WeHaveAVoice

WeHaveAVoice

WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.

Episodes

September 29, 2022 21 min
Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.
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Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community
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Jen and Kevin talk about hope, testing and other topics
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Kevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 25
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Kevin talks about memories of his wife Sheila and how it's important to nurture friendships
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Jen gets an unexpected call and discussion ensues.
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Jen and Kevin chat about disappointments over the years in the Huntington's Disease community
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Jen and Kevin chat about the death of a loved one and strategies leading up to and after death.
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Kevin and Jen kick off a series of coffee talks concerning Huntington's Disease
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James speaks about the Project Change and an array of topics
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Dr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease. To watch this episode with video, please go to https://www.youtube.com/watch?v=ZJs8EHEPMag
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Louise Vetter (President and CEO of HDSA) underscores her support for the initiative to change the current diagnostic criteria and introduces the new Huntington's disease support platform - #PatientsLikeMe
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Erin speaks with Kevin about her 5 1/2 year struggle with fertility amidst having a diagnosis of HD
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Kevin Jess speaks about his wife Sheila, how they met up until her recent passing.
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Please listen to James Valvano interview Jennifer Simpson HDSA on the HDParityAct! It's time to pass the HD Parity Act and remove the two-year waiting period for Medicare and SSDI! We must communicate the dire need of these medical supports and services to the US Congress!
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#WeHaveAVoice Radio - May is #HuntingtonsDisease and #JuvenileHuntingtonsDisease Awareness Month! Our incredible special guest is John Howard! John recites his powerful poetry! #iHeartRadio #LetsTalkAboutHD #YouAreLoved
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On May 11, 2021, James Valvano will interview Jennifer Simpson (HDSA Assistant Director, Youth & Community Services), to discuss the HD Parity Act! ALS just recently made drastic changes to the description of what ALS is. They furthered their efforts by having unanimous consent by Congress to pass their bill for patients to obtain immediate access to benefits. The HDSA wishes to have the HD Parity Act pass by unanimous conse...
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Kas Rodriguez talks about her experience with JHD in regards to her 8 year old son Daniel.
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November 30, 2020 33 min
Jimmy Pollard talks about his new children's book, Finding Nana's Smile
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Kevin Jess interviews James Valvano about the first season of WeHaveAFace TV
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