Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
When did you realize that something was out of whack?
When it came to Jason the way.
Speaker 2 (00:06):
He was feeling, I would say October last year, we're
having issues with him coughing a lot, and then Thanksgiving
Day was our real turning point where he wouldn't move.
He would just start coughing every time he moved. So
we used to sit there and not do anything. And
so the next day I had Josh take him to
urgent care and they said he had pneumonia, and then
(00:27):
he wasn't getting better, and so the next week I'm like,
we should take him in. I don't feel like he's
getting better. So we took him in to our pediatrician
and we got chest X ray and then they sent
us to Children's because it looked very concerning dad.
Speaker 1 (00:43):
When you heard that that you should probably go into children's,
what was first going through your mind?
Speaker 3 (00:48):
The nurse kept coming in like every couple of minutes,
and it was like, heys, have they talked to you?
Talked to you? And we kept saying no, And finally
Amanda just called the pediatrician Lisa, and they sent us.
They said we need to go to the er soon
and get a CT scan and so then when we
(01:08):
got we took him there and they took us right back.
But once the results came back, the nurse came in
and was like, yes, it's kind of what we figured.
And my wife was like, yeah, pneumonia, and the nurse's
face turned blank, and so I was kind of kind
of uh where I was like, is it like cancer?
(01:29):
And then and she goes the nurse said yes, and
then Amanda's face went blank, and so we just didn't
know what we were getting into because it was a
chest X race. So like that night we got admitted.
That night, we were kind of just like you we
didn't know what it was. They said he had a
mass in his chest. So that's kind of where our
(01:52):
brains were at, like, you know, how do we get
go through with this? And then we met with the
oncology team the next day and they were kind of
they were explaining, you know, the mass was in the
thighmus and it's a bunch of clump of white cells
and so it wasn't like a tumor attached, So like
that kind of kind of put us us at ease
(02:15):
once they kind of went over everything and it wasn't
life threatening surgery or anything like that, because he wasn't
breathing at the time on his or he was having
hard time breathing on his own just because of the
mass was you know, pushing on his lungs, his chest
is airway and stuff like that.
Speaker 4 (02:34):
So you know, just as a parent and as a mom,
I can see because it is coming up on the
anniversary when you found out about this, I mean, we
just want to protect our kids. And it's interesting that
you had that instinct that something was definitely wrong.
Speaker 2 (02:50):
They say there's also signs for childhood cancer. One is
weight loss. I would definitely say he did have that.
What else using being tired. It was honestly, it was
his cough that was really concerning to us because it
just wouldn't go away, and he would have fevers off
(03:10):
and on. But I would say Thanksgiving was just such
a huge turning point because he just would not move
because he was excited about the holidays. He wanted to
do participate, but he's I don't want to go anywhere.
I'm want to stay here. So I stayed home for
Thanksgiving while he took our daughter to his mom's house.
Speaker 1 (03:28):
So briefly tell us about the treatments he's going through now.
Speaker 2 (03:32):
We came to the hospital Friday. We did biopsy on
a Saturday. We found out on a Sunday, so Children's
was very quick at getting us our results. They're pushing
hard because we needed to get action planned because the
breathing and we started cheming on a Monday. That Monday,
two and a half years a treatment. The plan is
to ring the bell April of twenty seven at our
(03:55):
end of treatment, and then after that we're still coming
consistently to double check to make sure he's not going
to relapse.
Speaker 4 (04:01):
Explain what ring the bell is.
Speaker 3 (04:03):
When they ring the bell, all the staff lines up
and they all walk down and everybody claps and throws,
you know. Sometimes they have confetti or they're ringing the bells,
which that just means you're done with infusions, and you
also get your port now. And the port is where
(04:23):
they give you all your chemos and things like that
three or some people have in their chest.
Speaker 1 (04:30):
It's a big day.
Speaker 3 (04:31):
Yes, it's a big day to celebrate.
Speaker 2 (04:33):
But you would have waited. I don't know if you
would have made it because it was so touch and
go that weekend. I stayed up till like two o'clock
in the morning on Saturday, like into Sunday, because we
were worried about his breathing. They were worried he was
going to tuck her out and that we were going
to have to put it like breathing tube in and
put them asleep. And I'm concerned because when we did
(04:55):
the biopsy, they couldn't put them a sleek because they're
worried about his breathing. So I just set and watched
him breathe until about two o'clock in the morning when
the doctor was like, Okay, now we're starting to breathe better.
Speaker 3 (05:05):
Jace.
Speaker 4 (05:06):
I love your drawing. Tell me about this. What is
this pumpkin? And what is this heart?
Speaker 2 (05:14):
Okay?
Speaker 4 (05:14):
And what is this?
Speaker 2 (05:16):
Yeah?
Speaker 4 (05:16):
Grass, and you're in kindergarten? Did you learn this in kindergarten? No,
you just a natural artist.
Speaker 1 (05:24):
He's been working on this picture while we've been talking.
That's a great job, Jays.
Speaker 4 (05:28):
Now, obviously you guys didn't see this coming. I mean nobody,
nobody sees it coming. What would you say to other
parents who are thinking about donating, or grandma's, grandpa's people
who are listening right now? What would you say to
them to encourage them to make a donation.
Speaker 2 (05:46):
I would say I was giving person before, but I
would say we're even more of giving people because we
had so many people help us out in so many
different ways, and you don't realize when you're gonna need it.
Speaker 1 (06:00):
Pretend you have a thank you card in front of you,
a blank thank you card, and you want to send
it to the people here at Children's and the people
that helped you along the line. What would that card say?
Speaker 2 (06:10):
Thank you to all the oncology nurses and doctors for
help you know us, and guide us through this journey.
And God's child life has been phenomenal. It wasn't for them.
They're like kind of like family to us. They know
us by name. We see him down the cafeteria and
(06:31):
they say hi to us.
Speaker 3 (06:35):
I would like to say thanks to all everybody at Children's,
from the Sallenge guy at in the cafeteria like, to
the oncology team, to the o R I mean, the
er you know, child life, the just everybody at Children's
make is so much easier, you know, and they have
(06:59):
patience with kids going through all this too. And you know,
we've never really had a bad situation with anybody, and
they're all fabulous, like I said, from the cafeteria everywhere,
and they have a lot of patients they like, you know,
they make him happy. You know, Seth down at in
(07:21):
the cafeteria, he wasn't really eating one time when we
were admitted, and Seth went out of his way to
make him a meatball sallenge because that's what he's craving.
And you know, the just yeah, I mean, everybody, even
the pet in the speech that he sees, I mean,
everybody treats him nice. And he actually likes to go
(07:42):
see everybody too, and it's so it's very nice. Child
Children's have done fabulous with everything.
When did you realize that something was out of whack?
When it came to Jason the way.
Speaker 2 (00:06):
He was feeling, I would say October last year, we're
having issues with him coughing a lot, and then Thanksgiving
Day was our real turning point where he wouldn't move.
He would just start coughing every time he moved. So
we used to sit there and not do anything. And
so the next day I had Josh take him to
urgent care and they said he had pneumonia, and then
(00:27):
he wasn't getting better, and so the next week I'm like,
we should take him in. I don't feel like he's
getting better. So we took him in to our pediatrician
and we got chest X ray and then they sent
us to Children's because it looked very concerning dad.
Speaker 1 (00:43):
When you heard that that you should probably go into children's,
what was first going through your mind?
Speaker 3 (00:48):
The nurse kept coming in like every couple of minutes,
and it was like, heys, have they talked to you?
Talked to you? And we kept saying no, And finally
Amanda just called the pediatrician Lisa, and they sent us.
They said we need to go to the er soon
and get a CT scan and so then when we
(01:08):
got we took him there and they took us right back.
But once the results came back, the nurse came in
and was like, yes, it's kind of what we figured.
And my wife was like, yeah, pneumonia, and the nurse's
face turned blank, and so I was kind of kind
of uh where I was like, is it like cancer?
(01:29):
And then and she goes the nurse said yes, and
then Amanda's face went blank, and so we just didn't
know what we were getting into because it was a
chest X race. So like that night we got admitted.
That night, we were kind of just like you we
didn't know what it was. They said he had a
mass in his chest. So that's kind of where our
(01:52):
brains were at, like, you know, how do we get
go through with this? And then we met with the
oncology team the next day and they were kind of
they were explaining, you know, the mass was in the
thighmus and it's a bunch of clump of white cells
and so it wasn't like a tumor attached, So like
that kind of kind of put us us at ease
(02:15):
once they kind of went over everything and it wasn't
life threatening surgery or anything like that, because he wasn't
breathing at the time on his or he was having
hard time breathing on his own just because of the
mass was you know, pushing on his lungs, his chest
is airway and stuff like that.
Speaker 4 (02:34):
So you know, just as a parent and as a mom,
I can see because it is coming up on the
anniversary when you found out about this, I mean, we
just want to protect our kids. And it's interesting that
you had that instinct that something was definitely wrong.
Speaker 2 (02:50):
They say there's also signs for childhood cancer. One is
weight loss. I would definitely say he did have that.
What else using being tired. It was honestly, it was
his cough that was really concerning to us because it
just wouldn't go away, and he would have fevers off
(03:10):
and on. But I would say Thanksgiving was just such
a huge turning point because he just would not move
because he was excited about the holidays. He wanted to
do participate, but he's I don't want to go anywhere.
I'm want to stay here. So I stayed home for
Thanksgiving while he took our daughter to his mom's house.
Speaker 1 (03:28):
So briefly tell us about the treatments he's going through now.
Speaker 2 (03:32):
We came to the hospital Friday. We did biopsy on
a Saturday. We found out on a Sunday, so Children's
was very quick at getting us our results. They're pushing
hard because we needed to get action planned because the
breathing and we started cheming on a Monday. That Monday,
two and a half years a treatment. The plan is
to ring the bell April of twenty seven at our
(03:55):
end of treatment, and then after that we're still coming
consistently to double check to make sure he's not going
to relapse.
Speaker 4 (04:01):
Explain what ring the bell is.
Speaker 3 (04:03):
When they ring the bell, all the staff lines up
and they all walk down and everybody claps and throws,
you know. Sometimes they have confetti or they're ringing the bells,
which that just means you're done with infusions, and you
also get your port now. And the port is where
(04:23):
they give you all your chemos and things like that
three or some people have in their chest.
Speaker 1 (04:30):
It's a big day.
Speaker 3 (04:31):
Yes, it's a big day to celebrate.
Speaker 2 (04:33):
But you would have waited. I don't know if you
would have made it because it was so touch and
go that weekend. I stayed up till like two o'clock
in the morning on Saturday, like into Sunday, because we
were worried about his breathing. They were worried he was
going to tuck her out and that we were going
to have to put it like breathing tube in and
put them asleep. And I'm concerned because when we did
(04:55):
the biopsy, they couldn't put them a sleek because they're
worried about his breathing. So I just set and watched
him breathe until about two o'clock in the morning when
the doctor was like, Okay, now we're starting to breathe better.
Speaker 3 (05:05):
Jace.
Speaker 4 (05:06):
I love your drawing. Tell me about this. What is
this pumpkin? And what is this heart?
Speaker 2 (05:14):
Okay?
Speaker 4 (05:14):
And what is this?
Speaker 2 (05:16):
Yeah?
Speaker 4 (05:16):
Grass, and you're in kindergarten? Did you learn this in kindergarten? No,
you just a natural artist.
Speaker 1 (05:24):
He's been working on this picture while we've been talking.
That's a great job, Jays.
Speaker 4 (05:28):
Now, obviously you guys didn't see this coming. I mean nobody,
nobody sees it coming. What would you say to other
parents who are thinking about donating, or grandma's, grandpa's people
who are listening right now? What would you say to
them to encourage them to make a donation.
Speaker 2 (05:46):
I would say I was giving person before, but I
would say we're even more of giving people because we
had so many people help us out in so many
different ways, and you don't realize when you're gonna need it.
Speaker 1 (06:00):
Pretend you have a thank you card in front of you,
a blank thank you card, and you want to send
it to the people here at Children's and the people
that helped you along the line. What would that card say?
Speaker 2 (06:10):
Thank you to all the oncology nurses and doctors for
help you know us, and guide us through this journey.
And God's child life has been phenomenal. It wasn't for them.
They're like kind of like family to us. They know
us by name. We see him down the cafeteria and
(06:31):
they say hi to us.
Speaker 3 (06:35):
I would like to say thanks to all everybody at Children's,
from the Sallenge guy at in the cafeteria like, to
the oncology team, to the o R I mean, the
er you know, child life, the just everybody at Children's
make is so much easier, you know, and they have
(06:59):
patience with kids going through all this too. And you know,
we've never really had a bad situation with anybody, and
they're all fabulous, like I said, from the cafeteria everywhere,
and they have a lot of patients they like, you know,
they make him happy. You know, Seth down at in
(07:21):
the cafeteria, he wasn't really eating one time when we
were admitted, and Seth went out of his way to
make him a meatball sallenge because that's what he's craving.
And you know, the just yeah, I mean, everybody, even
the pet in the speech that he sees, I mean,
everybody treats him nice. And he actually likes to go
(07:42):
see everybody too, and it's so it's very nice. Child
Children's have done fabulous with everything.
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