Keith’s son Bryson is a charming and outgoing 13-year old who loves his family, friends, and school. But he faces tremendous challenges. He lives with a rare genetic disease that has his brain locked at the developmental level of a 1-year old. The closure of schools has been especially hard on Bryson as he no longer has access to many of the tools he uses for therapy.
Keith, host of the CBC Podcast ‘Unlocking Bryson’s Brain’, talks about life as a rare disease dad, the impact COVID has had on his family, and his search for a cure to Bryson’s brain disease.
About Keith
Keith McArthur is an author, speaker, kidney transplant survivor, and rare disease dad. He is the host of the CBC Podcast Unlocking Bryson’s Brain, an 8-part documentary-style podcast about his son Bryson, his rare disease, and his family’s search for a cure. Keith is also the CEO and Head of Science for CureGRIN, an organization dedicated to finding cures and therapies for people around the world suffering from GRIN disorders.
A full transcript with photos is available in the show notes
Links
Listen to Unlocking Bryson’s Brain on CBC Listen, Apple Podcasts, Google Podcasts, or wherever you listen.
To help support research into GRIN disorders, you can donate to: CureGRIN or U of T’s GRIN Disorders Research Fund
Follow Keith on Twitter
Follow CureGRIN on Facebook, Instagram, and Twitter
Follow Discomfort Zone on Facebook, Instagram, and Twitter
Credits
Written, Hosted, Produced, and Sound Designed by: Jason Herterich
Video Editor: Raihan Hussain
Associate Producer: Rahima Mulla
Audio Engineer: Justin Maradin
Popular Podcasts
Stuff You Should Know
If you've ever wanted to know about champagne, satanism, the Stonewall Uprising, chaos theory, LSD, El Nino, true crime and Rosa Parks, then look no further. Josh and Chuck have you covered.
24/7 News: The Latest
The latest news in 4 minutes updated every hour, every day.
Crime Junkie
Does hearing about a true crime case always leave you scouring the internet for the truth behind the story? Dive into your next mystery with Crime Junkie. Every Monday, join your host Ashley Flowers as she unravels all the details of infamous and underreported true crime cases with her best friend Brit Prawat. From cold cases to missing persons and heroes in our community who seek justice, Crime Junkie is your destination for theories and stories you won’t hear anywhere else. Whether you're a seasoned true crime enthusiast or new to the genre, you'll find yourself on the edge of your seat awaiting a new episode every Monday. If you can never get enough true crime... Congratulations, you’ve found your people. Follow to join a community of Crime Junkies! Crime Junkie is presented by audiochuck Media Company.