Turtle Talk
Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care. “Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review
Episodes
On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of eating in PCD, food & drink safety especially when traveling with PCD, making foods that are more appealing & easier to eat when breathless, strategies to help you cope with the activity of actually eating, and finally on this week’s editorial we will discuss how hiding medications...
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