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July 14, 2021 23 mins
Have you ever said no to doing something because the thought of getting ready overwhelmed you? We found that getting and staying organized has helped alleviate this frustration making it easier to say yes.

Join Lupe & Brian for this episode of Sjogren's Strong and hear how getting and staying organized has helped them.

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Episode Transcript

Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
I'll do my best.

Speaker 2 (00:05):
We are neither a nutritionist or medical providers. The topics
discussed on this show are from our own research and experiences.
Please we call your medical provider before attempting anything discussed
from the show. Welcome to another episode.

Speaker 1 (00:22):
Of Chogrin Straw. I'm Brian and I'm Lupe, and we
kind of did that backwards. This is your podcast discussing
how to live an active and healthy lifestyle. Despite a
diagnosis of show grins.

Speaker 2 (00:34):
I'll get it right eventually. I think I'm too focused.
I'm looking at myself and i shouldn't be doing that.
But I'll get it right eventually.

Speaker 1 (00:43):
Welcome everybody. For those of you listening on Facebook, watching
or watching on YouTube or listening to the podcast, we
appreciate you being here sharing this time with us.

Speaker 2 (00:55):
Absolutely. Hello everybody. Happy home day. I want to say
that for it.

Speaker 1 (01:01):
Is so over the weekend. For those of you who
follow us on Instagram or TikTok TikTok. We went out
for a bike ride. We did, and it was warm,
but we were early.

Speaker 2 (01:14):
It was still warm though it was.

Speaker 1 (01:16):
A bit warm, and you know, she in a very
safe manner, had the phone out in front of her
riding her bike doing a live on Instagram, and then
we posted it to TikTok.

Speaker 2 (01:30):
I went live on Instagram Stories and just a couple
of videos, and then I downloaded it and I said,
why not, I'm gonna post it to TikTok too. So
I did that, no love, though, I think I got
like six likes.

Speaker 1 (01:43):
But hey, you gotta start somewhere.

Speaker 2 (01:44):
Gotta start somewhere.

Speaker 1 (01:45):
So anyways, TikTok's some kind of a fun platform to
play around. But you know, if if you have time
to waste, get TikTok.

Speaker 2 (01:53):
Don't get TikTok. You spend hours and hours just it's
wasting your time. Don't do it. Don't do it.

Speaker 1 (02:01):
Before we get to the meat and Potatoes of today's show,
I guess I'm hungry. I said, meat and potatoes. It's
dinner time here in California.

Speaker 2 (02:07):
Yes, it is.

Speaker 1 (02:08):
Meat and Potatoes of today's show. Loupe's got a couple
of items she wants to share.

Speaker 2 (02:13):
With I was just gonna interrupt and say no, wait, Okay,
So last week I was showing you a lot of
props and I talked about a personal humidifier that I
did not have, but I brought it in today and
I wanted to show you. It's about the size of
a grapefruit. See if I put my hands together, it's
about the size of a grapefruit. And it's by home medics.

(02:35):
I love home medics. And I don't know if you'll
be able to see the steam. Oh yeah, trying to
put it against the black background. But I added distilled
water and look at it. It's awesome.

Speaker 1 (02:50):
And this is the one you keep at your desk, yes,
at work.

Speaker 2 (02:53):
Look missus all the way up here. It's hard to see.
I know it's mystifying, but yeah, so anyways, I have
I have one at home in my home office. I
have one at work. And then I bought this one
here because everybody needs three humidifiers, right, little ones. Ah,
And just for fun, just for fun, to keep me hydrated. Chicken, chicken,

(03:15):
what I bought. I bought a little piggy water dispenser
right and you you put in your little cup right
there and it dispenses water. It's going to help me
keep hydrated. I sat on TikTok and it was it
was just for fun.

Speaker 1 (03:35):
That just reminded me, would we hike if you kick
a rock? Or stumble or trip a little bit. You know,
as you get tired, your toes start stubbing the ground.

Speaker 2 (03:45):
We have a saying, if you're tripping, your sipping.

Speaker 1 (03:48):
You're sipping.

Speaker 2 (03:51):
Every time I trip anywhere, wherever, whatever I'm doing, if
I trip, I have to sip to sip. So anyways,
that was fun.

Speaker 1 (04:00):
Out of Dispenser is pretty cute.

Speaker 2 (04:02):
Yeah, it is. I mean, if you guys want a link.
I bought it on Amazon and I bought it on
Amazon and I just looked like piggy water dispenser and
they have frogs and it was Actually, it's just fun.
I'm just doing it for fun, right.

Speaker 1 (04:17):
Who doesn't need Who doesn't need an eight ounce piggy
water dispenser?

Speaker 2 (04:21):
You have to make drinking water fun for sure.

Speaker 1 (04:27):
Speaking of making things fun, yeah, let's talk about something
that you don't think is fun at all.

Speaker 2 (04:32):
What's that?

Speaker 1 (04:33):
Staying organized?

Speaker 2 (04:35):
That's not Staying organized is very very, very very hard
for me, which is really weird because I'm organized at work.
I have to stay organized at work because I need
to find everything right. But at home, I think I
get a little bit lazy.

Speaker 1 (04:52):
Yeah, so this kind of came to light last weekend,
I was replacing the battery in the jeep and I
needed some zip ties to get some lighting wires up
out of the way. Alice has helper and I'm like, nupe,
grab some zip ties.

Speaker 2 (05:09):
I'm like, how do I know what your zip ties are?

Speaker 1 (05:12):
They're in the yellow toolbox down there.

Speaker 2 (05:14):
I'm like, So I went and I grabbed him. They
were right there where he said, And I'm like, how
do you know where those zip ties are? How do
you know where you keep them?

Speaker 1 (05:22):
Because that's where they belong, right there in that yellow toolbox.

Speaker 2 (05:26):
I never would have found them, but this got.

Speaker 1 (05:30):
Us thinking a while back. I don't think we really
discussed it on the show much. A while back, she
has some shelving on her side of the bed and
it became a place to stack clean clothes.

Speaker 2 (05:45):
Or dirty if I wanted to wear them again. I
didn't say that.

Speaker 1 (05:49):
I didn't say that, Like, you know, we really need
to organize things up a little bit, get a little
out of control. And I'm the guy that's baby steps
and if something seems overwhelming, break it down into manageable pieces.
You don't have to clean the entire row of shelves today.

(06:11):
Start with a stack of clothes on that shelf. And
if that's all you can get through, awesome, you made
some progress. You're going to have a sense of accomplishment
after you did even just one stack right right, But
you crushed it. You did that whole shelf.

Speaker 2 (06:28):
H I did that and more, and I don't even
know how I did it, because the thought of just
getting started. I think, I go through all the steps
in my head and I'm going to make a mess
and then I have to clean it up, and it's
going to be a bigger pile, bigger mess, and it's
just overwhelming at times. But you asked for help, Yes,
I did.

Speaker 1 (06:48):
And this is the crazy thing about her. Sometimes I'll
bring her aback and when that bag's like half full,
I get it out, I take it away from her.
I'll go back in and check on her, and she'll
be like, I really want those yellow ones. Let me
say that, I don't know why I put him in there,

(07:08):
so if I remove it, So I'll remove two half bags,
make them one full bag, and then I've got an
empty bag to give back to her.

Speaker 2 (07:16):
Because I'm looking at this thing and it still works,
so he wants me to throw it away. Why if
you haven't what you're saying, if you haven't used it
in six months, or if it doesn't bring your joy away,
I'm like, it still works, so it's almost brand new.
I took it out of the package of three years
ago and I never used it.

Speaker 1 (07:33):
Okay, speaking of still working, those corduroids you head from
the sixth grade, Yes they still worked. They were still pants.

Speaker 2 (07:41):
I couldn't even they didn't even fit in one leg.
I couldn't know. You couldn't get them up as my knees.
It was funny.

Speaker 1 (07:47):
But the cool thing is you break it down into
manageable pieces. And part of staying organized is having manageable
amount of stuff. Right, Who in their right mind needs
fifteen boxes of the same size paper clip? Fifteen?

Speaker 2 (08:06):
Yeah he's exaggerating. I don't have fifteen boxes anymore. It
was the way, cause, yeah I did. I had a bunch,
you know what I remember. I clipped them all together.
They kind of coiled like into like a snake or
scorpion or whatever.

Speaker 1 (08:22):
It was funny, But I mean, just because I choose
to live life that way. If I haven't used it
in six months, it doesn't bring me joy. Get rid
of it. It's I don't expect everybody too, but having
having a smaller amount of things, it's easier for me
to stay organized, and it's easier for me to put

(08:43):
things in their place and know exactly where they are
when I need them next time. And I guess that's
the way I just enjoy living life. I like to
know where things are. It frustrates me. So we just
moved to a bigger studio. The space I had before
was smaller. It was off and a booth, and then
we had a little cubicle outside. We now consume more space,

(09:05):
and I'm constantly taking my glasses off and maybe I'll
set them in the engineer booth and I'll walk back
to my desk like, oh, where are my glasses? And
even that bothers me to the point I'm gonna go
get one of them little ropes that you put. I
don't know what they're called glass, but they're not meant
to be like in a pocket. They're kind of thick
even when sold it up. But I need to remedy

(09:27):
that so I'm not running around looking for my glasses
because I'm wasting time and that frustrates me right.

Speaker 2 (09:33):
Well, agree, so we actually.

Speaker 1 (09:35):
Got rid of quite a bit of stuff, and we
didn't throw anything away. If it was trash, we threw
it away. Other than that, we put things in bags
and took them to the local goodwill and made the donation,
which also helps others out, which is kind of cool.

Speaker 2 (09:52):
That day, it was the day or the weekend. It
was just one day, right Saturday or Sunday, and so
we I cleaned out the shelves on my side, and
then the dresser on his side, which also contains my clothes,
and then the shelves in the closet. Guys, I got
rid of ten bags, ten big trash bags full of clothes,

(10:15):
and it was nice clothes. Some of it still was
nice tags on it. And it just really paid me
to get rid of it. I think that's why I
just let everything pile.

Speaker 1 (10:27):
So, but you have so much more room now in
your clothes are much more organized. Yeah, you're actually wearing
things now that you haven't been able to find.

Speaker 2 (10:35):
I was like, ooh, new clothes, you know, and really
it's old clothes and I just haven't been able to
find it in my closet. But yeah, so it did
help me. So I'm trying to stay organized I'm trying
to become a minimalist. I got a long way to go,
but I'm trying.

Speaker 1 (10:49):
But we're circling. Let's circle back to the whole. Hey, Luke,
grab your camera stuff, let's go take pics. You know,
if you're organized and you don't have a bunch of
clutter in the way, it's easy to go. Yeah, let's
do it. Grab the bag, charge batteries up, and we're
ready to go. And that's where we want to be,
to help us be more spontaneous to say yes instead

(11:13):
of coming up with an excuse. What are the excuses?

Speaker 2 (11:19):
I'm not feeling well, I'll do it later. I couldn't
get to it.

Speaker 1 (11:23):
Instead of coming up with an excuse, it's just easy
to grab and go because we know where it is.
We don't have a bunch of clutter in the way.
Whereas organized as we can be, and life is good.

Speaker 2 (11:34):
I mean, I kind of know where it's at. I
know it's like my sleeking bag and the closet in
the spare bedroom somewhere. I don't exactly know where my
equipment is, but yeah, do I want to go take pics? Yeah?
But I just need to get organized. I know that
about myself, and we all do from time to time.

Speaker 1 (11:53):
You know what's really weird. I had this conversation with
a buddy when I'm an order organized task wise to do.
I need to send that email, I need to finish
this proposal, I needed to do this, this, and this.
I get this level of anxiety to where I shut
down and I go clean something and I put two

(12:15):
and two together. And this is just my own hypothesis
put two and two together, that I feel so out
of control with this aspect of my life. I'm gonna
go do this because I can control it and still
make progress. But the big things that I need to
get done aren't getting done because I'm over here organizing

(12:36):
sockets or some silly I don't want to say silly task,
but something that isn't a priority. But it makes me
feel better because it's something I can control. And that's
my own personal hypothesis based on the way I work
and live. Who knows if there's any truth to it

(12:58):
or not, but that's the truth I came up with.

Speaker 2 (13:00):
If I know that I'm going to have to find
something or need something in a month or two, I'd
be like, Brian, can you hold this for me, and
I'll just ask you because I'll forget.

Speaker 1 (13:10):
And you know what one of my big challenges is.
You've heard me deal with this challenge for a long time.
I enjoy the tactile feel of pen to paper. However,
we have all these digital tools to where I can
make a note on here and then I can go
open it up on my computer. If I happen to

(13:31):
be at my computer or crap, I need to check
that list and I'm in another part of the office,
I can just log on really quick and get that
list to where if I wrote it down in a
day planner of some sort and that day planner is
at my desk, or I'd have to go back to
my desk to get that list. And should I be digital?

(13:51):
Should I be paper? Should I be digital? Should I
be paper? And I go back and forth. But I've
been forcing myself to no stay digital because of the
convenience of it.

Speaker 2 (14:02):
I like paper.

Speaker 1 (14:03):
You do like paper right here, And there's no right
or wrong way. It's what works best for you. Yeah,
you know, and as long as you can find your
piece of paper, you're good.

Speaker 2 (14:14):
I know where I keep my paper.

Speaker 1 (14:17):
You're pretty organized about your forty two journals.

Speaker 2 (14:21):
You know what, that's more clutter. So I don't know why.
I when I go to the store TJ Max, wherever
I go, I go to the stationary section, you know.

Speaker 1 (14:31):
Supplies junk.

Speaker 2 (14:32):
I love office applies. I'm feeling down. Well, let's go
to Staples. Buy some office applies, you know what I mean.
It makes me happy. So I go to TJ Max.

Speaker 1 (14:40):
Candy King, paper clips.

Speaker 2 (14:42):
So I go to TJ Max and I go and
I buy notebooks or journals because one day I'm going
to write on them. Never we actually donated a bunch
of too good will you did?

Speaker 1 (14:52):
You did?

Speaker 2 (14:53):
That's funny, But.

Speaker 1 (14:57):
We're not coming down on anybody. You know, you live
your life how you want to live your life. It's
these are things that we've identified that we're not walking
to take pictures because we've got some clutter in the
home office, the spare bedroom, and we don't quite know
where all that equipment is and it's going to take
some time to find it and then break it out
and this lens with this camera and make sure everything's

(15:21):
squared away and serviceable and ready to use so it's
easy to go. I'll do that later. I'll do that tomorrow.
I'll do that tomorrow, and today's Wednesday.

Speaker 2 (15:29):
I still haven't done it right, So but this is
my question though, I mean, because I've asked some show
ease my friends, you know, if they're organized and they
have like the same issues that I have. You know,
I wrote a list here and they have the same issues.

(15:49):
And is it because of chronic illness? We don't we're
going to run out of energy, and we know we're
going to run out of energy, so we don't want
to get it started. I mean, well, be cause you
never get like that.

Speaker 1 (16:00):
Who wants to spend Saturday cleaning and spending your spoons
when it's a beautiful day out.

Speaker 2 (16:06):
That's why I don't do it, because I don't want
to use a less.

Speaker 1 (16:08):
Spoon, and and that's that's a valid reason. However, these
things still need to get done. So you know, we
talk about making lists and not just making a list
because it's easy to fill up a list of to dos.
You know, I could sit down right now and probably
fill a sheet of paper, but then prioritizing those to
does now it's easier for me because I can say

(16:30):
this is important, this is important, this is important, this
is important, and not worry about how much energy it's
going to take me to do any of them because
I have more spoons, bigger spoons.

Speaker 2 (16:41):
What do I have? You have unlimited amount of spoons?

Speaker 1 (16:45):
Are they bigger?

Speaker 2 (16:46):
Though you're bigger because you're.

Speaker 1 (16:51):
To where she has to factor in expended energy into
that task to prioritize it. And and we've talked about
this before, and Susan Barra said it best is you know,
you wake up, you're feeling good. Do I do the
heavy lifting now, knowing I have something to do later.
I do a few lightnings now, so I have energy

(17:11):
to go do that fun thing later. And that's a
concern I don't have, And that's something she has to
factor in and you guys as well.

Speaker 2 (17:22):
I mean, most of my energy I have when I
wake up in the morning and I want to do
whatever I want to do, right, because if I like
get out of bed and go sit down, I'm going
to stay down for hours and it's over. Anyways, we're
getting off topic.

Speaker 1 (17:34):
No, that's there. Make a list.

Speaker 2 (17:36):
It's a list, okay, So uh make a list and
prioritize it. Yeah, we spoke about that. Cut the clutter.
Have you used it? Right in six months?

Speaker 1 (17:47):
Yep?

Speaker 2 (17:48):
Does it bring you joy? Toss it? Not? Really? It's
hard to toss it though, right, I don't know. Uh,
make a plan that works for you. I mean we've
kind of did. We talked about that, you know, instead
of cleaning the entire room, but shelf at a time,
so it works. It works most importantly for me, I

(18:12):
ask for help.

Speaker 1 (18:15):
I cann't And would she ask for help? I jump up?
And if she if she's gonna use some of her
spoons to organize, declutter clean, I got your back. I'm
there because you know, sometimes she doesn't, So I.

Speaker 2 (18:32):
Ask, uh, when I want to clean, Brian, bring me bags, okay?
And then he's checking on me every I don't know,
every half an hour, forty five minutes, whatever, because sometimes
it takes me a while, right, And I throw it
away and I put it in bags, and then he
takes it some more else because if he leaves it there,
you know what I'm gonna do.

Speaker 1 (18:53):
Take it that yellow one. She'll find that yellow one.

Speaker 2 (18:56):
That's funny.

Speaker 1 (18:57):
But yeah, I mean, if you live alone, do you
have a neighbor, do you have a friend, do you
have a great niece or somebody that can help because
we do understand that, you know, some of the things,
just the mere weight of the task, it's going to
overwhelm some to go, I'll do it later, and then
things don't end up getting done.

Speaker 2 (19:17):
Yeah. Let me read a comment here, Susan Braha said,
I do what Brian did, I break a I break
a task down into small bits. As an example, I'll
clean the house one room at a time rather than
being overwhelmed about a big task. Right on.

Speaker 1 (19:36):
Yep. I mean, we've got some bookcases in the living room,
and you know, some days I'm like, look, let's work
on the bookcases because they contain things other than books now,
and maybe a bookcase is just too much right now,
So let's work on a shelf. And that's just breaking
it down into those manageable pieces. And if that's all

(19:57):
you have energy for or time for, is on shelf,
you're still making progress.

Speaker 2 (20:03):
Or pay the neighbor a teenager to dust your house day.

Speaker 1 (20:09):
Definitely. So I think we pretty much run through everything
we talked about donations. Talk to me about be kind
and understanding and patient with yourself.

Speaker 2 (20:20):
Well, I mean sometimes I find myself I'm hard on myself,
you know, I get down on myself because I'm too
tired to do it, or I don't want to use
my spoons. And sometimes I do have spoons, but I
think sometimes sometimes not all the time, but sometimes I'm
a little lazy because.

Speaker 1 (20:38):
One time she saved her spoon to use the spoon
to eat ice cream.

Speaker 2 (20:41):
Ha. I always use spoons for ice creams. But you know,
just accept your limitations, don't be too hard on yourself.

Speaker 1 (20:51):
Yeah, it's important. And just because you wake up feeling good,
don't feel like you have to do some of the
heavy lifting. Maybe it's a day to take care of you.
Take your shoes off, feel your foot in the sand
or on the grass, feel the sun on your skin,
feel the breeze in your hair, go to that museum,

(21:12):
hit the mall, go to your favorite coffee spot. It's
okay to just take some mean time. Do your nails, pedicure,
whatever you're into.

Speaker 2 (21:20):
That's what save your spoons for that, you know, because
that matters too. I think a lot of the times
because I'd rather go to and do something fun. I
don't clean, you know, or don't declutter. But but yeah, nature, uh,
your mental I mean, because your mental well being matters. Right.
That's why you have to be kind to yourself and

(21:43):
surround yourself with people that make you feel like sunshine.

Speaker 1 (21:47):
Like sunshine.

Speaker 2 (21:48):
You make me feel like sunshine. You are my sunshine.

Speaker 1 (21:52):
Well, hey, everybody this believe it or not. Do you
know what episode number this is? I think ninety nine
it is ninety nine, one hundreds next week.

Speaker 2 (22:02):
Wow, guys, we made it. We made it to one
hundred almost almost.

Speaker 1 (22:05):
Check a little break, took a little break, but we're back.

Speaker 2 (22:09):
Because I had to organize my thoughts my you know,
my mental health. That's important. So you know, you have
to listen to your body and do what you need
to do for yourself.

Speaker 1 (22:18):
And you stepped up and doing video, which is cool.

Speaker 2 (22:21):
Yeah, I know.

Speaker 1 (22:21):
Wow. Well, we want to thank you all for joining
us on this Wednesday evening or night if you're on
the East Coast. We appreciate you spending time with us. Listen.
Hit us up in the comments, let us know if
there's anything you'd like us to talk about. Let us
know if there's anything that you would like discuss. If
we are not subject matter experts, we'll do our best

(22:43):
to find one for you.

Speaker 2 (22:46):
And we are reaching out to people and we want
to have guests like we did before, so we're working
on that.

Speaker 1 (22:53):
So and some of them might be live sitting here
in this very studio.

Speaker 2 (22:56):
That's right, yep.

Speaker 1 (22:58):
So hit us up on Facebook, Instagram, Twitter, and now pick.

Speaker 2 (23:02):
Oh my goodness, that's so funny. I'm gonna blow up.
Watch I'm gonna blow up, and I'm gonna be skateboarding
with my cranberry juice to Anyways, I think that's all
we got for today.

Speaker 1 (23:16):
Enjoy the rest of your week and we will talk
to you next week.

Speaker 2 (23:19):
And until next time, sip constantly and stay hydrated. Guys.
I'll good one
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