Jessica Fein, Part 1: Author of Breath Taking: A Memoir of Family, Dreams & Broken Genes jessicafeinstories.com -304

We spent five years trying to have a baby and then decided to make the switch from baby making to family making - Jessica Fein We’re back in my cozy living room for this episode of The Story Behind Her Success. I’m learning that when you're sitting on a comfy couch with the fire going, the time you spend together feels more like a chat between friends and less like a formal interview. An author, marketing executive, and former opinion columnist for the Boston Globe, Jessica Fein’s book, Breath Taking: A Memoir of Family, Dreams and Broken Genes, will give you new reasons to believe in the resiliency of the human spirit. In Part One of this interview, Jessica tells the story of how she and her husband, Rob, spent five years trying to have a baby. When nothing worked, they turned to adoption, and were so overjoyed with their decision, they wondered why they hadn’t made it sooner. Over the next few years, the couple welcomed three beautiful babies into their home, all of whom were from Guatemala. It was baby heaven with Jonah, Dalia, and Theo for a while, until the little voice inside Jessica’s head got louder and louder. Call it a hunch, or mother’s intuition, but Jessica knew that something just wasn’t right with Dalia. As a toddler, she fell down a lot, and her speech was delayed. Repeated tests by early intervention experts showed that Dalia was on the lower end of normal, but as time went by, Jessica persisted. Finally, Dalia’s hearing was tested and showed moderate hearing loss. Now in kindergarten, Dalia had hearing aids, but continued falling down. Since she was adopted, doctors suggested that Dalia undergo genetic testing, and the result was devastating. Five-year-old Dalia was diagnosed with a degenerative, rare disease with no cure called MERFF, which impacts the ability of the body’s organs to function. MERFF is degenerative and has no cure. 2 children in 1 million will get this disease, and Dalia had yet another layer of the disease, making her 1 of only six known cases in the world. With this news, Jessica and her family began a journey filled with overwhelming fear, sorrow, and a belief that in life, we must find reasons to laugh in order to capture joy wherever we can. For a 21-minute story that will leave you breathless, just hit that download button. #rarediseases #motherhood #storytelling #adoption