WeHaveAVoice

WeHaveAVoice

WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.

Episodes

May 7, 2021 8 min
#WeHaveAVoice Radio - May is #HuntingtonsDisease and #JuvenileHuntingtonsDisease Awareness Month! Our incredible special guest is John Howard! John recites his powerful poetry! #iHeartRadio #LetsTalkAboutHD #YouAreLoved
Share
Mark as Played
On May 11, 2021, James Valvano will interview Jennifer Simpson (HDSA Assistant Director, Youth & Community Services), to discuss the HD Parity Act! ALS just recently made drastic changes to the description of what ALS is. They furthered their efforts by having unanimous consent by Congress to pass their bill for patients to obtain immediate access to benefits. The HDSA wishes to have the HD Parity Act pass by unanimous conse...
Share
Mark as Played
Kas Rodriguez talks about her experience with JHD in regards to her 8 year old son Daniel.
Share
Mark as Played
November 30, 2020 33 min
Jimmy Pollard talks about his new children's book, Finding Nana's Smile
Share
Mark as Played
Kevin Jess interviews James Valvano about the first season of WeHaveAFace TV
Share
Mark as Played
Dr. Kelsey M. Finn is a geneticist, bioethicist, and empathy enthusiast. Dr. Finn has devoted a large part of her career to researching whether, when, and how to communicate about genetic conditions and health information with children. She has interviewed countless parents, kids, and health providers to learn from their experiences and perspectives on how best to communicate with kids. A current anonymous survey is available for ...
Share
Mark as Played
Dr. Bird of the University of Washington speaks about the HDSA Centers of Excellence. Dr. Herwig Lange of the George Huntington Institute of Germany joins the conversation. Topics: What is a Center of Excellence (CoE)? How does a facility become a Center of Excellence? Should doctors diagnose patients earlier so a treatment plan can be put in place? How can environmental factors affect Huntington's disease patients regardin...
Share
Mark as Played
Jen gives a public service announcement concerning our new virtual support group on Mondays.
Share
Mark as Played
Dr. Kelsey Finn speaks about when to talk to your children about Huntington's Disease and her new children's book.
Share
Mark as Played
Kevin Jess speaks with Jen Almeida from the Connecticut Chapter of WeHaveAFace about "Blessings for HD and JHD Warriors
Share
Mark as Played
Marie Blankenshop, Jen Almeida and Crystal Zachary speak out their new Facebook Wish List group
Share
Mark as Played
Dr. Susan Potter and Dr. Herwig Lange tackle a serious issue concering separation anxiety during the pandemic.
Share
Mark as Played
#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion.
Share
Mark as Played
Mary talks with Leanne and Kevin about yesterday and today
Share
Mark as Played
#WeHaveAVoice Radio! German Doctor: Dr. Ansgar Klimke - New approach for hydroxychloroquine in aerosol form for #COVID19 #Coronavirus #Spreaker #CDC #WHO
Share
Mark as Played
#WeHaveAFace #WeHaveAVoice: Discussing the Coronavirus (COVID-19) - #Coronavirus #COVID19 #CDC #HuntingtonsDisease
Share
Mark as Played
Cherry Chism talks about her husband leaving the Roche Trial
Share
Mark as Played
Louise Vetter, President, and CEO of the Huntington's Disease Society of America (HDSA) speaks with James Valvano about the HD Trial Finder. We must broaden awareness of studies and trials for our Huntington's disease population.
Share
Mark as Played
March 12, 2020 35 min
Dr. Peg talks about the ChAND-HD trial.
Share
Mark as Played
March 12, 2020 53 min
Jonathan speaks to us about Rare Disease Day event as well as reusing existing drugs to treat or cure HD/JHD
Share
Mark as Played

Chat About WeHaveAVoice

Advertise With Us

Popular Podcasts

Crime Junkie
The Daily

The Daily

This is what the news should sound like. The biggest stories of our time, told by the best journalists in the world. Hosted by Michael Barbaro. Twenty minutes a day, five days a week, ready by 6 a.m.

Dateline NBC

Dateline NBC

Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations.

For You

    Music, radio and podcasts, all free. Listen online or download the iHeartRadio App.

    Connect

    © 2021 iHeartMedia, Inc.