you're a diagnosed, make sure you do that on yourself,
it's okay. It was such aOh that's pretty, that's all.
Don't go too far up though,mama. So I remember, like when
you at the hospital, guys,you see so many people, therapists,

(10:05):
like colleges, all kinds of people. They want to make sure you got
all the training down, paw.They want to make sure there's no other
issues at honey. Want to makesure the kid is going to be safe
at home. The kids all theyneed your favorite colors blue. All they
need to be taking care of whenthey leave the hospital out of their hands.
They just want to make sure thatthe kid is in great hands.
Now that this diagnosis has been inplace. It was just a whirlwind of
people that I remember just going crazyand like physically being there but mentally out

(10:28):
of it. And I just rememberso many people coming in a room to
while I was like, oh mygod, oh my god, this is
too much, this is too much. But I got through it and I
was okay with it. You didn'trent that enough. Who are you making
the rod? Oh? Girl,that's it. That's your side right there.
So you should have took a slowOh that's a great color right there.

(10:50):
So you know, with being inthe hospital that long and coming home
and I'm like, okay, Igot this second diagnosis even at the beginning,
almost a week talking to everybody,talking to several doctors, getting do
agnosis, triple diagnosis, while wileof there from other people. We came
home and Sianna's like, yep,you're doing good with your reading, girl.

(11:13):
And Sianna came home it was like, um, the next one,
Mom, you gotta get up.I'm hungry and I was so depressed,
you guys and so have the hardesttime getting on the bed. One.
Yes, Um, it's so amazing. Yeah, you've done a good jobs

(11:33):
that uncle. You got one ofyour mouth. Slow slow down, slow
down, slow down. So guys, basically you know, she got me
out the bed. I'm like,she is so amazing, so strong.
So I mean, she was soyoung and she was just really taking this
thing on as if like it wasnothing. I was the one more going

(11:54):
through it. My husband was goingthrough it. But Sianna bounces from the
situation as if it was not.That's why I know she's so special.
I know that if somebody was supposedto be diagnosed with this, I guess
it was her. Even though youdon't want her to have any diagnosis or
anything. It could be worse,it could be other things. But she's
going to be a great advocate forother people. She's going to be really

(12:15):
showing people that diabetes can look likeanything and still be happy and healthy.
She's gonna really, you know,hit the mark with really just kind of
being profound with who she is andbeing confident in who she is and what
she has. One is because she'sbeen dealing with it from being so young,
and you know, I didn't evenknow this was something that you could
go through, like it's a commonthing that I really didn't think kids went

(12:37):
through. I didn't think kids wentthrough this type of stuff, you know,
because I think I told you guysbefore my dad was diabetic and I
didn't know how to take that andevery thing was audible, so I can
paint those her name either thinks everdid she go getting guys talking about eating
paint? Okay? No, ma'am, No, ma'am. Do you want
to go to hospital? Do youlove your life? That has been amazing

(13:01):
adjustment for her, And I can'tsay it's not hard, because at times
is really hard. Um. Havingthe process of putting on a new insulin
pump needle every three days and thenhaving put on a desk com needle every
seven to ten days, it's beenreally hard for her and um, so
you know, it hasn't been aneasy thing for her physically, but she

(13:22):
has dealt with it really great mentally, which is why she's going to be
a great role model for other peopleback how who is going through the same
thing. And so we're looking toshare that with more people and so you
can hear it, hear more aboutthis on our podcast, So watch our
YouTube channel, follow us like calmand subscribe. That's gonna be it no

(13:46):
more today. You're not even gettinganything sweets today. That's it. So
yes, I'm glad because like you'reread it up, be done. I
need another white So anyway, guys, So basically, for the most part,
she was the one who got meout of the bed the next day
to help me feel more comfortable.And I remember the week before she was
diagnos who went to the hospital,who went to the store, and Siana

(14:07):
was like, can I get this? Can I get that? And she
was really at a place where itwas like you already didn't chare as much
of what she got from the store. But when we went to the same
grocery store after we left the hospitaland was, you know, now coming
home to adjust to this, shewas like, well, Mom, I
want some chocolate, but you know, you gotta give me a needle first.

(14:28):
And at first it was like morein public, we were talking about
needles instead of saying exactly what thingswere, and that was really hard.
Some choco, but then you didn'tknow what going down meant, like you
never knew that. It was likewe were at we'll tell you guys this
another time, but we were ata birthday party. We Sianna finally realized
what it was meant to be goinglow and she expressed that to me.

(14:50):
But for now, who went tothe store and she was like, you
gotta give me a needle? Andthat was like really new for people to
find out or new for people tooare in public because don't nobody walk around
and say, hey, you gottagive me a needle. That's that just
don't happen, right, guys,it just don't happen. So her saying
it at a young age, theyprobably thought I was abusing her. They

(15:11):
probably thought she was crazy. Theyprobably thought a whole bunch of stuff.
And in Moms, if you everdealt with anything like this, please comment
down below and shell share with me. What was the terms that you guys
first started out using. Because wewould talk about not talking about it in
public. That was our thing becauseI wasn't ready and I could break down
and cry any second when somebody saidsomething about being diabetic, somebody said something

(15:31):
about her diabetes, somebody said somethingabout or just in general, just knowing
what she was going through, orwhat's wrong with her? What's in her?
What's what's in her? Little fannyfact? That would have made me
cry. That would have made mecry, guys, because it was more
of I just wasn't ready. Tookme a whole year before I can talk
about it to another parent without crime. A lot of people didn't know,

(15:52):
and I'll circle besides all close immediatefamily, it was just not something to
talk about. And now we're ina place where we are able to talk
about it with other people and justkind of share. You know, guys,
that it's been really a blessing tobe able to help other people,
to help change their lives, toshare with them what we have been dealing

(16:12):
with, and seeing who else hasbeen dealing with similar things. We've met
people at the park. Shout outto Patty and her baby. Um,
the lady we met at the parkwith her daughter who's diabetic that I was
screaming. I was like, ohmy god, Oh my god, where's
your mom. I could see thatshe had a death comb on her arm,
and guys, I was freaking out. I hadn't seen nobody else like
that in that situation. Look look, and I was like where freaked out.

(16:37):
I was so happy to have metmet them goys. They I've been
so great and they know other people. They followed the pocket underwhere and they
are great people that know other peoplein the same situation. So We're gonna
hook up and do something big withthem, and maybe I can have Patty
on the podcast to talk about herexperience, because she has a little son,

(16:57):
and when I've seen her, Iwas like, my god, how
can you have another kid after having, you know, going through this with
your daughter who was nine, who'sdiabetic. In my head, I was
like, I know, I can't. I'm like losing it. I can't
talking about her though. Oh thelittle girl, yep. And so I
was just like, oh, mygod, like and then the little boy
was running from her the park andI was just like, oh, I'm

(17:18):
so glad them days are old botherbecause I remember CJ just going all over
the place just running from you.Well, you know, I'm getting ready
to tell them that. So thenguys, months later, someone's pregnant and
now I gotta deal with the samething, right, So we need to
have a podcast and a video talkingabout episode talking about basically just what it's

(17:42):
been like to deal with the emotionsof having another kid after having one that's
died, that's diabetic or been diagnosisdibetic. So anybody else that have any
other things that they want to sayor share about this, So anybody else
that's a mom that has another kidto guys, you know, the scariest
thing I've seen before is when therewas two young kids in the family diagnosed

(18:04):
as Type one. I can't evenimagine. So it's worse things that people
are going through. Always somebody's goingthrough something worse to you. Maybe it
would be easier for Sianna have someoneto relate to. But at the same
time, headache away please me.Yeah, if you had a brother or
sister that was in the same situation, yeah, and that headache. Because

(18:27):
I'm hoping Sianna has some other friendsand her best friend turns out to be
diabet just so that she can havesomeone to really relate to. Because for
a while she would ask me aboutme being diabetic and stuff itself. I
would always just agree. I wouldsee she forgot that she used to ask
me that, So I would alwaysjust agree and say yeah, you know,
because she couldn't relate to understand it, but I want her to relate

(18:47):
to someone else. I was Mommywas helping you get through with my MoMA,
And that was another thing for mementally, Guys. I didn't know
how to answer those questions when shewould say, well, Mom, when
you were DiBEG, did you dothis? And Mom when you're dada da,
And I was like, yeah,no, just the right thing to
say to make it better for her, guys. And that's y'all. It

(19:11):
was hurting me so bad to beable to do that my baby and like
not be able to have someone shecan relate to. But yet, besides
me, I knew I was allthat she could really relate to. Like,
I was doing everything to make sureshe got whatever she needed, whether
it was comfort, whether it wasquestions answered, whatever it was, Guys,
I was committed to giving it toher and I'm still on today.
But I never wondered about having anotherkid. I never wondered about this.

(19:33):
But when I see people who havekids that are two kids in the home,
they're Type one, or they haveanother kid after their kid that's been
diagnosed, what is the mental adjustmentto that and what is it like for
you to make the decision to acceptanother kid. And so now that I'm

(19:53):
in this situation, guys, Ican now relate a little bit. But
I would love to hear from momson what they do when they do adjust
after having a kid that signess anddidn't having another kid after that. That
would really be helpful. Guys,follow our podcasts. I'm diabetic, No,
a girl gotta go move on andtry to edit. Igot about that.

(20:15):
I'm gonna do well when you didn'tfocus. So let mot me do
this. Okay, you me out. No, I'm taking over. Let
me do the let me do theokay. So, guys, that's one
other thing that we was dealing with. UM. As far as meeting other
people, well, there's not alot of people in the area we live
at that has this, Like justlike when she got diagnosed, everybody was

(20:37):
so confused about it, like whatdoes that. No, we don't have
nurses in the school system, andno, we can't help. We don't
have no nurse on staff. Alot of a lot of daycares do not
have nurses on staff and stuff likethat. So it was really a hard
process for everything. UM that's gonnabe inf of this video because Sianna keeps
stopping me. She's not paying attention. And I'm almost on with this,

(21:00):
guys, and I'm gonna take apicture afterwards to show you guys, so
bad we can keep moving this pasther capacity of how long she can really
focus anyway, in the middle ofa video. She's done good for this
long time, so I'm gonna letit go at this point. Catch up
with y'all in the next video.Anyway. I think y'all for tuning in.
I think y'all are just being patientwith us as we get this story,
y'all, as we're sharing everything aboutour journey. We got so much

(21:22):
to share with you, guys.We got a video coming shown to showing
you guys how she puts things onher backside. We got a video coming
to you guys that is going totalk about how we are going to use
the one touch. You can't reallysee it. We're moving switching things over
from the current pricker. We haveto the fingerpriker, the one to one
touch video reflect So for now,that's it, and you got your face

(21:47):
cover. We all bagcuty. Yeah, gonna stop the video, thank you.
Oh yeah, I'll do tell themabout something else. Let's show them
like the end results of these.So this one is the one I'm still
working on, this is the onecreated, and this is the one I

(22:08):
did that looks amazing. They didn'teven have to turn the lights because now
that it's demming outside that you cansee better, and it's to see Ona's
original one she did, so wekind of did this good, all right.
So that's it. Love you well, guys. That's all we have

(22:29):
today on Talking Talkers with Type oneDiabetes. I think you all for tuning
in. I thank you all forthe support, I think you all for
the love, and we look forwardto hearing from you guys and seeing you
in the next episode. The FCBRadium Network first class broadcasting worldwide
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