Episode Transcript
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(00:03):
Yay networks. I have a smallbutts. You're talking about intimacy, just
not everyone didn't know. No,I don't have a big butt, not
that things I do. No,I know that. I just don't know
why you felt the need to.You've just brought up my butt, Okay,
I wanted people that know it's notthat big. Welcome back to Junkyard
(00:30):
Mayhem, Hi, Hi Shane.We have the lights turned down a bit.
We do because this is an intimateepisode, so we set the mood
with our lighting in our atmosphere.Yeah, it's nice than here. I
don't have my dogs as long becausewe were using real lights and they reflect
so I cannot see. Yeah,I mean I'm assuming it to you sit
(00:53):
in there. Your voice sounds verysimilar. But and your job is usually
to watch the camera and make surenothing goes wrong. So this is going
to be it's gonna be tough withyou. Now. I see there are
some flashing lights. No, Idon't know what they There shouldn't be.
There should not be anything flashing thisepisode of JAM it's going need to be
about intimacy. Yeah, marriage,disability, Yeah, it's a whole Q
(01:17):
and A. We have so manyquestions that people asked we should have.
It's funny why we're doing this.Yeah, it is our three year wedding
anniversary in just a couple of days. Yes, so this has kind of
in celebration of three years of marriage. We figured we haven't talked about intimacy
or disability, and you know,anyway since a year or two before we
(01:38):
were married. It's been a bunchof years. So we thought, I
bet we'll have different answers now thanwe did the first time. There's a
lot of misreceptions as well, yeah, about our intimate relationship and you know,
just larger than that disability and intimacy. Oh my god. I got
a comment like two days ago andit popped up on my notifications, which
is annoying. Why do I needto see the comments? Right? But
(02:00):
I got a comment from someone whodoes not follow me, some man I
read the worst influentire ever. Idon't want to see that. Some random
man commented on our video. Itwas about IVF, like saying that we
were doing it. I'm not evensure which one it was, but it
was like about IVF and he waslike, hmmm, so these two claim
that they have sex, but yethere they are doing IVF question Mark,
(02:23):
that was like, sur missed afew videos, but but who does IVF
because they don't want to have sex? Like, I'm just what, like
even if that was like, it'sjust that is the most absurd thing you
jumped to. Ever, as wewere becoming or as we were planning to
become parents, Yeah, we thoughtabout however you wanted to go to hear
(02:44):
it, and we reade the options. We could do it the natural way
and yeah, you know the funcheap, easy, right, yeah,
or or we could stick ourselves likeneedles. Yes, and we went with
that because the thought of land ina bed with Hannah was too much for
(03:06):
me. I was like, whatin the world, sir? So yeah,
we're gonna answer some questions. Maybehe can watch this video. I
don't know. Yeah, we havethe helps and again, yeah, to
kind of caveats here. One isthat we are not going to give specifics
about the positions that we use.That is far and away the most questioned
(03:29):
question and never in like a likeeducation away. Oh that's not necessary.
Like if someone wants me to havea conversation with them, like someone else
with a disability who was like,hey, can you give me some pumiers
happy to do it. Yeah,not on the not the man that's commenting
like why are they doing IVF ifthey're climbing? Yeah, and not one
(03:50):
hundreds of thousands of people. I'mgonna see it. You had that good
analogy that you made, Well,I didn't really make it. I saw
a video about it, but itwas about parents, like influencers who have
their kids in videos. And itwas a woman being like, this is
what you're doing when you put yourkid in your videos. And it was
her opening the door to the cameraand like pretending there was someone sitting there
(04:12):
and being like, come on in, guys, it's bathtime, like this
way, leading all these strangers intothe bathroom, random strangers being like,
here's my little boy in the bathtub, like let's all watch him. And
it was like it's you know,it's one hundred percent what you're doing when
you're making a video. It doesn'tfeel like you're sharing anything, yeah,
you know with like a you don'tyou don't see the people, but they
are there, So we need tobe very mindful. Shame that there are
(04:34):
real people watching, always, alwaysin the line that needs to be careful.
YEA but yeah, we're wanted tobe mindful of our privacy. Yeah,
I'm going to be mindful of you, or like we respect you.
We hop to someone in a grtrue store and begin vividly yes the sexual
positions that we prefer. Yes,like it's just super weird, trying to
(04:57):
keep it educational, intimate fun exactly. Last chevyat family and friends turning the
video off. Now we need towatch. That's all we need to say.
At this point. There's only aboutnine or ten of you, so
you will not hurt our metrics.Ye, don't worry about it, don't
worry about goodbye, I don't watchnice you all right? So yeah,
all these questions from my instigure,I am shall we dive in all right?
(05:23):
Question number one? Are you stillpursuing IVF? I know it can
be a very mentally and physically taxingprocess, So yeah, we did IVF
in May. Our last update wasthat we didn't get any sperm to fertilize
the eggs that we got, sothat was kind of on hold, my
eggs are frozen. We are stillpursuing it, but you know the problem
(05:44):
is we don't have the necessary partsto do it right now. We don't
have nide parts. Yeah, sowe're like, we're pursuing you know,
the lead ups. We're working onit. Yeah, we're testing number month
exactly and instituting changes. Yeah,as we go based on the results so
far, Like Hannah said, we'venot doubt and yet results that will allow
(06:04):
us to move forward. But we'rehoping that each needed to have. We're
hopeful that my numbers will improve theexactly pull that trigger? Yes, okay.
Question number two, this is educational? Okay, how can the penis
grow if there's muscular atrophy? Dopeople know? Takee anatomy? Is no
(06:28):
one teaching people things? Maybe let'sgive them the benefit of the doubt.
Maybe they've never been the spl whoknows? Or I mean, they don't
necessarily teach the mechanics of a pianist, do they not? In health?
I mean my health class did.Yeah, but I don't know if the
quality of sexual education it's the sameeverywhere. It could be in a different
(06:53):
state. However, is a verydue to the ball yes, question,
Yes, the penis becomes erect bythe flow of blood into it. It
is indeed not a muscle. Andalso I will say SMA affects motor neurons.
It does not affect muscle. Shanedoesn't have muscular dystrophy. He has
(07:15):
muscular atrophy. He has a neurologicalproblem, not a muscle problem. So
Shane's motor neurons are what are affected. All of the muscles in his body
that are not like the movement basedmotor neurons in the spine are not affected.
Voluntary are not affected, which iswhy, like Shane's heart isn't affected,
all the muscles that are not likethe ones you're moving are not affected.
(07:39):
And I am able to say thisonly because I've already written it in
books, so this is not newinformation. But that is why it's a
little bit disproportionate to the rest ofmy body. Like I have the penis
of a thirty one year old humanBM. That's true. I'm the head
of it, and the head gigantic, the head and the panis. That's
(08:03):
the name of this. I haveto say, that's a good book title.
Oh my god. Okay, whatare three things that attracted you to
each other when you first met?Three films? Three things? Do you
have your three Well, I Iguess like I have not read these yet,
so like, no a second ago. I didn't, but I can.
(08:24):
I can say things. I willpraise you, Okay. I was
taken by your sense of humor,your shar chasm. That's like in the
same yeah, in the same answer. Yeah, your intelligence. You're vastly
smarter than me. And I lookedup to intelligence and your physical beauty.
(08:46):
Then I looked at your Facebook pageearly on and we were like, you
know, beginning our conversation. Yeah, I almost didn't believe you were real.
I was like, how is thishuman being so funny, so smart,
so hot? Like I have yourprofile picture. At the time,
(09:07):
it was like you and a shot. It was a training trip, I
think, And I was like,oh, my dad, I am either
the luckyish man on Earth or beingcatfish. That was so nice, very
beautiful. And how about seven anda half years later, do those things
(09:31):
ring true? True? I wishyou aren't so smart now, but now
it's less cute, argumented. It'sturned into like argumentative, not so much
intelligent, just yeah stubborn. Okay, uh for you, I mean mine
are going to be similar because Ithink like the things that drew us to
each other were mutual. You're swims. Yeah, your profile picture on Facebook.
(09:54):
You now your sense of humor obviously, like our sense of human or,
is the number one thing that weenjoy about each other. I think
your I mean thinking about like whenwe began talking, your like conversation skills,
I guess you know, just likethe way that you were able to
talk, and I mean I justfound it very impressive, Like your communication
(10:18):
skills were so top notch, andI was like, oh my god,
he's really good at communicating. Ilove this. Keep doing there's more that
was only two? This one moreand then I think I've I've talked about
this before, but your your carefor other people always has stood out to
me as like one of the thingsthat I think about. You think first
(10:39):
about you when I think about whoyou are, how you put other people
first. Thank you? Yeah?Do you want me to keep going?
You don't look sadist three three isso it didn't number, it's not great
number it We're moving on. Thankyou? Actually say I did Jesus and
(11:01):
that is not an intimate sound.So we'll be there. You guys know
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(11:24):
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(11:45):
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(12:07):
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show Junkyard Mayhem, Yes please inthe dropdown menu that follows. Okay,
(12:33):
we're back from our break and beforewe move on, I would just like
to say that I had my threethings about Shane in my head before he
went, you know, like Igot them real quick, and I would
just like to say that your physicalbeauty, like what you listed for me,
also attracted me to you. Likewhen I saw the video of you,
I was like, oh my god, he's so cute. But I'm
afraid that people are gonna be like, oh, so she doesn't think he's
(12:54):
hot. But it's just because Ihad my three and I have had deep
stations about this because I've always hadlike body image issues, you know,
like I do not have the stereotypicalhot male body. So like at times
(13:15):
when Manna and I are just likehaving a conversation, so I've been like,
you know, you've you've found mehot, like cute, whatever,
and we've narrowed, not narrowed,We've discuss that, like I do have
a objectively or at least stereotypically handsomeface. You've told me that my strong
(13:37):
jaw, I know my eyes andyeah, my little smile smit I in
your wing. I'm just trying togive specifics. Yeah, I did love
your I like your wing. Yeah. It wasn't like she was like,
oh, look at that tiny ribbedcake. Yeah, you know, she's
like, it's a hot face.It is, you know. I was
like, oh my god, he'sreally cute. He's a nice, hot,
(14:00):
handsome face. And then once Igot you know, like we started
talking, and I just became moreand more attractive. Yeah, and you're
like, oh my god, thetoes, the toes. And then I
got you out of your chair andI saw your butt. I have a
small but you're talking about intimacy,just not everyone didn't know. No,
I don't have a big butt,not that things I do. No,
(14:22):
I know that. I just don'tknow why you felt the need to.
You've just brought up my butt.Okay, how many people then now it's
not that big? Oh my god. Okay, this is a good one.
Did your intimacy change as you weretrying to get pregnant? I would
say, yes, I mean alittle yeah, I don't think it changed
(14:48):
as much as maybe it could haveif we had been trying longer, Like
we pretty much knew early on Shane'ssperm would probably be affected, and so
like there wasn't that time where wewere like super stressed timing it, like
doing all that stuff where I thinkit could have been affected. Yeah,
but like it definitely, I meanwe did that for a bit. So
(15:09):
like I I think that the actualact yeah, of having sets didn't change.
Like once we were into it,we were just our normal selves.
Yeah, but the before and theafter, mental and emotional before and after
changed your eye. Yeah, likeit was like more purpose driven, yeah
(15:33):
than it's just fun you know.Yeah, and then waiting for a results
exacinitely and then the pressure after yeaof like well that was fun, but
yeah, did it for what wewere trying to do exactly? And then
when the anterror kept being no thathow the hompound down kind of emotional toll.
Yeah after a while. Yeah,have strangers stopped asking if Hannah is
(15:54):
Shane's nurse slash sister. No,No, they just had yet. We
were out to dinner, not lastnight, but the night before, and
the it wasn't exactly that, butshe said felt like, are you two
related? Yeah? Why would you? I've never gone out to dinner that
anyone and been asked if I wasrelated to them. It was a ratreous
and she was older, so Idid her the benefit of the doubt,
(16:18):
like doesn't have the verness and theexperience. Yeah, but yeah, she
was. She was very surprised whenwe were like, oh, no,
we're married. She said, that'samazing. She said, oh yeah,
but yeah, and she just shedefinitely seemed to be some kind of siblings.
I think she thought siblings. Yeah, yeah, and she asked,
(16:40):
you asked that. I don't know. That's the thing is like I've never
been asked that ever. Yeah,but when I'm with someone else, yeah,
you know, like why does itmatter? Okay, here's an interesting
one. Top three non sex waysto be intimate. Oh, it's a
good question. Is it probably differentthan what we said three years ago?
(17:00):
I would debt. I don't knowif we answered this like what we would
have said three years ago. Ido feel like we've in videos said like,
however, intimate other than having itset Yeah, Okay, I think
one like an obvious one is goingto be cuddling, like physical closeness,
watching TV, cuddling, cuddling inbed, any of that stuff. I'll
say specifically our occasional morning tuddle.Yeah, let we have nothing to do
(17:26):
for a day and we stay inbed a lot longer than we would just
be on close. Yeah, it'sa nice way to start the day.
My favorite connected and then I yellsor use Yeah, that's my favorite.
Actually, that's my favorite from huddlingand I yells. We use the thing
that we do and that wraps herlegs and arms around me and pulls me
(17:48):
as close as possible, almost tryingto pop. Trying to pop. Yeah,
I think, uh, you know, a different one that most people
wouldn't think of is like caregiving stuff, you know, like helping someone shower.
Yeah, whatever it is is verycan be very intimate when you're in
a relationship. Yep. Yeah,showering definitely. Yeah, there's the interimate
(18:12):
chapter in our book specifically about showeringand how intimate it can be. Yeah,
that is a steamy chapter, Yesit is. And yeah, absolutely,
I was like, I'm obviously naked. Yeah, you're using your hands
(18:32):
to wash my entire body unless you'rein bad news. How is that not
going to be intimate? You know. And it's kind of funny because I
feel like I've seen in like blogposts, like articles, whatever of like
ways to reconnect and be intimate withyour partner. I swear one of them
is like showering together, like washyour partner's hair. You know, like
that's totally a thing. So like, of course, I mean people discount
(18:55):
it when it's our situation, yeah, because then it's medical. Yeah,
and then it becomes matter goal,but it's really not. It's the same
thing. Yeah, there's not reallyenough room for us to shower bad yell,
Like if I was showering, yeah, well I have to stand.
I mean I stand over me anddrips up in my eyes would be awful.
Nothing for you. I already dothat because I'm like in the shower
with you. Yeah, just asas if you know, okay, oh
(19:19):
wait, is there another one?I don't know? Like let me drive
like on long trips. Yeah,we'll often hand will have her hand on
my lap. I know that's notprobably safe, but uh, and you
know I can hold their hand,yeah, and like call her hand and
(19:41):
write letters when I get buried.And Trys felt that he's out for her.
That's a good way. You shoulddo that more often. Even done
the letter game in a long time. I initiate that. There's in my
I initiate the streeties. I justsay hand yeah. Yeah, a lot
of one word things that you callout. I think there's an option on
(20:02):
there maybe at the value about howwe initiate intimacy and we can talk about
that. Yeah, it's how doyou initiate spicy time? Is what they
actually said. So if Hannah isinitiating, she usually just like begins and
then she's how I respond, Yeah, you know, begins is a really
(20:25):
weird word. Well, yeah,I mean like you touch me like and
if I'm like into it, they'llbe that's there. We go. Yeah,
but I cannot really do that,so I very much just say what
I want and she I feels aboutit. Yeah, I'm just using our
words. Definitely. Yeah. Wasthe height difference ever an issue? I
(20:51):
think that's a funny one, Hannah, good question. Uh, an issue?
No, not really a fact.Yeah, like occasionally, you know,
I don't know, maybe my legswill be long, like too long
or something like, you know,we have to make sure that everything is
(21:12):
at the right level. Yeah,so it's definitely a factor. Yeah,
but I don't think it's ever beenlike an issue, not a problem,
not a problem. It's helpful thatI am tall and strong so that I
can like lift Shane and we don'thave to worry about me not being able
to lift him. I just theheight difference does become a problem in terms
(21:36):
of people's perception of our relationship.I think that like the disparity of our
tea values. Yeah, it isthe main reason that people are like either
thinking that relying or out in publicand mistaking me for your son or your
brother. If I was lying tohere, yeah, I think that would
(21:56):
not happen as a degree. Yeah, so in terms of perception, yeah,
it's a problem. Yeah, wellthat's the whole thing. If you
were I mean, if you werethe size of a typical thirty one year
old, people would definitely question usless. Yeah. Absolutely, that's just
like if only I your own bigger, only you would grown bigger. Why
did you get a spinal fusion,Shane to save your own life? Did
(22:19):
you not think about the future?Had you known that your wife would be
five to ten, do you thinkmaybe you would have given it a couple
of years. Let's on you.You're too tall on the perfect size.
It's not very nice, Shane.And if she's still wear heels, sometimes
(22:40):
I don't wear heels, which isjust like slap in the face. A
two inch bottom of my shoe isnot heels. Okay, here's two questions
that are kind of related. Howmuch does your sense of humor come into
play during intimacy? And then thisis like answering this question, how did
you manage the initial awkwardness of thelogistics? Yeah, and I was going
(23:03):
to say humor, so we mightas well just answer both of those at
the same time. Yeah, don'tbegin to begin. I mean, I
think they kind of answer each other. Like, humor absolutely comes into play,
like in every aspect of our lives. But and that doesn't go away
during intimacy, because that would bereally uncomfortable if we all of a sudden
we're like not joking around with eachother, it would just feel uncomfortable.
So it's definitely a part of it. And that's one hundred percent how we
(23:26):
managed not just like the logistics ofintimacy, but the logistics of caregiving.
Like when we first met in persontogether, humor was how we got through
like me being nervous to lift youand like all of that stuff. And
I'll just say that, like allwardnessstuff aside are day to day severe intimacy
(23:48):
moments, Yeah, are filled withhim very You know, people who didn't
watch like four years ago, we'llnot know what severe intimacy is related to.
As a way of not hanstantly sayingthe steps because there's a lot of
kids that watch this. Yeah,we hollo severe intimacy. There are there's
a question on here that reference thatwas like something about severe intimacy, and
(24:08):
I was like, oh, youwatched like four years ago. But anyway,
I was just saying that, likewe are not like romantic people,
Like we're not the kind to liketurning on some candles. Yeah, drop
the humor, put flowers on thebed and yeah baby Kimmy. Yeah,
(24:29):
but it's just not us just satturned down. But should we just like
partake in the activities as if we'relike, yeah, she didn't watch TV,
like laughing, making fun of eachother, making fun of easy funny
yeah, and yeah, so itwould absolutely come very casual and funny.
(24:51):
Yeah, and then I'm trying tofind oh, yeah, the severe one
do you ever get bored of severeintimacy? No? Moving on? All
right? Oh do you want answer? No, that's funny, All right,
rigentiation break, We'll be right back. You will know that Shane and
I have had a little bit ofa problem in the past with getting too
(25:15):
much takeout food. Yeah. Ithink the moment we realized it was a
problem was when we could not fitanything into our fridge because there are so
many take out containers exactly, butwe are choosing every plate overtakeout recently to
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(26:25):
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(26:51):
Our next question is are the numberof positions that work for you limited?
Yes? Yeah, obviously, yep. All right, funniest story you haven't
told yet in relation to intimacy.We thought for a long time about this
right before we filmed, and likeyou know, a lot of the stories
(27:12):
that we were bouncing back and forth. We don't want to tell publicly.
Use there's not something to be yourchair with, yea, our family and
friends, we're not sharing that,but we do have like we just thought
of this and I think it's funny. I'm gonna say in a sentence that
will not make sense without more contests. Okay, So then do you can
(27:33):
give it the context? Sure,we were filmed being intimate by an award
winning national geographic videographer. He's hewas actually taking photos a photographer. There
is a camera, There was acamera. No, this has happened multiple
times. What Shane's referring to youwass Shane? Oh my god. Uh.
(27:57):
What Shane's referring to was? Ithink it was for Instagram, Like
they're like Instagram's Instagram page. Wedid a Valentine's Day like special, but
your feature with them in like twentynineteen. I think it was a while
ago. Oh yeah, and thatand then like there was another shoot that
we did, and all of theseshoots they wanted to get day in the
(28:19):
life shots where we'd be like goinggrocery shopping or cooking in the kitchen,
and both of them all of themwanted us to be cuddling, like show
how you're like cuddling on the couchor like cuddling in bed, and I
remember both cuddling on the couch andwe I had to like spoon in we
like we like close your eyes.Yeah, like it was obviously very very
(28:45):
tame. Yes, but if you'venever room full of production, imagine being
a room full of people rick camerasfun did at you and then having to
like, you know, do yourmild intimacy. And then the bed one
like we were on top of thecovers that you could see us and we
were just like goddling together. Youwere like, I know, I can
(29:10):
still picture it so embarrassing. Sothat's a funny memory. That is a
funny memory. All right. Nextquestion, what's your favorite part of your
daily routine as a couple. Ithink mine is when we're done with work
after dinner, we watch TV togetheror we'll play video games together, and
the work is never done. Workis never done for Shane, but when
(29:33):
he has to stop working so thatwe could eat dinner, when my life
wires, work is done, yes, like a normal person, because life
is not about work, Shane.Yes, m question down here about our
biggest disagreement in life? Should lifebe pleasant? Yes, that's our biggest
disagreement. Anyway, we watch TVor we play video games, and that's
(29:55):
my favorite part of our routine.Yeah, we sit right next to each
other. Hannah's on the end ofthe tab and I pull up nets to
her so were your inches away,and we usually have snats and durants.
It's great little nightly routine. Itis. I look forward to it all
day. I didn't mine is whenyou wash my hair because your finger nails
(30:18):
on my stelp, or anytime Iitch your head really really had attend you
to touch me. But it isn'tonly on my stelp. It is euphoria.
Didn't do sam Wow, I know, I moan, I I made
noises. Yes, you feel sogood? You love it all right?
What advice would you have for aninterabled couple who's beginning to explore intimacy?
(30:44):
Good question. We are not peopleto give advice, but since you asked,
I did not like, just allowyourself to be limited by society's narrative
view of intimacy. It's going tobe my advice. I still it first,
(31:11):
has all of this stuff like intimacyis a very personal, private like
thing, but it is so informedby what we hear and see out in
the world. But I at timesin my life when I felt shame or
fear or whatever about my capabilities inthe bedroom have only been because of me
(31:40):
compared myself to the like scary typicwhole mail that you see having shots and
bovies. And that doesn't need tobe that way. The essentially like vast
landscape of what good, healthy funintimacy can be. And it doesn't need
(32:04):
to be the picky teger like,it doesn't need to look a certain way.
Yeah, it's just really about likeyou and your partner and what you
want to feel, you know.Yeah, so, and I know it's
hard, Like that's not the shayif you're feeling not y that you just
shouldn't, but like be mindful thathowever you and your partner can and want
(32:25):
to do it is perfectly fine aslong as you're both happy. Definitely nice,
put a little bell on it.Yeah, So, Hannah, however
do men intimacy guys three years inthem not answering your questions. I'm only
(32:45):
answering the questions people submitted. It'snone for you. All right. Finally
it's clothes. I think if youare interested in this topic, interested in
learning more, there are lots ofresources out there. If you just like
make your search on any social media, you'll find other humbles to stuff sam
(33:07):
interrabled intimacy. You'll find like setsand intimacy therapists and pages and things like
that. One that I've seen iscalled ripping up sets, and that gives
a lot of like pathical tips onhow to do things. I have written
(33:31):
a few books that have stories aboutintimacy each and always redoes our books.
Is you only to have multiple chaptersthat deal with it. That's coming out
next year. All right, thatwas a fun episode. Yeah, very
(33:52):
intimate, But I need my guysas fat. Okay. See, sometimes
you just focus on real life.You can't always be intimate. You can't
always have the light Stam, whatin the world are you talking about?
We hope you enjoyed today's episode.If you did, please comment, like,
subscribe, follow, give us anice review. We've done dozens of
(34:16):
these. I know, I alwaysforget. I don't know how to end.
They should write it out and thenjust read it and it's a junkyard
out there. This is a nointimacy zone because there are nails everywhere.
Okay, you don't want to dothat here