July 11, 2022 • 19 mins
Diabetes is something that has hit the African-American community hard but even harder with our
toddlers. We are finding that more and more toddlers are being diagnosed with Type 1 Diabetes,
faster than we can find additional diabetic knowledge and supplies to support them.
In this week’s episode, I will be sharing my thoughts as a mom of a 3-year-old toddler who was
diagnosed with Type 1 Diabetes. We will be discussing my struggles of being a mom to a Type 1
Toddler. What I go through as struggles on a daily and weekly basis, as well as on a long-time
basis….will all be shared in this two-part series.
To learn more about Ce’Onna Meilani Johnson, you can follow her here
https://www.instagram.com/ceonnameilani/?hl=en
https://www.youtube.com/c/CeOnnaMeilani
If you like to learn more about Dr. Dionna, you can follow her here
https://drdionna.com
https://www.instagram.com/drdionnalifecoach
https://www.youtube.com/drdionnalifecoach
You can also purchase her two bestselling books titled
Be Your Own Life Coach: How to Life Coach Yourself Into What You Want here
https://drdionna.com/product/be-your-own-life-coach/
Where Did My Half Brother Come From here https://drdionna.com/product/be-your-own-life-
coach/
toddlers. We are finding that more and more toddlers are being diagnosed with Type 1 Diabetes,
faster than we can find additional diabetic knowledge and supplies to support them.
In this week’s episode, I will be sharing my thoughts as a mom of a 3-year-old toddler who was
diagnosed with Type 1 Diabetes. We will be discussing my struggles of being a mom to a Type 1
Toddler. What I go through as struggles on a daily and weekly basis, as well as on a long-time
basis….will all be shared in this two-part series.
To learn more about Ce’Onna Meilani Johnson, you can follow her here
https://www.instagram.com/ceonnameilani/?hl=en
https://www.youtube.com/c/CeOnnaMeilani
If you like to learn more about Dr. Dionna, you can follow her here
https://drdionna.com
https://www.instagram.com/drdionnalifecoach
https://www.youtube.com/drdionnalifecoach
You can also purchase her two bestselling books titled
Be Your Own Life Coach: How to Life Coach Yourself Into What You Want here
https://drdionna.com/product/be-your-own-life-coach/
Where Did My Half Brother Come From here https://drdionna.com/product/be-your-own-life-
coach/
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
This is the FCB Radio Network coomof the best Personalities and we're real tallets
online at FCB Radio dot com FCP. Hello, guys, it is your
(00:22):
host, doctor Dianna Handcared Johnson,and we are on Talking Tallets with Type
one Diabetes tonight. I am awayon my baby moon and I just wanted
to talk to you guys, getdeep and personal with some things that's been
on my mind. I wanted tojust share some of the struggles I go
through as a diabet mama and justwanted to, like, you know,
maybe get some feedback from some people, some comments and things to help me
(00:45):
know that I'm not going through thisalone as well. I know it's a
lot of you guys out there whoare afraid to speak up. A lot
of guys who are out there areparents who are out there who just don't
know where to start. This iswhere you start when we're Talking Tallets with
Type one Diabetes podcast. Let's getinto this podcast, okay, guys.
(01:11):
So my first struggle that I believeI go through as a diabetic drama is
remembering that you're in this as aparent and one who has to become an
expert and everyone looks at you asan expert after doing it for so much
time, because when you go backto the doctors and you take the baby
(01:32):
back to the doctor, they're alwayslike, well, you know, how
was this, how was her food? How is the numbers? How is
this or his numbers of blah blahblah. So when I say her,
I'm referring to my baby because sheis all I have that's going through this.
But I also understand other parents whohave boys as well, So don't
take that as any kind of personalway. But they always ask me,
you know, questions about things that'sgoing on with her body, her numbers,
(01:56):
and what the endocano just told meis that I am technically an expert
at this because I've been doing itwith her, and I feel like I'm
still adjusting. I'm still like oneof those fresh mamas. Even though it's
been three years, not so muchof five years, ten years, i
still feel like I'm learning stuff everytime we go. Every year, I'm
(02:19):
afraid of her having long term excuseme, guys, high numbers things like
that to where it affects her ona long term basis. So there's just
so many things that I think aboutand one of the things that I was
like looking at in the article ofthe day was when you transfer the care
from the hospital to home, there'sno nurses anymore, and you become the
(02:42):
nurse and everything that your kids oryour babies actually need. And so I
have a struggle with realizing this isit, this is me, And I
don't think it's so hard to understandthat I'm all she got, including her
dad and her brother. But Iknow that overall, in hindsight, her
(03:07):
life is dependent upon what it isI do on a day to day basis
that in itself is heavy as aparent. And because again parenting already doesn't
come with the rule book you thinkbabies is gonna come with on No,
of course not. So I thinkthat is just a struggle I deal with
(03:27):
mentally. Okay. One of theother biggest factors that we deal with is
sleep. We're sleep deproduct. Youknow, I am always expected to be
sleep de product when you first havea newborn, just like I'm you know,
about to have my next baby.That is something that is really a
concern to me. Okay, butthere's nothing you can do about it,
(03:49):
and in your mind you're like,okay, once the baby gets fifteen pounds,
so then so that's always all theserules. Then the baby starts sleeping
through. They're like, none ofmy kids did that. Okay, I'm
really hoping that my third baby doesbecause it is time for a change,
and I don't know, I justdon't believe in that. Now, let's
just talk about a kiddo who istype one. You're sleep deprived as a
(04:13):
mama because you're always concerned about theirnumbers. I am the type of parent
where I may have mentioned this alreadyin the podcast, but I would have
my daughter still sleep in my roomin her own bed, and I would
have her phone next to my pillowso that I could watch her numbers all
night. And then I would watchher numbers and when it would go up
(04:34):
or down higher level, she wasright there for me to take care of
her. And I also keep refrigeratorin my room that's been their refrigerator,
and I'm like, well, that'sbeen there since she was a baby.
I never got a chance to getrid of it. And when I thought
I was getting ready to get ridof it, at three, she was
diagnosed. So I ended up needingthat stuff more than I thought At my
(04:54):
house, and it became something forme to kind of consider in turn of
like how long is this going tobe like this? But in actuality it's
still like that. And she's almostseven now, and so that's another stressor
for me. That's another thing thatI struggle with is that when would she
(05:15):
ever get to a place where shedoesn't have to be so close to me.
I feel like her life is dependingupon me, which means I can't
sleep knowing that I have to alwayskind of be up. I used to
stay up and try to work numbers, or do my school work or do
my professor like grading papers and stufflike that as a professor, just to
be able to watch her numbers.And I believe that watching her numbers was
(05:38):
just my thing, my main focus, as my excuse to stay up.
But before I even had her,I used to be an all night or
anyway. So I just looked atit like, this is what God wants
me to do, This is whereI'm supposed to be in life, this
is what it is. So Inever complained, but I knew it's a
process. And so having another kidconcerns me about some of those things,
(05:58):
and that struggle mentally, there interms of what is that gonna be like.
So I recently put Siana in herroom, bought her new bid,
bought camera setups so I can justhear her phone go off, thinking that
it was going to be an easiertransition to do that. I wasn't really
thinking about the fact that every timeher phone goes off, not am I
just getting enough to walk over toher a few feet away. I'm now
(06:20):
walking down the hall to her roomand getting up, making sure that she
gets up, she goes to bathroom, and she gets something to drink.
If she's low, most times she'sgonna low. Sometimes it was easier for
me to just be able to lookat her and see, okay, if
she's on her back, she's pressingon her dex com or and it's making
her numbers change, which I learnedthat trick from her endocrinologist. So shout
(06:43):
out to doctor Raymond, I thankyou for telling me that. But you
know, if she's going through thatin her room, I'm looking on a
camera all night, making sure thecamera's blood up, making sure her phone
is turned up before I put iton the charge in her room. These
are all just struggles I as adiabetic mama, and you can't miss a
(07:03):
night with those things. You cannotmiss a night with anything that you're doing
with a type one diabetic anybody,any patient, any family member, any
child especially, So these are thingsthat don't I don't think will change until
my daughter is able to catch yourown numbers, take care of them before
bedtime. You know, every timeour babies have a gross firt, we
(07:25):
have numbers that are all what whackand wonky like they're just off. And
so those are other struggles we dealwith it as a parent, Like,
okay, so things have not beenworking as good. What's going on.
I'll give you an example. Wehad about a few weeks ago. Sianna
had a night where she was uponly one night that week. We hadn't
(07:46):
seen that kind of time in solong. Guys, like, that's like
you, as a new mama,wake up, but like, oh my
baby, fatherly slep. I waslike, and that's what it felt like.
It went on for almost four days. We went to the doctors the
next week and she changed the numbersand we could not get that sweet spot
back. Guy. So that's anotherthing as a mama, you have to
(08:07):
think about what's that sweet spot andbecome a skilled expert in understanding their pump
their numbers, sometimes taking pictures oftheir numbers where they were before when you
felt like it was a good place, or where it wasn't a good place,
so that you know what to change. I actually talked to my daughter's
endocrinologists, if not once, soldtwice a week every other week. And
(08:28):
I'm not sure if anybody else canhave this kind of relationship with their endop
canologist. I believe you should,but a lot of times they send you
to the diabetic team, the dibectnurses. But me and her have a
really great relationship to where she looksat Sianna's numbers and we just try to
figure out. I'll keep going andI'll make changes on my own, but
(08:50):
I'll consult her when I need to, at least once a month. We're
changing them up. She's gotten older, bigger, smaller, you know,
advertize change anything like that. Guys, you have to check in with the
diabetes team with the end of chronologiesfor our number changes. So I'm telling
someone who is new to this,who don't know that when you have these
situations like this, this is what'swrong. So that's one thing that I
(09:16):
deal with, and the sleeping Ijust don't know will ever go away,
because even with her in her room, I don't think she'll be at a
place to sleep in her bed andknow her. Oh, let's say that
she's got a place to sleep inher bed, but I don't think it
will be at time soon where shewill wake herself up for her own numbers.
I feel like that's gonna be along time. I'm always pictured about
(09:39):
eight, but now that she's almostseven, guys, I don't know when
that's gonna be. Maybe ten now. I'm also decided to keep her bed
in my room along with the cribfor the new baby, so that I
could still monitor her or feel likeshe has the room inability to sleep in
my room still until we get tothat place where she was. She can
(10:01):
go in her room and she canbe okay about herself, but she loves
sleeping in her room. When shefirst got her bed about a month or
so ago, and lately she's beenin my room. So I don't know
it's because I'm getting close to thebaby birth that she's feeling the need to
want to be up under me.But it has been helped me to sleep
a little bit better then I wouldif I have to get walk down the
(10:22):
hall, going her room, gether up, go to the bathroom,
go take her cup, or takeher something to drink out the frigerate in
my room, warm it up maybeif it's some milk or something like that,
and then bring it all back tomy room. And that's all done
in the middle of the night,whereas lonely in my room, I just
get up, give her a cup. They can go to bathroom first and
then give her a cup. Andso she's not peeing in the bed.
(10:43):
Because if you guys know as adiabetic mama, you know that your babies
have spurts with a pee in thebed. It just gonna happen. Even
when she was already potty trained,it just started to happen. So it's
not nothing we can really do aboutthat. So that's a few things so
far, you know, some ofthe things that I feel like I deal
with. Also, it's just youknow, being concerned with am I doing
(11:09):
enough? Am I doing good enough? Am I on top of it enough?
I feel guilty as a mom sometimesthinking about other things that I have
to do with the home maintaining bills, working emails, the kids who working.
You know, like, I feelguilty if I'm not focused on her
twenty four seven, because I feellike that's just where it needs to be.
(11:31):
But I have other kids, soor have another one other kid,
and thank god he's older because he'smore self sufficient. Now you're talking about
having a new baby where it's notgoing to be as the same. So
I just feel some type of wayin terms of that, and not sure
if I ever get over that.In that feeling, another thing is not
(11:54):
knowing if her pump site or dexcom is working correctly. Like you've done
all you could, My husband say, you do all that you can to
find out that what you did isnot correct. So you try to do
everything right to find out that it'snot correct. If that makes sense to
any of the parents that's out there. We'll try to put everything on and
(12:16):
then in two days everything is off. We'll put her pump on, we'll
put her desk calm on, we'llput fresh insulin in, and we can
go maybe a good four days andthen all of a sudden things off.
Now I'll give you an example.Tonight, my husband called me because well,
I call him and I said,Okay, her numbers are high.
I'm away, and here I amstill concerned, Like, ah, that's
(12:37):
another thing. I never go awaybecause I'm always concerned about her numbers.
So I'm gonna be watching her numbersall night and I'll be ringing the phones
to let them know if somebody needsto get up with her or whatever.
So you know, I really don'ttrust too many people to be with my
baby throughout the night. And Iknow people are not going to jump out
(12:58):
there bed like I do. Sothat's another struggle that I go through as
a diabetic mama. It is justwhat it is that I feel like I
have her best interests at all timesin the day, even when I feel
guilty, even when I feel likeI'm doing other things, even when I'm
attended to my other baby, youknow, my son. But you think
(13:18):
that you're doing everything right. Andso tonight we were like canceling out things
that we did. Okay, Ijust gave her instant fresh insulent. I
just gave her changed her pump site, and then he changed the dex tim
today, so what would still becausing her to go high? Now we
got a backtrack and change the pumpsite again, and then we go and
look in refrigerator. The influence almostgone. So where is the fresh instlument
that I've just chused and I hadthe number on it. I don't know
(13:41):
pregnancy brain, I don't know whatit is, but it's not there.
So you're thinking you're doing everything right, and you think you're following the steps,
and you think you know what you'redoing. To find out, sometimes
you just don't know what you're doing. That's just what it is. And
that's the part that you learn abouttrial and error. Another thing that I
find out I run into is justmanaging her diet. When she's not always
(14:03):
in agreement. Okay, they're sayingshe's just not gonna want that. I
have to make her try and makeher eat or she won't eat. Sometimes
she just don't have an appetite.And I'm afraid of her losing weight,
you know. I am afraid ofher getting to a place where she just
lose interest all together. So Itry to stay on top of her and
with all her medicine and with allher foods and takes and everything, and
(14:24):
just keep her interesting in certain things. But another thing is that the fact
that when she's low, she knowsthat she can have a small piece of
candy. Sometimes she craves that alot more and want that more than she
should have it, And that isa huge issue for me. But it's
like, how do you deal withthat when you know that same very thing
can help save her from going toolow. So that's a struggle that I
(14:48):
have and I'm looking forward to hearingfrom anybody else about this. I want
you guys to also like comments,share leading some information on what you think,
what you're going through. If you'rea mom going through the it's a
parent going through this. I'm soglad you hear himself that you're listening.
I am looking forward to making hisfamily even bigger than what it is.
I'm here for you, guys,Please be here for me, and we're
(15:11):
gonna have this long journey together justkind of going through things with our babies.
Now. Another thing is managing herblood sugar all day. I promise
you, I promise you. Wedo the best that we can at this
guy's And it just is never perfect. Okay, you have spirit, you
have moments sprouts and moments of whenit is perfect or it feels perfect or
(15:37):
near perfect, and then you havemoments and days where you're like, I
did the same thing I did yesterday, but it's not working. It's not
the same. Well, basically,what I was told by the end of
the Callowges is that you can neverduplicate diabetes and you can't duplicate your days
no matter how hard you try.So if anybody ever has mastered this,
let me know, maybe some adults, because he and you become an adult.
(16:00):
You know what you can can't have, You know what you should have
before bed. My daughter is likeall bets are off. She want to
wantch before bed, she get itorange. If she wants dessert, she
gets dessert. You know, ifshe wants her dinner at this point,
I don't want her starter throughout thenight. I'm gonna feed her. So
that means like if she eats pasta, it's gonna take two hours to kick
in. Therefore, I have tomake sure in two hours, whether she's
(16:23):
sleep I'm still up to make sureher numbers are okay or whither. I
hear her phone when it when itgoes off to let me know that she's
actually her pasta's kick in, andso she's going up two numbers are going
up. Another thing that I findis a problem is like managing the inconsistent
insulin intake. My daughter is afree eater, so she likes to nibble
(16:48):
and eat all day. I'm gladshe's back and after school because now she
has a different kind of schedule.But she's been so far from that because
after she was denied services and kickedout a daycare when she was diagnosed,
we had to change up everything,and she was home with me twenty four
seven and I had to do whatI had to do to attend to her
twenty four to seven basically, andher food changed dramatically, like she wanted
(17:15):
some other stuff and then she didn'twant things anymore, and she just became
a free eater that eat all day. So I felt like, if you're
hungry, I'm gonna feed you,and I left it at that. I
felt like she was already going throughso much. You got going through so
much, guys, that that's anotherpart of the guilt that you go through,
Like I'm not about to take herthrough anyone. I'm about to make
a big deal about her food,Like if she wants this, she want
that, they say, give herand something they give her that you know,
(17:37):
I just made sure it's not toomuch sugar. It's not I try
to stay within the sugar free rangefor everything that we can, everything we
have, I just try my bestto keep it sugar free. Her serrup,
her orange cups, through cocktail,besides the regular fruit that she does.
It's just my main folks always arefree. Then I took her away
(18:00):
from Reglar stuff like chips and stuffand replace it with all veggie chips.
And then I took her away fromRegla pasta and put it all the veggie
posta. Now being out of thehouse and as somebody else's house, she's
getting introduced to other things that arenot what I had her on. So
that becomes a conflict. And nowit's like do you want the care from
the provider or not? Because youhave set your life up to do all
(18:23):
these things for your baby and tomake sure she had what she needs twenty
four seven to where now you're sendingher somewhere else and she basically is about
to be eating a whole bunch ofstuff in somebody else's house that is not
what you had I mean, andit's still healthy or it's still within the
rims of what it's allotted for daycare, but it's not diabetic healthy. How
(18:45):
tess sound? Poor guys. That'sall we have today on Talking Talkers with
Type one diabetes. I think youcall for tuning in. I think you
all for the support, I thinkyou call for the love. And we
look forward to hear from you,guys and seeing you in the next episode.
(19:14):
The FCB Radio Network first class broadcastingworldwide,
This is the FCB Radio Network coomof the best Personalities and we're real tallets
online at FCB Radio dot com FCP. Hello, guys, it is your
(00:22):
host, doctor Dianna Handcared Johnson,and we are on Talking Tallets with Type
one Diabetes tonight. I am awayon my baby moon and I just wanted
to talk to you guys, getdeep and personal with some things that's been
on my mind. I wanted tojust share some of the struggles I go
through as a diabet mama and justwanted to, like, you know,
maybe get some feedback from some people, some comments and things to help me
(00:45):
know that I'm not going through thisalone as well. I know it's a
lot of you guys out there whoare afraid to speak up. A lot
of guys who are out there areparents who are out there who just don't
know where to start. This iswhere you start when we're Talking Tallets with
Type one Diabetes podcast. Let's getinto this podcast, okay, guys.
(01:11):
So my first struggle that I believeI go through as a diabetic drama is
remembering that you're in this as aparent and one who has to become an
expert and everyone looks at you asan expert after doing it for so much
time, because when you go backto the doctors and you take the baby
(01:32):
back to the doctor, they're alwayslike, well, you know, how
was this, how was her food? How is the numbers? How is
this or his numbers of blah blahblah. So when I say her,
I'm referring to my baby because sheis all I have that's going through this.
But I also understand other parents whohave boys as well, So don't
take that as any kind of personalway. But they always ask me,
you know, questions about things that'sgoing on with her body, her numbers,
(01:56):
and what the endocano just told meis that I am technically an expert
at this because I've been doing itwith her, and I feel like I'm
still adjusting. I'm still like oneof those fresh mamas. Even though it's
been three years, not so muchof five years, ten years, i
still feel like I'm learning stuff everytime we go. Every year, I'm
(02:19):
afraid of her having long term excuseme, guys, high numbers things like
that to where it affects her ona long term basis. So there's just
so many things that I think aboutand one of the things that I was
like looking at in the article ofthe day was when you transfer the care
from the hospital to home, there'sno nurses anymore, and you become the
(02:42):
nurse and everything that your kids oryour babies actually need. And so I
have a struggle with realizing this isit, this is me, And I
don't think it's so hard to understandthat I'm all she got, including her
dad and her brother. But Iknow that overall, in hindsight, her
(03:07):
life is dependent upon what it isI do on a day to day basis
that in itself is heavy as aparent. And because again parenting already doesn't
come with the rule book you thinkbabies is gonna come with on No,
of course not. So I thinkthat is just a struggle I deal with
(03:27):
mentally. Okay. One of theother biggest factors that we deal with is
sleep. We're sleep deproduct. Youknow, I am always expected to be
sleep de product when you first havea newborn, just like I'm you know,
about to have my next baby.That is something that is really a
concern to me. Okay, butthere's nothing you can do about it,
(03:49):
and in your mind you're like,okay, once the baby gets fifteen pounds,
so then so that's always all theserules. Then the baby starts sleeping
through. They're like, none ofmy kids did that. Okay, I'm
really hoping that my third baby doesbecause it is time for a change,
and I don't know, I justdon't believe in that. Now, let's
just talk about a kiddo who istype one. You're sleep deprived as a
(04:13):
mama because you're always concerned about theirnumbers. I am the type of parent
where I may have mentioned this alreadyin the podcast, but I would have
my daughter still sleep in my roomin her own bed, and I would
have her phone next to my pillowso that I could watch her numbers all
night. And then I would watchher numbers and when it would go up
(04:34):
or down higher level, she wasright there for me to take care of
her. And I also keep refrigeratorin my room that's been their refrigerator,
and I'm like, well, that'sbeen there since she was a baby.
I never got a chance to getrid of it. And when I thought
I was getting ready to get ridof it, at three, she was
diagnosed. So I ended up needingthat stuff more than I thought At my
(04:54):
house, and it became something forme to kind of consider in turn of
like how long is this going tobe like this? But in actuality it's
still like that. And she's almostseven now, and so that's another stressor
for me. That's another thing thatI struggle with is that when would she
(05:15):
ever get to a place where shedoesn't have to be so close to me.
I feel like her life is dependingupon me, which means I can't
sleep knowing that I have to alwayskind of be up. I used to
stay up and try to work numbers, or do my school work or do
my professor like grading papers and stufflike that as a professor, just to
be able to watch her numbers.And I believe that watching her numbers was
(05:38):
just my thing, my main focus, as my excuse to stay up.
But before I even had her,I used to be an all night or
anyway. So I just looked atit like, this is what God wants
me to do, This is whereI'm supposed to be in life, this
is what it is. So Inever complained, but I knew it's a
process. And so having another kidconcerns me about some of those things,
(05:58):
and that struggle mentally, there interms of what is that gonna be like.
So I recently put Siana in herroom, bought her new bid,
bought camera setups so I can justhear her phone go off, thinking that
it was going to be an easiertransition to do that. I wasn't really
thinking about the fact that every timeher phone goes off, not am I
just getting enough to walk over toher a few feet away. I'm now
(06:20):
walking down the hall to her roomand getting up, making sure that she
gets up, she goes to bathroom, and she gets something to drink.
If she's low, most times she'sgonna low. Sometimes it was easier for
me to just be able to lookat her and see, okay, if
she's on her back, she's pressingon her dex com or and it's making
her numbers change, which I learnedthat trick from her endocrinologist. So shout
(06:43):
out to doctor Raymond, I thankyou for telling me that. But you
know, if she's going through thatin her room, I'm looking on a
camera all night, making sure thecamera's blood up, making sure her phone
is turned up before I put iton the charge in her room. These
are all just struggles I as adiabetic mama, and you can't miss a
(07:03):
night with those things. You cannotmiss a night with anything that you're doing
with a type one diabetic anybody,any patient, any family member, any
child especially, So these are thingsthat don't I don't think will change until
my daughter is able to catch yourown numbers, take care of them before
bedtime. You know, every timeour babies have a gross firt, we
(07:25):
have numbers that are all what whackand wonky like they're just off. And
so those are other struggles we dealwith it as a parent, Like,
okay, so things have not beenworking as good. What's going on.
I'll give you an example. Wehad about a few weeks ago. Sianna
had a night where she was uponly one night that week. We hadn't
(07:46):
seen that kind of time in solong. Guys, like, that's like
you, as a new mama,wake up, but like, oh my
baby, fatherly slep. I waslike, and that's what it felt like.
It went on for almost four days. We went to the doctors the
next week and she changed the numbersand we could not get that sweet spot
back. Guy. So that's anotherthing as a mama, you have to
(08:07):
think about what's that sweet spot andbecome a skilled expert in understanding their pump
their numbers, sometimes taking pictures oftheir numbers where they were before when you
felt like it was a good place, or where it wasn't a good place,
so that you know what to change. I actually talked to my daughter's
endocrinologists, if not once, soldtwice a week every other week. And
(08:28):
I'm not sure if anybody else canhave this kind of relationship with their endop
canologist. I believe you should,but a lot of times they send you
to the diabetic team, the dibectnurses. But me and her have a
really great relationship to where she looksat Sianna's numbers and we just try to
figure out. I'll keep going andI'll make changes on my own, but
(08:50):
I'll consult her when I need to, at least once a month. We're
changing them up. She's gotten older, bigger, smaller, you know,
advertize change anything like that. Guys, you have to check in with the
diabetes team with the end of chronologiesfor our number changes. So I'm telling
someone who is new to this,who don't know that when you have these
situations like this, this is what'swrong. So that's one thing that I
(09:16):
deal with, and the sleeping Ijust don't know will ever go away,
because even with her in her room, I don't think she'll be at a
place to sleep in her bed andknow her. Oh, let's say that
she's got a place to sleep inher bed, but I don't think it
will be at time soon where shewill wake herself up for her own numbers.
I feel like that's gonna be along time. I'm always pictured about
(09:39):
eight, but now that she's almostseven, guys, I don't know when
that's gonna be. Maybe ten now. I'm also decided to keep her bed
in my room along with the cribfor the new baby, so that I
could still monitor her or feel likeshe has the room inability to sleep in
my room still until we get tothat place where she was. She can
(10:01):
go in her room and she canbe okay about herself, but she loves
sleeping in her room. When shefirst got her bed about a month or
so ago, and lately she's beenin my room. So I don't know
it's because I'm getting close to thebaby birth that she's feeling the need to
want to be up under me.But it has been helped me to sleep
a little bit better then I wouldif I have to get walk down the
(10:22):
hall, going her room, gether up, go to the bathroom,
go take her cup, or takeher something to drink out the frigerate in
my room, warm it up maybeif it's some milk or something like that,
and then bring it all back tomy room. And that's all done
in the middle of the night,whereas lonely in my room, I just
get up, give her a cup. They can go to bathroom first and
then give her a cup. Andso she's not peeing in the bed.
(10:43):
Because if you guys know as adiabetic mama, you know that your babies
have spurts with a pee in thebed. It just gonna happen. Even
when she was already potty trained,it just started to happen. So it's
not nothing we can really do aboutthat. So that's a few things so
far, you know, some ofthe things that I feel like I deal
with. Also, it's just youknow, being concerned with am I doing
(11:09):
enough? Am I doing good enough? Am I on top of it enough?
I feel guilty as a mom sometimesthinking about other things that I have
to do with the home maintaining bills, working emails, the kids who working.
You know, like, I feelguilty if I'm not focused on her
twenty four seven, because I feellike that's just where it needs to be.
(11:31):
But I have other kids, soor have another one other kid,
and thank god he's older because he'smore self sufficient. Now you're talking about
having a new baby where it's notgoing to be as the same. So
I just feel some type of wayin terms of that, and not sure
if I ever get over that.In that feeling, another thing is not
(11:54):
knowing if her pump site or dexcom is working correctly. Like you've done
all you could, My husband say, you do all that you can to
find out that what you did isnot correct. So you try to do
everything right to find out that it'snot correct. If that makes sense to
any of the parents that's out there. We'll try to put everything on and
(12:16):
then in two days everything is off. We'll put her pump on, we'll
put her desk calm on, we'llput fresh insulin in, and we can
go maybe a good four days andthen all of a sudden things off.
Now I'll give you an example.Tonight, my husband called me because well,
I call him and I said,Okay, her numbers are high.
I'm away, and here I amstill concerned, Like, ah, that's
(12:37):
another thing. I never go awaybecause I'm always concerned about her numbers.
So I'm gonna be watching her numbersall night and I'll be ringing the phones
to let them know if somebody needsto get up with her or whatever.
So you know, I really don'ttrust too many people to be with my
baby throughout the night. And Iknow people are not going to jump out
(12:58):
there bed like I do. Sothat's another struggle that I go through as
a diabetic mama. It is justwhat it is that I feel like I
have her best interests at all timesin the day, even when I feel
guilty, even when I feel likeI'm doing other things, even when I'm
attended to my other baby, youknow, my son. But you think
(13:18):
that you're doing everything right. Andso tonight we were like canceling out things
that we did. Okay, Ijust gave her instant fresh insulent. I
just gave her changed her pump site, and then he changed the dex tim
today, so what would still becausing her to go high? Now we
got a backtrack and change the pumpsite again, and then we go and
look in refrigerator. The influence almostgone. So where is the fresh instlument
that I've just chused and I hadthe number on it. I don't know
(13:41):
pregnancy brain, I don't know whatit is, but it's not there.
So you're thinking you're doing everything right, and you think you're following the steps,
and you think you know what you'redoing. To find out, sometimes
you just don't know what you're doing. That's just what it is. And
that's the part that you learn abouttrial and error. Another thing that I
find out I run into is justmanaging her diet. When she's not always
(14:03):
in agreement. Okay, they're sayingshe's just not gonna want that. I
have to make her try and makeher eat or she won't eat. Sometimes
she just don't have an appetite.And I'm afraid of her losing weight,
you know. I am afraid ofher getting to a place where she just
lose interest all together. So Itry to stay on top of her and
with all her medicine and with allher foods and takes and everything, and
(14:24):
just keep her interesting in certain things. But another thing is that the fact
that when she's low, she knowsthat she can have a small piece of
candy. Sometimes she craves that alot more and want that more than she
should have it, And that isa huge issue for me. But it's
like, how do you deal withthat when you know that same very thing
can help save her from going toolow. So that's a struggle that I
(14:48):
have and I'm looking forward to hearingfrom anybody else about this. I want
you guys to also like comments,share leading some information on what you think,
what you're going through. If you'rea mom going through the it's a
parent going through this. I'm soglad you hear himself that you're listening.
I am looking forward to making hisfamily even bigger than what it is.
I'm here for you, guys,Please be here for me, and we're
(15:11):
gonna have this long journey together justkind of going through things with our babies.
Now. Another thing is managing herblood sugar all day. I promise
you, I promise you. Wedo the best that we can at this
guy's And it just is never perfect. Okay, you have spirit, you
have moments sprouts and moments of whenit is perfect or it feels perfect or
(15:37):
near perfect, and then you havemoments and days where you're like, I
did the same thing I did yesterday, but it's not working. It's not
the same. Well, basically,what I was told by the end of
the Callowges is that you can neverduplicate diabetes and you can't duplicate your days
no matter how hard you try.So if anybody ever has mastered this,
let me know, maybe some adults, because he and you become an adult.
(16:00):
You know what you can can't have, You know what you should have
before bed. My daughter is likeall bets are off. She want to
wantch before bed, she get itorange. If she wants dessert, she
gets dessert. You know, ifshe wants her dinner at this point,
I don't want her starter throughout thenight. I'm gonna feed her. So
that means like if she eats pasta, it's gonna take two hours to kick
in. Therefore, I have tomake sure in two hours, whether she's
(16:23):
sleep I'm still up to make sureher numbers are okay or whither. I
hear her phone when it when itgoes off to let me know that she's
actually her pasta's kick in, andso she's going up two numbers are going
up. Another thing that I findis a problem is like managing the inconsistent
insulin intake. My daughter is afree eater, so she likes to nibble
(16:48):
and eat all day. I'm gladshe's back and after school because now she
has a different kind of schedule.But she's been so far from that because
after she was denied services and kickedout a daycare when she was diagnosed,
we had to change up everything,and she was home with me twenty four
seven and I had to do whatI had to do to attend to her
twenty four to seven basically, andher food changed dramatically, like she wanted
(17:15):
some other stuff and then she didn'twant things anymore, and she just became
a free eater that eat all day. So I felt like, if you're
hungry, I'm gonna feed you,and I left it at that. I
felt like she was already going throughso much. You got going through so
much, guys, that that's anotherpart of the guilt that you go through,
Like I'm not about to take herthrough anyone. I'm about to make
a big deal about her food,Like if she wants this, she want
that, they say, give herand something they give her that you know,
(17:37):
I just made sure it's not toomuch sugar. It's not I try
to stay within the sugar free rangefor everything that we can, everything we
have, I just try my bestto keep it sugar free. Her serrup,
her orange cups, through cocktail,besides the regular fruit that she does.
It's just my main folks always arefree. Then I took her away
(18:00):
from Reglar stuff like chips and stuffand replace it with all veggie chips.
And then I took her away fromRegla pasta and put it all the veggie
posta. Now being out of thehouse and as somebody else's house, she's
getting introduced to other things that arenot what I had her on. So
that becomes a conflict. And nowit's like do you want the care from
the provider or not? Because youhave set your life up to do all
(18:23):
these things for your baby and tomake sure she had what she needs twenty
four seven to where now you're sendingher somewhere else and she basically is about
to be eating a whole bunch ofstuff in somebody else's house that is not
what you had I mean, andit's still healthy or it's still within the
rims of what it's allotted for daycare, but it's not diabetic healthy. How
(18:45):
tess sound? Poor guys. That'sall we have today on Talking Talkers with
Type one diabetes. I think youcall for tuning in. I think you
all for the support, I thinkyou call for the love. And we
look forward to hear from you,guys and seeing you in the next episode.
(19:14):
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