May 22, 2025 • 59 mins
If you’ve ever googled a specific insulin pump or CGM, you may well have come across Nerdabetic’s content online. His insightful but fun YouTube videos break down the latest and greatest in diabetes technology, helping people with diabetes to understand how they could benefit.
In this episode I’m chatting to Kamil Armacky - the real Nerdabetic. We discuss his personal journey into technology after he was diagnosed with type 1 diabetes in 2012, how he went from his first Facebook post to meeting royalty in the name of type 1 diabetes, and how his content - and the impact his content having - has evolved since he started posting eight years ago.
Offering personal stories as well as practical tips for the tech-curious, Kamil reveals his top tips for figuring out what insulin pump might work for you, what the diabetes CEOs really think, why the time in happiness is just as important as time in range - and how he ended up serving undercooked chicken on Junior Masterchef...
CONNECT WITH KAMIL
Follow Nerdabetic on Instagram.
Subscribe to his YouTube channel.
Follow Nerdabetic on X.
JOIN THE TYPE 1 ON 1 INSTAGRAM COMMUNITY
Come and say hi @studiotype1on1 on Instagram.
SPONSOR MESSAGE
This episode of Type 1 on 1 is sponsored by Insulet, the makers of Omnipod tube-free insulin pump therapy.
Using Omnipod 5 Automated Insulin Delivery has improved my diabetes management significantly with less diabetes decisions, and of course no multiple daily injections.
How? Well, Omnipod 5 automatically adjusts insulin every five minutes to help keep me in range, allowing life outside of type 1 diabetes to get bigger.
If you want to know more, head to Omnipod.com.
In this episode I’m chatting to Kamil Armacky - the real Nerdabetic. We discuss his personal journey into technology after he was diagnosed with type 1 diabetes in 2012, how he went from his first Facebook post to meeting royalty in the name of type 1 diabetes, and how his content - and the impact his content having - has evolved since he started posting eight years ago.
Offering personal stories as well as practical tips for the tech-curious, Kamil reveals his top tips for figuring out what insulin pump might work for you, what the diabetes CEOs really think, why the time in happiness is just as important as time in range - and how he ended up serving undercooked chicken on Junior Masterchef...
CONNECT WITH KAMIL
Follow Nerdabetic on Instagram.
Subscribe to his YouTube channel.
Follow Nerdabetic on X.
JOIN THE TYPE 1 ON 1 INSTAGRAM COMMUNITY
Come and say hi @studiotype1on1 on Instagram.
SPONSOR MESSAGE
This episode of Type 1 on 1 is sponsored by Insulet, the makers of Omnipod tube-free insulin pump therapy.
Using Omnipod 5 Automated Insulin Delivery has improved my diabetes management significantly with less diabetes decisions, and of course no multiple daily injections.
How? Well, Omnipod 5 automatically adjusts insulin every five minutes to help keep me in range, allowing life outside of type 1 diabetes to get bigger.
If you want to know more, head to Omnipod.com.
Mark as Played
Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
This episode of Type one on one is kindly sponsored
by Insulette. More on that later. What I will say
now is that we have a shiny new Instagram page
dedicated specifically to the Type one on one podcast. It's
very exciting, So come and say hi and join our
lovely community at Studio type one on one. The link
is in the episode description. Hi everyone, and welcome to
(00:25):
Type one on one, a podcast that delves into the obscure,
complex and challenging world of life with Type one diabetes.
I'm Jen Greeves, and each week, with the help of
some brilliant guests, I'll be showing that there is no
normal when it comes to handlink this whopper of a
chronic condition, because we're all pretty much figuring out the
(00:46):
messiness of day to day life with diabetes as we go,
and most of all, even though it doesn't always feel
like it, we are absolutely not alone. Lots of you
listening will have likely heard the name No Many of
you will have learned something from his insightful but always
fun YouTube videos that dive into the latest insights in
(01:07):
diabetes technology. What started as a single Facebook video has
grown to thirty thousand YouTube subscribers. Thousands of social media followers,
invites to global conferences, interviews with diabetes CEOs, and even
brushes with Royalty, all driven by the mission to make
the world of type one diabetes technology less overwhelming for
(01:27):
the very people that these tools are designed to help.
But who is the person behind nerdabetic and how has
being so connected to the latest and greatest in diabetes
technology impacted the way he manages his own type one
diabetes Beyond the tech.
Speaker 2 (01:43):
Let's meet Camille R. Macki and find out. Hello, Camille,
did have you?
Speaker 3 (01:49):
Thank you so much for having.
Speaker 1 (01:50):
Me, Thank you so much for being here and for
your patients. I will give away to the listeners that
this is our second attempt at recording. We're having some
technical difficulties today, but we're making it work.
Speaker 3 (02:01):
We're here very relatable though.
Speaker 4 (02:04):
Actually I have like so, I have a YouTube and
for eighty us loads of problems. Also everyday type one
and tech with type one, there are so many D
to D challenges and I think many people probably will
relate to that.
Speaker 3 (02:20):
Massively.
Speaker 1 (02:21):
Yeah, we're adapting in real time, We're overcoming.
Speaker 2 (02:24):
It's just what we do.
Speaker 1 (02:26):
And it helps to have nice people with you alongside
it so here you are.
Speaker 2 (02:30):
Thank you so much for being here. I know you're
a busy person.
Speaker 1 (02:33):
As I mentioned all of this diabetes stuff, but it's
not everything that you do. Unsurprisingly, you're a whole human being.
You're a financial analyst, you like baking, you go to
the gym, you're a train enthusiast. Do you feel like
Nerda beetic is separate from Camille or is it all
part of the whole human that makes Camille.
Speaker 3 (02:57):
It's a very good point. Actually a lot of as well.
Speaker 4 (02:59):
Some people think that I do being not that that's
like a full time think that I do, which is
like anything like not even remotely go through it is.
Speaker 3 (03:10):
It is a very important part of my life.
Speaker 4 (03:13):
And I've been youtubeing for eighty years and it's such
an important part of my identity. How I view my
role in in the in the dbut's community, but also
like in the world. I feel like it's the bit
where I can help society be slightly better, but like
there's a small part of me.
Speaker 3 (03:31):
So so it's a part of me.
Speaker 4 (03:33):
So I love my I've been on the fitness journey
over the last kind of year and a half. Alice
of Cooking bacon. My day job actually is a senior
FANAS analyst working on tech, So I love that angle.
Speaker 3 (03:48):
Yeah. Yeah, It's just one vertical of many. I do
like to I like to think that.
Speaker 4 (03:51):
I feel my personality traits across all of those verticals.
With us trains gym being not betic working, you can
see a touch of Camilla and all of them hopefully.
Speaker 2 (04:03):
Yeah, one hundred percent.
Speaker 1 (04:04):
Like I said, you always bring the fun and as well,
like I think the way that you like diabetes tech
it is overwhelming.
Speaker 2 (04:12):
I'm someone who uses it and I don't understand all
of it.
Speaker 1 (04:15):
What I am interested in is how it affects my life,
how it makes my life easier or better as a
person living with type one diabetes. And I see that
thread in the work that you do because you are
breaking down these concepts. The mission is clear, there isn't it,
because there's so many people who potentially could benefit. But
I think entering into this space, as type one diabetes
(04:36):
technology gets more advanced, it is overwhelming that diabetes technology
has advanced. Does that mean that people are finding it
easier to dig into, to entertain the idea, to learn
about Well.
Speaker 3 (04:50):
I think the way I look at this is that.
Speaker 4 (04:54):
Like when I started it eighty years ago, I was
expecting our focus on tech itself to really really reduce
over time, and that really has not happened. The tech
itself has become a lot more advanced, and we have
great hybrid closed loop systems, we have Interilent Palms, continues
to googlese Montors, but it has made the space a
(05:14):
lot intimidating to people. I think, in probably a similar way,
phones and kind of like mainstream tech has become incredibly complicated.
There are many different variations of iPhone, watches, etc. And
you know, when someone is just trying to start on
the tech journey, it can be like a jungle.
Speaker 3 (05:39):
Yeah.
Speaker 2 (05:39):
I completely resonate with that.
Speaker 1 (05:40):
But then once you understand and you start using your
iPhone or you use your watch or whatever it is.
Speaker 2 (05:45):
You're like, oh, this is amazing.
Speaker 1 (05:47):
But it takes that initial kind of jump in, doesn't it,
to get to grips of it. Yeah. I completely get
what you're saying there, but I am like, I have
so much respect for you for keeping up with these advancements,
whether it's a passion or not, alongside your full time
job and everything else you do. I mean, as I mentioned,
I don't know a whole lot about your story, which
is why I'm super excited to have you on the
(06:09):
podcast today. But before we get into it, I do
owe you an apology. Okay, you look very scared. There's
no need to be scared. I was interviewing someone for
this podcast and I just in a passing comment mentioned
the phrase time in happiness and it was obviously, you
look relieve. Now, I'm glad that's gonna be fine. I
(06:33):
was obviously absorbed somewhere in my consciousness and become part
of the lexicon of in the diabetes community, which is
amazing because you're, in fact the creator of that concept
time and happiness.
Speaker 2 (06:45):
So yeah, talk to me a bit about that.
Speaker 3 (06:48):
No, I'm really glad to hear it being used.
Speaker 4 (06:53):
I guess it started with the fundamental feeling that we
only really talk about tech, right, and when I started
YouTube to eighty years ago, the like I've seen the
multi moti year trynd of tech becoming more and more
(07:13):
and more advanced, and the hope was that that would
enable us to move past tech to focus on like
the person living of diabetes. I always felt like that
move from a diabetic to person living of diabetes was
just like a nice phrase change about a lot of
substance underneath it, Like we should really be focusing on
the person, right And it's kind of the physical representation
(07:36):
of the focus on person of you know, how can
tech make it easier for you to enjoy your Friday
dinner with friends, or go to the Eurovision song contest,
or bake with your family on Sunday without even worrying
about diabetes for that whole afternoon. It's it's kind of
(07:59):
moving past the diabetes and just improving the underlying quality
of life. And the quality of life as a phrase
has been used a lot, but I felt like this
particular phrase of time and happiness was that it was
a great sort of tat phrase for lack of a
better term to articulate all of that.
Speaker 1 (08:18):
Yeah, I really love it, so thank you for bringing
it into my world. And apologies that I didn't attribute
it to you at the time, And.
Speaker 4 (08:25):
It's not attribution, no necessary. I'm just so glad people
are using it in day to day vocabulary.
Speaker 1 (08:33):
Yeah, I personally love it because it's really why I
started writing it acknowledges that a life lived is more
than the medication. It's more than you know, counting your carbs,
which I wasn't even doing at the time, to and
testing your glucose.
Speaker 2 (08:48):
There's life to.
Speaker 1 (08:49):
Be lived, and it's so much about kind of how
you feel about this condition alongside the technology, with the technology,
without the technology. So I love that you've brought that
to the for especially given your area of expertise, because
it kind of makes space for all of these different
parts of building a life with type one diabetes.
Speaker 2 (09:11):
Right.
Speaker 3 (09:12):
So I've a pros you often is I compare it
to a brush.
Speaker 4 (09:18):
And when you're painting a picture of your life, if
you're talking about the brush, you're really talking about the
wrong thing. And that's why I still talk about the
brush like the actual tech.
Speaker 3 (09:28):
That we have.
Speaker 4 (09:29):
But I so over the last kind of few years
transitioned to really talking about the impact and like the
day to day impact it has as opposed to the
you know, the I mean, I mean tech itself is great,
the shiny years of et cetera. But it's really the
impact that I tried to highlight and focus as opposed
to just the tech itself.
Speaker 1 (09:50):
Right, So, what these technological tools can mean for us,
what they can do for us, right, yeah, amazing. And
is that kind of insight something you always had when
you were looking at the tech when you were kind
of a bit earlier on in your diabetes journey, or
is that kind of insight come over time for you
through lived experience.
Speaker 3 (10:08):
I think I think probably it's come with time.
Speaker 4 (10:12):
I think when I started, it was definitely, oh, look,
this has just happened, this new CDA mistus here probably
in a similar way that many I mean, it's difficult
now believe when I started this for twenty sixteen, twenty seventeen,
like YouTube was only like becoming a think like YouTube
was pretty much and it's like reasonably early days, especially
(10:37):
in the diabetes community, like there was still very little
info online and all info that I found when I
was since a few years after I was diagnosed.
Speaker 3 (10:46):
I was diagnosed in twenty twelve Olympic.
Speaker 4 (10:49):
Year, Like all info online that I was looking for
was really amped at healthcare professionals. There was very little
what I would consider like user advice. So that's kind
of the voidant tech that I noticed and I tried
to fill. And I think it was with time that
I noticed that actually the real value add is the
(11:14):
actual impact that tech has I was supposed to just
have in the tech.
Speaker 2 (11:19):
Yeah, lovely.
Speaker 1 (11:20):
Okay, So this probably is a good time to take
it back and find a little bit more out about Camille.
So talk to me about fourteen year old Camille in
twenty twelve. What did life look like, What were your hobbies?
What were you up to? This is like pre type
one diabetes. What was going on the high school?
Speaker 3 (11:40):
I was.
Speaker 4 (11:42):
I was really into cookin at that stage, So I
was doing caterin in school and that was one of
my I thinks that was really really really passionate at
that point. Auditioned in Junior Master Chief when I was
in high school.
Speaker 2 (11:58):
Oh my god, I love this so much.
Speaker 4 (12:01):
Terribly, which I'm terribly It's it's it's like it's genuinely
a terrible anecdote pole but I've had it to go there.
I know, you know, like when you you know, when
you go into this like pace and it's it's just
like an amazing pantry, Like it's pantry I have never
ever ever seen. And I, in the heat of the moment,
decided to take like one of those a grilled pants,
(12:24):
which is not like a novelty but I've genuinely never
used one before.
Speaker 3 (12:27):
I was only like vaulting at the time or something.
So I used that and too, I was making this
stuffed chicken breasts with like cream cheese in the middle,
some past through, some some seasoning with some like pure
type thing, and I undercooked.
Speaker 4 (12:45):
The chicken so they couldn't really try it because I
used this new pant because I that's what I've done. Yeah, yeah,
So actually you can see and you can't really see
it on the screen, but I've got my little runner
up statue that they gave everyone because that's what they.
Speaker 2 (13:00):
Do for the kids.
Speaker 3 (13:02):
Oh.
Speaker 2 (13:02):
I love that though.
Speaker 1 (13:03):
First of all, understanding a recipe of that complexity at
that age incredible. Two TV sets, very overwhelming. Three you
walked into that store, and as an adult when I
watched Master Chef, I'm like, where do you begin with
those ingredients? But I do love from that experience. You've
got to try the pan for the first time, like
you're in Disneyland, the cooking equivalent of Disneyland, right it is.
Speaker 3 (13:26):
That's very good. That's a very good comparison.
Speaker 4 (13:29):
Actually, genuine you felt like that it was very very
very very mind blowing.
Speaker 2 (13:36):
Right, So, you had these hobbies and interest which is
really cool.
Speaker 1 (13:39):
And I really like the idea that you're actually quite
a creative person and you're using that in quite an
analytical way, which is a really interesting blend. So yeah,
I'm sure that's like fed into the work that you're
doing in the diabetes space. Was that master chef experience
pre or post diagnosis?
Speaker 3 (13:57):
That was? There was a few moss post diagnosis?
Speaker 1 (13:59):
Actually, Okay, so that's a big thing to go on
and do while you're getting to grips with a very
kind of life changing medical condition. So do you want
to talk to me a little bit about how type
one diabetes made itself known?
Speaker 3 (14:13):
Yeah?
Speaker 4 (14:14):
So I so before I was diagnosactually knew someone with
type on. So my next door neighbor Mary, she's been
probably a very influential person in kind of that stage
of my life. She lived with type one diabetes and
she was a retired teacher, and we were genuinely incredibly
close friends, Like I would almost go as far to
(14:36):
say we were like best friends. So I would spend
a considerable amount of time after school playing cards with her,
playing chess, that kind of thing. It was, it was,
it was, it was we spent decent one time together.
Speaker 1 (14:51):
Were you someone who was like, I don't want to
go and do the things that the kids are doing.
Were you very kind of You're quite aware of what
you liked, and you weren't going to entertain the idea
of going and doing things that you didn't like.
Speaker 4 (15:06):
I was not going to the park to like, you know, No,
I mean I'm joking. I had I had friends to
get you wrong.
Speaker 2 (15:14):
No, I love the idea of this. I love it
so much. I think it's adorable.
Speaker 1 (15:17):
But it also shows kind of how like intellectual you are.
Speaker 2 (15:21):
I guess, like he wanted these adult conversations.
Speaker 4 (15:23):
I wanted the adult conversations, and it was genuinely like
I loved the like the strategy of test. So she
has taught me, Like, so we would play chess and
we'd play few card games and it was just a
great like way of passing time for me that like
was really intellectual, Like it was challenging and I loved that.
Speaker 3 (15:45):
Yeah, And so I was surrounded so through that she
lived with type of diabetes.
Speaker 4 (15:50):
So I knew, like in hindsight, I realized I knew
very little. So she like I knew that she was
checking her glucose. She was obviously on NDI at the time,
so I like ejecting as part of your meal routine
was something that I was kind of aware of the
of the of like that ritual, right, So I knew that.
(16:12):
So it made it better when I was diagnosed, because Okay,
I've got like some awareness of what world I'm entering into.
Chouldren have other health conditions which I associated with diabetes,
which was like my first real experience of realizing how
much I didn't know.
Speaker 3 (16:31):
So she she was in a few.
Speaker 4 (16:33):
Like car accidents earlier on in her life, so I
associated all of her mobility issues with diabetes. First experience
of like going, oh my goodness, like this type of
diabetes thing that I just got diagnosed with, Like I
it was really emotionally challenging because I just thought that
(16:53):
was my life as well.
Speaker 1 (16:55):
Yeah, it's like conflating all the health needs together kind
of thing.
Speaker 3 (16:59):
Exactly right.
Speaker 4 (17:00):
And it was only afterwards that I realized that actually
they were independent of each other, and that like it's
typeodoy just was part of her overall health.
Speaker 3 (17:14):
But not all of it.
Speaker 1 (17:17):
Wow, what a unique kind of insight into a condition
that then became one that you were living with to have,
like you say, kind of an idea and the testing
and the pieces of kit around and just the meal
time rituals and things like that, and being so close
to someone. You know, I'm sure she was having hypos
in front of you and things like that. Yeah, but
(17:39):
then that kind of more extreme side of things, as
as a child or an adult who doesn't understand what
type one diabetes is. That that's a very I think
that's quite understandable that you piece that together.
Speaker 4 (17:51):
And I do not if you agree, But I think
health it's still a bit of a taboo topic. So
it's not something that we would openly like discuss, right.
Speaker 3 (18:04):
I think. I don't know why in society it's still
is considered like a tablet. It's an incredibly personal thing,
so obviously someone's you know, self approach to health is
an incredibly personal thing, so I think that's probably where
it originated.
Speaker 4 (18:21):
But I think it's still considered incredibly taboo as a subject.
Speaker 1 (18:26):
Yeah, I agree, I agree, And it's quite a British
I don't know if I'm generalizing here, but it feels
like quite a British thing to just be like don't
ask questions, you know, and I guess we've gone the
other way within the community, like you know, which we
see what it means when people do open up about
this thing and share their experiences, unique and kind of
(18:47):
more similar experiences.
Speaker 2 (18:49):
It's incredible.
Speaker 1 (18:52):
So outside of Mary, when you were diagnosed, as you
started to kind of move through things like school where
she wasn't there, or.
Speaker 2 (19:01):
You know, your parents went around.
Speaker 1 (19:03):
How did you bring type one diabetes into your life
in terms of being a teenager getting to grips with
this and trying to get on with being a quote
unquote normal fourteen year old.
Speaker 3 (19:16):
The understands is probably I didn't.
Speaker 4 (19:18):
So like in high school, I remember going to like
a cringe when I say this, but I remember going
to like toilets to inject checked glu coast. I just
didn't want the visibility and I didn't want other kids
in high school to see me doing all of that.
So I for the first few years, I really didn't.
It was I kept it incredibly hidden. I kept incredibly private.
Speaker 3 (19:43):
It was only really when I unys later, when I
started using CUM and that's kind of when my kind.
Speaker 4 (19:50):
Of tech awareness happened that I started being lightly more,
I guess, not ashamed of it. Probably the problem before
ultimately started, you know, many many years later, except and
then kind of shit sad sharing online.
Speaker 2 (20:06):
Yeah, wow, And I think completely.
Speaker 1 (20:10):
That kind of experience, those kinds of feelings will resonate
with so many people who moved through teenage years with
type one and as an adult.
Speaker 2 (20:17):
I mean all of it.
Speaker 1 (20:18):
It's sort of it's awkward, it's clunky, it's medical. It
interrupts the thing that you're doing. It takes you out
of the situation or the people or the conversation. Like
the amount of times I'm nodding and smiling at someone
and just in the back of my head is like
your blood sugar is dropping. You are not taking in
what this person is saying. You know, it is awkward.
(20:39):
It makes itself kind of kind of gate crashes, doesn't it.
So yeah, it makes a lot of sense. What led
you into the technology?
Speaker 4 (20:47):
I was always a techy person, like with like phones, watches,
that's like like general tech. So when cgms started, so
I think Lee Brain the UK long in twenty fourteen,
which was like just after I was diagnosed. So seeing
that and being fascinated by the idea and it was
(21:08):
just that one of those like I remember when when
my DSN put a libre on my arm, like the
first day, I was just like, wow, this is going
to like I just like it was like, this is
exactly what I wanted, because my management.
Speaker 3 (21:23):
Was really not where it should.
Speaker 4 (21:25):
Have been for those first few years, not because I
didn't want to take care of myself, but because I
just felt like the tools that I had, like fingerprecking
in the middle of the day was just not something
that I would do because it just didn't fit into
the routine of a you know, fourteen fifteen year old.
(21:47):
It just felt like a burden in a way that
you know, using the CDM is still a burden, don't
get me wrong, Like you know, I would rather not
have it, but.
Speaker 3 (21:55):
Like the the bar of.
Speaker 4 (21:57):
The burden was just reduced so significant that I was like,
I can actually see this being something that really helps
and and kind of that's that's how it started.
Speaker 1 (22:09):
Right and that sort of entering their game, if you like,
it's probably not an eloquent choice of phrasing because none
of us want to be playing this game, but these
kind of gadgets and this thing that provided a bit
of a building block into Okay, I don't feel quite
as uncomfortable now. Do you think that helped you move
(22:29):
forward in terms of the acceptance and being a bit
more open about it, you know, actually physically wearing something
on your arm, I think sometimes has a lot to
do with that. What certainly did in my head like
being able to just own.
Speaker 2 (22:45):
It a bit more. Is that something you found?
Speaker 3 (22:48):
Yeah, it was definitely like a face thinks.
Speaker 4 (22:51):
I remember being quite purposeful, so I think this was
like covered like a levels. I remember being quite aware
of what I was wearing to like not always hide it.
But if if there was a long sleeve shirt and
a T shirt, I would probably more often than not.
Is those subconsciousness that kind of that thoughtfulness, I would
(23:14):
probably subconsciously more often than not picked the long sleeve
as opposed to the T shirt.
Speaker 3 (23:21):
And I think it was it was probably and it
was actually the community.
Speaker 4 (23:25):
Now looking back and kind of reflecting on that time period,
it's funny because like just talking about it makes me
reflect it was probably actually seeing other people online then
they need to actually know, like I'm not the only
person doing this, I'm not the only person wearing it.
Speaker 3 (23:39):
And it was that that you know, made me wear
T shirts again?
Speaker 2 (23:44):
Yeah?
Speaker 1 (23:45):
Yeah, interesting? And what led you to the online space?
Was it this curiosity around the tech once you started
to discover more tools and things or did it kind
of work the other way around that you wanted other
experiences and that led you to finding out about the tech.
How did that kind of begin if you like?
Speaker 3 (24:03):
So? So at that point, I have closed my written block.
Speaker 4 (24:08):
So when I was we talked about master Chef and
kind of my cooking part of my life. Part of
that was a written block that I wrote, which was
me sharing food recipes to do with coffee. Actually, so
what I would do is I would go on the
BBC Food website and try to copy any recipe I
(24:29):
could find on that and coup at adding coffee to
the recipe and I call the coffee cooking.
Speaker 3 (24:37):
So so so.
Speaker 4 (24:37):
That's what I did. I mean, it was it was
like an online tragedy. I mean it was like.
Speaker 3 (24:43):
Six six a year or so, it was. It was.
It was just a total DESI I love it.
Speaker 1 (24:49):
A creative outlet is a creative outlet in my mind,
what's the what's the weirdest thing you put coffee into?
Speaker 2 (24:54):
Just quickly I'm curious.
Speaker 3 (24:56):
It's a bit like a well, cheesecake.
Speaker 2 (24:58):
Oh that's not weird. That sounds lessius.
Speaker 1 (25:00):
No, I was imagine like coffee, coffee souper well, I
suppose that is a nice coffee.
Speaker 4 (25:09):
Probably also making it sound like this was a bit
I mean, I probably only did like ten recipes, like
it was not quite quickly I gave up on the idea.
I also found that like written, like at that stage
in my life, like written form of expression just wasn't
like it was quite a resumation with me.
Speaker 2 (25:28):
Mm hmm.
Speaker 4 (25:28):
So as that kind of was dying down because my
even my mom unsubscribe for my newsletter, so so so
shout out mom.
Speaker 1 (25:41):
It's okay, my mom doesn't listen to my podcast a
far from the one that she was on she enjoyed
that one.
Speaker 3 (25:48):
So so as I was sort of dying down and
sort of this like I was already reading a lot
of the tech started like trying to understand where about
the CGM area, and at that point it was really
just CGMS. I was like, okay, let's let's maybe try YouTube.
Speaker 4 (26:05):
As like the next side hustle avenue of expression for
lacking vetitum and so those two worlds is collected at
the perfect time, and I was like, let's let's do it,
let's do YouTube think and you know, eight years later,
but you know, still still loving it and still enjoying
it as much as I did when I started.
Speaker 2 (26:25):
That's wonderful to hear. I love that.
Speaker 1 (26:28):
I think that's what creativity is about. It's like being
curious trying things, you know, that's fab I love the
iteration of that. And I think I mentioned in the
beginning that it started from one Facebook post which was
just responding to some questions about a gadget that you posted,
and then it became the YouTube channel and now you're
you know, it's not an understatement, you're a key opinion leader,
(26:52):
a thought leader in diabetes innovation. So as we are
reflecting on that journey, how does that make you feel?
To kind of reflect on that a little bit.
Speaker 3 (27:02):
Surreal?
Speaker 4 (27:03):
But also like I'm such a like Babet's tech ecosystems
such a complex ecosystem, and I feel so privileged to
be able to play a small role within that. But yeah,
like it's just genuinely such an empowering thing. I remember
(27:25):
when I started reading comments like that, feeling that I
had when someone applied the CGM, and like, I just
genuinely felt like my quality of life was just like
ten x suddenly, like hearing that from people who discovered
tech because of my YouTube videos. Like I remember the
first time that happened, I was just like mind blown.
(27:47):
And being able to do that to other people has
just been like properly one of those meaningful focus I
get to do in life.
Speaker 1 (27:53):
Yeah, incredible, And the mission hasn't really changed, has it.
I mean you're moving through different spaces, sometimes interviewing CEOs
which will come onto, but that mission hasn't really changed.
Has it to kind of break down what this tech is,
what it does, what it can help with?
Speaker 2 (28:12):
Would that be fair to say like in that journey, No.
Speaker 3 (28:16):
It hasn't changed. I think you spot on, it's still
the same. I think the the the format of it
probably changed slightly. I think I now I've learned to
focus on quality not quantity.
Speaker 4 (28:35):
So you know, I've post probably one video a month
these days, and that is a sustainable like model for me,
which enables me to focus on like quality and actually
deep diving on specific areas. Also, I've moved away from
like breaking news style videos to Okay, this thing has
(28:59):
now been out for six twelve, eighteen months. I have
now done some proper reporting and spoken to five users
of this piece of tech who have told me ABC
as oppose to this is what happened yesterday. So I
think that the underlying mission hasn't changed. I think the
way I do it as and it gives the scale
(29:20):
of its has changed as well.
Speaker 1 (29:23):
Yeah, it's interesting what you say there about the breaking
announcements and things. It is like phones and things like that.
It's not dissimilar like, oh this is shiny, this is new.
Look at this, But actually we're talking about devices that
have the capacity potentially to change our lives and certainly.
Speaker 2 (29:39):
Improve the quality of life.
Speaker 1 (29:40):
As we've discussed, have there been some sort of faddy
things that have come along? You don't have to name anything,
But I'm just curious as it relates to the tech
in the rest of the world. Obviously we have a
different relationship with it and a different connection with it.
But is that something you found that this explosion of
tech has come with it? You know, maybe a few
things where it needed a bit more iterating, or it
(30:01):
wasn't quite ready yet. Just yeah, some of your kind
of experiences there.
Speaker 3 (30:07):
Yeah, I think that's a really good observation.
Speaker 4 (30:09):
I think there's a lot more There's many more players
in the space. So I think that's one of the
things why of the last few years I moved away
from the breaking news to only focusing on things that
matter in the sort of medium to long term. I
think that's one point, and I think it's just purely
(30:30):
I think I've also started covering like more like operational
type things.
Speaker 3 (30:37):
So we see players.
Speaker 4 (30:39):
Big and small have great products, but then not really
have the infrastructure to maintain quality of the manufacturing or
quality of customer service when.
Speaker 3 (30:50):
They work with distributors.
Speaker 4 (30:51):
Where someone's experience in the UK of using pump a
might be very different to someone's experience of using it
in US, Yes, because the local call center is different
and actually the customer.
Speaker 3 (31:06):
Experience is different.
Speaker 4 (31:07):
Like that was something that I probably was not even
mentioning like eighty years ago. Now that that's a big part,
because it's not just getting it, it's also using it
for four years per years and ensuring you you have
the service and the longevity that you know, something like
their beach stick requires.
Speaker 1 (31:28):
Yeah, I'd love to get your insights into as someone
who's like briefly stepped into a bit of this world,
not to the extent or the understanding that you have,
but having the door opened a little bit into these companies,
I'm often struck by or it's made me a little
bit more understanding when you know, we're.
Speaker 2 (31:47):
Asking for more, we're asking for next, we're asking for now.
Speaker 1 (31:50):
Actually, these are devices that are delivering doses of life
saving or breaking medication. Every country has a different framework
for safety standards, and as you say, then there's the
logistical side of things. How do you get this thing
into people's hands, what happens when things go wrong. I'd
(32:11):
love it if you could speak a little bit to
your experiences of speaking with these these players, big and small,
and whether you found more heart in it than you
expected or you know, obviously they are all businesses. They
have to make money. But like, just give me a
little bit of insight into having had those kinds of conversations.
Speaker 2 (32:32):
What you've found fine interesting question.
Speaker 3 (32:37):
I think.
Speaker 4 (32:39):
Most people who work in those companies I see a
lot of heart.
Speaker 3 (32:46):
Then I think there's someone who engages with a few
members of the industry. I think you can.
Speaker 4 (32:54):
Pretty quickly tell when that isn't there, and my experience,
they lose interest and move on incredibly quickly. So the
people who stay for like six months plus, I see
a lot of heart.
Speaker 3 (33:12):
And there's you I think many.
Speaker 4 (33:16):
The amount of personal connections at those places now compared
to eight years ago is huge, not just the ratio
of people actually live in with the condition working there,
but parents of kids or like a family relative.
Speaker 3 (33:36):
Whose entire reason for joining.
Speaker 4 (33:39):
That particular organization was the personal connection and actually wanted
to make an impact.
Speaker 3 (33:45):
And actually that didn't just apply to meet their companies.
Speaker 4 (33:47):
That applies to nonprofits, that applies to the charities, that
applies to the NHS across the spectrum. Actually, in this
Davitse ecosystem, I see a lot of that being very present.
Speaker 2 (34:02):
Yeah, that's really assuring.
Speaker 1 (34:05):
When you are speaking to the top CEOs and you're
at the table interviewing these very influential people, what is
it generally that you want to know? What are you
trying to get out of them? Just with a view
to kind of passing that down to the listeners who
aren't absorbed in this world of diabetes technology.
Speaker 3 (34:24):
So it really depends. So what I really appreciate is.
Speaker 4 (34:32):
Ability to have like an online and offline conversation, So like,
I love being able to off camera feedback some of
the points that we have just talked about about, like
customer service of what I'm hearing from people reading YouTube
comments about you know, what I'm hearing is like we
(34:56):
really need some kind of opening hours on safs or Sunday.
Speaker 3 (35:00):
It's those like I.
Speaker 4 (35:02):
Think being able for me to give that feedback, I
think I find that incredibly meaningful and it's an actual
on camera interview. They tend to be focused on like
product announcements and ongoing sort of updates and research that
(35:22):
happened in the space. So for the last few years,
there's been a lot of work around trying to make
diabetes teck accepsible to women in pregnancy, for example. There's
a lot of research that couadem you, but also medtech
companies need to do to enable that.
Speaker 3 (35:40):
So asking kind of how they are with that.
Speaker 4 (35:42):
How their engagement with people with diabetes who are going
through that journey has been.
Speaker 3 (35:49):
Men of pause has been enough area that like the.
Speaker 4 (35:52):
Things that you wouldn't traditionally associated with the diabetes tech
I tried to bring in those conversations because to our
previous conversation, it's going above and beyond the tech. If
the impact of the tech and how it's actually used
in day to day and some of those areas are
less discussed by them directly, So I guess that gives
them and opening like okay, people that community talking about this,
(36:17):
maybe we should do something. And I think that's I
like being able to add VU.
Speaker 1 (36:21):
You yeah, and do you feel like those kinds of
insights and kind of bits of information are received, they
are responded, they are heard. Is that getting better? I mean,
I remember a time when getting in front of anyone
from these companies was quite impossible. So I'm just wondering
from the experiences that you've had, how that kind of
(36:44):
day's day insight has been received.
Speaker 4 (36:51):
How soon, like in the mid term. Probably, I don't
think it has like tangible impact on day one, but
I I do. I like to believe at least that
when the topic of should we increase the budget to
customer service office because like we currently operate nine to
(37:13):
five Monday to Friday, and maybe we should be open
on Sassay and Sunday, that when there's that discussion in
their head office that that particular person that I was
speaking to about that two years ago goes, oh yeah,
Camille mentioned like to me that actually this is something
that some people have liked to him and like, if
that like thought process is part of the decision making,
(37:36):
then then I think I've done my my smoll bit.
Speaker 1 (37:41):
Yeah, Well to your point, I guess it's like these
little brushstrokes are building up a picture and that does
that does create that creates a picture.
Speaker 4 (37:51):
Right, And And like I said, I'm just a like
I want to make that point. I'm just a small
part of.
Speaker 3 (37:56):
The over etcal system. So there are so many different diverse.
Speaker 4 (37:59):
Voice and you know, it sometimes takes multiple people flagging
the same thing to have action. And that might be
kind of patient advocates like myself, that might be a
nonprofits like Break for two one D or Diabetes UK.
Speaker 3 (38:21):
That might be professional bodies from the LHS.
Speaker 4 (38:25):
Like many voices are part of this conversation and I'm
just proud of it.
Speaker 1 (38:34):
This episode of Type one on one is sponsored by Insult,
the makers of Omnipod tube free insulin pump therapy. I've
personally used pod therapy to manage my Type one diabetes
for years and using omnipod five automated insulin delivery has
improved my diabetes management significantly with less diabetes decisions and
(38:54):
of course no multiple daily injections. How well, omnipod five
automatically adjust my insulin every five minutes to help keep
me in range, allowing life outside of type one diabetes
to get bigger. If you want to know more, head
toomnipod dot com. And with that, then what is something
(39:15):
that you've been a part of or you've seen some
change happen. It might be a ux thing, it might
be a new feature, it might be just size sing
of pumps Like these are all things that we as
people with type one diabetes think about and we understand
that is there something that you've seen change improve outside
of access which is obviously ongoing, that you've thought, yeah, okay,
(39:40):
we as a collective kind of it's making a difference.
Speaker 3 (39:45):
So I take no credit for this. It's other people.
Speaker 4 (39:48):
Voicing the irritation with change and senses. Do you remember
back a in kind of T five days, so T
six days, you would have like a two hour gap
where you wouldn't see your gluecose that was one of
the things that dex Com has thought about with the
(40:11):
G seven, you can overlate to sense at the same time,
so basically have like you know where you logos all
the time and from where I've heard, like deep think
it has gone into that based on feedback from members
of the community and and focus groups that.
Speaker 2 (40:30):
Kind of think great, and.
Speaker 1 (40:35):
I'm conscious like I want to add value to people
listening who maybe are thinking about diabetes technology, whether that's
an insulin pump or whatever, to kind of glean some
of your wisdom. I imagine you get a lot of
questions about what's the perfect insulin pump or how does
this work? And will this work for me? As we've
(40:56):
discussed with the frameworks and the limitations and how that
varies from country country, it's understandable why there's only limited
insulin pump products on the market. What is generally your
response in terms of people seeking out an insulin pump,
availability aside and choice aside, like that will work for them?
Speaker 4 (41:18):
I would probably start with going like where you are,
so just like, what are my options and just like
write them down. And I mean, there are so many
pieces of advice I could give. My top advice for
picking a new continuous goos monitor orangeland pump is. Speak
to someone who's already using that piece of tech and
(41:41):
just ask them about it.
Speaker 3 (41:43):
I think the killer question really is.
Speaker 4 (41:47):
What's the one thing you wish you knew about it
before you started using it? And it could be something
small like how the packaging of it is quite big,
so when you go in away for a weekend and
it takes more space than you would.
Speaker 3 (42:02):
Like, or about.
Speaker 4 (42:05):
The customer experience and how long it takes to get
to a human when you call the customer service line.
Another piece of advice would be obviously watch me on
YouTube talk about it, and to make sure you subscribe
whilst you do it.
Speaker 3 (42:19):
But yeah, so those are we probably two.
Speaker 2 (42:23):
Very key, very key do.
Speaker 3 (42:26):
Do both of those.
Speaker 4 (42:27):
It speak to someone that are using it, like practically speaking,
like we now live in a very like health and
diabetes stickers not as much of a taboo as it
was a long time ago. So just go online and
do hashtag name of the thing you're looking at, and
you will find hundreds, if not thousands, if not hundreds
(42:48):
of thousands of people who are using it online and
like quite honestly comment on one of their photos or
just send them a private message, whether that's on INTU,
on Facebook, Twitter, and just have a conversation.
Speaker 2 (43:05):
Yeah.
Speaker 1 (43:06):
I was going to ask because you mentioned like know
what your options are, where you would begin to find
out what your options are, But obviously aside from your
own diabetes healthcare professional team, the answer is the nerd
a betic YouTube channel.
Speaker 3 (43:20):
Also no, and the absolutely.
Speaker 1 (43:23):
Yeah though, because I mean I remember, just speaking from
my personal experience, when I entered into the world of
like even considering an insulin pump, which took me so
long to get to, I didn't know what brands were
out there. On the day I went on my insulin pump,
I still didn't realize that I would be giving up
my long acting insulin, that it was redundant. So just
(43:45):
to reassure people, whatever question you have, it's not a
silly question, I think to your point about what would
keep coming back to how does this fit into my life?
The packaging if you're traveling, that is a consideration. You've
only got so much room in a carry on case,
you know, And the sense of warm up times, customer care.
My insulin pump previously did die on a Sunday afternoon,
(44:08):
and I needed. I needed that customer care on a
Sunday afternoon. So I just think it's this is incredibly
valuable because like I certainly think it's like, oh, there's
this incident pump and this insulin pump. Sometimes you're like, okay,
but but there's there's much more to kind of dig
into and don't be afraid to ask those questions.
Speaker 2 (44:27):
I guess, which is exactly what you're saying there.
Speaker 4 (44:31):
I think rightly we have become more aware and be
willing to challenge those things. Like I think eighteen years ago,
no one really was talking about, oh, this packaging is
way too big, or it uses way too much plastic
from an environmental perspective, or what are the opening hours
of the customer help line? And I think we've matured
(44:53):
as a community from that perspective, and I welcome that.
Speaker 1 (44:56):
Nice And what are are like a couple of the
most common questions you get? And what is your general answer?
Just for people listening?
Speaker 4 (45:08):
So I think probably the one I asked the most
is what tech I am currently using? So I say,
there isn't the best infant pump, but there isn't the
best CTM. There's best for you and all depends on
personal circumstances. For me, I've been using the omnipod for
(45:28):
goodness since twenty nineteen, so it's been like six years.
And I use the dex Com G seven as a
continuous goal ghost monitor in a in a hybrid closely.
So that's what I've been using very successfully.
Speaker 3 (45:42):
I enjoy it. It fits into my life.
Speaker 4 (45:46):
It enables me to just get on with life in
a way that like you know, I've really I really
need to like the whole point, did that i'd be
to tech from me so that it takes less time
right as the whole point. So I would say it's
one of the most common questions. I don't know if
people obviously ask about what the next. It always fascinates me,
(46:08):
like I understand the curiosity, you know, when I when
I remember I was one of the first seven people
in the UK to use the G seven so and
so I was I think with the first video on
on on on G seven was was and UK was
also the first launch country globally, so like I was
(46:28):
the first one out there like nine am on a
Monday morning when the marketing embargo dropped and I was
like here is on boxing of the X comedy seven
and literally one of the first comments was.
Speaker 3 (46:38):
What's going to happen with the g eight was just
like really wow.
Speaker 4 (46:45):
But people are always fascinated about like the next thing,
which I was like, I get a.
Speaker 1 (46:49):
Lot of those questions, interesting, gosh, and that like I
don't know if it's from that common thing of like
the cure is coming. I just honestly blocked that out
of my mind. It's not something I can consider because
I'm considering my health in the moment, which will hopefully
ripple into my future. And I sort of feel reassured
(47:11):
given how much technology has moved on in my diabetes lifetime, which,
by the way, it is my twenty ninth diversary side
note today. Wow yeah, yeah, thanks.
Speaker 2 (47:25):
But I just think I'm quite reassured.
Speaker 1 (47:27):
And I don't know if I should be more active
in thinking about, well, what's next and what should we
have next, what should it look like? But I think
I'm quite reassured by the progress that's been made. That
doesn't mean to say it hasn't been because people have
been pushing and demanding and asking for change and asking
for more and asking for better, and that's absolutely how
change is made. But Yeah, it's an interesting one to consider.
(47:49):
I wonder if maybe I just don't have the capacity
to think about the future too much because I'm trying
to deal with this thing on day to day and
live my life.
Speaker 2 (47:58):
Yeah, this is all really interesting.
Speaker 1 (48:01):
You mentioned there about there's no perfect insulin pump, but
it's about finding the perfect insulin pumps for you with
your knowledge of the different insulin pumps and what they
can do and can offer. What are the things that
can make a difference for someone depending on the type
of lifestyle they live, whether they have children or not,
whether they're the parent of a child with Type one diabetes,
(48:24):
those kinds of different features and functions that actually that
actually do make a difference.
Speaker 3 (48:31):
Yeah, So.
Speaker 4 (48:33):
Throally, the biggest initial distinction is tube pumps versus tubeless pumps.
So I think that is probably one of the first
kind of top level decisions that you probably need to make,
whatever which one suits your lifestyle more and honestly, there
isn't right or wrong there. So some people love the
(48:55):
convenience of the omnipod because like you just completely always
wear it on, But for other people, actually the fact
that you always wear it on unlike a traditional pump
which you can detach and have basically nothing on your body.
Actually they love that so genuinely is no right or
wrong for anybody, I.
Speaker 3 (49:13):
Think for.
Speaker 4 (49:16):
We still lack in when it comes to a lot
of women health things, so that we don't have a
hybrid closed loop for example, which takes into account like
mentional cycle.
Speaker 3 (49:29):
But we are that we now have.
Speaker 4 (49:33):
Systems which are designed with like pregnancy and mind. So
if you a woman thinking about starting a family, that's
probably a very important consideration to make because you know,
usually your pump, you know you would wear it for
at least four years, So if you're kind of in
that head space, that's an important consideration because not all
(49:54):
intertent pumps can be used during pregnancy. Actually just just
just one time a closed loop system which is licensed
to do that, which is shusy to sand much progress
we've got left to do there. Yeah, I would just
look at like where you are in life and I'll
start there.
Speaker 2 (50:13):
Yeah, love that advice, And.
Speaker 1 (50:18):
I've experienced and I'm wondering what your thoughts are on
this that actually the tech only works as much as
you work with it.
Speaker 2 (50:28):
It's not a magic solution, and.
Speaker 1 (50:32):
It doesn't necessarily take much once you are set up.
My first insulin pump was a very frustrating experience because
my insulin to card ratio was completely off, and I
think my basil settings with that were also off, so
I ran high for an extended period of weeks, to
the point that I really did consider handing it back.
(50:55):
And I'm happy to say that that's not been the case,
because I went back to my healthcare team and I
did ask these very specific questions and it was only
a few kind of tweaks that really made the difference.
So I'm wondering if you've if you've found that within
the features and functions of each system, like the smaller
things that make a difference, and maybe what some of
(51:16):
those are for people who are interested in this.
Speaker 4 (51:20):
Yeah, it's certainly like it's an investment, like I think TechEd,
like the initial Unfortunately, the like the onboard in takes
a considerable amount of time and to a point on
settings and tweaks, I mean, there has been progress, undeniably
on trying to simplify it, but as TICK has gotten
more complicated, like the overall ratio I actually find has increased,
(51:42):
so that there's more things to adjust, there's more things
to keep in mind, there is more things to be
aware of. I think it's for long term benefits, So
I think over time the payback to use my financial analogy,
like the payback is is huge and very short, right,
so very quickly you get the benefit out of that.
Speaker 3 (52:04):
But it does take time. I think that's probably another
key thing to mention to people is if something isn't working,
be vocal about it, because it's not going to fix itself.
You need to you need to you know, make people
aware of it.
Speaker 1 (52:21):
Yeah, ask your team, and I have found that generally,
once I've been vocal that there has been a solution,
so to encourage people there.
Speaker 2 (52:29):
Yeah, it just takes time.
Speaker 1 (52:30):
And I really I'm so grateful for my technology now.
Like going from that place, it sort of shows the
progress that you can make in your own It's like
learning to drive a car or something. You know you're
not an expert at first in anything.
Speaker 4 (52:44):
And I also find sometimes it's does like more lifestyle
things like how do you deal with it when you're
run in or that kind of thing. And like the
community is a great resource, Like we talked, you can
reach people online, you can go to like a local
support group, and.
Speaker 3 (53:03):
Like wherever you live, that usually is.
Speaker 4 (53:05):
A social Facebook group or that kind of thing where
you know, people meet in the local cafe or you know,
pop something like that once a month where you can
probably meet people who are using the piece of tech
that you've also used in and like having that chance
and like bouncing off each other with those questions is
sometimes phenomenal advice that can improve the quality of life
(53:30):
and your quality of using that tech in probably similar
magnitude to speaking to your consultant.
Speaker 2 (53:37):
Amazing and your.
Speaker 1 (53:42):
Concerns, like I at fourteen, obviously they're very different now
than they were when you were diagnosed at fourteen. As
someone who's embedded in where we're at now but also
with the future, What, as Camille, are your kind of
concerns around being a person living with type one? What
do you struggle with I'm just curious.
Speaker 3 (54:02):
There's a grand couption.
Speaker 4 (54:06):
I think I still have real I think the whole
food ecosystem I still find incredibly challenging.
Speaker 3 (54:15):
It's the.
Speaker 4 (54:18):
Like like I still associate food as like a diabetes thing.
I just like now that I've put on a hydrid
closed loop and I also sometimes use it in a
fully closed mode where you don't have to actually do much.
But I still associate food as like the part of
my life where diabetes is most visible.
Speaker 3 (54:37):
Right, I don't really experience that when I go to
the gym.
Speaker 4 (54:39):
I don't really do that with like other parts, but
like that is still associated that with Like that's when
like the diabetes Camille. Like if you were to line
up all of the Camills, the train Camille, the gym Camill,
the finals analyst Camill, the diabetes Camill, that's like when
the diabetes Camille is most prevalent.
Speaker 3 (54:56):
So I think that is still something that I.
Speaker 4 (54:58):
Still foggle, and I think we are a long long
time away from like food being something that doesn't doesn't
bring any diabetes associations.
Speaker 1 (55:12):
With Yeah, yeah, it's one of the I mean it
just never goes away, does it.
Speaker 3 (55:17):
I think?
Speaker 2 (55:17):
No, I know, I'm completely with you on that.
Speaker 1 (55:20):
And on the flip side of that, as I mentioned
in the intro, you you bring the fun to this stuff.
You keep it lighthearted, You make a lot of jokes.
Can you tell me, just quickly a weird or wacky
or wonderful experience that has been triggered by Type one
that you can share with me today.
Speaker 3 (55:38):
Ooh goodness, put them the on the spot. So I
don't know this is this is probably quite a relatable
actually as well a lot of people.
Speaker 4 (55:45):
So I was in a I was in a in
my university library once and someone tapped me on the
shoulder and asked me how how severe my smoking addiction
was because they fought my fust. Celebri was wearing was
a nicketine patch the size of which they have never seen.
And they were like, dude, how many do you smoke
(56:05):
a day? And I was like, what are you talking about?
And it was I gave I gave him a short
education lesson on what libre is, and I was like,
I don't smoke, thank you very much.
Speaker 3 (56:17):
I can.
Speaker 4 (56:18):
I also just say like the audacities, like like, do
you actually approach a stranger.
Speaker 3 (56:23):
I've never seen this man before in my whole life.
Speaker 4 (56:26):
For you to actually approach a stranger and be like
there's something about you.
Speaker 3 (56:30):
That I just I'm so curious about. I'm actually gonna
go over yes something. Oh So I didn't love this
context is rather than in the middle of the quiet.
So when you're actually not allowed to talk and you
have to shush and like be super super quiet, which
I think is also relevant context here. Yeah.
Speaker 1 (56:47):
Absolutely, Yeah, that that judgment is extra vocal, like I'm
making a judgment, I'm going over to talk to you
about it, and I'm in a place where everyone's gonna
hear it because we shouldn't be talking.
Speaker 2 (56:58):
Wow, exactly, Yeah, my goodness me.
Speaker 3 (57:01):
Yeah.
Speaker 1 (57:01):
I mean that stuff just never stops, like this experiences
all day every day where I'm like, this is a
mad thing. This condition is just a behemoth. Okay, So
I've taken up a lot of your time. Please can
you tell everyone where people can find you to glean
some of this wisdom and knowledge that you've gathered in
(57:22):
all the years that you've been posting on YouTube.
Speaker 4 (57:25):
Yes, So you can find me on YouTube at Nerdobetic,
and I also have an Instagram and Twitter x all
at Nordelic. I'm also involved in a lot of other projects.
So talk about diabetes TAD is a fantastic initiative in
(57:45):
the UK that I've been getting moral or involved over
the last few years, and various other community led things
that I tried to do my partn as well.
Speaker 1 (57:56):
Incredible. I love the work you're doing. I love the
insight you have here, this blend of technology, creativity, analytics,
because as I've said many times, it's not the tech itself,
it's what the tech means for the life. I get
to live without sacrificing my health on a day to
day basis, and I think the way the tech is
going has bridged that gap for me between being able
(58:19):
to say yes to things and the cost that that
has on either my glucose levels or maybe the time
that it takes to minimize the impact on my glucose levels.
And I feel like that bridge is kind of being
built and that is where the magic of technology is
for me.
Speaker 2 (58:33):
And I love that message that you know.
Speaker 1 (58:36):
It's very similar to the message you're putting out there,
which kind of brings us back to the beginning about
the time and happiness. So yeah, thank you for sharing
all of that insight with me today. And yeah, I'm
just so happy we've got to have this conversation.
Speaker 3 (58:49):
No, thanks so much for having me Jen.
Speaker 4 (58:51):
Yeah, No, it's been an absolute pleasure, and I'm really
glad we've got to do it because we've.
Speaker 3 (58:56):
Known it for a long, long long time. I'm so
glad to we finally to do this, so this has
been great.
Speaker 1 (59:01):
I hope you enjoyed this episode of Type one on one.
Please remember that nothing you hear on this podcast should
be taken as medical advice. I'm definitely not a healthcare professional.
If you like what you hear, hit subscribe and do
leave a little review on iTunes if you have time.
It really helps to spread the word about type one diabetes.
(59:23):
And thank you so much for listening.
This episode of Type one on one is kindly sponsored
by Insulette. More on that later. What I will say
now is that we have a shiny new Instagram page
dedicated specifically to the Type one on one podcast. It's
very exciting, So come and say hi and join our
lovely community at Studio type one on one. The link
is in the episode description. Hi everyone, and welcome to
(00:25):
Type one on one, a podcast that delves into the obscure,
complex and challenging world of life with Type one diabetes.
I'm Jen Greeves, and each week, with the help of
some brilliant guests, I'll be showing that there is no
normal when it comes to handlink this whopper of a
chronic condition, because we're all pretty much figuring out the
(00:46):
messiness of day to day life with diabetes as we go,
and most of all, even though it doesn't always feel
like it, we are absolutely not alone. Lots of you
listening will have likely heard the name No Many of
you will have learned something from his insightful but always
fun YouTube videos that dive into the latest insights in
(01:07):
diabetes technology. What started as a single Facebook video has
grown to thirty thousand YouTube subscribers. Thousands of social media followers,
invites to global conferences, interviews with diabetes CEOs, and even
brushes with Royalty, all driven by the mission to make
the world of type one diabetes technology less overwhelming for
(01:27):
the very people that these tools are designed to help.
But who is the person behind nerdabetic and how has
being so connected to the latest and greatest in diabetes
technology impacted the way he manages his own type one
diabetes Beyond the tech.
Speaker 2 (01:43):
Let's meet Camille R. Macki and find out. Hello, Camille,
did have you?
Speaker 3 (01:49):
Thank you so much for having.
Speaker 1 (01:50):
Me, Thank you so much for being here and for
your patients. I will give away to the listeners that
this is our second attempt at recording. We're having some
technical difficulties today, but we're making it work.
Speaker 3 (02:01):
We're here very relatable though.
Speaker 4 (02:04):
Actually I have like so, I have a YouTube and
for eighty us loads of problems. Also everyday type one
and tech with type one, there are so many D
to D challenges and I think many people probably will
relate to that.
Speaker 3 (02:20):
Massively.
Speaker 1 (02:21):
Yeah, we're adapting in real time, We're overcoming.
Speaker 2 (02:24):
It's just what we do.
Speaker 1 (02:26):
And it helps to have nice people with you alongside
it so here you are.
Speaker 2 (02:30):
Thank you so much for being here. I know you're
a busy person.
Speaker 1 (02:33):
As I mentioned all of this diabetes stuff, but it's
not everything that you do. Unsurprisingly, you're a whole human being.
You're a financial analyst, you like baking, you go to
the gym, you're a train enthusiast. Do you feel like
Nerda beetic is separate from Camille or is it all
part of the whole human that makes Camille.
Speaker 3 (02:57):
It's a very good point. Actually a lot of as well.
Speaker 4 (02:59):
Some people think that I do being not that that's
like a full time think that I do, which is
like anything like not even remotely go through it is.
Speaker 3 (03:10):
It is a very important part of my life.
Speaker 4 (03:13):
And I've been youtubeing for eighty years and it's such
an important part of my identity. How I view my
role in in the in the dbut's community, but also
like in the world. I feel like it's the bit
where I can help society be slightly better, but like
there's a small part of me.
Speaker 3 (03:31):
So so it's a part of me.
Speaker 4 (03:33):
So I love my I've been on the fitness journey
over the last kind of year and a half. Alice
of Cooking bacon. My day job actually is a senior
FANAS analyst working on tech, So I love that angle.
Speaker 3 (03:48):
Yeah. Yeah, It's just one vertical of many. I do
like to I like to think that.
Speaker 4 (03:51):
I feel my personality traits across all of those verticals.
With us trains gym being not betic working, you can
see a touch of Camilla and all of them hopefully.
Speaker 2 (04:03):
Yeah, one hundred percent.
Speaker 1 (04:04):
Like I said, you always bring the fun and as well,
like I think the way that you like diabetes tech
it is overwhelming.
Speaker 2 (04:12):
I'm someone who uses it and I don't understand all
of it.
Speaker 1 (04:15):
What I am interested in is how it affects my life,
how it makes my life easier or better as a
person living with type one diabetes. And I see that
thread in the work that you do because you are
breaking down these concepts. The mission is clear, there isn't it,
because there's so many people who potentially could benefit. But
I think entering into this space, as type one diabetes
(04:36):
technology gets more advanced, it is overwhelming that diabetes technology
has advanced. Does that mean that people are finding it
easier to dig into, to entertain the idea, to learn
about Well.
Speaker 3 (04:50):
I think the way I look at this is that.
Speaker 4 (04:54):
Like when I started it eighty years ago, I was
expecting our focus on tech itself to really really reduce
over time, and that really has not happened. The tech
itself has become a lot more advanced, and we have
great hybrid closed loop systems, we have Interilent Palms, continues
to googlese Montors, but it has made the space a
(05:14):
lot intimidating to people. I think, in probably a similar way,
phones and kind of like mainstream tech has become incredibly complicated.
There are many different variations of iPhone, watches, etc. And
you know, when someone is just trying to start on
the tech journey, it can be like a jungle.
Speaker 3 (05:39):
Yeah.
Speaker 2 (05:39):
I completely resonate with that.
Speaker 1 (05:40):
But then once you understand and you start using your
iPhone or you use your watch or whatever it is.
Speaker 2 (05:45):
You're like, oh, this is amazing.
Speaker 1 (05:47):
But it takes that initial kind of jump in, doesn't it,
to get to grips of it. Yeah. I completely get
what you're saying there, but I am like, I have
so much respect for you for keeping up with these advancements,
whether it's a passion or not, alongside your full time
job and everything else you do. I mean, as I mentioned,
I don't know a whole lot about your story, which
is why I'm super excited to have you on the
(06:09):
podcast today. But before we get into it, I do
owe you an apology. Okay, you look very scared. There's
no need to be scared. I was interviewing someone for
this podcast and I just in a passing comment mentioned
the phrase time in happiness and it was obviously, you
look relieve. Now, I'm glad that's gonna be fine. I
(06:33):
was obviously absorbed somewhere in my consciousness and become part
of the lexicon of in the diabetes community, which is
amazing because you're, in fact the creator of that concept
time and happiness.
Speaker 2 (06:45):
So yeah, talk to me a bit about that.
Speaker 3 (06:48):
No, I'm really glad to hear it being used.
Speaker 4 (06:53):
I guess it started with the fundamental feeling that we
only really talk about tech, right, and when I started
YouTube to eighty years ago, the like I've seen the
multi moti year trynd of tech becoming more and more
(07:13):
and more advanced, and the hope was that that would
enable us to move past tech to focus on like
the person living of diabetes. I always felt like that
move from a diabetic to person living of diabetes was
just like a nice phrase change about a lot of
substance underneath it, Like we should really be focusing on
the person, right And it's kind of the physical representation
(07:36):
of the focus on person of you know, how can
tech make it easier for you to enjoy your Friday
dinner with friends, or go to the Eurovision song contest,
or bake with your family on Sunday without even worrying
about diabetes for that whole afternoon. It's it's kind of
(07:59):
moving past the diabetes and just improving the underlying quality
of life. And the quality of life as a phrase
has been used a lot, but I felt like this
particular phrase of time and happiness was that it was
a great sort of tat phrase for lack of a
better term to articulate all of that.
Speaker 1 (08:18):
Yeah, I really love it, so thank you for bringing
it into my world. And apologies that I didn't attribute
it to you at the time, And.
Speaker 4 (08:25):
It's not attribution, no necessary. I'm just so glad people
are using it in day to day vocabulary.
Speaker 1 (08:33):
Yeah, I personally love it because it's really why I
started writing it acknowledges that a life lived is more
than the medication. It's more than you know, counting your carbs,
which I wasn't even doing at the time, to and
testing your glucose.
Speaker 2 (08:48):
There's life to.
Speaker 1 (08:49):
Be lived, and it's so much about kind of how
you feel about this condition alongside the technology, with the technology,
without the technology. So I love that you've brought that
to the for especially given your area of expertise, because
it kind of makes space for all of these different
parts of building a life with type one diabetes.
Speaker 2 (09:11):
Right.
Speaker 3 (09:12):
So I've a pros you often is I compare it
to a brush.
Speaker 4 (09:18):
And when you're painting a picture of your life, if
you're talking about the brush, you're really talking about the
wrong thing. And that's why I still talk about the
brush like the actual tech.
Speaker 3 (09:28):
That we have.
Speaker 4 (09:29):
But I so over the last kind of few years
transitioned to really talking about the impact and like the
day to day impact it has as opposed to the
you know, the I mean, I mean tech itself is great,
the shiny years of et cetera. But it's really the
impact that I tried to highlight and focus as opposed
to just the tech itself.
Speaker 1 (09:50):
Right, So, what these technological tools can mean for us,
what they can do for us, right, yeah, amazing. And
is that kind of insight something you always had when
you were looking at the tech when you were kind
of a bit earlier on in your diabetes journey, or
is that kind of insight come over time for you
through lived experience.
Speaker 3 (10:08):
I think I think probably it's come with time.
Speaker 4 (10:12):
I think when I started, it was definitely, oh, look,
this has just happened, this new CDA mistus here probably
in a similar way that many I mean, it's difficult
now believe when I started this for twenty sixteen, twenty seventeen,
like YouTube was only like becoming a think like YouTube
was pretty much and it's like reasonably early days, especially
(10:37):
in the diabetes community, like there was still very little
info online and all info that I found when I
was since a few years after I was diagnosed.
Speaker 3 (10:46):
I was diagnosed in twenty twelve Olympic.
Speaker 4 (10:49):
Year, Like all info online that I was looking for
was really amped at healthcare professionals. There was very little
what I would consider like user advice. So that's kind
of the voidant tech that I noticed and I tried
to fill. And I think it was with time that
I noticed that actually the real value add is the
(11:14):
actual impact that tech has I was supposed to just
have in the tech.
Speaker 2 (11:19):
Yeah, lovely.
Speaker 1 (11:20):
Okay, So this probably is a good time to take
it back and find a little bit more out about Camille.
So talk to me about fourteen year old Camille in
twenty twelve. What did life look like, What were your hobbies?
What were you up to? This is like pre type
one diabetes. What was going on the high school?
Speaker 3 (11:40):
I was.
Speaker 4 (11:42):
I was really into cookin at that stage, So I
was doing caterin in school and that was one of
my I thinks that was really really really passionate at
that point. Auditioned in Junior Master Chief when I was
in high school.
Speaker 2 (11:58):
Oh my god, I love this so much.
Speaker 4 (12:01):
Terribly, which I'm terribly It's it's it's like it's genuinely
a terrible anecdote pole but I've had it to go there.
I know, you know, like when you you know, when
you go into this like pace and it's it's just
like an amazing pantry, Like it's pantry I have never
ever ever seen. And I, in the heat of the moment,
decided to take like one of those a grilled pants,
(12:24):
which is not like a novelty but I've genuinely never
used one before.
Speaker 3 (12:27):
I was only like vaulting at the time or something.
So I used that and too, I was making this
stuffed chicken breasts with like cream cheese in the middle,
some past through, some some seasoning with some like pure
type thing, and I undercooked.
Speaker 4 (12:45):
The chicken so they couldn't really try it because I
used this new pant because I that's what I've done. Yeah, yeah,
So actually you can see and you can't really see
it on the screen, but I've got my little runner
up statue that they gave everyone because that's what they.
Speaker 2 (13:00):
Do for the kids.
Speaker 3 (13:02):
Oh.
Speaker 2 (13:02):
I love that though.
Speaker 1 (13:03):
First of all, understanding a recipe of that complexity at
that age incredible. Two TV sets, very overwhelming. Three you
walked into that store, and as an adult when I
watched Master Chef, I'm like, where do you begin with
those ingredients? But I do love from that experience. You've
got to try the pan for the first time, like
you're in Disneyland, the cooking equivalent of Disneyland, right it is.
Speaker 3 (13:26):
That's very good. That's a very good comparison.
Speaker 4 (13:29):
Actually, genuine you felt like that it was very very
very very mind blowing.
Speaker 2 (13:36):
Right, So, you had these hobbies and interest which is
really cool.
Speaker 1 (13:39):
And I really like the idea that you're actually quite
a creative person and you're using that in quite an
analytical way, which is a really interesting blend. So yeah,
I'm sure that's like fed into the work that you're
doing in the diabetes space. Was that master chef experience
pre or post diagnosis?
Speaker 3 (13:57):
That was? There was a few moss post diagnosis?
Speaker 1 (13:59):
Actually, Okay, so that's a big thing to go on
and do while you're getting to grips with a very
kind of life changing medical condition. So do you want
to talk to me a little bit about how type
one diabetes made itself known?
Speaker 3 (14:13):
Yeah?
Speaker 4 (14:14):
So I so before I was diagnosactually knew someone with
type on. So my next door neighbor Mary, she's been
probably a very influential person in kind of that stage
of my life. She lived with type one diabetes and
she was a retired teacher, and we were genuinely incredibly
close friends, Like I would almost go as far to
(14:36):
say we were like best friends. So I would spend
a considerable amount of time after school playing cards with her,
playing chess, that kind of thing. It was, it was,
it was, it was we spent decent one time together.
Speaker 1 (14:51):
Were you someone who was like, I don't want to
go and do the things that the kids are doing.
Were you very kind of You're quite aware of what
you liked, and you weren't going to entertain the idea
of going and doing things that you didn't like.
Speaker 4 (15:06):
I was not going to the park to like, you know, No,
I mean I'm joking. I had I had friends to
get you wrong.
Speaker 2 (15:14):
No, I love the idea of this. I love it
so much. I think it's adorable.
Speaker 1 (15:17):
But it also shows kind of how like intellectual you are.
Speaker 2 (15:21):
I guess, like he wanted these adult conversations.
Speaker 4 (15:23):
I wanted the adult conversations, and it was genuinely like
I loved the like the strategy of test. So she
has taught me, Like, so we would play chess and
we'd play few card games and it was just a
great like way of passing time for me that like
was really intellectual, Like it was challenging and I loved that.
Speaker 3 (15:45):
Yeah, And so I was surrounded so through that she
lived with type of diabetes.
Speaker 4 (15:50):
So I knew, like in hindsight, I realized I knew
very little. So she like I knew that she was
checking her glucose. She was obviously on NDI at the time,
so I like ejecting as part of your meal routine
was something that I was kind of aware of the
of the of like that ritual, right, So I knew that.
(16:12):
So it made it better when I was diagnosed, because Okay,
I've got like some awareness of what world I'm entering into.
Chouldren have other health conditions which I associated with diabetes,
which was like my first real experience of realizing how
much I didn't know.
Speaker 3 (16:31):
So she she was in a few.
Speaker 4 (16:33):
Like car accidents earlier on in her life, so I
associated all of her mobility issues with diabetes. First experience
of like going, oh my goodness, like this type of
diabetes thing that I just got diagnosed with, Like I
it was really emotionally challenging because I just thought that
(16:53):
was my life as well.
Speaker 1 (16:55):
Yeah, it's like conflating all the health needs together kind
of thing.
Speaker 3 (16:59):
Exactly right.
Speaker 4 (17:00):
And it was only afterwards that I realized that actually
they were independent of each other, and that like it's
typeodoy just was part of her overall health.
Speaker 3 (17:14):
But not all of it.
Speaker 1 (17:17):
Wow, what a unique kind of insight into a condition
that then became one that you were living with to have,
like you say, kind of an idea and the testing
and the pieces of kit around and just the meal
time rituals and things like that, and being so close
to someone. You know, I'm sure she was having hypos
in front of you and things like that. Yeah, but
(17:39):
then that kind of more extreme side of things, as
as a child or an adult who doesn't understand what
type one diabetes is. That that's a very I think
that's quite understandable that you piece that together.
Speaker 4 (17:51):
And I do not if you agree, But I think
health it's still a bit of a taboo topic. So
it's not something that we would openly like discuss, right.
Speaker 3 (18:04):
I think. I don't know why in society it's still
is considered like a tablet. It's an incredibly personal thing,
so obviously someone's you know, self approach to health is
an incredibly personal thing, so I think that's probably where
it originated.
Speaker 4 (18:21):
But I think it's still considered incredibly taboo as a subject.
Speaker 1 (18:26):
Yeah, I agree, I agree, And it's quite a British
I don't know if I'm generalizing here, but it feels
like quite a British thing to just be like don't
ask questions, you know, and I guess we've gone the
other way within the community, like you know, which we
see what it means when people do open up about
this thing and share their experiences, unique and kind of
(18:47):
more similar experiences.
Speaker 2 (18:49):
It's incredible.
Speaker 1 (18:52):
So outside of Mary, when you were diagnosed, as you
started to kind of move through things like school where
she wasn't there, or.
Speaker 2 (19:01):
You know, your parents went around.
Speaker 1 (19:03):
How did you bring type one diabetes into your life
in terms of being a teenager getting to grips with
this and trying to get on with being a quote
unquote normal fourteen year old.
Speaker 3 (19:16):
The understands is probably I didn't.
Speaker 4 (19:18):
So like in high school, I remember going to like
a cringe when I say this, but I remember going
to like toilets to inject checked glu coast. I just
didn't want the visibility and I didn't want other kids
in high school to see me doing all of that.
So I for the first few years, I really didn't.
It was I kept it incredibly hidden. I kept incredibly private.
Speaker 3 (19:43):
It was only really when I unys later, when I
started using CUM and that's kind of when my kind.
Speaker 4 (19:50):
Of tech awareness happened that I started being lightly more,
I guess, not ashamed of it. Probably the problem before
ultimately started, you know, many many years later, except and
then kind of shit sad sharing online.
Speaker 2 (20:06):
Yeah, wow, And I think completely.
Speaker 1 (20:10):
That kind of experience, those kinds of feelings will resonate
with so many people who moved through teenage years with
type one and as an adult.
Speaker 2 (20:17):
I mean all of it.
Speaker 1 (20:18):
It's sort of it's awkward, it's clunky, it's medical. It
interrupts the thing that you're doing. It takes you out
of the situation or the people or the conversation. Like
the amount of times I'm nodding and smiling at someone
and just in the back of my head is like
your blood sugar is dropping. You are not taking in
what this person is saying. You know, it is awkward.
(20:39):
It makes itself kind of kind of gate crashes, doesn't it.
So yeah, it makes a lot of sense. What led
you into the technology?
Speaker 4 (20:47):
I was always a techy person, like with like phones, watches,
that's like like general tech. So when cgms started, so
I think Lee Brain the UK long in twenty fourteen,
which was like just after I was diagnosed. So seeing
that and being fascinated by the idea and it was
(21:08):
just that one of those like I remember when when
my DSN put a libre on my arm, like the
first day, I was just like, wow, this is going
to like I just like it was like, this is
exactly what I wanted, because my management.
Speaker 3 (21:23):
Was really not where it should.
Speaker 4 (21:25):
Have been for those first few years, not because I
didn't want to take care of myself, but because I
just felt like the tools that I had, like fingerprecking
in the middle of the day was just not something
that I would do because it just didn't fit into
the routine of a you know, fourteen fifteen year old.
(21:47):
It just felt like a burden in a way that
you know, using the CDM is still a burden, don't
get me wrong, Like you know, I would rather not
have it, but.
Speaker 3 (21:55):
Like the the bar of.
Speaker 4 (21:57):
The burden was just reduced so significant that I was like,
I can actually see this being something that really helps
and and kind of that's that's how it started.
Speaker 1 (22:09):
Right and that sort of entering their game, if you like,
it's probably not an eloquent choice of phrasing because none
of us want to be playing this game, but these
kind of gadgets and this thing that provided a bit
of a building block into Okay, I don't feel quite
as uncomfortable now. Do you think that helped you move
(22:29):
forward in terms of the acceptance and being a bit
more open about it, you know, actually physically wearing something
on your arm, I think sometimes has a lot to
do with that. What certainly did in my head like
being able to just own.
Speaker 2 (22:45):
It a bit more. Is that something you found?
Speaker 3 (22:48):
Yeah, it was definitely like a face thinks.
Speaker 4 (22:51):
I remember being quite purposeful, so I think this was
like covered like a levels. I remember being quite aware
of what I was wearing to like not always hide it.
But if if there was a long sleeve shirt and
a T shirt, I would probably more often than not.
Is those subconsciousness that kind of that thoughtfulness, I would
(23:14):
probably subconsciously more often than not picked the long sleeve
as opposed to the T shirt.
Speaker 3 (23:21):
And I think it was it was probably and it
was actually the community.
Speaker 4 (23:25):
Now looking back and kind of reflecting on that time period,
it's funny because like just talking about it makes me
reflect it was probably actually seeing other people online then
they need to actually know, like I'm not the only
person doing this, I'm not the only person wearing it.
Speaker 3 (23:39):
And it was that that you know, made me wear
T shirts again?
Speaker 2 (23:44):
Yeah?
Speaker 1 (23:45):
Yeah, interesting? And what led you to the online space?
Was it this curiosity around the tech once you started
to discover more tools and things or did it kind
of work the other way around that you wanted other
experiences and that led you to finding out about the tech.
How did that kind of begin if you like?
Speaker 3 (24:03):
So? So at that point, I have closed my written block.
Speaker 4 (24:08):
So when I was we talked about master Chef and
kind of my cooking part of my life. Part of
that was a written block that I wrote, which was
me sharing food recipes to do with coffee. Actually, so
what I would do is I would go on the
BBC Food website and try to copy any recipe I
(24:29):
could find on that and coup at adding coffee to
the recipe and I call the coffee cooking.
Speaker 3 (24:37):
So so so.
Speaker 4 (24:37):
That's what I did. I mean, it was it was
like an online tragedy. I mean it was like.
Speaker 3 (24:43):
Six six a year or so, it was. It was.
It was just a total DESI I love it.
Speaker 1 (24:49):
A creative outlet is a creative outlet in my mind,
what's the what's the weirdest thing you put coffee into?
Speaker 2 (24:54):
Just quickly I'm curious.
Speaker 3 (24:56):
It's a bit like a well, cheesecake.
Speaker 2 (24:58):
Oh that's not weird. That sounds lessius.
Speaker 1 (25:00):
No, I was imagine like coffee, coffee souper well, I
suppose that is a nice coffee.
Speaker 4 (25:09):
Probably also making it sound like this was a bit
I mean, I probably only did like ten recipes, like
it was not quite quickly I gave up on the idea.
I also found that like written, like at that stage
in my life, like written form of expression just wasn't
like it was quite a resumation with me.
Speaker 2 (25:28):
Mm hmm.
Speaker 4 (25:28):
So as that kind of was dying down because my
even my mom unsubscribe for my newsletter, so so so
shout out mom.
Speaker 1 (25:41):
It's okay, my mom doesn't listen to my podcast a
far from the one that she was on she enjoyed
that one.
Speaker 3 (25:48):
So so as I was sort of dying down and
sort of this like I was already reading a lot
of the tech started like trying to understand where about
the CGM area, and at that point it was really
just CGMS. I was like, okay, let's let's maybe try YouTube.
Speaker 4 (26:05):
As like the next side hustle avenue of expression for
lacking vetitum and so those two worlds is collected at
the perfect time, and I was like, let's let's do it,
let's do YouTube think and you know, eight years later,
but you know, still still loving it and still enjoying
it as much as I did when I started.
Speaker 2 (26:25):
That's wonderful to hear. I love that.
Speaker 1 (26:28):
I think that's what creativity is about. It's like being
curious trying things, you know, that's fab I love the
iteration of that. And I think I mentioned in the
beginning that it started from one Facebook post which was
just responding to some questions about a gadget that you posted,
and then it became the YouTube channel and now you're
you know, it's not an understatement, you're a key opinion leader,
(26:52):
a thought leader in diabetes innovation. So as we are
reflecting on that journey, how does that make you feel?
To kind of reflect on that a little bit.
Speaker 3 (27:02):
Surreal?
Speaker 4 (27:03):
But also like I'm such a like Babet's tech ecosystems
such a complex ecosystem, and I feel so privileged to
be able to play a small role within that. But yeah,
like it's just genuinely such an empowering thing. I remember
(27:25):
when I started reading comments like that, feeling that I
had when someone applied the CGM, and like, I just
genuinely felt like my quality of life was just like
ten x suddenly, like hearing that from people who discovered
tech because of my YouTube videos. Like I remember the
first time that happened, I was just like mind blown.
(27:47):
And being able to do that to other people has
just been like properly one of those meaningful focus I
get to do in life.
Speaker 1 (27:53):
Yeah, incredible, And the mission hasn't really changed, has it.
I mean you're moving through different spaces, sometimes interviewing CEOs
which will come onto, but that mission hasn't really changed.
Has it to kind of break down what this tech is,
what it does, what it can help with?
Speaker 2 (28:12):
Would that be fair to say like in that journey, No.
Speaker 3 (28:16):
It hasn't changed. I think you spot on, it's still
the same. I think the the the format of it
probably changed slightly. I think I now I've learned to
focus on quality not quantity.
Speaker 4 (28:35):
So you know, I've post probably one video a month
these days, and that is a sustainable like model for me,
which enables me to focus on like quality and actually
deep diving on specific areas. Also, I've moved away from
like breaking news style videos to Okay, this thing has
(28:59):
now been out for six twelve, eighteen months. I have
now done some proper reporting and spoken to five users
of this piece of tech who have told me ABC
as oppose to this is what happened yesterday. So I
think that the underlying mission hasn't changed. I think the
way I do it as and it gives the scale
(29:20):
of its has changed as well.
Speaker 1 (29:23):
Yeah, it's interesting what you say there about the breaking
announcements and things. It is like phones and things like that.
It's not dissimilar like, oh this is shiny, this is new.
Look at this, But actually we're talking about devices that
have the capacity potentially to change our lives and certainly.
Speaker 2 (29:39):
Improve the quality of life.
Speaker 1 (29:40):
As we've discussed, have there been some sort of faddy
things that have come along? You don't have to name anything,
But I'm just curious as it relates to the tech
in the rest of the world. Obviously we have a
different relationship with it and a different connection with it.
But is that something you found that this explosion of
tech has come with it? You know, maybe a few
things where it needed a bit more iterating, or it
(30:01):
wasn't quite ready yet. Just yeah, some of your kind
of experiences there.
Speaker 3 (30:07):
Yeah, I think that's a really good observation.
Speaker 4 (30:09):
I think there's a lot more There's many more players
in the space. So I think that's one of the
things why of the last few years I moved away
from the breaking news to only focusing on things that
matter in the sort of medium to long term. I
think that's one point, and I think it's just purely
(30:30):
I think I've also started covering like more like operational
type things.
Speaker 3 (30:37):
So we see players.
Speaker 4 (30:39):
Big and small have great products, but then not really
have the infrastructure to maintain quality of the manufacturing or
quality of customer service when.
Speaker 3 (30:50):
They work with distributors.
Speaker 4 (30:51):
Where someone's experience in the UK of using pump a
might be very different to someone's experience of using it
in US, Yes, because the local call center is different
and actually the customer.
Speaker 3 (31:06):
Experience is different.
Speaker 4 (31:07):
Like that was something that I probably was not even
mentioning like eighty years ago. Now that that's a big part,
because it's not just getting it, it's also using it
for four years per years and ensuring you you have
the service and the longevity that you know, something like
their beach stick requires.
Speaker 1 (31:28):
Yeah, I'd love to get your insights into as someone
who's like briefly stepped into a bit of this world,
not to the extent or the understanding that you have,
but having the door opened a little bit into these companies,
I'm often struck by or it's made me a little
bit more understanding when you know, we're.
Speaker 2 (31:47):
Asking for more, we're asking for next, we're asking for now.
Speaker 1 (31:50):
Actually, these are devices that are delivering doses of life
saving or breaking medication. Every country has a different framework
for safety standards, and as you say, then there's the
logistical side of things. How do you get this thing
into people's hands, what happens when things go wrong. I'd
(32:11):
love it if you could speak a little bit to
your experiences of speaking with these these players, big and small,
and whether you found more heart in it than you
expected or you know, obviously they are all businesses. They
have to make money. But like, just give me a
little bit of insight into having had those kinds of conversations.
Speaker 2 (32:32):
What you've found fine interesting question.
Speaker 3 (32:37):
I think.
Speaker 4 (32:39):
Most people who work in those companies I see a
lot of heart.
Speaker 3 (32:46):
Then I think there's someone who engages with a few
members of the industry. I think you can.
Speaker 4 (32:54):
Pretty quickly tell when that isn't there, and my experience,
they lose interest and move on incredibly quickly. So the
people who stay for like six months plus, I see
a lot of heart.
Speaker 3 (33:12):
And there's you I think many.
Speaker 4 (33:16):
The amount of personal connections at those places now compared
to eight years ago is huge, not just the ratio
of people actually live in with the condition working there,
but parents of kids or like a family relative.
Speaker 3 (33:36):
Whose entire reason for joining.
Speaker 4 (33:39):
That particular organization was the personal connection and actually wanted
to make an impact.
Speaker 3 (33:45):
And actually that didn't just apply to meet their companies.
Speaker 4 (33:47):
That applies to nonprofits, that applies to the charities, that
applies to the NHS across the spectrum. Actually, in this
Davitse ecosystem, I see a lot of that being very present.
Speaker 2 (34:02):
Yeah, that's really assuring.
Speaker 1 (34:05):
When you are speaking to the top CEOs and you're
at the table interviewing these very influential people, what is
it generally that you want to know? What are you
trying to get out of them? Just with a view
to kind of passing that down to the listeners who
aren't absorbed in this world of diabetes technology.
Speaker 3 (34:24):
So it really depends. So what I really appreciate is.
Speaker 4 (34:32):
Ability to have like an online and offline conversation, So like,
I love being able to off camera feedback some of
the points that we have just talked about about, like
customer service of what I'm hearing from people reading YouTube
comments about you know, what I'm hearing is like we
(34:56):
really need some kind of opening hours on safs or Sunday.
Speaker 3 (35:00):
It's those like I.
Speaker 4 (35:02):
Think being able for me to give that feedback, I
think I find that incredibly meaningful and it's an actual
on camera interview. They tend to be focused on like
product announcements and ongoing sort of updates and research that
(35:22):
happened in the space. So for the last few years,
there's been a lot of work around trying to make
diabetes teck accepsible to women in pregnancy, for example. There's
a lot of research that couadem you, but also medtech
companies need to do to enable that.
Speaker 3 (35:40):
So asking kind of how they are with that.
Speaker 4 (35:42):
How their engagement with people with diabetes who are going
through that journey has been.
Speaker 3 (35:49):
Men of pause has been enough area that like the.
Speaker 4 (35:52):
Things that you wouldn't traditionally associated with the diabetes tech
I tried to bring in those conversations because to our
previous conversation, it's going above and beyond the tech. If
the impact of the tech and how it's actually used
in day to day and some of those areas are
less discussed by them directly, So I guess that gives
them and opening like okay, people that community talking about this,
(36:17):
maybe we should do something. And I think that's I
like being able to add VU.
Speaker 1 (36:21):
You yeah, and do you feel like those kinds of
insights and kind of bits of information are received, they
are responded, they are heard. Is that getting better? I mean,
I remember a time when getting in front of anyone
from these companies was quite impossible. So I'm just wondering
from the experiences that you've had, how that kind of
(36:44):
day's day insight has been received.
Speaker 4 (36:51):
How soon, like in the mid term. Probably, I don't
think it has like tangible impact on day one, but
I I do. I like to believe at least that
when the topic of should we increase the budget to
customer service office because like we currently operate nine to
(37:13):
five Monday to Friday, and maybe we should be open
on Sassay and Sunday, that when there's that discussion in
their head office that that particular person that I was
speaking to about that two years ago goes, oh yeah,
Camille mentioned like to me that actually this is something
that some people have liked to him and like, if
that like thought process is part of the decision making,
(37:36):
then then I think I've done my my smoll bit.
Speaker 1 (37:41):
Yeah, Well to your point, I guess it's like these
little brushstrokes are building up a picture and that does
that does create that creates a picture.
Speaker 4 (37:51):
Right, And And like I said, I'm just a like
I want to make that point. I'm just a small
part of.
Speaker 3 (37:56):
The over etcal system. So there are so many different diverse.
Speaker 4 (37:59):
Voice and you know, it sometimes takes multiple people flagging
the same thing to have action. And that might be
kind of patient advocates like myself, that might be a
nonprofits like Break for two one D or Diabetes UK.
Speaker 3 (38:21):
That might be professional bodies from the LHS.
Speaker 4 (38:25):
Like many voices are part of this conversation and I'm
just proud of it.
Speaker 1 (38:34):
This episode of Type one on one is sponsored by Insult,
the makers of Omnipod tube free insulin pump therapy. I've
personally used pod therapy to manage my Type one diabetes
for years and using omnipod five automated insulin delivery has
improved my diabetes management significantly with less diabetes decisions and
(38:54):
of course no multiple daily injections. How well, omnipod five
automatically adjust my insulin every five minutes to help keep
me in range, allowing life outside of type one diabetes
to get bigger. If you want to know more, head
toomnipod dot com. And with that, then what is something
(39:15):
that you've been a part of or you've seen some
change happen. It might be a ux thing, it might
be a new feature, it might be just size sing
of pumps Like these are all things that we as
people with type one diabetes think about and we understand
that is there something that you've seen change improve outside
of access which is obviously ongoing, that you've thought, yeah, okay,
(39:40):
we as a collective kind of it's making a difference.
Speaker 3 (39:45):
So I take no credit for this. It's other people.
Speaker 4 (39:48):
Voicing the irritation with change and senses. Do you remember
back a in kind of T five days, so T
six days, you would have like a two hour gap
where you wouldn't see your gluecose that was one of
the things that dex Com has thought about with the
(40:11):
G seven, you can overlate to sense at the same time,
so basically have like you know where you logos all
the time and from where I've heard, like deep think
it has gone into that based on feedback from members
of the community and and focus groups that.
Speaker 2 (40:30):
Kind of think great, and.
Speaker 1 (40:35):
I'm conscious like I want to add value to people
listening who maybe are thinking about diabetes technology, whether that's
an insulin pump or whatever, to kind of glean some
of your wisdom. I imagine you get a lot of
questions about what's the perfect insulin pump or how does
this work? And will this work for me? As we've
(40:56):
discussed with the frameworks and the limitations and how that
varies from country country, it's understandable why there's only limited
insulin pump products on the market. What is generally your
response in terms of people seeking out an insulin pump,
availability aside and choice aside, like that will work for them?
Speaker 4 (41:18):
I would probably start with going like where you are,
so just like, what are my options and just like
write them down. And I mean, there are so many
pieces of advice I could give. My top advice for
picking a new continuous goos monitor orangeland pump is. Speak
to someone who's already using that piece of tech and
(41:41):
just ask them about it.
Speaker 3 (41:43):
I think the killer question really is.
Speaker 4 (41:47):
What's the one thing you wish you knew about it
before you started using it? And it could be something
small like how the packaging of it is quite big,
so when you go in away for a weekend and
it takes more space than you would.
Speaker 3 (42:02):
Like, or about.
Speaker 4 (42:05):
The customer experience and how long it takes to get
to a human when you call the customer service line.
Another piece of advice would be obviously watch me on
YouTube talk about it, and to make sure you subscribe
whilst you do it.
Speaker 3 (42:19):
But yeah, so those are we probably two.
Speaker 2 (42:23):
Very key, very key do.
Speaker 3 (42:26):
Do both of those.
Speaker 4 (42:27):
It speak to someone that are using it, like practically speaking,
like we now live in a very like health and
diabetes stickers not as much of a taboo as it
was a long time ago. So just go online and
do hashtag name of the thing you're looking at, and
you will find hundreds, if not thousands, if not hundreds
(42:48):
of thousands of people who are using it online and
like quite honestly comment on one of their photos or
just send them a private message, whether that's on INTU,
on Facebook, Twitter, and just have a conversation.
Speaker 2 (43:05):
Yeah.
Speaker 1 (43:06):
I was going to ask because you mentioned like know
what your options are, where you would begin to find
out what your options are, But obviously aside from your
own diabetes healthcare professional team, the answer is the nerd
a betic YouTube channel.
Speaker 3 (43:20):
Also no, and the absolutely.
Speaker 1 (43:23):
Yeah though, because I mean I remember, just speaking from
my personal experience, when I entered into the world of
like even considering an insulin pump, which took me so
long to get to, I didn't know what brands were
out there. On the day I went on my insulin pump,
I still didn't realize that I would be giving up
my long acting insulin, that it was redundant. So just
(43:45):
to reassure people, whatever question you have, it's not a
silly question, I think to your point about what would
keep coming back to how does this fit into my life?
The packaging if you're traveling, that is a consideration. You've
only got so much room in a carry on case,
you know, And the sense of warm up times, customer care.
My insulin pump previously did die on a Sunday afternoon,
(44:08):
and I needed. I needed that customer care on a
Sunday afternoon. So I just think it's this is incredibly
valuable because like I certainly think it's like, oh, there's
this incident pump and this insulin pump. Sometimes you're like, okay,
but but there's there's much more to kind of dig
into and don't be afraid to ask those questions.
Speaker 2 (44:27):
I guess, which is exactly what you're saying there.
Speaker 4 (44:31):
I think rightly we have become more aware and be
willing to challenge those things. Like I think eighteen years ago,
no one really was talking about, oh, this packaging is
way too big, or it uses way too much plastic
from an environmental perspective, or what are the opening hours
of the customer help line? And I think we've matured
(44:53):
as a community from that perspective, and I welcome that.
Speaker 1 (44:56):
Nice And what are are like a couple of the
most common questions you get? And what is your general answer?
Just for people listening?
Speaker 4 (45:08):
So I think probably the one I asked the most
is what tech I am currently using? So I say,
there isn't the best infant pump, but there isn't the
best CTM. There's best for you and all depends on
personal circumstances. For me, I've been using the omnipod for
(45:28):
goodness since twenty nineteen, so it's been like six years.
And I use the dex Com G seven as a
continuous goal ghost monitor in a in a hybrid closely.
So that's what I've been using very successfully.
Speaker 3 (45:42):
I enjoy it. It fits into my life.
Speaker 4 (45:46):
It enables me to just get on with life in
a way that like you know, I've really I really
need to like the whole point, did that i'd be
to tech from me so that it takes less time
right as the whole point. So I would say it's
one of the most common questions. I don't know if
people obviously ask about what the next. It always fascinates me,
(46:08):
like I understand the curiosity, you know, when I when
I remember I was one of the first seven people
in the UK to use the G seven so and
so I was I think with the first video on
on on on G seven was was and UK was
also the first launch country globally, so like I was
(46:28):
the first one out there like nine am on a
Monday morning when the marketing embargo dropped and I was
like here is on boxing of the X comedy seven
and literally one of the first comments was.
Speaker 3 (46:38):
What's going to happen with the g eight was just
like really wow.
Speaker 4 (46:45):
But people are always fascinated about like the next thing,
which I was like, I get a.
Speaker 1 (46:49):
Lot of those questions, interesting, gosh, and that like I
don't know if it's from that common thing of like
the cure is coming. I just honestly blocked that out
of my mind. It's not something I can consider because
I'm considering my health in the moment, which will hopefully
ripple into my future. And I sort of feel reassured
(47:11):
given how much technology has moved on in my diabetes lifetime, which,
by the way, it is my twenty ninth diversary side
note today. Wow yeah, yeah, thanks.
Speaker 2 (47:25):
But I just think I'm quite reassured.
Speaker 1 (47:27):
And I don't know if I should be more active
in thinking about, well, what's next and what should we
have next, what should it look like? But I think
I'm quite reassured by the progress that's been made. That
doesn't mean to say it hasn't been because people have
been pushing and demanding and asking for change and asking
for more and asking for better, and that's absolutely how
change is made. But Yeah, it's an interesting one to consider.
(47:49):
I wonder if maybe I just don't have the capacity
to think about the future too much because I'm trying
to deal with this thing on day to day and
live my life.
Speaker 2 (47:58):
Yeah, this is all really interesting.
Speaker 1 (48:01):
You mentioned there about there's no perfect insulin pump, but
it's about finding the perfect insulin pumps for you with
your knowledge of the different insulin pumps and what they
can do and can offer. What are the things that
can make a difference for someone depending on the type
of lifestyle they live, whether they have children or not,
whether they're the parent of a child with Type one diabetes,
(48:24):
those kinds of different features and functions that actually that
actually do make a difference.
Speaker 3 (48:31):
Yeah, So.
Speaker 4 (48:33):
Throally, the biggest initial distinction is tube pumps versus tubeless pumps.
So I think that is probably one of the first
kind of top level decisions that you probably need to make,
whatever which one suits your lifestyle more and honestly, there
isn't right or wrong there. So some people love the
(48:55):
convenience of the omnipod because like you just completely always
wear it on, But for other people, actually the fact
that you always wear it on unlike a traditional pump
which you can detach and have basically nothing on your body.
Actually they love that so genuinely is no right or
wrong for anybody, I.
Speaker 3 (49:13):
Think for.
Speaker 4 (49:16):
We still lack in when it comes to a lot
of women health things, so that we don't have a
hybrid closed loop for example, which takes into account like
mentional cycle.
Speaker 3 (49:29):
But we are that we now have.
Speaker 4 (49:33):
Systems which are designed with like pregnancy and mind. So
if you a woman thinking about starting a family, that's
probably a very important consideration to make because you know,
usually your pump, you know you would wear it for
at least four years, So if you're kind of in
that head space, that's an important consideration because not all
(49:54):
intertent pumps can be used during pregnancy. Actually just just
just one time a closed loop system which is licensed
to do that, which is shusy to sand much progress
we've got left to do there. Yeah, I would just
look at like where you are in life and I'll
start there.
Speaker 2 (50:13):
Yeah, love that advice, And.
Speaker 1 (50:18):
I've experienced and I'm wondering what your thoughts are on
this that actually the tech only works as much as
you work with it.
Speaker 2 (50:28):
It's not a magic solution, and.
Speaker 1 (50:32):
It doesn't necessarily take much once you are set up.
My first insulin pump was a very frustrating experience because
my insulin to card ratio was completely off, and I
think my basil settings with that were also off, so
I ran high for an extended period of weeks, to
the point that I really did consider handing it back.
(50:55):
And I'm happy to say that that's not been the case,
because I went back to my healthcare team and I
did ask these very specific questions and it was only
a few kind of tweaks that really made the difference.
So I'm wondering if you've if you've found that within
the features and functions of each system, like the smaller
things that make a difference, and maybe what some of
(51:16):
those are for people who are interested in this.
Speaker 4 (51:20):
Yeah, it's certainly like it's an investment, like I think TechEd,
like the initial Unfortunately, the like the onboard in takes
a considerable amount of time and to a point on
settings and tweaks, I mean, there has been progress, undeniably
on trying to simplify it, but as TICK has gotten
more complicated, like the overall ratio I actually find has increased,
(51:42):
so that there's more things to adjust, there's more things
to keep in mind, there is more things to be
aware of. I think it's for long term benefits, So
I think over time the payback to use my financial analogy,
like the payback is is huge and very short, right,
so very quickly you get the benefit out of that.
Speaker 3 (52:04):
But it does take time. I think that's probably another
key thing to mention to people is if something isn't working,
be vocal about it, because it's not going to fix itself.
You need to you need to you know, make people
aware of it.
Speaker 1 (52:21):
Yeah, ask your team, and I have found that generally,
once I've been vocal that there has been a solution,
so to encourage people there.
Speaker 2 (52:29):
Yeah, it just takes time.
Speaker 1 (52:30):
And I really I'm so grateful for my technology now.
Like going from that place, it sort of shows the
progress that you can make in your own It's like
learning to drive a car or something. You know you're
not an expert at first in anything.
Speaker 4 (52:44):
And I also find sometimes it's does like more lifestyle
things like how do you deal with it when you're
run in or that kind of thing. And like the
community is a great resource, Like we talked, you can
reach people online, you can go to like a local
support group, and.
Speaker 3 (53:03):
Like wherever you live, that usually is.
Speaker 4 (53:05):
A social Facebook group or that kind of thing where
you know, people meet in the local cafe or you know,
pop something like that once a month where you can
probably meet people who are using the piece of tech
that you've also used in and like having that chance
and like bouncing off each other with those questions is
sometimes phenomenal advice that can improve the quality of life
(53:30):
and your quality of using that tech in probably similar
magnitude to speaking to your consultant.
Speaker 2 (53:37):
Amazing and your.
Speaker 1 (53:42):
Concerns, like I at fourteen, obviously they're very different now
than they were when you were diagnosed at fourteen. As
someone who's embedded in where we're at now but also
with the future, What, as Camille, are your kind of
concerns around being a person living with type one? What
do you struggle with I'm just curious.
Speaker 3 (54:02):
There's a grand couption.
Speaker 4 (54:06):
I think I still have real I think the whole
food ecosystem I still find incredibly challenging.
Speaker 3 (54:15):
It's the.
Speaker 4 (54:18):
Like like I still associate food as like a diabetes thing.
I just like now that I've put on a hydrid
closed loop and I also sometimes use it in a
fully closed mode where you don't have to actually do much.
But I still associate food as like the part of
my life where diabetes is most visible.
Speaker 3 (54:37):
Right, I don't really experience that when I go to
the gym.
Speaker 4 (54:39):
I don't really do that with like other parts, but
like that is still associated that with Like that's when
like the diabetes Camille. Like if you were to line
up all of the Camills, the train Camille, the gym Camill,
the finals analyst Camill, the diabetes Camill, that's like when
the diabetes Camille is most prevalent.
Speaker 3 (54:56):
So I think that is still something that I.
Speaker 4 (54:58):
Still foggle, and I think we are a long long
time away from like food being something that doesn't doesn't
bring any diabetes associations.
Speaker 1 (55:12):
With Yeah, yeah, it's one of the I mean it
just never goes away, does it.
Speaker 3 (55:17):
I think?
Speaker 2 (55:17):
No, I know, I'm completely with you on that.
Speaker 1 (55:20):
And on the flip side of that, as I mentioned
in the intro, you you bring the fun to this stuff.
You keep it lighthearted, You make a lot of jokes.
Can you tell me, just quickly a weird or wacky
or wonderful experience that has been triggered by Type one
that you can share with me today.
Speaker 3 (55:38):
Ooh goodness, put them the on the spot. So I
don't know this is this is probably quite a relatable
actually as well a lot of people.
Speaker 4 (55:45):
So I was in a I was in a in
my university library once and someone tapped me on the
shoulder and asked me how how severe my smoking addiction
was because they fought my fust. Celebri was wearing was
a nicketine patch the size of which they have never seen.
And they were like, dude, how many do you smoke
(56:05):
a day? And I was like, what are you talking about?
And it was I gave I gave him a short
education lesson on what libre is, and I was like,
I don't smoke, thank you very much.
Speaker 3 (56:17):
I can.
Speaker 4 (56:18):
I also just say like the audacities, like like, do
you actually approach a stranger.
Speaker 3 (56:23):
I've never seen this man before in my whole life.
Speaker 4 (56:26):
For you to actually approach a stranger and be like
there's something about you.
Speaker 3 (56:30):
That I just I'm so curious about. I'm actually gonna
go over yes something. Oh So I didn't love this
context is rather than in the middle of the quiet.
So when you're actually not allowed to talk and you
have to shush and like be super super quiet, which
I think is also relevant context here. Yeah.
Speaker 1 (56:47):
Absolutely, Yeah, that that judgment is extra vocal, like I'm
making a judgment, I'm going over to talk to you
about it, and I'm in a place where everyone's gonna
hear it because we shouldn't be talking.
Speaker 2 (56:58):
Wow, exactly, Yeah, my goodness me.
Speaker 3 (57:01):
Yeah.
Speaker 1 (57:01):
I mean that stuff just never stops, like this experiences
all day every day where I'm like, this is a
mad thing. This condition is just a behemoth. Okay, So
I've taken up a lot of your time. Please can
you tell everyone where people can find you to glean
some of this wisdom and knowledge that you've gathered in
(57:22):
all the years that you've been posting on YouTube.
Speaker 4 (57:25):
Yes, So you can find me on YouTube at Nerdobetic,
and I also have an Instagram and Twitter x all
at Nordelic. I'm also involved in a lot of other projects.
So talk about diabetes TAD is a fantastic initiative in
(57:45):
the UK that I've been getting moral or involved over
the last few years, and various other community led things
that I tried to do my partn as well.
Speaker 1 (57:56):
Incredible. I love the work you're doing. I love the
insight you have here, this blend of technology, creativity, analytics,
because as I've said many times, it's not the tech itself,
it's what the tech means for the life. I get
to live without sacrificing my health on a day to
day basis, and I think the way the tech is
going has bridged that gap for me between being able
(58:19):
to say yes to things and the cost that that
has on either my glucose levels or maybe the time
that it takes to minimize the impact on my glucose levels.
And I feel like that bridge is kind of being
built and that is where the magic of technology is
for me.
Speaker 2 (58:33):
And I love that message that you know.
Speaker 1 (58:36):
It's very similar to the message you're putting out there,
which kind of brings us back to the beginning about
the time and happiness. So yeah, thank you for sharing
all of that insight with me today. And yeah, I'm
just so happy we've got to have this conversation.
Speaker 3 (58:49):
No, thanks so much for having me Jen.
Speaker 4 (58:51):
Yeah, No, it's been an absolute pleasure, and I'm really
glad we've got to do it because we've.
Speaker 3 (58:56):
Known it for a long, long long time. I'm so
glad to we finally to do this, so this has
been great.
Speaker 1 (59:01):
I hope you enjoyed this episode of Type one on one.
Please remember that nothing you hear on this podcast should
be taken as medical advice. I'm definitely not a healthcare professional.
If you like what you hear, hit subscribe and do
leave a little review on iTunes if you have time.
It really helps to spread the word about type one diabetes.
(59:23):
And thank you so much for listening.
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