Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
We're here with Taj mic Morris and Taj you just
told me something unbelievable, that your son is one in
five thousand.
Speaker 2 (00:10):
Tell us about Khalil.
Speaker 3 (00:11):
Yes, so, Khalil, he's two now. He was born in
Nebraska Medicine and when I had him there, he was
just a normal kid. He's my first baby, so I
was excited, very happy and all the all the feels,
all of the emotions. Things kind of started to shift
(00:35):
when we were on day two or three at the
hospital and he just was not having a bowel movement.
They were like, oh, he'll be okay, it's fine, some
kids just take a little bit longer. First mom syndrome.
I was like, absolutely not this, something's not right. Crying,
all the emotions, everything, I just felt everything so deeply,
(00:55):
especially just being postpartum and he's my first baby. They
finally took a for imaging and they were able to
see that he was extremely backed up, and that's where
I met my first children's provider. After they transferred us
to the NIC you, doctor zero came and they did
a biopsy and that's where we found out that he
had Hirshprung disease.
Speaker 1 (01:13):
So yeah, wow, and so he is one in five
thousand because he's got a disease that many kids do
not have. That's interesting that they were able to figure
out what that was right away, and that's why it's
amazing that Children's Nebraska is here, because they know all
the things.
Speaker 3 (01:32):
Yeah, yeah, I agree. I was actually not very well
versed on what hirshprung disease was at they said that,
and I was. I actually happened to be reading the
biopsy report. They just said, Oh, he's having trouble passing stool.
It might not be something big. We're going to do
a biopsy. May not be anything. Then I logged into
(01:52):
Nebraska Medicines my chart portal and just kind of started
going over his records and what they said on the
biopsy report, and it said possibly hirshprung disease. And I
did a deep dive on Google to just see what
that meant.
Speaker 2 (02:07):
And I like, hey, can you.
Speaker 3 (02:08):
Call the doctor in here?
Speaker 2 (02:09):
I just want to know.
Speaker 3 (02:10):
And they didn't want to, you know, confirm anything prematurely,
but they ended up talking to me about what that
was and what that meant.
Speaker 4 (02:20):
Yeah, I guarantee none of our listeners know what Hirshprung
disease is in a nutshell, what is the Khalil has?
Speaker 3 (02:27):
Okay, So, Hirshprung disease is essentially a disease of the
colon or the large intestine. Everyone's born with nerve cells
or nerve endings that kind of helped push out stool.
Khalil was born without them about three inches into his colon,
so they had to do some corrective surgeries essentially get
rid of the bad part of the colon and attach
(02:47):
it to his rectum in order for him to be
able to push out stool without an aliastopy.
Speaker 2 (02:54):
That's all I want. Okay.
Speaker 1 (02:56):
Now you mentioned all the things that it meant for him,
What does it mean for him? What does that mean
on a daily basis?
Speaker 3 (03:03):
So you know, that's funny that you actually asked that
her sprung disease is lifelong. He to this day has
issues with having bowel movements every day. Every other day.
We kind of have to do suppositories and just kind
of keep a really close eye on how many bad
movements he's having in a day. It can get really scary.
(03:26):
In fact, we were actually just in the hospital last
week because he can get backed up really easy. One.
Small sickness like a cold can push him into something
called anero colitis, which is essentially like when the kiddos
get backed up. Bacteria grows, causes issues, makes it hard
(03:49):
for him to push out stool on his own, gets
him to the point where he has to have antibiotics
to be healthy enough to just kind of function normally.
Speaker 1 (03:58):
Again, at the time, I noticed that you have a
badge and you're working for Children's Nebraska.
Speaker 2 (04:06):
Were you working there at the time?
Speaker 3 (04:08):
I was not, so After transferring to children from Nebraska Medicine,
we ended up staying here for probably about thirty days.
In that time, I was able to get oh no,
I mean overall, probably fifty plus days between staying in
med Surge and the Nike You. But I was able
to get to just get really close to the staff
(04:28):
and learn a little bit more about what Children's mission
and purpose was and how deeply connected to that mission
and purpose all the staff members were, And that was
just really impressional for me. I wasn't quite ready to
jump into the world of working with p dad, especially
being in nursing school, that could just be a lot.
So you have to be emotionally ready to jump into that.
(04:51):
So the position for employee help was ready, and I
wanted to be a part of a mission so meaningful
to families.
Speaker 4 (04:59):
You know, Khalil could have been treated at a lot
of hospitals around the country, but Children's Nebraska, we feel
is different. Can you explain some of the things that
made and has made your experience with Khalil different than
you might experience some other place, because what it's particular
to what they do at Children's. Give us some give
us some examples.
Speaker 3 (05:19):
Yeah, absolutely, So I kind of want to just start
by saying the providers that they pull in from around
the world are extremely well versed in everything that they do.
For example, doctor Zarogue, doctor Fuller, they didn't start their
careers here at Children's Nebraska, but Children's outsourced and found them,
(05:41):
and it's like so cool that they hear. I just
want to start with the fact that they changed our lives.
I think another thing that separates Children's Nebraska from anywhere
else that we could have gone is that we really
have the Midwest feel. Everyone's smiling, everyone's happy, everyone. What
(06:02):
they do for us is actually like super duper meaningful.
They actually care. It's not like they're just coming to work.
For example, when we were staying up in the Nike
you we made like a I made Khalil's whiteboard themeed
paper airplanes for us. What that means, what paper airplanes
meant to us is just essentially like staying ablove or
(06:24):
staying aplot. His dad actually has it tattooed on his hand.
But the nurses saw that we were doing that, and
each nurse every time they come in would just draw
another little paper airplane. Koil had his own little airport
going on on his whiteboard, So that was really cool.
It might seem like that's just like something really small,
(06:44):
but sometimes I'd look at the board and just like ball,
because like they were just willing to contribute to our
lives and be invested in like it's just my baby
and like everything that he had going on. So yeah,
(07:06):
well that's what you'd say to do about the What
would you say to our listeners, Okay.
Speaker 1 (07:11):
JJ, what would you say to our listeners who maybe
I have never had to use the hospital, Maybe they
go buy here every day and they have no idea
what's going on in here? What would you say to
inspire them maybe to make a donation to help kids
and families here.
Speaker 3 (07:27):
Yeah, you have no idea what's going on behind that
brick building. Every day there are people in there working
tooth and nail to change the lives of families and kids.
And I mean everything they do is truly, truly deep
rooted in the mission like to improve the life of
(07:49):
every child. It's something that they actually they actually work
to make true to families. And I would say that
if I were you, you should know that making a
donation is truly impacting the lives of families and children
(08:10):
every single day.
Speaker 4 (08:11):
So what final thank you would you like to pass along?
I know we have a lot of people at Children's listening.
What's it thank you you would like to pass along
to the people that have affected your lives At Children's.
Speaker 3 (08:26):
I would say that some days I felt like I
was just swimming in a pool of mud and I
couldn't get out. And you got the smiles, the reassurance,
the explanations that all went such a long way for
me and my family. We never went without a question answered.
(08:49):
If we asked the doctor to come to the room,
they were there in no time.
Speaker 2 (08:53):
The nurses.
Speaker 3 (08:56):
They Children's does a great job at recruiting great nurses
mean like, I have never had an issue with with
any of the staff members that we've encountered, and we
are His carrot today is still with everyone at children.
So I feel like you guys should know that what
(09:19):
you're doing is it's crazy amazing, Like to put it,
for lack of better words, is crazy amazing. I don't
know what else I could say. You deserve the world
in the flowers, in the gardens, everything.
Speaker 4 (09:33):
Yeah, yes, what chases life is looking like?
Speaker 2 (09:41):
What does Khalil's life look like? Now? So?
Speaker 3 (09:45):
Khalil is actually neurodivergent. He has autism, So every day
for us, in addition to the Hirshbrung disease, looks like
lots of appointments, lots of therapies, just doing everything that
we can to get him in a better spot. And
he's actually nonverbal, so we're working on teaching him different
(10:08):
words and things like that. But Khalil is really just
like a ray of sunshine. I really wish I would
have bought him today. He'd be lighting up the room.
He's really just like the kindest kid I've ever met
my entire life. Yeah, and I'm biased, but it's true.
Speaker 2 (10:24):
Well, we saw a picture of him. He looks like
he's got kind eyes. He does.
Speaker 3 (10:29):
He definitely has kind eyes.
Speaker 2 (10:30):
He's so sweet.
We're here with Taj mic Morris and Taj you just
told me something unbelievable, that your son is one in
five thousand.
Speaker 2 (00:10):
Tell us about Khalil.
Speaker 3 (00:11):
Yes, so, Khalil, he's two now. He was born in
Nebraska Medicine and when I had him there, he was
just a normal kid. He's my first baby, so I
was excited, very happy and all the all the feels,
all of the emotions. Things kind of started to shift
(00:35):
when we were on day two or three at the
hospital and he just was not having a bowel movement.
They were like, oh, he'll be okay, it's fine, some
kids just take a little bit longer. First mom syndrome.
I was like, absolutely not this, something's not right. Crying,
all the emotions, everything, I just felt everything so deeply,
(00:55):
especially just being postpartum and he's my first baby. They
finally took a for imaging and they were able to
see that he was extremely backed up, and that's where
I met my first children's provider. After they transferred us
to the NIC you, doctor zero came and they did
a biopsy and that's where we found out that he
had Hirshprung disease.
Speaker 1 (01:13):
So yeah, wow, and so he is one in five
thousand because he's got a disease that many kids do
not have. That's interesting that they were able to figure
out what that was right away, and that's why it's
amazing that Children's Nebraska is here, because they know all
the things.
Speaker 3 (01:32):
Yeah, yeah, I agree. I was actually not very well
versed on what hirshprung disease was at they said that,
and I was. I actually happened to be reading the
biopsy report. They just said, Oh, he's having trouble passing stool.
It might not be something big. We're going to do
a biopsy. May not be anything. Then I logged into
(01:52):
Nebraska Medicines my chart portal and just kind of started
going over his records and what they said on the
biopsy report, and it said possibly hirshprung disease. And I
did a deep dive on Google to just see what
that meant.
Speaker 2 (02:07):
And I like, hey, can you.
Speaker 3 (02:08):
Call the doctor in here?
Speaker 2 (02:09):
I just want to know.
Speaker 3 (02:10):
And they didn't want to, you know, confirm anything prematurely,
but they ended up talking to me about what that
was and what that meant.
Speaker 4 (02:20):
Yeah, I guarantee none of our listeners know what Hirshprung
disease is in a nutshell, what is the Khalil has?
Speaker 3 (02:27):
Okay, So, Hirshprung disease is essentially a disease of the
colon or the large intestine. Everyone's born with nerve cells
or nerve endings that kind of helped push out stool.
Khalil was born without them about three inches into his colon,
so they had to do some corrective surgeries essentially get
rid of the bad part of the colon and attach
(02:47):
it to his rectum in order for him to be
able to push out stool without an aliastopy.
Speaker 2 (02:54):
That's all I want. Okay.
Speaker 1 (02:56):
Now you mentioned all the things that it meant for him,
What does it mean for him? What does that mean
on a daily basis?
Speaker 3 (03:03):
So you know, that's funny that you actually asked that
her sprung disease is lifelong. He to this day has
issues with having bowel movements every day. Every other day.
We kind of have to do suppositories and just kind
of keep a really close eye on how many bad
movements he's having in a day. It can get really scary.
(03:26):
In fact, we were actually just in the hospital last
week because he can get backed up really easy. One.
Small sickness like a cold can push him into something
called anero colitis, which is essentially like when the kiddos
get backed up. Bacteria grows, causes issues, makes it hard
(03:49):
for him to push out stool on his own, gets
him to the point where he has to have antibiotics
to be healthy enough to just kind of function normally.
Speaker 1 (03:58):
Again, at the time, I noticed that you have a
badge and you're working for Children's Nebraska.
Speaker 2 (04:06):
Were you working there at the time?
Speaker 3 (04:08):
I was not, so After transferring to children from Nebraska Medicine,
we ended up staying here for probably about thirty days.
In that time, I was able to get oh no,
I mean overall, probably fifty plus days between staying in
med Surge and the Nike You. But I was able
to get to just get really close to the staff
(04:28):
and learn a little bit more about what Children's mission
and purpose was and how deeply connected to that mission
and purpose all the staff members were, And that was
just really impressional for me. I wasn't quite ready to
jump into the world of working with p dad, especially
being in nursing school, that could just be a lot.
So you have to be emotionally ready to jump into that.
(04:51):
So the position for employee help was ready, and I
wanted to be a part of a mission so meaningful
to families.
Speaker 4 (04:59):
You know, Khalil could have been treated at a lot
of hospitals around the country, but Children's Nebraska, we feel
is different. Can you explain some of the things that
made and has made your experience with Khalil different than
you might experience some other place, because what it's particular
to what they do at Children's. Give us some give
us some examples.
Speaker 3 (05:19):
Yeah, absolutely, So I kind of want to just start
by saying the providers that they pull in from around
the world are extremely well versed in everything that they do.
For example, doctor Zarogue, doctor Fuller, they didn't start their
careers here at Children's Nebraska, but Children's outsourced and found them,
(05:41):
and it's like so cool that they hear. I just
want to start with the fact that they changed our lives.
I think another thing that separates Children's Nebraska from anywhere
else that we could have gone is that we really
have the Midwest feel. Everyone's smiling, everyone's happy, everyone. What
(06:02):
they do for us is actually like super duper meaningful.
They actually care. It's not like they're just coming to work.
For example, when we were staying up in the Nike
you we made like a I made Khalil's whiteboard themeed
paper airplanes for us. What that means, what paper airplanes
meant to us is just essentially like staying ablove or
(06:24):
staying aplot. His dad actually has it tattooed on his hand.
But the nurses saw that we were doing that, and
each nurse every time they come in would just draw
another little paper airplane. Koil had his own little airport
going on on his whiteboard, So that was really cool.
It might seem like that's just like something really small,
(06:44):
but sometimes I'd look at the board and just like ball,
because like they were just willing to contribute to our
lives and be invested in like it's just my baby
and like everything that he had going on. So yeah,
(07:06):
well that's what you'd say to do about the What
would you say to our listeners, Okay.
Speaker 1 (07:11):
JJ, what would you say to our listeners who maybe
I have never had to use the hospital, Maybe they
go buy here every day and they have no idea
what's going on in here? What would you say to
inspire them maybe to make a donation to help kids
and families here.
Speaker 3 (07:27):
Yeah, you have no idea what's going on behind that
brick building. Every day there are people in there working
tooth and nail to change the lives of families and kids.
And I mean everything they do is truly, truly deep
rooted in the mission like to improve the life of
(07:49):
every child. It's something that they actually they actually work
to make true to families. And I would say that
if I were you, you should know that making a
donation is truly impacting the lives of families and children
(08:10):
every single day.
Speaker 4 (08:11):
So what final thank you would you like to pass along?
I know we have a lot of people at Children's listening.
What's it thank you you would like to pass along
to the people that have affected your lives At Children's.
Speaker 3 (08:26):
I would say that some days I felt like I
was just swimming in a pool of mud and I
couldn't get out. And you got the smiles, the reassurance,
the explanations that all went such a long way for
me and my family. We never went without a question answered.
(08:49):
If we asked the doctor to come to the room,
they were there in no time.
Speaker 2 (08:53):
The nurses.
Speaker 3 (08:56):
They Children's does a great job at recruiting great nurses
mean like, I have never had an issue with with
any of the staff members that we've encountered, and we
are His carrot today is still with everyone at children.
So I feel like you guys should know that what
(09:19):
you're doing is it's crazy amazing, Like to put it,
for lack of better words, is crazy amazing. I don't
know what else I could say. You deserve the world
in the flowers, in the gardens, everything.
Speaker 4 (09:33):
Yeah, yes, what chases life is looking like?
Speaker 2 (09:41):
What does Khalil's life look like? Now? So?
Speaker 3 (09:45):
Khalil is actually neurodivergent. He has autism, So every day
for us, in addition to the Hirshbrung disease, looks like
lots of appointments, lots of therapies, just doing everything that
we can to get him in a better spot. And
he's actually nonverbal, so we're working on teaching him different
(10:08):
words and things like that. But Khalil is really just
like a ray of sunshine. I really wish I would
have bought him today. He'd be lighting up the room.
He's really just like the kindest kid I've ever met
my entire life. Yeah, and I'm biased, but it's true.
Speaker 2 (10:24):
Well, we saw a picture of him. He looks like
he's got kind eyes. He does.
Speaker 3 (10:29):
He definitely has kind eyes.
Speaker 2 (10:30):
He's so sweet.
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