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August 18, 2025 53 mins
This episode discusses living with misophonia in day to day life.

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Episode Transcript

Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
So what are we talking about today?

Speaker 2 (00:03):
So today we we're just going to talk about living
with misophonia and kind of what goes with that, not
super super in depth, but kind of an overview of
what it's like to live with misophonia, and also practical
coping tips for living with misophonia. And as someone who

(00:24):
does live with misophonia, I can say I've got a
lot of thoughts. I will say that coping and living
with missophonia, it gets better and it gets worse, but
it doesn't like change over time. It waxes and it WANs.
If you're tired, it's worse. Like I'm tired today, So

(00:46):
I need noise canceling. You know, if you're hungry, you
should eat. You only have one nervous system. So I
guess part of just talking about what it's like to
live with misceophonia is kind of the nitty gritty practical
stuff as well as therapeutic skills that can.

Speaker 1 (01:04):
Help, right, all right, So I think that's a great
way to kind of to definitely start here. So I
like kind of how you just started with talking about vulnerabilities,
which so talking about being tired, being hungry, being just

(01:27):
sick and things. I work a lot with DBT skills
in my own practice, and one of the things that
we have a scoping skill is is literally paying attention
to those things, So making sure that you're not making

(01:49):
sure that you're not hungry, so that making sure that
you eat, making sure that you're getting enough sleep, making
sure that you're getting enough exercise, making sure that you
are taking care of yourself when you're sick, or taking
care of yourself when you're just don't have the energy
for things. So I like that. I mean, there's a

(02:11):
lot to be said about how much you can actually
handle versus how much energy you have because of other
stuff that you have some control over. Yeah.

Speaker 2 (02:23):
I always like to call it being my own mom,
because if you're the parent of a child, you're gonna
make sure that they're fed, that they're eating, that they're
not you know, sitting in a room not getting any exercise.
So I kind of like to frame it like, you know,
separate yourself from yourself a little bit, and think, you know,

(02:43):
if I were taking care of someone else, would this
be okay? And things like you know, showering, you would
always make sure that your child was clean. You would
make sure that these hygiene things are taken care of,
and it can be really hard, whether it's missophonia depression,
and of course these things co occur quite often because
when you're living with something that changes your entire quality

(03:06):
of life, it's not hard to believe that it can
make you depressed or anxious or sad. And the physiological
parts also tie in, because where missiphonia is neurophysiological, it
is in your nervous system. And regardless of what you're
going through, we only have one nervous system. Whether you're hungry,

(03:27):
whether you're tired, whether you're scared, whether you're stressed over
an exam, whether you're grieving a loved one, which can
impact you into huge ways. Physiologically, we only have one
nervous system. And while the mistiphonia can be a big
piece for the distress, oftentimes it's being elevated by the

(03:47):
other things going.

Speaker 1 (03:48):
On, right, And that absolutely makes sense, and that's honestly
the basis of self care is making sure that you
are fed and watered and clinging appropriate like.

Speaker 2 (04:01):
Water is one I'm not good with a caffeine.

Speaker 1 (04:05):
I mean, there's a little bit of water in there,
so at least you're getting some moisture, but yeah, drinking
water is definitely a good thing.

Speaker 2 (04:16):
Yeah, and eating regularly, not just eating. You know, when
you're starving at the end of the day and realize
you haven't eaten in twelve hours. And people with misophonia
may have other symptoms of sensory processing and sensory integration,
And in that case, a lot of people with sensory
integration might have trouble recognizing when they're actually hungry. So

(04:39):
that could be something tying in. So you might want
to like actually kind of even have an alarm on
your phone if you're one of those people that you
just genuinely don't feel hunger. I am one of them.
My husband will like put food in front of me
and be like eat this, and I'm like, I'm not hungry.
He's like, yes, you are. You might not feel like
you're hungry, but you're hungry. Eat. So it can be

(05:03):
great to have a person who's looking out for.

Speaker 1 (05:06):
You, or even if you just have other accountabilities that
you will look by yourself and you have a friend
who will text you or will call you and be
like have you eaten today? Nope? Go eat? Are you
eating now? No? Okay? I'm not letting you. I'm going
to annoy you into eating type of things.

Speaker 2 (05:31):
And it feels like the things that we forget to
do the most are the things that would help us
the most when we are so overwhelmed and we are
just lost in whatever is going on, the idea of
getting a glass of water or going for a walk,
or even sometimes taking a nap. It's like, I need
a nap, but I'm so overwhelmed and overstimulated that I'm

(05:54):
not even thinking about these tools that could help.

Speaker 1 (05:58):
Oh yeah, I'm very not positive. So I absolutely recommend
naps to everybody, regardless of age.

Speaker 2 (06:07):
How long are naps? My mom and I have been
arguing this for years. What do you constitute a nap?

Speaker 1 (06:13):
So, for me, naps are usually about an hour and
a half to two hours.

Speaker 2 (06:17):
Okay, you could do.

Speaker 1 (06:18):
Like a short little catnap for like twenty minutes.

Speaker 2 (06:21):
Okay, So my twelve hour naps are not naps.

Speaker 1 (06:24):
No, that's not a nap.

Speaker 2 (06:28):
Well that's why I can't nap then, because every time
it turns into twelve hours.

Speaker 1 (06:34):
That suggests that you are not getting the sleep that
you need.

Speaker 2 (06:38):
Interestingly, I get sleep at night, but I think the
way my nervous system is. I am so overwhelmed all
the time that when I am overstimulated, my body, regardless
of how much sleep I've had before, will just be like, Okay,
we're going for a little sensory break. And the best
way to have a sensory break is to just kind
of turn it all off, go into my nice, cool

(07:00):
bedroom with my white noise. And I almost think of
it like a sensory chamber at that point, because I'm
just like in this dark spot. So I am joking. Obviously,
I know NAP's not twelve hours, but I'm also saying,
you know, for sensory coping skills, it's totally okay if
you want to just step back and walk away and

(07:22):
reset your nervous.

Speaker 1 (07:23):
System, right, And I mean it's totally cool for somebody
who's having migraines to go sit in a dark noise.
It's okay for other things too.

Speaker 2 (07:34):
Yeah, And I mean I guess not if you're like
maybe driving a vehicle or something, you should probably you
know there's times and places where you should nap, But
in general, I think most people know better.

Speaker 1 (07:49):
That's when you pull over. Yeah, I've napped at a
I've napped at a rest step before.

Speaker 2 (07:55):
I've knocked in my car just for like a couple
minutes in between a long STI sour drive.

Speaker 1 (08:00):
It's like I just need a minute. Yeah, yeah, no,
I mean, yeah, that's important. If you're not taking care
of your physical and physiological needs, your brain is not
going to be able to function. So if you have
not eaten, if you have not had enough water, your

(08:22):
body can't function properly. So how is your brain supposed
to function properly? Yeah, exactly, And same thing with like
quality of foods. I know that sometimes you eat what
you can eat, but there are really cheap and easy
options out there that are that have a decent amount

(08:45):
of fiber, have a decent amount of protein, have some
iron in there, and taste decent and do not take
way too long to make.

Speaker 2 (08:57):
So yeah, I think a huge part part of coping
is not shaming yourself for shortcuts or not doing things perfectly.
If you need paper plates and plastic fork someday because
the idea of doing dishes is just too much. And
you know you're eating some mac and cheese out of
a box, maybe some cereal which are usually fortified, so

(09:20):
you are getting at least your nutrients. If that's what
you need, that's what you need. And you know, in
a perfect world, we would all be eating absolutely perfectly,
but we'd also not be living stressful lives or having
these disorders either.

Speaker 1 (09:36):
So exactly exactly, and like, yeah, so I'm going to
the doctor if you're sick, if you're sick enough to
need a doctor, making sure that you're taking medication when
you need it. If you have a headache or if
you are in a lot of pain, take some painulars.

(09:58):
You don't have to sit there and be in pain
because you want to be some sort of masochistic saint.

Speaker 2 (10:04):
Yeah, and you don't need to chop down your whole
yard after hurting.

Speaker 1 (10:07):
Your shoulder, right, which is a dig at me. I'm
sorry for those in the back who do not know
what we are talking about. I have recently purchased the
house and it had a lot of invasive trees on it.
I also kind of messed up my shoulder. However, I

(10:30):
definitely got rid of all the invasive trees, well most
of them. I got rid of the fat yard. The
backyard's ultimorren up right now, so I'll deal with that later.
But it didn't hurt. I stopped if it hurt.

Speaker 2 (10:44):
My point is also that like you know, you can
know your own limits, you can make your own choices,
and you know, if you feel good doing it, that's great.
But you can also don't push through the pain if
you can't. Exactly, I think I'm trying to think of
the word maybe self agency is what's most important. Instead

(11:07):
of what others externally feel is best for you, it
should be what's best for you. I know, for years
and years and years, my father would get very mad
at me if I took naps. He once tried to
ban me from naps. That did not go well for him.
He was always working, so I wasn't quite sure how
he was going to enforce this policy because he tells me,

(11:30):
you're not allowed to take naps anymore, and then he leaves,
and I'm like, I'm going to bed.

Speaker 1 (11:36):
And I mean, I I have been taking naps pretty
much my entire adult life. I'll have found out in
my twenties that I do have a sleep disorder. And
then I'm went, oh, that makes sense, so and that's
something I talked to my clients about. I'm like, if

(11:57):
your body needs sleep, give it what it needs, as
long as you were in an appropriate place to do so.

Speaker 2 (12:05):
Yeah, there was a time where I was sleeping literally
twelve hours a night. But in my day to day life,
the triggers in the missophonia were pretty bad. I was
grieving loved ones and just twelve hours of like being
awake and being existing, that's all I could get. Once
I hit that twelve hour, I was done and I

(12:26):
needed twelve hours to rest. Right now, I'm in a
different situation. I'm not sleeping that much, but if I were,
I wouldn't be upset about it. I would just you know,
accept that that's where I am.

Speaker 1 (12:39):
Yeah. Absolutely, So we've kind of talked about those basic needs, Like,
what are some other things that people with mesophonia can
use to coke day to day?

Speaker 2 (12:50):
I would say, you know, noise canceling earbuds. I think
I talked about this in the last one a little
bit about how I personally don't think there's a problem
with over using them, so long as you're using them
as a coping tool and not like avoiding everyday life.
Don't turn the volume too high you can damage your ears.

(13:13):
Always follow safe listening. But right now, these are actually
the new like Apple AirPod Pro too, which I've been trying,
and I am going to do a review for the Foundation,
and honestly, these are amazing. I was shocked how good
the noise cancelation is. And I know that people with

(13:37):
misophonia are sick of hearing oh earbuds, earplugs, etc. Or
avoid situations that are triggering, because it's like those are
the only things that they can do, and it can
be frustrating to just hear that again and again. But
I also want to impress upon the point that I've
heard stories from a lot of people who are using

(13:59):
these tools but don't use them all the time because
they feel guilty or like they shouldn't have to. And
I think there's a part of that where accepting that
you need accommodations, accepting that these tools are a part
of your life. And I'm not saying that it should
be easy or that you're wrong to feel that way,

(14:22):
but I do think that we need to stay away
from shame self blame or why am I not normal?
Why can't I just walk around without earbuds in a store?
And of course I've had those thoughts sometimes, and I
think we all do. But I think a big part
of coping is accepting that these coping skills exist, accepting that, yes,

(14:45):
you have missophonia. Even if that acceptance comes with a
caveat of I hate this. You can still accept something
when you hate it.

Speaker 1 (14:54):
Absolutely. It's kind of that idea of give me the
serenities to accept the things I cannot change, which I
know comes from AA. But I mean there's a lot
of there's a lot of truth in that saying if
you can't change something, why spend the energy and the

(15:15):
time to try two or to be upset that this
is something I cannot change. You can't do anything about it.

Speaker 2 (15:25):
Yeah, and the mistiphonia is bad enough as it is.
We don't need to be harder on ourselves.

Speaker 1 (15:32):
Yeah, exactly. So using the assisive devices that you need,
and you can think of them, think of kind of
going in an opposite direction. If you have hearing loss,
you would use a hearing aid so that you could
still be involved in the world around you, which is

(15:54):
still important. So in mesophonia, if what you are hearing
is causing enough distress and you cannot get that to
go down by other means, you may need to say Okay,
I need to step hearing this thing. So you're doing
an anti anti hearing aid, which if you have older

(16:16):
adults in your life and they happen to be honest
and the decently honorary scale, you know that those turn
off their hearing aids. Excuse me, Yeah, they turn off
their hearing aids when they are done listening to things.

Speaker 2 (16:31):
My great grandmother would just turn it off and her
husband would be ranting and ranting, and she'd just smile
to my mother, not a word exactly exactly.

Speaker 1 (16:45):
Yeah, So you have the opportunity to say that I
need less sensory stimulation, this is what I need to
do this with, and you can do that and it's
not a problem. There are other ways of kind of
limiting sensory stimulation in other ways, like touch. They've got

(17:08):
weighted blankets and things that can kind of just take
the sensory input and just make it very acceptive. Pressure. Yeah, yeah, definitely.
And it's the same thing like if for people without mesophonia,
think about how nice it feels if you have a

(17:29):
dog or a cat that's laying on your lap and
they're nice and warm, and they've got that little bit
of pressure and it just kind of makes blood pressure go.

Speaker 2 (17:39):
Ah. I think there's also been research that cats, actually
they're breathing, their pattern of breathing is relaxing to humans.
So that actual beat calms us down.

Speaker 1 (17:57):
And something with like the the rate at which they're
purring is actually very calming to us too.

Speaker 2 (18:04):
We're cat people, as you can see. And I didn't realize,
but in the last video there was a cat roaming
around behind me. There's none yet, but I'm sure they'll
show up.

Speaker 1 (18:15):
Mine's around here too, but yeah, so, and we as
humans like those things. We like to feel cuddled and
secure and appropriately warm, but not too warm. So yeah,
so sometimes you may recognize, like in my space, it's

(18:39):
too hot and you need to cool down a lot
of times when I'm talking to individuals and we were
talking about our fight or flight systems, and we're talking
about getting that parasympathetic nervous system to kind of kick
on in order to get our adrenaline down, to get
our cortisol levels down. We talk about, Okay, if you

(19:02):
are nice and relaxed, what does that feel like in
your body? Your muscles are relaxed, you're nice and cool,
you're not too hot, your heart beat is kind of
that an appropriate rate. So what can you do to
do those things? Cooling down works? And I don't know
if this is something that you've kind of had to

(19:23):
use if you weren't too hot. I know, if I'm
too hot, if I get anxious or something that just
makes everything too worse.

Speaker 2 (19:31):
Yeah, hot or cold, whatever's wrong. I've actually joked many
times that I think Goldilocks and the Three Bears was
written about some kid that had a sensory disorder that
they didn't understand, and they turned it into a fairy

(19:52):
tale because honestly, too hot, too cold, too lumpy, too soft,
that completely describes the sensory world. And I think it's
also interesting to see such an old piece of literature
showing that this was something that some people were dealing with,
and of course they made it a silly little story.

Speaker 1 (20:12):
But I see a lot of truth in that, oh absolutely,
And then fixing that you were able to kind of
calm down, you're able to self regulate, kind of get
back to it's okay. I've actually got a client who
works in a convenience sore and I told this client,
if they get too anxious and they get too overwhelmed,

(20:32):
go stand in the beer cooler for a few minutes,
and they're like, I don't understand what they thought. It
was kind of silly, but then they tried it and
they're like, Okay, that actually did work. Like yeah, because
you cooled down. But if you don't have a beer
cooler to go stand in. What are some other options

(20:55):
that people can use at home?

Speaker 2 (20:58):
Honestly, fans air conditioner, cold showers, some blankets will actually
have a cooling effect. You can get ones that rather
than heating, they keep you cool. Honestly, I think whatever

(21:18):
you prefer to cool down. My husband will go outside
with a little spray bottle and just spray himself with
water because that's the quickest way for him personally. For me,
sensory wise, just little sprays of water touching me, I'd
rather gag. So I guess my advice is whatever you
can tolerate the most that helps you get to that state.

(21:43):
I'm really bad for needing an exact temperature. So if
I turn off my air conditioner, it gets very muggy
and hot. But if I keep on my air conditioner,
it gets chilly and it's too cold. So I am
known for having my air conditioner on full blast with
a nice big sweater and that's perfect for me.

Speaker 1 (22:06):
Yeah, And honestly, there was an interesting study that was
done in offices that suggested that women actually need it
a little bit warmer at offices than men do, but
like the perfect temperature is kind of between those two,
so that women, yeah, probably need to put on a sweater,

(22:26):
but the guys are still comfortable, which I thought was
kind of interesting because yeah, sex differences.

Speaker 2 (22:35):
Yeah, And I mean I I like to have like
that sweater too when i'm it's that propri aceptive input.
It can feel like a hug, but it can't be
too tight, it can't touch me like here. So I
guess my point is whatever you find comfortable is the

(22:55):
best coping skills. And I know that sounds so simplistic,
but there is power in that and understanding that what
you choose for yourself is not just something that you
know you like, because whatever, it's usually your body seeking
out things that calm you. So a lot of the

(23:16):
things that we love to do are coming from a
place of our own physiological.

Speaker 1 (23:22):
Needs absolutely absolutely, yeah, and just really finding those things
that are calming to you. So like, if you can
think of what would be what would the perfect room
look like for you? What would be in that room?

Speaker 2 (23:47):
Are you asking me?

Speaker 1 (23:48):
Yeah?

Speaker 2 (23:53):
Man, that's hard. Uh Honestly, I like the.

Speaker 1 (24:01):
Room I'm in.

Speaker 2 (24:02):
I'm very very particular, and I tend to turn my
space into what I want. So yeah, right now, I've
got a fan blowing on me. I might have turned
it off in the video, but I don't have an
ac in this room, so I can go without a sweater.

(24:23):
I like the colors. I like the blue, and there's
like little sensory things that you wouldn't even maybe notice.
But I have blackout curtains. There's I want it here
nothing or see nothing. I need to put them back up.
But there's sound panels that were on the wall above
there to absorb some noise. There's a rug because that

(24:45):
absorbs noise and echoing in the room.

Speaker 1 (24:51):
I like having a lot of furniture.

Speaker 2 (24:53):
I don't like minimalism because I find those rooms to
be very hollow, oh and creaky because there's so much
empty space and not enough sound absorption. I get. I
actually get very uncomfortable in big, wide open spaces without
a lot of furniture. I would rather be like in

(25:14):
a nice little place. I don't go to my living room,
like I don't like it down there. It's one of
those ones where it's half dining room half living room.
It's so big that like I can hear outside, I
can hear inside, I can hear my neighbor, and I'm
just like, I want to go back upstairs to my
bedroom or my office in my little tiny corner because

(25:36):
you can control sound in a little space much easier,
And yeah, I'm so bad for that. I just want
to hide.

Speaker 1 (25:45):
Do you control what your space smells? Like?

Speaker 2 (25:50):
That is a hard question. Yes, But I have scant
allergies and I thought I had really bad scentologies until
I met my husband. Because him, you can't even have
like natural sense around him. And that's totally fine, Like

(26:12):
I totally understand it makes him sick. I'm not going
to impose that on him, and certain sense he is
fine with. But I have cats, so there's only so
many safe sense. A fun little side fact, I make
my own perfume and candles, so I have been really
really trying to find things that are safer for cats.

(26:36):
I've been making candles with vanilla olio resin since there's
no actual such thing as a vanilla essential oil, and
that smells pretty good. I'm trying like lots of lavender,
and I did realize so when people google, and I

(26:56):
know people here are likely to google this, if you
google essentials to calm down, you'll probably see things like
lavender top of the list, which I actually find. Lavender
doesn't really calm me. I find it makes me clear
of head, but it doesn't really calm me. It might
calm you and it might not, but for me, for
the longest time, I thought it was crazy because I'm

(27:17):
calm by citrus. So if I like smell lemon instead
of waking up, it just makes me like it makes
me feel clear or relax, like everything's just better. And
of course cats can't have lemon, so I have to
have like it a little bit sprayed on. But for
years I would be like, no, that doesn't make sense.
This is supposed to be uplifting, And now I'm kind

(27:39):
of like, well.

Speaker 1 (27:40):
For you, it's not right exactly. Well, it makes sense
because think about the music that you find calming, and
then if you ask me the music I find calming,
it's probably gonna be very different. I mean, I sometimes
find like super scream o metal calming, and other people

(28:02):
would find that just what is you aggress it?

Speaker 2 (28:06):
I know Derrita Berger who's a music therapist, quite well known.
A lot of her work is on like demystifying sound
therapy and music therapy because there's this thought that everybody
likes chirping birds and like bach and that is just
not reality. Whatever you like, whatever calms you is, whatever

(28:30):
calms you, There is no right or wrong. If you
want to listen to Taylor Swift for six hours, I
totally approve.

Speaker 1 (28:38):
Just please don't do it around me.

Speaker 2 (28:41):
Amber does not approve. I listen to pretty much every genre, rap, country, pop.
If I like the sound, I like the sound.

Speaker 1 (28:52):
Absolutely, and that's yeah. So that kind of goes back
to finding the things that work for you.

Speaker 3 (29:00):
But like we've done, just kind of a quick overview
of some things that might work, but especially just really
thinking about the senses and thinking about the things that
you need.

Speaker 1 (29:12):
For those senses, which is why I asked about smell.

Speaker 2 (29:15):
I do want to touch on scent before we move on,
because I think this is important if you are someone
who is new to essential oils, or you don't have
a huge background in them. I do want to specify
that there are safety risks with essential oils. These are
highly concentrated plants. They can burn your skin. They should

(29:37):
not be ingested. They should always be used with proper
carrier oils, not left around young children, not left around pets,
and not diffused if it's a scent that could be
toxic and harmful to a pet. So I really suggest
if you are going to use these in your environment,
to just be mindful of that, because I think with
the prevalance of use of essential oils, we've had a

(30:00):
lot less talk about the safety and a lot more
people just kind of going in blind, and that worries
me a bit.

Speaker 1 (30:08):
Yeah. I actually I am lucky enough that I have
a store in town that mixes their own sense and
does their own things, and I can go in there
and get exactly what I want, which is really nice,
and they make it in store. I know where everything's
coming from, which is awesome. Otherwise I just go and

(30:28):
get like scented candles from places that I like, trying
to get things that will smell very nice. I mean,
I've got a cat and two dogs, and one of
my dogs thinks he's a cat so likes to knock
things off, So I never leave things unattended because my
lovely dog will just knock it off of wherever it is.

Speaker 2 (30:51):
Yeah, I've always been taught to be very careful with
candles because my parents had a house burned down because
a cat knocked over a candle in a snowstorm. Everybody
was fine, all the cats were fine, the dog was fine.
She saved her wedding dress. But they had to like
sit outside in their car and just watch the house

(31:12):
burn down because it was a winter snowstorm and they
lived on a dirt road. So I have like that
memory in the back of my head constantly of like
cats fire.

Speaker 1 (31:24):
Yeah, I haven't had a problem with cats on fire.
Usually it's dog. Well, usually it's my own stupidity, honestly.

Speaker 2 (31:34):
Yeah. Uh, I'm not even gonna comment on that because
I'm just thinking about the acetone experience.

Speaker 1 (31:44):
Yeah, that might be a story for a different time.
Does that work yeah? Yeah? AnyWho ah, but AnyWho, just
kind of thinking about those and kind of really, how
about in public? We really talked a lot about at

(32:05):
home things you can do when you're by yourself, but
things you can do in public.

Speaker 2 (32:11):
So whenever I'm asked about public I tell people, first
of all, it's a war zone. You have no control.
You were going to the battlefield, so bring your tools.
That's rule number one. You're going out to this battlefield.
You cannot control the world. I mean, you could ask
certain people to stop things politely if you so choose,

(32:33):
but you can't ask everybody. It's just it's not sustainable.
And especially there's sounds that just like you cannot ask
it to stop, Like say, there's a community lawnmower and
there's like someone jack hammering, and there's just like all
these things together that you cannot control, and no one's

(32:54):
doing it to hurt you. It's just the fact of
life that unfortunately these sounds exist. So yeah, bring whatever
active noise canceling earbuds, earphones you have. And I'm very
very adamant about them having to have active noise canceling,
because that is the only thing that gets the really
deep droning stuff. High pitched noises are actually quite easy

(33:18):
to get rid of. They're the easiest to drown, but
it's those low, low droning ones that are nearly impossible,
and only active noise canceling can help with that. However,
I do always say, you know, use A and C
sparingly because it can cause migraines in some people, because
it does seem to kind of impact I don't know

(33:39):
if it's the cock layer bone or what, but I
know that it causes pressure and headaches after sometime, at
least in myself and several other clients.

Speaker 1 (33:50):
Yeah, so this would definitely be a really good example
of making sure that if you aren't going out and
about in the world, making sure that you're are met
before you go out.

Speaker 2 (34:02):
Yes, And I'd also say choose your battles wisely. Are
there things that you maybe don't have to do. Could
you have a grocery delivery service? And you know they've
gotten much much less expensive in the past year, a
few years actually since COVID and everything. And I say

(34:22):
pick your battles wisely, because if you're going to ruin
your whole week going to the grocery store, you still
have to eat. You can't avoid eating because of the triggers.
So if you're not going to go get food because
of triggers, find another way to order food, like, find
ways around that you don't have to take on every battle,

(34:44):
especially if you're tired, you're working, and in public in general,
if you do have to be there, maybe go with
a supportive friend or family member who understands when you
kind of shut down. I've been in situations where I'll
be in like a checkout line. Checkout lines are the
absolute worst because there's an added factor to it, like

(35:07):
in fight flight. If I'm in fight flight in a
store and something happens, I can just kind of like
run away. I can go somewhere else I'm in movement,
but if I'm standing in that checkout line, I feel
absolutely trapped, uncomfortable, and if somebody say starts whistling or
chewing gum in my face or something like that, I

(35:28):
will just completely shut down. And I've had it where
I've just told my husband, like, can I go aside?
Can you just pay? And He'll say yes, thankfully, And
I have that person who understands that, you know, I
can't take this anymore. I need to go, and I
will say I have very politely asked people in public
not to whistle, and I don't know if you'd get

(35:52):
the same response, but everybody has been very kind about it. Actually,
Oh my god, the other day, so I will first
preface by saying, like ten years ago, if you asked
someone to stop something sensory wise, they would have looked
at you like you had six heads, and there was
not the same level of understanding. But I was at

(36:15):
the dollar store and I was just standing there and
a man behind me whistled, and I clenched up. I
felt that surge of fight flight, felt my heart rate
go up, felt like I couldn't really breathe, like my
arm's tagening, and I'm not gonna lie. I gave him
a look, went actually, I kind of went like this

(36:36):
while holding it with a little glance. What I heard
was his wife saying stop whistling, because she saw my
distress and told him, hey, stop it. So I'm noticing
that more and more people are kind of catching on
to the amount of pain that it can cause, and
for better or worse, there is more awareness now than

(36:58):
there used to be.

Speaker 1 (36:59):
Yeah, and generally people do not want to hurt or
harm or even just really annoy other people. Generally, some
people out there.

Speaker 2 (37:10):
That's a whole other issue.

Speaker 1 (37:12):
And that's a whole other issue. And let's face it,
I feel bad for people who are around a lot
of teenagers, because teenagers are kind of just narcissistic gasholes
just in general, because that's their developmental stage. And that's okay,
But that's also one of those things where you kind

(37:33):
of have to accept a little bit that, Okay, this
person's going to be an asshole. Cool, walk away, you
can get away from them. You don't have to do
anything about that. Love the idea of having people with
you when you go places so that if you need

(37:53):
to leave but something still has to be taken care of,
that person can take care of it. So for you,
your husband can can finish the grocery stuff so that
you can go walk outside or walk where you need
to go to get away from whatever's really bothering you.
This is the exact same for anything. If you start
getting overwhelmed, you are allowed to say I need to

(38:17):
I need to get out. And I think that also
says something about communication because you have been able to
communicate with your husband like, hey, in times I may
need you to do this, and he can communicate back
with you and say, yeah, that's perfectly fine. So being
able to communicate your needs and not expecting people to

(38:40):
know them right off the bat. So if that lady
had not told her husband to quit whistling, what would
you have done?

Speaker 2 (38:53):
Sometimes I will very politely ask someone to stop. Other times,
if I have them, I'll put in ear butt And
then honestly, in some situations, I might just tough it
out and use a little bit of CBT in my
head and a little bit of mantra of this isn't
the end of the world. Yes, this sucks, but you've

(39:13):
lived before, and like just kind of think myself through
the physiological does it get away, get it? Does it
get rid of it? No? But the fact of the
matter is as horrible as these triggers feel, it's not
killing you. Your brain is having the wrong response. So

(39:34):
regardless of how long you are triggered for that day,
you are still going to be fine eventually. Yeah, And
reminding myself it's not an emergency. It feels like an
emergency my whole body thinks it is, But realistically I
am going to be Okay.

Speaker 1 (39:52):
Yeah, You're going to be fine. Nobody's going to die.

Speaker 2 (39:55):
I might not be fine right now, but I'll be
fine eventually. I'll probably go home taken name.

Speaker 1 (40:00):
Yeah, yeah, you might need to go home, take a nap.
You might need to go home and really kind of
work on de escalating your own body and getting that
parasympathetic nerves istem to get you usually have to reset
and like have really loud white noise earplugs in.

Speaker 2 (40:19):
I'll get to this point where I just have to
reset my system and I like can't handle anything. And
I'm totally cool with that being part of my life.
Although my uncle I was staying in his house and
he walked in the room and he's like, what is
that sound? Is that is airplane assessed not because it
was just the sound of the white noise so loud.

(40:40):
He wasn't like mad or anything, He just, honest to God,
did not understand what it was.

Speaker 1 (40:45):
Right, Yeah. Yeah, And there's all sorts of really good
white noise generators out there and white noise apps that
you could have your phone and you can change the
different types of noise to different colors, which is really cool.

Speaker 2 (41:01):
We also have I think one hour and ten hour
loops of green noise, pink noise, white noise, and brown
noise on our YouTube channel and as a download on
our website, and you are free to download those, keep
them on your device, or just stream them on.

Speaker 1 (41:19):
YouTube absolutely, and we've touched out a couple of things
which are kind of avenues that we would like to
put some research activity and monies toward. So it's probably
a really good time to remind people that we are
a nonprofit organization that definitely works based on donations from

(41:46):
individuals like you, individuals who care. So if you find
it in your heart to donate, how can I do that?

Speaker 2 (41:56):
And you can go to www dot misiphoniofoundation dot com,
slash research to look at our research and there's donate
links there. We've got a few studies in the process,
but they are at a point where to go further.
Funding is what's kind of stopping us. So every dollar helps,
and I always use the example that it costs one

(42:20):
one hour of machine learning usually costs one actual dollar
if you're running a server for it. So it's a
really really good way to realize that every single dollar
does help.

Speaker 1 (42:32):
And we are an international organization, so if we've got
individuals from different countries who would like to get involved,
how have them come and contact us? That would be
a really great way. If we could have somebody do
the transcript or translate this into different languages, that's great,

(42:54):
we don't have the we don't have anything able why
to do that right now? And if you know anybody
who'd love to do that volunteer, there's not or if
you'd love to just give us some money so we
can try to hire somebody to and pay them a
living wage in order to translate some of our materials

(43:15):
some of the things that we have available.

Speaker 2 (43:18):
Just kind of wanted to get that out there, all right,
So this part of the video we are going to
cut out to just me on my screen, and this
is going to be a new segment that we're going
to include in every episode where I review a product
that can be helpful for missiphonia or something that people
think might be helpful that maybe wasn't so great. And

(43:41):
obviously this is just my own opinion. Maybe it's awesome
for you, but I'm trying to kind of show people
how it could help or not help for miss aphonia
before you're kind of invested in your dollars in certain
tools for coping.

Speaker 1 (43:57):
Absolutely, because I mean some of these gadgets and tools
and things can be kind of pricey.

Speaker 2 (44:05):
Yes, exactly. So we're going to go into that now
and we'll see you again after this clip. I am
going to be reviewing these little bad boys right here.
These are noise canceling earbuds and they sell between fifty
to eighty dollars in Amazon, depending if you're in Canada

(44:30):
like me, or.

Speaker 1 (44:30):
The US, or if there's a deal.

Speaker 2 (44:33):
We will have an affiliate link in the description, but
all many from affiliate links go directly to the International
Misophonia Foundation, which is a registered nonprofit in Missouri. We
are a five h one C three and like I said,
any affiliate links that you do click go directly to
the foundation. Now, I bought these with my own money,

(44:57):
out of my own pocket. I was not sponsored. No
one has told me to buy them. Actually did buy
these because I own these. And these are the older
version of the sound Peats, and I will say that
I absolutely love them so much. There's sound Peze logos
on the top. I love these sound Peats. I think

(45:18):
this is the t one so much that I decided
to get a second pair. And I'll show you these ones.

Speaker 1 (45:26):
This is the.

Speaker 2 (45:31):
And I have absolutely loved these for so long. I've
had them, I think for three or four years now,
and I honestly just wanted a second pair. They're still
working great. I actually choose to use these more often
than the new ones. But I'm reviewing the new ones
today because these ones sadly are no longer for sale.

(45:53):
These ones still work really good, but they are a
bit more bulky, which I'm not in crest impressed by.

Speaker 1 (46:02):
So you can see they have this.

Speaker 2 (46:05):
Outer piece and then the inner piece, where the older
ones were a bit more of just a one. So
you can see, and I mean, I guess the size
is similar. They just kind of like compartmentalize the two parts.

Speaker 1 (46:24):
I don't know.

Speaker 2 (46:24):
I just found the new design a little weird, but
that is totally upto preference. I found this a bit,
I don't know, like less awkward. But nonetheless, these still
work right. They have the same level of A and C,

(46:48):
so they have wonderful noise cancelation, and I find that
you really need that active noise cancelation to get full
relief from triggers.

Speaker 1 (47:00):
And these things are so good.

Speaker 2 (47:02):
And I will say I've had Apple earbuds over the years,
I've had Samsung buds, I've had four hundred dollars bows headphones.
None of them worked as well as these. And I
even use these at night when there's no triggers, just
because my husband's sleeping and I don't want loud noise.

(47:26):
I'm prone to migraines and headaches, and these I can
wear it for several hours without actually feeling paint. So
that is absolutely incredible. Okay, I'm trying to I must
have had them backward to the ID and you know,

(47:48):
pretty standard. They come in their little charging case. The
older model did not have a charging button or a sorry,
a sink, buttone you.

Speaker 1 (48:00):
Had to like a little bit.

Speaker 2 (48:03):
Confusingly like tap down on them and hoped that they
started to sink. But the new version they actually just
put a sink button, which is fantastic, although it took
me forever to find that button because I was trying
to do it the old way. They have a USBC charger,
which is great, and I'm just trying to see if

(48:27):
they work on my wireless charger, just you know, as
part of the review. It's not really picking them up.
So if you prefer to wireless charge, I don't think
that's going to work, which you know, might be a

(48:50):
negative for people who don't like chords. But they do
just charge with the USBC in the case. The charge
lists quite a while on these, and the case is
fairly solid, good construction. It is just plastic though, so
oh sorry for the taping. The back has like this
faux metal plastic with sound pieds and it's the same

(49:15):
kut on the top there, it's the same on the top.

Speaker 1 (49:19):
It's not that I'll protect them in a fall.

Speaker 2 (49:21):
And I honestly prefer these.

Speaker 1 (49:27):
And these if you can.

Speaker 2 (49:28):
Get these used the older T one model, I highly
suggest these over these because I just I don't know.
They work fantastic. They work fantastic. I have never had
a single problem with them. I also kind of like
the case better. Just it's a little bit I don't
I don't even know how to explain it, but I

(49:53):
feel like the details they added to this for looks
like these extra sec that the new one also, you know,
is the only one actively for sale still on Amazon
sound quality and for reducing triggers, Like my main trigger

(50:14):
is a lawnmark, this cuts it out completely. I honestly
wish they were a bit smaller so that I could
sleep with them. I have yet to find the perfect
sleep earbuds I had.

Speaker 1 (50:27):
I forget what they were called.

Speaker 2 (50:28):
They were this brand of sleep earbuds, and I didn't
really like them.

Speaker 1 (50:34):
They're only active noise canceling.

Speaker 2 (50:35):
They don't actually like play music or anything. And I
have my own white pink noise that I love, so
I didn't really like that. But I would say that
these are an amazing, amazing value because these little earbuds
with active noise canceling. Like I said, they sell between

(50:56):
fifty to one hundred dollars depending on where you live, cetera.
And I will honestly say I will choose these over
bows any day of the week. I gave my mom
my four hundred dollars Bose head said because it was
too tight. I didn't really like it. But these ones
I recommend to everybody who asks me. And as I said,

(51:18):
the link will be in the description that is an
affiliate link, but all money goes to the foundation. But
if you are looking for your child, for yourself or
your spouse as a gift, anything like that, this is
absolutely incredible. And I would say that this is probably

(51:40):
the best value I've ever found for earbits. And I
have bought a lot of them, my Samsung one's that
came with my phone, like the Samsung whatever buds.

Speaker 1 (51:52):
If I don't know.

Speaker 2 (51:54):
I feel like they're not that great, but I think
a lot of the higher and.

Speaker 1 (52:01):
Models focused more.

Speaker 2 (52:02):
On, you know, having deep bass, having really good sound,
and like I don't want really good bass, I want
really good noise canceling. So if you're not like a
super audio file and you don't really want to use
them for you know, professionally listening to music, I would
not like edit sound or anything while wearing these because
you won't.

Speaker 1 (52:22):
Get perfect sound.

Speaker 2 (52:24):
But it to the ear it sounds great, but it's
just not going to be that deep bass and those
you know, frequencies that you would want, but if you
want amazing noise cancelation.

Speaker 1 (52:38):
Thank you for listening or watching today, and again, as
we have mentioned before, if you feel it in your
heart that you wish to donate, go to.

Speaker 2 (52:50):
Sephoniafoundation dot com slash research and the link will be
on the screen as well as on the links on
our videos. And I hope everyone's having a wonderful day
or night whenever you're watching, and we will talk to
you next time, all right, see ya Bye,
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