WeHaveAVoice

WeHaveAVoice

WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.... Show More

Episodes

November 30, 2020 33 min
Jimmy Pollard talks about his new children's book, Finding Nana's Smile
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Kevin Jess interviews James Valvano about the first season of WeHaveAFace TV
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Dr. Kelsey M. Finn is a geneticist, bioethicist, and empathy enthusiast. Dr. Finn has devoted a large part of her career to researching whether, when, and how to communicate about genetic conditions and health information with children. She has interviewed countless parents, kids, and health providers to learn from their experiences and perspectives on how best to communicate with kids. A current anonymous survey is available for ...
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Dr. Bird of the University of Washington speaks about the HDSA Centers of Excellence. Dr. Herwig Lange of the George Huntington Institute of Germany joins the conversation. Topics: What is a Center of Excellence (CoE)? How does a facility become a Center of Excellence? Should doctors diagnose patients earlier so a treatment plan can be put in place? How can environmental factors affect Huntington's disease patients regardin...
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Jen gives a public service announcement concerning our new virtual support group on Mondays.
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Dr. Kelsey Finn speaks about when to talk to your children about Huntington's Disease and her new children's book.
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Kevin Jess speaks with Jen Almeida from the Connecticut Chapter of WeHaveAFace about "Blessings for HD and JHD Warriors
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Marie Blankenshop, Jen Almeida and Crystal Zachary speak out their new Facebook Wish List group
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Dr. Susan Potter and Dr. Herwig Lange tackle a serious issue concering separation anxiety during the pandemic.
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#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion.
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Mary talks with Leanne and Kevin about yesterday and today
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#WeHaveAVoice Radio! German Doctor: Dr. Ansgar Klimke - New approach for hydroxychloroquine in aerosol form for #COVID19 #Coronavirus #Spreaker #CDC #WHO
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#WeHaveAFace #WeHaveAVoice: Discussing the Coronavirus (COVID-19) - #Coronavirus #COVID19 #CDC #HuntingtonsDisease
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Cherry Chism talks about her husband leaving the Roche Trial
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Louise Vetter, President, and CEO of the Huntington's Disease Society of America (HDSA) speaks with James Valvano about the HD Trial Finder. We must broaden awareness of studies and trials for our Huntington's disease population.
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March 12, 2020 35 min
Dr. Peg talks about the ChAND-HD trial.
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March 12, 2020 53 min
Jonathan speaks to us about Rare Disease Day event as well as reusing existing drugs to treat or cure HD/JHD
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WeHaveAFace founder, James Valvano talks about his upcoming retirement and the future of WeHaveAFace.
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Jimmy Pollard talks about his experiences and imparts lessons to apply to HD caregiving.
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Gene Veritas talks about his recent attendance at the CHDI Therapeutics Conference.
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