On this powerful episode of The Manchester Living Podcast, host Brian Levy is joined by Janice Bloom and Ileen McFarland to discuss Progressive Supranuclear Palsy (PSP)—a rare, often misdiagnosed neurodegenerative disease similar to Parkinson’s but far more aggressive.
Janice and Ileen share deeply personal stories of navigating their husbands’ PSP diagnoses, including the physical, emotional, and logistical challenges of caregiving. From misdiagnosis and finding proper care to emotional shifts, brain donation, anticipatory grief, and finding balance in caregiving, this episode is a must-watch for anyone affected by rare diseases or caring for a loved one.
Their insights offer not just education, but inspiration—and a powerful reminder that while the body may decline, the human connection remains.
http://www.ManchesterLivingPodcast.com
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