WeHaveAVoice
WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.
Episodes
May 7, 2021 • 8 min
#WeHaveAVoice Radio - May is #HuntingtonsDisease and #JuvenileHuntingtonsDisease Awareness Month! Our incredible special guest is John Howard! John recites his powerful poetry! #iHeartRadio #LetsTalkAboutHD #YouAreLoved
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May 3, 2021 • 3 min
On May 11, 2021, James Valvano will interview Jennifer Simpson (HDSA Assistant Director, Youth & Community Services), to discuss the HD Parity Act! ALS just recently made drastic changes to the description of what ALS is. They furthered their efforts by having unanimous consent by Congress to pass their bill for patients to obtain immediate access to benefits. The HDSA wishes to have the HD Parity Act pass by unanimous conse...
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March 12, 2021 • 42 min
Kas Rodriguez talks about her experience with JHD in regards to her 8 year old son Daniel.
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November 30, 2020 • 33 min
Jimmy Pollard talks about his new children's book, Finding Nana's Smile
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October 18, 2020 • 64 min
Kevin Jess interviews James Valvano about the first season of WeHaveAFace TV
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August 8, 2020 • 28 min
Dr. Kelsey M. Finn is a geneticist, bioethicist, and empathy enthusiast. Dr. Finn has devoted a large part of her career to researching whether, when, and how to communicate about genetic conditions and health information with children. She has interviewed countless parents, kids, and health providers to learn from their experiences and perspectives on how best to communicate with kids. A current anonymous survey is available for ...
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August 4, 2020 • 54 min
Dr. Bird of the University of Washington speaks about the HDSA Centers of Excellence. Dr. Herwig Lange of the George Huntington Institute of Germany joins the conversation. Topics: What is a Center of Excellence (CoE)? How does a facility become a Center of Excellence? Should doctors diagnose patients earlier so a treatment plan can be put in place? How can environmental factors affect Huntington's disease patients regardin...
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July 24, 2020 • 5 min
Jen gives a public service announcement concerning our new virtual support group on Mondays.
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July 21, 2020 • 39 min
Dr. Kelsey Finn speaks about when to talk to your children about Huntington's Disease and her new children's book.
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July 19, 2020 • 8 min
Kevin Jess speaks with Jen Almeida from the Connecticut Chapter of WeHaveAFace about "Blessings for HD and JHD Warriors
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June 14, 2020 • 43 min
Marie Blankenshop, Jen Almeida and Crystal Zachary speak out their new Facebook Wish List group
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April 30, 2020 • 58 min
Dr. Susan Potter and Dr. Herwig Lange tackle a serious issue concering separation anxiety during the pandemic.
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#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion.
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April 22, 2020 • 60 min
Mary talks with Leanne and Kevin about yesterday and today
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April 14, 2020 • 42 min
#WeHaveAVoice Radio! German Doctor: Dr. Ansgar Klimke - New approach for hydroxychloroquine in aerosol form for #COVID19 #Coronavirus #Spreaker #CDC #WHO
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March 20, 2020 • 55 min
#WeHaveAFace #WeHaveAVoice: Discussing the Coronavirus (COVID-19) - #Coronavirus #COVID19 #CDC #HuntingtonsDisease
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March 19, 2020 • 44 min
Cherry Chism talks about her husband leaving the Roche Trial
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March 16, 2020 • 40 min
Louise Vetter, President, and CEO of the Huntington's Disease Society of America (HDSA) speaks with James Valvano about the HD Trial Finder. We must broaden awareness of studies and trials for our Huntington's disease population.
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March 12, 2020 • 35 min
Dr. Peg talks about the ChAND-HD trial.
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March 12, 2020 • 53 min
Jonathan speaks to us about Rare Disease Day event as well as reusing existing drugs to treat or cure HD/JHD
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