Episode Transcript
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Speaker 1 (00:00):
Welcome to Miami Valley View. I'm Jeff Stevens and I
am here with my friend Bret Jordan. Good morning, Breck,
Good morning Jeff. Thanks for having me absolutely and we
are talking about something that I've learned a lot more
about over the last couple of years that you're very
involved with. And this is the Moving Day Moving Day
Dayton for the Parkinson's Foundation, which is coming up in
(00:20):
a few weeks on Saturday, September twenty seventh. Phrase Pavilion,
a place we're very very familiar with as well, and
please tell me all about what Moving Day Dayton is.
Speaker 2 (00:31):
Moving Day Dayton was started seven years ago, so this
is our seventh annual. We're very proud that we've been
able to keep this tradition alive and chugging along towards
a decade. And so Moving Day Dayton is an opportunity
to do a little fundraising, which is obviously very important
to a charity organization. Moving Day Dayton supports the Parkinson's Foundation,
(00:53):
in particular the Great Lakes Chapter of the Parkinson's Foundation.
Proud to say that all of the money raised at
Moving Day Dayton stays in our local community. It supports
our Great Lakes Chapter, which is the states of Ohio
and Michigan. So the money raised is going to support
our friends and neighbors locally.
Speaker 3 (01:11):
So yeah, So the walk, it's a walk.
Speaker 2 (01:12):
It's to raise awareness and raise money both get the
word out.
Speaker 1 (01:18):
So it's happening at the phrase on Saturday, September twenty seventh.
What is check in time? Can people register now? Can
they register the day of?
Speaker 2 (01:26):
You can do it both ways. You can wait and
register the day of. We'll open up at nine o'clock
to start registration and we'll have a resource fare going
on as well. If you'd like to register in advance
and do some fundraising, we would really be grateful for that.
If you want to register in advance, you would want
to go to Moving Day Dayton dot org and click
(01:47):
and set up a team, or you can register as
an individual and do some fundraising for us. We would
be very grateful to that. But we're going to start
at nine o'clock with registration and resource fare. At ten fifteen,
we're going to do something we call the We Move Ceremony.
It's a small ceremony that we hold where we honor
and acknowledge everyone who's impacted by this disease, people living
(02:10):
with PD, their care partners, physicians, advocates, all the things.
So that'll happen at ten fifteen and then at ten
thirty we'll start the walk.
Speaker 3 (02:19):
The walk is a walk to your ability.
Speaker 2 (02:22):
We don't want anyone to feel pressured to do more
than they feel comfortable. So you know, you can walk
as little or as much as you would like.
Speaker 1 (02:30):
Nice, just around the beautiful phrase pavilion.
Speaker 2 (02:32):
There, that's right, and we've got because we're going to park.
It's nice because we have some like you know, benches
and things spread around so folks can take a break
if they like, and that sort of thing as well.
Speaker 1 (02:42):
So it's called moving day Dayton. Where does that name
come from in relation to Parkinson's disease.
Speaker 2 (02:48):
Well, it's it's agreed upon by all of the experts
in the field of Parkinson's in neurology that movement is
one of the key things to moving that needle for
folks with living with this disease, for them to be
able to keep their mobility for as long as possible,
you've got to be able to move. And it's not
(03:09):
any one particular type of movement, it's whatever you're gonna
do is the best thing for you to do, whether
it's swimming, biking, walking, tai chi boxing is a really
popular thing with for folks living with PD. So yeah,
like any any sort of movement. So we just want
people to move their bodies.
Speaker 1 (03:30):
Yeah, you hear often well with anybody how important it is.
We sit a lot. We're very sedentary. We binge, watch TV.
You know, there's a lot of times we're sitting at
work and it's so important to move. And you hear
expert after experts saying literally, get up from your chair,
(03:50):
stand up, stretch for a minute, and sit back down.
Does you wonders just if you this is for whether
you have Parkinson's disease or you're just perfectly healthy. That
move is so important, And I think that I think
it's an epidemic of sitting that the whole world has.
So I think this message not only resonates with folks
(04:11):
going through Parkinson's, but also to the average everyday person.
I agree that is not struggling with a disease that
they know of. It's so important to move. So I
think that's great that you actually call it moving day.
So that's that's really cool. We're talking with Bret Jordan
here about the Moving Day Dayton which is coming up Saturday,
September twenty seventh phrase Pavilion, the seventh annual benefiting the
(04:35):
Parkinson's Foundation. And this is something that is very very
personal to you.
Speaker 2 (04:41):
It is my father, Ronnie. He lived with Parkinson's for
close to a decade, and he gave up his battle
with this disease in twenty twenty, and I kind of
feel like this is my I've picked up his sword
and I'm continuing that. I'm continuing that battle for him.
(05:02):
I want to be I want this to I want
to be involved in this organization and in this walk
because I know what a difficult road it was for
my family, and I want to be able to do
anything I can to support people who are going through
that now and to help support them to find a cure,
to find better you know, rx'es and that sort of thing, movements,
(05:27):
all the things to be able to make life easier
for people who are dealing with this, whether they're living
with it or whether they have a loved one or
a friend that's that's dealing with it.
Speaker 1 (05:36):
I feel like we hear more and more about Parkinson's.
We did is your family directly went through it? Do
you mind sharing? How did you first find out that
Ronnie was that there was something going on.
Speaker 2 (05:50):
Well, he had a couple of falls that weren't really explainable. Ok,
you know, yeah, he'd take a tumble, and it was like, Dad,
what's happened?
Speaker 3 (06:00):
Well, I don't really know. I thought my.
Speaker 2 (06:03):
Feet were under me and I thought I was moving correctly.
And it just kind of brought about some questions where
my mom and I kind of pressed him to talk
to his doctor about it. And so his family physician,
his general practitioner, is the person who asked some questions,
did a few things in the office and said, you know,
(06:25):
I'm sorry, I think that you have Parkinson's. I'm going
to send you to a neurologist. And that's such a
common story. There's so many people that that is where
their initial diagnosis starts. It's with their family doctor and
then they get referenced to a neurologist further testing. But
Parkinson's is a clinical diagnosis, meaning it is based on experiences, questions,
(06:50):
some basic testing that can happen, and that sort of thing.
It's not really as much like a blood test or
something like that where there's this definitive answer or of
a clinical diagnosis.
Speaker 1 (07:01):
Okay, yeah, so you saw that something was different he
how long would you say it was before I guess
from the time that you noticed to the time he was.
Speaker 3 (07:12):
Diagnosed, probably a couple of months, okay. Yeah. And that's
the other thing.
Speaker 2 (07:17):
You know, when you hear you hear news like this,
you don't know what to do with it if you
don't if you don't know anything about this disease. And
you know, at that time, all my family knew was,
you know, Michael J. Fox has Parkinson's and that was
kind of the only reference point that we had to
the disease, and so we didn't know what this meant,
what to expect, what was next, all all of that.
(07:40):
So that's another big reason why moving day is so important.
It's an opportunity to have candid conversations where people can
learn things and be very open. You know. With the
passing recently of Ozzy Osbourne, I know that sparked a
lot of conversations for people who didn't necessarily know much
(08:02):
about the disease. And uh, and so you know that's
part of his legacy now is is you know, awareness
about p d Uh So that's that's really special as well.
Speaker 3 (08:11):
I'm sure for his family.
Speaker 1 (08:13):
Yeah, and and that you're right, because that was I
think I think his passing referring to Ozzy, I think
his passing kind of caught everybody by surprise because he
had just performed at that that you know, that huge
reunion show, and you know, he sang pretty well, and
you know, you knew he had some health battles, but
(08:34):
you know, a couple of weeks later he was gone.
Uh and and but then a lot of people started
talking about Parkinson's disease. And there are other I see
a lot of commercials, right, there's some other celebrities affected
by this too. Obviously, Michael J. Fox is probably the
one we've heard about the most.
Speaker 3 (08:52):
Yeah, yeah, there's more and more.
Speaker 2 (08:54):
I think you're hearing about other celebrities that are dealing
with this disease. But you know, the fact of the
matter is, statistically, there's one point one million Americans that
are currently living with this disease. There's ninety thousand that
will be diagnosed this year. There's ten million people worldwide
living with Parkinson's. It's the number two ner neurodegenerative disease
(09:17):
behind Alzheimer's. So, I mean it is something that affects
a lot of people. I feel like when I talk
with folks about this, I always hear someone say, oh,
my grandpa had Parkinson's, Oh my cousin had parkinson my neighbor,
everyone has know someone. It feels like that they have
(09:37):
some sort of connection to that has dealt with this disease.
So yeah, I think I think the Ozzy Osbourne conversations
have really helped to kind of spread the word and
just as a point of reference, it's really interesting and
I think very special to note that that concert that
he did right before he passed, that was a charitable,
(09:58):
a charitable.
Speaker 3 (09:59):
Thing that he did.
Speaker 2 (10:00):
All of that money went to support different Parkinson's research
and organizations, So that's pretty amazing.
Speaker 1 (10:06):
Yeah, it was tens of millions. Yeah, yeah, that was
that was incredible. And am I correct and saying he
had to be strapped into it, into his chair?
Speaker 3 (10:16):
Right? That was my understanding as well, That's what I read.
Speaker 1 (10:18):
Yeah, yeah, probably because of his his movements.
Speaker 2 (10:23):
Yeah, movements, and probably I would imagine some loss of
some core strength to be able to, you know, support
himself the way that he needed to be able to sing.
Speaker 3 (10:31):
Probably would I would guess.
Speaker 1 (10:33):
Right, because he was sitting there and having to sing. Yeah,
that's that's interesting. Well, I think it's I think it's
great that you were doing this obviously from such a
great place in your heart to honor your dad, and
and yeah, it's it's that makes it extra special. And
at the same time, I think a lot of people
are hearing more and more about this and and this
(10:55):
is a great The great thing about having an event
is that you know, you can some people like to
just make a donation to a cause, and that's great
and certainly I'm sure you don't mind if people do that.
Speaker 3 (11:05):
Please.
Speaker 1 (11:06):
What is your website, by.
Speaker 3 (11:07):
The way, it is Moving day Dayton dot org.
Speaker 1 (11:10):
Okay, yep, so Moving day Dayton dot dot org. But
if you're able to come to the event, you're also
able to learn about because you've got people on site
too that can maybe help somebody who's just found out
about it or curious about it.
Speaker 3 (11:25):
Absolutely.
Speaker 2 (11:26):
Yeah, we'll have resource tends there with information and if
there's someone that's listening to this right now, and you know,
maybe they're hearing some things that concern them or you know,
perk their ears up a bit, or they have questions,
please visit Parkinson dot org website. That is the found
(11:46):
the Parkinson's Foundation's website, and there are so many resources
available free there for you to answer questions. There's a
helpline that the Parkinson's Foundation supports one eight hundred four
PD Info I NFO okay, And that line is manned
by nursing professionals PT, folks, occupational therapists like all people
(12:13):
that have hands on knowledge of Parkinson's and you can
call that line and ask all kinds of questions and
they are there to support you. I can tell you
I have called that line before when my dad was
with me, just desperate for answers to things. And they're
part informational and they're part counseling services and support. So yeah,
(12:38):
like that's that's a really important resource to have.
Speaker 1 (12:41):
Well, then let's repeat that number.
Speaker 2 (12:43):
Yeah, one eight hundred for like the digit for p
D I NFO for PD info.
Speaker 3 (12:49):
Okay.
Speaker 1 (12:50):
All right, Well, it's great that you're doing this and
getting the word out there, and there's a great event
that you can come to. It is coming up on Saturday,
September twenty seven. Very familiar with the phrase pavilion. Yes,
and seventh annual Moving Day Dating for the Parkinson's Foundation.
We've got about two minutes here, Breck. If somebody's you know,
(13:11):
somebody's listening right now saying I'm you know, I'm starting
to wonder if this is me or if this is
a friend of mine or family member. Is there one
common thing that is typically considered the first alarm.
Speaker 3 (13:23):
Is it a fall?
Speaker 2 (13:24):
Well, it's that's part of this of the complexity of
this disease.
Speaker 3 (13:29):
It's very diverse.
Speaker 2 (13:30):
It affects so many different it's a full body disease.
It really affects so much rigidity, you know, gait issues.
I think there can be emotional related type non motor
skills that can be affected, anxiety, depression, even digestion, constipation,
things like that.
Speaker 3 (13:51):
It affects so much in your world.
Speaker 2 (13:53):
So it's hard to say that, you know, if this
is happening, then it means this. But there's a lot
of inf available to you, like I said at the
parkinson dot org website, But I would say just you know,
have a conversation with your with your doctor and ask questions.
Don't be afraid to ask questions to them. And the
other thing I would say is there's a good quality
(14:15):
of life available to you with this disease. This doesn't
mean that, you know, it doesn't mean necessarily bad things.
You can live for a long time and have a
great quality of life with this disease, with movement, with
the right doctors, with the right support.
Speaker 3 (14:34):
So yeah, all right, there's hope.
Speaker 1 (14:37):
I like to hear that well, Bret, thank you for
sharing again from your heart and about this event. It
is coming up again on Saturday, September twenty seventh, the
phrase Pavilion the seventh annual Moving Day Dayton benefiting the
Parkinson's Foundation, and a great day to get out there
and move and support these guys. And again the website
is Movingdaydaton dot org.
Speaker 3 (14:57):
That's correct. Come out and see us. We would love
to see you