September 8, 2021 • 32 mins
The first question usually asked when diagnosed with Sjogren's is "What do I have?", or "can you spell that?", or in the case of Lupe, "Am I going to die?"
Today on Sjogren's Strong we are going to talk to those newly diagnosed and share a few simple things you can do to help yourself understand what is going on and help with symptoms.
Links
Support the Sjogren's Foundation by supporting "Team Sjogren's Strong" for the 2021 Walk for Sjogren's - https://bit.ly/2021TeamSjogrensStrong
Let’s Socialize
Facebook https://www.facebook.com/SjogrensStrong/
Instagram https://www.instagram.com/sjogrens_strong/
Twitter https://twitter.com/SjogrensStrong
Today on Sjogren's Strong we are going to talk to those newly diagnosed and share a few simple things you can do to help yourself understand what is going on and help with symptoms.
Links
Support the Sjogren's Foundation by supporting "Team Sjogren's Strong" for the 2021 Walk for Sjogren's - https://bit.ly/2021TeamSjogrensStrong
Let’s Socialize
Facebook https://www.facebook.com/SjogrensStrong/
Instagram https://www.instagram.com/sjogrens_strong/
Twitter https://twitter.com/SjogrensStrong
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Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:05):
We are neither nutritionists or medical providers. The topics discussed
on this show are from our own research and experiences,
so please consult your medical provider before tempting anything discussed
on this show. Welcome to another episode of his show,
grins Strong. Oh this is a almost forgot. I always
(00:31):
do that. I'm never gonna get it because it's like,
I don't know when we go live, it just happens.
I don't know.
Speaker 2 (00:36):
All you have to do is much. Since she's on
her phone, she's probably tiktoking.
Speaker 1 (00:42):
Sorry my bad.
Speaker 2 (00:43):
Hey, Welcome to another episode of Shogrin Strong. Everybody. I
am Brian.
Speaker 1 (00:47):
Hi everybody, this is Lupagan and this.
Speaker 2 (00:49):
Is your podcast discussing how to live an active and
healthy lifestyle despite a diagnosis of showgrains. And for those
of you listening to the podcast, we thank you. Uh.
It is streaming live on spreaker and we'll be streaming
live here shortly on shogunstrom dot com and cit Radio.
Others are watching via YouTube and Facebook seeing all that
(01:13):
peer pressure last week live and in the flesh. She's
not hiding behind a graphic.
Speaker 1 (01:17):
Well was it last week or the week before?
Speaker 2 (01:20):
A week before? Because we didn't do a show last week.
Speaker 1 (01:23):
That's my bad. Guys. I've been working a lot of
hours and I have been so sorry.
Speaker 2 (01:30):
No, she has been. She's been crushing it. But you
know what, what it's cool a couple of things we
discussed previously. How your mind has been sharp. Not only sharp,
but she's been staying up late, reading and being productive.
Speaker 1 (01:50):
Ahi, guess what. I started school. I'm taking a class
this semester, a certification. But uh, it's that's keeping my mind,
me shopper. So I'm having fun.
Speaker 2 (02:02):
She's been. She's been waking up early.
Speaker 1 (02:05):
I always wake up, Bertie.
Speaker 2 (02:06):
I don't know. Yeah, but you've been like up and happy.
Speaker 1 (02:09):
I'm always happy. What are you talking about?
Speaker 2 (02:10):
Well, she's always off.
Speaker 1 (02:14):
Anyways, Hi, buddy, how you doing. Sorry, we haven't been
on it. It's not bad.
Speaker 2 (02:21):
Anyway, Enough about that. Chow grins. What or no? No?
You said show what?
Speaker 1 (02:28):
It should have been a show what.
Speaker 2 (02:30):
She's critiquing my title, which is okay, But the reason
we titled the show in the manner in which we
did show what wasn't show what? What do I have?
We have been interacting with a lot of people newly diagnosed,
and they've been coming us, coming to us, I should say,
(02:51):
either through social media or the website and reaching out,
which has been awesome. And I want to eminiss we
need tie machine sound going back in the time.
Speaker 1 (03:06):
Is that how it sounds well in my mind to win?
Speaker 2 (03:09):
Loupe was first diagnosed what so her primary care physician says,
you need to go see a rheumatologist. Didn't really tell
her why.
Speaker 1 (03:23):
No, Actually he said to me, you know, let me
back it up a little bit, because I I had
been going to the doctor for several reasons, right, mainly
because fatigue. That was my main complete my my main complaint.
I had extreme fatigue. And uh, I was just always tired.
(03:45):
So I went to the doctor and what's wrong with me?
How come I'm always tired and I always want to sleep?
I just always always want to sleep. And uh, the
doctor said, it's because you're an emach you need to
eat better and take a iron. That's what they said.
And I don't know. Fast forward several years. I never
knew that I had dry eyes until the doctor told me.
(04:07):
I just knew that my eyes were really like sandy
they and very sensitive to light. But one time I
went in for an annual and the doctor was almost
out the door and I said, hey, one more thing,
I said, I have leg pain. What do you think
is causing that? She's like wrote a script, sent me
to the lab, called me uh a couple of weeks later,
(04:33):
and she said you need to go see uh no,
an internalist, internal medicine doctor, I don't know what you
call him. Yeah, yeah, And I'm like, yeah, okay, I'll go.
And I didn't go for like six months, and then
she called again. She's like, you haven't gone to the doctor.
So I went and uh. Originally they thought I had
(04:53):
I think it was loop as they thought I had.
But then after blood work, more blood work, they call
me back and they said you need to go see
a rheumatologist. So that's when over the phone, the doctor
said you have chogrins and I said show what. No,
I didn't say that. I just want to say that.
(05:15):
I said, am I gonna die? That was the first
sentence out of my mouth. Am I gonna die?
Speaker 2 (05:21):
And the bedside manner of this doctor I think was
spot on, yes, but not of this.
Speaker 1 (05:29):
Yeah. And so anyways, I made an appointment to go
see a rheumatologist and he confirmed everything.
Speaker 2 (05:34):
And we've talked to a lot of people with chogrins
and it's I think a lot of fear kicks in
because A you've never heard the term. B you don't
know what it is. See, typically, your primary care physician
isn't going to give you a lot of information about chogrins.
They're going to push you to a rheumatologist, who you
(05:55):
know is their specialty. And there's time passes and while
you're waiting days, weeks, a month, who knows how long
to go see a rheumatologist and figure out what chogrins is,
people turn to the internet.
Speaker 1 (06:11):
Hey check it out. When I made the appointment to
go see a rheumatologist, it took me like three months
to get in and I like, three months. I need
to go now, because you know what's going on. You're scared.
You take to the internet. You know, don't take to
the internet, guys.
Speaker 2 (06:26):
Yeah, and yeah, because when you first google it or
bing it, I said being.
Speaker 1 (06:33):
No, you can't say being that's not gonna stick.
Speaker 2 (06:35):
Bing it you get a lot of worst of the worst,
and that just puts more fear into you, and not
that chogrins isn't bad, but odds are if you're newly diagnosed,
worst case scenario, you know, a lot of teeth tooth
oral damage isn't the case.
Speaker 1 (06:55):
I mean, because that's what's posted on the internet is
like the worst case scenario.
Speaker 2 (07:00):
Right, They're talking about organ failure and all of this stuff,
And so we wanted to kind of do this episode
to kind of highlight that and take a deep breath, relax,
wait till you talk to your roomatologist. I know it's
hard to stop the mind from thinking worst case scenario.
That's that's what us humans do. I mean, my phone
(07:22):
rings after hours and it's my daughter or something, obviously
you think the worst. Or loop A calls midday, I
think something's going on, or you know, we always think
the worst.
Speaker 1 (07:32):
I just want to know if you bomb me some chocolate,
don't think bad.
Speaker 2 (07:37):
Did you buy me chocolate?
Speaker 1 (07:39):
Then I get home and he eats it, Hey.
Speaker 2 (07:42):
You left it. I thought you didn't want it. So yeah,
we kind of wanted to do this this episode and
kind of focus on that and highlight some of the
things that help the most, that don't take a doctor prescription,
and that people don't want. Everybody wants to take a
(08:04):
magic pill and be better, you know, and that's not
the way our bodies work. And changing eating habits is
probably one of the things that helped Loope out the
most or had a big impact on her. Within days, I.
Speaker 1 (08:22):
Was reading a comment can you repeat that please? Sorry?
Speaker 2 (08:25):
Eating clean?
Speaker 1 (08:26):
Yes?
Speaker 2 (08:26):
How that impacted you pretty quickly?
Speaker 1 (08:29):
Yes. Once my rheumatologist, doctor Reeba. I always talk about
him because he's my angel. He told me what to
eat what not to eat, and a couple of weeks
later I started feeling way better. And also in the beginning,
I had a lot of inflammation. I didn't know it
was inflammation. I just know I was in pain right
(08:50):
because inflammation causes pain. But I was getting in a
lot of weight. But as soon as he told me
what to eat and whatnot tweet, I started feeling better
within a couple of weeks, and I actually lost about
thirty pounds, which I'm going to say was inflammation, but
I can neither confirm nor din.
Speaker 2 (09:08):
I And with a few exceptions, what to eat what
not to eat is what we've been taught since the
old school, food pyramid and elementary school. You know, everything
in moderation, leafy greens, lots of vegetables. He did say
limit fruit. Eat fruit, but limit fruit because of all
the natural sugar which a fruit, yeah, which, which makes
(09:32):
a lot of sense. Now we've taken it a step
farther and done a lot of research on anti inflammatory herbs.
And before we get into this, we're not medical professionals
like the disclaimers as, and consult with your doctor before
you change anything, especially if you're the kind of person
(09:55):
that's just going to change things radically. We've talked about
on prior shows to change things slowly and keep documentation,
log what you did, when you did it, and give
it time to your for your body to adjust, is
what I'm trying to say. Before you change something else,
(10:16):
that way, you have something to compare it to. So
even herbal remedies, too much of anything is bad, and
even herbal remedies can interact with medications and things of
that nature in higher volume than one would normally utilize
an herb for in cooking or whatnot. So take everything
(10:38):
we say with a grain of salt, consult with your
medical professional, and do things methodically so you know what
does work and what doesn't work. Right, right, So, there
are two te's that we've been making, and there's other
herbs that we haven't brought into the mix yet because
(10:58):
we've gotten pretty good satisfaction with what we have done.
So we're going to discuss here in a minute. Now.
The body plateaus, so what we're doing now might not
work as effectively a month from now, six months from now,
So we're kind of hanging with these other anti inflammatory
herbs to put into the mix if we do feel
(11:20):
like we're and I keep saying we are plateauing, but
Chi is plateauing you. Yeah, and Lupe is going to
give you great instructions on how to make tea here shortly,
just so any Google search is going to lead you
to what we're getting ready to say, and take it
(11:43):
a step farther, do a little research, and again everything
in moderation and introduce things slowly into your routine is
very very important. So Cama meal you can buy over
the counter Camo meal. Tea tattoo. Where did tattoo come from?
Speaker 1 (11:59):
I don't know. Is it camomeo anti inflammatory?
Speaker 2 (12:02):
It is anti inflammatory?
Speaker 1 (12:03):
You know why?
Speaker 2 (12:04):
I did not know that cilantro is anti inflammatory, which
is kind of cool, Jeanette shaking her head. Yeah, I
know that. Really, I didn't know cilantro was anything other
than delicious on my on my food, So that's kind
of cool. Echinatia. I just read a cool article today
(12:26):
because Loupe uses tart cherry in her morning shake, and
some people find sweet cherry is actually more beneficial to
them than tart.
Speaker 1 (12:38):
It's more better, more better.
Speaker 2 (12:41):
Try that out, and or sweet cherry. Spearman. And Saint
John's wart, which is something that I've wanted to try
in my own diet. We just have it yet for
some reason, probably because it's just got a funny name.
What do you take Saint John's wart? H now onto
(13:01):
some things we have been doing oregano, parsley, rosemary, sage,
ginger and what I do Because making a cup of
tea with a te ball is just it's one cup.
So we took an old French press and we can
make three cups of tea in this one French press.
We just throw our concoction of those herbs in it
(13:24):
and put the plunger on. Let it seep steep. Wow,
I'm having a hard time today people. Sorry. We let
it steep for a while, push it down, pour the
tea off, and it works well and you get a
few servings with you know, making one little small batch,
which is cool. Now something loop A found. I am
(13:45):
struggling today, I.
Speaker 1 (13:46):
Know, and I'm so quiet because I have this really
dry cough and every time I talk, I started coffee
so terrible.
Speaker 2 (13:52):
It's on me extension. Ginger two tablespoons and we have
this little I wanted to use the word apothecarry talk
about an old school word. We took a mason jar
and turned it into an apothecary and we added Now
we made a big batch, but this is for a
single batch ginger two tablespoons, cinnamon two tablespoons, black pepper
(14:19):
crushed fine one tablespoon, and turmeric six tablespoons, and mixed
it up really well.
Speaker 1 (14:27):
Like the recipe colls for organic.
Speaker 2 (14:31):
Right, but we couldn't find some of these things organic.
Speaker 1 (14:35):
We couldn't, so we kind of mixed it up.
Speaker 2 (14:38):
Yeah, so we were using some organic, some aren't organmanic.
Speaker 1 (14:42):
Organic organic, and it's it's helping.
Speaker 2 (14:47):
It's helping her quite a bit. So again it's ginger, cinnamon, pepper,
and turmeric and powder form. She's putting it in her
morning shakes and she's having an evening tea on occasion,
just fixing it with almond milk.
Speaker 1 (15:02):
And I'm really lazy, right to mix this up every
morning or every evening. So we got a really big
container and just we just mixed it up and made
a lot of servings. But I know you said that already,
but anyways, I just want to say big container and
in my morning shake, so all this stuff is in
(15:22):
my morning shake. One teaspoon of this concoction in my
morning shake. And I also add tarcherry and fiber chia seeds.
Anything that's gonna make me go right, that's my goal
and go to the poopy. I ain't no shame in
(15:46):
my game. I need help with that.
Speaker 2 (15:51):
And and that's kind of what we've been doing. So
the oregano parsley rosemary sage, I don't really have a recipe.
We buy it, you know, in the bag. It's probably
six ounces or so, I'm guessing, and I'm pretty much
serving it out, you know, in the equal parts. Now ginger.
(16:14):
Sometimes will get fresh ginger and grade it and let
that steep in the tea, and other times when we
don't have fresh ginger on hand, we're using you know,
the ground ginger spice either from a jar or bag.
It's hard to find ginger in the bag for us
locally where we shop, so we're buying it in the
little glass, you know, typical spice jar.
Speaker 1 (16:36):
But well, I think we were at Costco and we
found a really big thing of cinnamon. Yeah, so that
was pretty cool.
Speaker 2 (16:43):
That was really cool.
Speaker 1 (16:44):
But next time that we mix up this concoction, I
want to take a video and post it so you
guys could see what it looks like and what it is,
so we can do that.
Speaker 2 (16:53):
And some of these ingredients, I believe it's the cinnamon
and the pepper. They work in conjunction to help draw
out the goodness from each other, and it's been helping.
You haven't been complaining of pain lately.
Speaker 1 (17:07):
I haven't because usually.
Speaker 2 (17:08):
It's all my leg's hurt, your back, and it's heating
pads and blankets and flannel pjs to keep your legs warm.
Speaker 1 (17:15):
I haven't used my heating pad it's been a while.
It's really hot, but it doesn't matter if it's hot
or not. My heating pad helps me with my back pain,
and I haven't been complaining about any pain, so I
think it's definitely been helping me.
Speaker 2 (17:29):
Yeah, definitely, definitely. Now, the ginger cinnamon, pepper tumeric concoction
as we call it, the recipe we got it from
they said that they mix it with coconut almond milk
and or golden milk tea. Now we've had sampled golden
milk tea before, but it's nothing we keep in the home.
(17:51):
But it's anti inflammatory as well. And again we're throwing
these powders in her morning protein shake. Now, if you
don't do a proroteine shake, maybe you do a smoothie.
You can use this concoction in your foods. Obviously it's
gonna it's gonna change flavor profiles. But don't think you
just have to consume it as a tea. You can
(18:13):
work it into your diet as you see fit, with
what makes sense, and see what benefits it might bring you.
Speaker 1 (18:20):
The first couple of times if you try this concoction.
The pepper, I don't know how to describe the feeling
except I felt like I snorted it up my nose.
It it was really strong, That's what I feel like.
I don't know how to explain it.
Speaker 2 (18:36):
So it's pepper contains capsicone. That capsicone is the main
ingredient in pepper spray.
Speaker 1 (18:44):
My, oh my goodness.
Speaker 2 (18:45):
You know we've all seen the videos where people with
pepper spray and kind of giggle and laugh. But your
body will build a tolerance to that. And the cool
thing is it opens up your sinuses a little bit
and you can definitely inhale through your nose really really well.
Speaker 1 (19:01):
And I don't have that feeling anymore. It was just
maybe the first week, just maybe two three times. Now
my body got used to it. I don't have that
feeling anymore. But the pepper kind of, like I said,
I felt like I snorted it. It went to my head.
It felt weird. But I'm good now, I'm good. I'm
glad I'm doing this.
Speaker 2 (19:21):
Yeah. So if you if you get hit with that
pepper up front, give it a few shakes and build
a quick tolerance to it.
Speaker 1 (19:26):
You'll be I was like, oh my god, I feel funny.
But anyways, it went away first couple of times.
Speaker 2 (19:31):
Only it's alright. You know. Other things that we've done
is reduced the dairy. That's probably been a really big help.
She's almond milk only now probably the one her biggest
dairy in her diets cheeses.
Speaker 1 (19:52):
Yeah, I'm bad. I can't. I can't stop eating that.
But when I consume too much, my body feels it.
So but for me, what's helped me. I know that
a lot of people if you've had show, if you've
been diagnosed with shogrins for a while, you kind of
know what works for you. But for the newly diagnosed,
eating clean has helped me out tremendously. No dairy for me,
(20:17):
I'm not I don't really eat too much meat, but
definitely no red meat. I'm not gonna say I never
eat it, but I do sometimes, but I try to
stay away again from a dairy, red meat, sugar, and
definitely no alcohol, which is.
Speaker 2 (20:32):
A double edged short because of your iron you need
red you don't need red meat, but eating red meat
will help with your with your iron deficiency as well.
Speaker 1 (20:43):
But I've been eating a lot of Brussels sprouts, a
lot of greens, lima, beans, peas, grain. I eat it
because my body actually craves it, So that's what helps meat.
Speaker 2 (20:57):
So I'm going to talk about some cool things that
are happening and coming up while Loupe runs through some
comments really quick, and we'll kind of go back and
forth because quite a few people have commented, yeah, I
said something, and I haven't been on that screen to
see them. But first and foremost, a quick shout out
to Charlie, you know who you are. Appreciate talking to
(21:19):
you on the phone and I'm sure we'll be talking
again soon. And thanks for listening to the show. Much
much appreciated, Charlie.
Speaker 1 (21:27):
Hi, Charlie. I wanted to show you something because I
told I don't know if Brian mentioned it or not,
but and I know that there are several books out
there that talk about show grants, but the one that
has helped me the most, and the one that I recommend,
is this book here. And I know it's Janet.
Speaker 2 (21:47):
Let's get a close up?
Speaker 1 (21:48):
Can you get a close up for war? Please?
Speaker 2 (21:54):
There we go.
Speaker 1 (21:55):
It's hard to tell, but it's called It's Green and
it says the Show and Syndrome Survival Guide. This has
helped me a lot, a lot of people newly diagnosed
that contact me. I recommend this book, and again I
know there's many, this is the one that has helped
me the most. It doesn't have a lot of medical terms,
(22:17):
so I highly recommend this. You'll have a lot of
aha moments.
Speaker 2 (22:21):
So, yeah, it's written in plain English. And I did, Charlie,
you did get the image. I text you the image
of it. So and you know what, that's a book
we've given away in the past. We haven't done it
give way in a while.
Speaker 1 (22:32):
I know we haven't, but we definitely have to do that.
And also, Charlie, everybody who's newly diagnosed, the Foundation, the
Chagrin's Foundation very helpful. You need to go check them out,
become members. They have a lot of information that's really helpful.
Speaker 2 (22:51):
And membership includes periodical that gets mailed to your home
on occasions, so a lot of great valuable information in that.
But the foundation was I think, in my opinion, the
biggest thing the foundation did for us was let her
know that she's not alone. And the support groups out there,
(23:14):
and it's just it's an awesome, awesome community. So check
the foundation out.
Speaker 1 (23:20):
Oh, the members of a Living show and strong I
wanted to apologize. Somebody snuck in and they've been spamming
and I don't know how long it's been going on
because I've been really busy, but I noticed a lot
of comments today and I went in and I blocked
that user, and I deleted most of the comments I think,
so my apologies. When you see something like that, please
(23:42):
feel free to report them and we go in right away.
So sorry about that.
Speaker 2 (23:47):
She's very protective.
Speaker 1 (23:49):
Oh my god, are you kidding me? Every post it
was like twenty thirty two days.
Speaker 2 (23:53):
So well, back to the foundation really quick. They are
actually doing a virtual one day conferences for childhood chogrins.
So if you are watching this, or stumble across this,
or know somebody that has a child with chogrins, they
might want to check this out. It is the eighteenth
(24:13):
of September eleven a m. Eastern. I think it was
running till three. There is a you know what, let
me put the link in the comment section for those
that want to check it out and or go to
the Chogrins Foundation's web page. I'm sure they will have
(24:36):
information there, but I'm pasting that in the comments right now.
YouTube and or Facebook, so you can check that out.
We don't know. We don't personally know chill any child
with chogrins, do we.
Speaker 1 (24:51):
I don't know. I'm in contact with on on Instagram
I think two.
Speaker 2 (24:58):
Two yeah, and we met one one year at.
Speaker 1 (25:01):
The walk we did. Yeah, she was newly diagnosed. She
went with her dad.
Speaker 2 (25:05):
Yeah, her dad's spent quite a bit of time.
Speaker 1 (25:07):
She heard about the walk.
Speaker 2 (25:10):
They came in from far away.
Speaker 1 (25:11):
Yeah, that was really cool.
Speaker 2 (25:13):
I remember that. Yeah, I remember that. And speaking of
the walk, it's not too late. You can come join
us for the twenty twenty one virtual Walk for Chogrins.
Link is in the show notes below. We have made
a team and we would love for you to join
us raising money for the foundation and helping them continue
(25:35):
doing all the awesome work that they are doing. And
we would love to have you virtually walk with us.
If you live in Orange County, La Riverside, Santa Barbara,
San Diego and want to meet up with us, let
us know. We will do our walk publicly like we
did last year. Probably gonna do. I want to do
the beach again.
Speaker 1 (25:57):
I know we're still kind of undecided.
Speaker 2 (26:00):
So the beach was cool.
Speaker 1 (26:03):
Yeah, but you know what, like if if we kind
of want to meet that a halfway point, right, so
if some people want to join, you know, you don't
have to drive all the way.
Speaker 2 (26:14):
Just tell us yeah, yeah, we're flexible.
Speaker 1 (26:17):
Well, we'll meet halfway. We'll meet halfway, definitely.
Speaker 2 (26:19):
But we will be walking. We'll be on the opening
ceremonies on our cell phones. We'll probably be walking during
the opening ceremonies.
Speaker 1 (26:30):
Get no steps in, try not to make anybody dizzy
this time.
Speaker 2 (26:33):
Yeah, well, we'll hold our cameras still and then, yeah,
walk with us if you want to. If you are
far away, you can still virtually walk with us. That's
the point of it being a virtual walk. And whether
you walk around your kitchen table, or leave the house
and walk the block, or go to a local park,
(26:54):
the whole point of it is to get out there
in your Shogrin's Walk t shirt and you know, help
raise awar us and raise some funds for the foundation.
Speaker 1 (27:03):
And if you can't walk, not because you can't, but
you know, if you just can't that day, to cast
us on your TV.
Speaker 2 (27:12):
Cast it on your TV. Wow, I really thought I'd
be on somebody's TV.
Speaker 1 (27:17):
Yeah, that's cool.
Speaker 2 (27:19):
And you know, if you're not in a position to
you know, walk with us, then you know you can
help us out by donating the team Showgunstrong and or
any of the other teams and or you know, anybody
that's participating in the walk. I I don't care if
the funds come to me or Loope or the team
or somebody else's.
Speaker 1 (27:39):
Team, but they're awful of the foundation.
Speaker 2 (27:41):
They go to the foundation, and the foundation does so
much for us. So if you can, that would be awesome.
And a link to Team Showgunstrong is also in the
show notes. Oh, and I talked about a t ball
and a French press. If you have no clue what
they are, actually put links in the show notes to
them a search page of them on Amazon, so you're
(28:02):
gonna get tons of different options there. And you know,
the French press is probably a little more expensive than
the tea ball, and it's called a tea ball strainer,
but they're under ten bucks, some of the small single
serve strainers, so it's not a huge investment. When you're
at the grocery store, grab some of these anti inflammatory
(28:24):
herbs and start making yourself a tea or two.
Speaker 1 (28:26):
Oh, Susan Barro has, how come I didn't say that
no processed foods? Hello?
Speaker 2 (28:31):
Yeah, processed foods.
Speaker 1 (28:33):
Bad processed food. Stay away from junk.
Speaker 2 (28:35):
Food, fresh veg.
Speaker 1 (28:39):
Your body will crave it. Also, Maggie says that she
loves her coffee press for her loose teas. So yeah,
health is dependent on our habits and nutrition, not medicine
through that. Actually, you know what, I wanted to make
a comment. Ever since I've been taking this concoction that
(29:03):
we made concoction, I don't know what to call it.
A concoction, concoction the show get concoction, That's what I
wanna coin it. My medicine, I'm always I always take
my Planconail because I've weaned myself off of it before
and it wasn't good for me. But like my my
(29:24):
pain medicine because I take Placo Nail and Dolo Bit.
It's a blue pill and it's an anti inflammatory. And
ever since i've been taking this tea. Again not a
medical doctor, but it's been working for me, I'm not
really taking my my blue pill, the Dolo bid, so yeah, yeah, yeah,
(29:45):
because if I go two days without my pain pill,
I start aching. And like I had a four day
weekend Friday, Saturday, Sunday and I didn't take it until
Tuesday and no pain.
Speaker 2 (29:58):
So that's pretty cool.
Speaker 1 (30:00):
So I'm loving it.
Speaker 2 (30:01):
That's pretty cool, you know, And it's funny. We've talked
about CBD ointments on the show before. And I noticed
from time to time you'll ask me to apply some
to you, and that's when I know you're in pain,
and that usually triggers me to remind you to take
your pill.
Speaker 1 (30:20):
Yeah, I bought this. I don't know the name of it,
so I'll post about it or we can talk about
it in the next episode. But the ointment that we
bought at Costco. Oh, yeah, I don't remember the name
of it, but it's for pain and.
Speaker 2 (30:42):
A rheumatologist.
Speaker 1 (30:43):
Yeah, yeah, but it's for pain. And it was I
believe it was thirty nine dollars and it was two
big tubes and then a smaller one for thirty nine dollars.
My mom she wasn't a lot of pain or her
hand I think it was, and I gave her a
a tube and she says, it's been really helpful. I
haven't needed it, but I was grateful.
Speaker 2 (31:06):
It wasn't a fifty five gallon drum coming from Costco,
so big armp on it. You haven't used it yet,
I haven't.
Speaker 1 (31:13):
No, I haven't needed it. I haven't needed it. I
haven't needed the cbd O men either.
Speaker 2 (31:18):
You know what, next time my shoulder hurts, let me
try that instead. Of the CBD so I can.
Speaker 1 (31:23):
Yeah.
Speaker 2 (31:24):
Cool.
Speaker 1 (31:24):
So anyways, that's what's helped me so well.
Speaker 2 (31:28):
Gang. Again, this show is kind of meant for the
newly diagnosed. However, we appreciate all of you watching and
or listening live. We will be back.
Speaker 1 (31:39):
Next that's the plan. That's the plan next week.
Speaker 2 (31:42):
Next week. Until then, you know, check us out on
social posts. Wow, social media. We post pretty regularly on
Instagram and the other platforms. And again, thanks for listening, and.
Speaker 1 (31:57):
Hold one more comment, hold on, hold on, hold on,
hold on. Two things that happened helping me so much.
Golden milk made with turmeric. Yeah, the CBD tincture, tink sture,
under the sure under the tongue. Well, how did you
know that? Oh you're reading it? Yeah, so yeah, share
(32:18):
with us what works for you.
Speaker 2 (32:20):
And Maggie, thanks for watching, Susan, thanks for watching, and
for those of you who didn't comment, thank you.
Speaker 1 (32:25):
And until next time, sit constantly and stay hydrated, guys,
We are neither nutritionists or medical providers. The topics discussed
on this show are from our own research and experiences,
so please consult your medical provider before tempting anything discussed
on this show. Welcome to another episode of his show,
grins Strong. Oh this is a almost forgot. I always
(00:31):
do that. I'm never gonna get it because it's like,
I don't know when we go live, it just happens.
I don't know.
Speaker 2 (00:36):
All you have to do is much. Since she's on
her phone, she's probably tiktoking.
Speaker 1 (00:42):
Sorry my bad.
Speaker 2 (00:43):
Hey, Welcome to another episode of Shogrin Strong. Everybody. I
am Brian.
Speaker 1 (00:47):
Hi everybody, this is Lupagan and this.
Speaker 2 (00:49):
Is your podcast discussing how to live an active and
healthy lifestyle despite a diagnosis of showgrains. And for those
of you listening to the podcast, we thank you. Uh.
It is streaming live on spreaker and we'll be streaming
live here shortly on shogunstrom dot com and cit Radio.
Others are watching via YouTube and Facebook seeing all that
(01:13):
peer pressure last week live and in the flesh. She's
not hiding behind a graphic.
Speaker 1 (01:17):
Well was it last week or the week before?
Speaker 2 (01:20):
A week before? Because we didn't do a show last week.
Speaker 1 (01:23):
That's my bad. Guys. I've been working a lot of
hours and I have been so sorry.
Speaker 2 (01:30):
No, she has been. She's been crushing it. But you
know what, what it's cool a couple of things we
discussed previously. How your mind has been sharp. Not only sharp,
but she's been staying up late, reading and being productive.
Speaker 1 (01:50):
Ahi, guess what. I started school. I'm taking a class
this semester, a certification. But uh, it's that's keeping my mind,
me shopper. So I'm having fun.
Speaker 2 (02:02):
She's been. She's been waking up early.
Speaker 1 (02:05):
I always wake up, Bertie.
Speaker 2 (02:06):
I don't know. Yeah, but you've been like up and happy.
Speaker 1 (02:09):
I'm always happy. What are you talking about?
Speaker 2 (02:10):
Well, she's always off.
Speaker 1 (02:14):
Anyways, Hi, buddy, how you doing. Sorry, we haven't been
on it. It's not bad.
Speaker 2 (02:21):
Anyway, Enough about that. Chow grins. What or no? No?
You said show what?
Speaker 1 (02:28):
It should have been a show what.
Speaker 2 (02:30):
She's critiquing my title, which is okay, But the reason
we titled the show in the manner in which we
did show what wasn't show what? What do I have?
We have been interacting with a lot of people newly diagnosed,
and they've been coming us, coming to us, I should say,
(02:51):
either through social media or the website and reaching out,
which has been awesome. And I want to eminiss we
need tie machine sound going back in the time.
Speaker 1 (03:06):
Is that how it sounds well in my mind to win?
Speaker 2 (03:09):
Loupe was first diagnosed what so her primary care physician says,
you need to go see a rheumatologist. Didn't really tell
her why.
Speaker 1 (03:23):
No, Actually he said to me, you know, let me
back it up a little bit, because I I had
been going to the doctor for several reasons, right, mainly
because fatigue. That was my main complete my my main complaint.
I had extreme fatigue. And uh, I was just always tired.
(03:45):
So I went to the doctor and what's wrong with me?
How come I'm always tired and I always want to sleep?
I just always always want to sleep. And uh, the
doctor said, it's because you're an emach you need to
eat better and take a iron. That's what they said.
And I don't know. Fast forward several years. I never
knew that I had dry eyes until the doctor told me.
(04:07):
I just knew that my eyes were really like sandy
they and very sensitive to light. But one time I
went in for an annual and the doctor was almost
out the door and I said, hey, one more thing,
I said, I have leg pain. What do you think
is causing that? She's like wrote a script, sent me
to the lab, called me uh a couple of weeks later,
(04:33):
and she said you need to go see uh no,
an internalist, internal medicine doctor, I don't know what you
call him. Yeah, yeah, And I'm like, yeah, okay, I'll go.
And I didn't go for like six months, and then
she called again. She's like, you haven't gone to the doctor.
So I went and uh. Originally they thought I had
(04:53):
I think it was loop as they thought I had.
But then after blood work, more blood work, they call
me back and they said you need to go see
a rheumatologist. So that's when over the phone, the doctor
said you have chogrins and I said show what. No,
I didn't say that. I just want to say that.
(05:15):
I said, am I gonna die? That was the first
sentence out of my mouth. Am I gonna die?
Speaker 2 (05:21):
And the bedside manner of this doctor I think was
spot on, yes, but not of this.
Speaker 1 (05:29):
Yeah. And so anyways, I made an appointment to go
see a rheumatologist and he confirmed everything.
Speaker 2 (05:34):
And we've talked to a lot of people with chogrins
and it's I think a lot of fear kicks in
because A you've never heard the term. B you don't
know what it is. See, typically, your primary care physician
isn't going to give you a lot of information about chogrins.
They're going to push you to a rheumatologist, who you
(05:55):
know is their specialty. And there's time passes and while
you're waiting days, weeks, a month, who knows how long
to go see a rheumatologist and figure out what chogrins is,
people turn to the internet.
Speaker 1 (06:11):
Hey check it out. When I made the appointment to
go see a rheumatologist, it took me like three months
to get in and I like, three months. I need
to go now, because you know what's going on. You're scared.
You take to the internet. You know, don't take to
the internet, guys.
Speaker 2 (06:26):
Yeah, and yeah, because when you first google it or
bing it, I said being.
Speaker 1 (06:33):
No, you can't say being that's not gonna stick.
Speaker 2 (06:35):
Bing it you get a lot of worst of the worst,
and that just puts more fear into you, and not
that chogrins isn't bad, but odds are if you're newly diagnosed,
worst case scenario, you know, a lot of teeth tooth
oral damage isn't the case.
Speaker 1 (06:55):
I mean, because that's what's posted on the internet is
like the worst case scenario.
Speaker 2 (07:00):
Right, They're talking about organ failure and all of this stuff,
And so we wanted to kind of do this episode
to kind of highlight that and take a deep breath, relax,
wait till you talk to your roomatologist. I know it's
hard to stop the mind from thinking worst case scenario.
That's that's what us humans do. I mean, my phone
(07:22):
rings after hours and it's my daughter or something, obviously
you think the worst. Or loop A calls midday, I
think something's going on, or you know, we always think
the worst.
Speaker 1 (07:32):
I just want to know if you bomb me some chocolate,
don't think bad.
Speaker 2 (07:37):
Did you buy me chocolate?
Speaker 1 (07:39):
Then I get home and he eats it, Hey.
Speaker 2 (07:42):
You left it. I thought you didn't want it. So yeah,
we kind of wanted to do this this episode and
kind of focus on that and highlight some of the
things that help the most, that don't take a doctor prescription,
and that people don't want. Everybody wants to take a
(08:04):
magic pill and be better, you know, and that's not
the way our bodies work. And changing eating habits is
probably one of the things that helped Loope out the
most or had a big impact on her. Within days, I.
Speaker 1 (08:22):
Was reading a comment can you repeat that please? Sorry?
Speaker 2 (08:25):
Eating clean?
Speaker 1 (08:26):
Yes?
Speaker 2 (08:26):
How that impacted you pretty quickly?
Speaker 1 (08:29):
Yes. Once my rheumatologist, doctor Reeba. I always talk about
him because he's my angel. He told me what to
eat what not to eat, and a couple of weeks
later I started feeling way better. And also in the beginning,
I had a lot of inflammation. I didn't know it
was inflammation. I just know I was in pain right
(08:50):
because inflammation causes pain. But I was getting in a
lot of weight. But as soon as he told me
what to eat and whatnot tweet, I started feeling better
within a couple of weeks, and I actually lost about
thirty pounds, which I'm going to say was inflammation, but
I can neither confirm nor din.
Speaker 2 (09:08):
I And with a few exceptions, what to eat what
not to eat is what we've been taught since the
old school, food pyramid and elementary school. You know, everything
in moderation, leafy greens, lots of vegetables. He did say
limit fruit. Eat fruit, but limit fruit because of all
the natural sugar which a fruit, yeah, which, which makes
(09:32):
a lot of sense. Now we've taken it a step
farther and done a lot of research on anti inflammatory herbs.
And before we get into this, we're not medical professionals
like the disclaimers as, and consult with your doctor before
you change anything, especially if you're the kind of person
(09:55):
that's just going to change things radically. We've talked about
on prior shows to change things slowly and keep documentation,
log what you did, when you did it, and give
it time to your for your body to adjust, is
what I'm trying to say. Before you change something else,
(10:16):
that way, you have something to compare it to. So
even herbal remedies, too much of anything is bad, and
even herbal remedies can interact with medications and things of
that nature in higher volume than one would normally utilize
an herb for in cooking or whatnot. So take everything
(10:38):
we say with a grain of salt, consult with your
medical professional, and do things methodically so you know what
does work and what doesn't work. Right, right, So, there
are two te's that we've been making, and there's other
herbs that we haven't brought into the mix yet because
(10:58):
we've gotten pretty good satisfaction with what we have done.
So we're going to discuss here in a minute. Now.
The body plateaus, so what we're doing now might not
work as effectively a month from now, six months from now,
So we're kind of hanging with these other anti inflammatory
herbs to put into the mix if we do feel
(11:20):
like we're and I keep saying we are plateauing, but
Chi is plateauing you. Yeah, and Lupe is going to
give you great instructions on how to make tea here shortly,
just so any Google search is going to lead you
to what we're getting ready to say, and take it
(11:43):
a step farther, do a little research, and again everything
in moderation and introduce things slowly into your routine is
very very important. So Cama meal you can buy over
the counter Camo meal. Tea tattoo. Where did tattoo come from?
Speaker 1 (11:59):
I don't know. Is it camomeo anti inflammatory?
Speaker 2 (12:02):
It is anti inflammatory?
Speaker 1 (12:03):
You know why?
Speaker 2 (12:04):
I did not know that cilantro is anti inflammatory, which
is kind of cool, Jeanette shaking her head. Yeah, I
know that. Really, I didn't know cilantro was anything other
than delicious on my on my food, So that's kind
of cool. Echinatia. I just read a cool article today
(12:26):
because Loupe uses tart cherry in her morning shake, and
some people find sweet cherry is actually more beneficial to
them than tart.
Speaker 1 (12:38):
It's more better, more better.
Speaker 2 (12:41):
Try that out, and or sweet cherry. Spearman. And Saint
John's wart, which is something that I've wanted to try
in my own diet. We just have it yet for
some reason, probably because it's just got a funny name.
What do you take Saint John's wart? H now onto
(13:01):
some things we have been doing oregano, parsley, rosemary, sage,
ginger and what I do Because making a cup of
tea with a te ball is just it's one cup.
So we took an old French press and we can
make three cups of tea in this one French press.
We just throw our concoction of those herbs in it
(13:24):
and put the plunger on. Let it seep steep. Wow,
I'm having a hard time today people. Sorry. We let
it steep for a while, push it down, pour the
tea off, and it works well and you get a
few servings with you know, making one little small batch,
which is cool. Now something loop A found. I am
(13:45):
struggling today, I.
Speaker 1 (13:46):
Know, and I'm so quiet because I have this really
dry cough and every time I talk, I started coffee
so terrible.
Speaker 2 (13:52):
It's on me extension. Ginger two tablespoons and we have
this little I wanted to use the word apothecarry talk
about an old school word. We took a mason jar
and turned it into an apothecary and we added Now
we made a big batch, but this is for a
single batch ginger two tablespoons, cinnamon two tablespoons, black pepper
(14:19):
crushed fine one tablespoon, and turmeric six tablespoons, and mixed
it up really well.
Speaker 1 (14:27):
Like the recipe colls for organic.
Speaker 2 (14:31):
Right, but we couldn't find some of these things organic.
Speaker 1 (14:35):
We couldn't, so we kind of mixed it up.
Speaker 2 (14:38):
Yeah, so we were using some organic, some aren't organmanic.
Speaker 1 (14:42):
Organic organic, and it's it's helping.
Speaker 2 (14:47):
It's helping her quite a bit. So again it's ginger, cinnamon, pepper,
and turmeric and powder form. She's putting it in her
morning shakes and she's having an evening tea on occasion,
just fixing it with almond milk.
Speaker 1 (15:02):
And I'm really lazy, right to mix this up every
morning or every evening. So we got a really big
container and just we just mixed it up and made
a lot of servings. But I know you said that already,
but anyways, I just want to say big container and
in my morning shake, so all this stuff is in
(15:22):
my morning shake. One teaspoon of this concoction in my
morning shake. And I also add tarcherry and fiber chia seeds.
Anything that's gonna make me go right, that's my goal
and go to the poopy. I ain't no shame in
(15:46):
my game. I need help with that.
Speaker 2 (15:51):
And and that's kind of what we've been doing. So
the oregano parsley rosemary sage, I don't really have a recipe.
We buy it, you know, in the bag. It's probably
six ounces or so, I'm guessing, and I'm pretty much
serving it out, you know, in the equal parts. Now ginger.
(16:14):
Sometimes will get fresh ginger and grade it and let
that steep in the tea, and other times when we
don't have fresh ginger on hand, we're using you know,
the ground ginger spice either from a jar or bag.
It's hard to find ginger in the bag for us
locally where we shop, so we're buying it in the
little glass, you know, typical spice jar.
Speaker 1 (16:36):
But well, I think we were at Costco and we
found a really big thing of cinnamon. Yeah, so that
was pretty cool.
Speaker 2 (16:43):
That was really cool.
Speaker 1 (16:44):
But next time that we mix up this concoction, I
want to take a video and post it so you
guys could see what it looks like and what it is,
so we can do that.
Speaker 2 (16:53):
And some of these ingredients, I believe it's the cinnamon
and the pepper. They work in conjunction to help draw
out the goodness from each other, and it's been helping.
You haven't been complaining of pain lately.
Speaker 1 (17:07):
I haven't because usually.
Speaker 2 (17:08):
It's all my leg's hurt, your back, and it's heating
pads and blankets and flannel pjs to keep your legs warm.
Speaker 1 (17:15):
I haven't used my heating pad it's been a while.
It's really hot, but it doesn't matter if it's hot
or not. My heating pad helps me with my back pain,
and I haven't been complaining about any pain, so I
think it's definitely been helping me.
Speaker 2 (17:29):
Yeah, definitely, definitely. Now, the ginger cinnamon, pepper tumeric concoction
as we call it, the recipe we got it from
they said that they mix it with coconut almond milk
and or golden milk tea. Now we've had sampled golden
milk tea before, but it's nothing we keep in the home.
(17:51):
But it's anti inflammatory as well. And again we're throwing
these powders in her morning protein shake. Now, if you
don't do a proroteine shake, maybe you do a smoothie.
You can use this concoction in your foods. Obviously it's
gonna it's gonna change flavor profiles. But don't think you
just have to consume it as a tea. You can
(18:13):
work it into your diet as you see fit, with
what makes sense, and see what benefits it might bring you.
Speaker 1 (18:20):
The first couple of times if you try this concoction.
The pepper, I don't know how to describe the feeling
except I felt like I snorted it up my nose.
It it was really strong, That's what I feel like.
I don't know how to explain it.
Speaker 2 (18:36):
So it's pepper contains capsicone. That capsicone is the main
ingredient in pepper spray.
Speaker 1 (18:44):
My, oh my goodness.
Speaker 2 (18:45):
You know we've all seen the videos where people with
pepper spray and kind of giggle and laugh. But your
body will build a tolerance to that. And the cool
thing is it opens up your sinuses a little bit
and you can definitely inhale through your nose really really well.
Speaker 1 (19:01):
And I don't have that feeling anymore. It was just
maybe the first week, just maybe two three times. Now
my body got used to it. I don't have that
feeling anymore. But the pepper kind of, like I said,
I felt like I snorted it. It went to my head.
It felt weird. But I'm good now, I'm good. I'm
glad I'm doing this.
Speaker 2 (19:21):
Yeah. So if you if you get hit with that
pepper up front, give it a few shakes and build
a quick tolerance to it.
Speaker 1 (19:26):
You'll be I was like, oh my god, I feel funny.
But anyways, it went away first couple of times.
Speaker 2 (19:31):
Only it's alright. You know. Other things that we've done
is reduced the dairy. That's probably been a really big help.
She's almond milk only now probably the one her biggest
dairy in her diets cheeses.
Speaker 1 (19:52):
Yeah, I'm bad. I can't. I can't stop eating that.
But when I consume too much, my body feels it.
So but for me, what's helped me. I know that
a lot of people if you've had show, if you've
been diagnosed with shogrins for a while, you kind of
know what works for you. But for the newly diagnosed,
eating clean has helped me out tremendously. No dairy for me,
(20:17):
I'm not I don't really eat too much meat, but
definitely no red meat. I'm not gonna say I never
eat it, but I do sometimes, but I try to
stay away again from a dairy, red meat, sugar, and
definitely no alcohol, which is.
Speaker 2 (20:32):
A double edged short because of your iron you need
red you don't need red meat, but eating red meat
will help with your with your iron deficiency as well.
Speaker 1 (20:43):
But I've been eating a lot of Brussels sprouts, a
lot of greens, lima, beans, peas, grain. I eat it
because my body actually craves it, So that's what helps meat.
Speaker 2 (20:57):
So I'm going to talk about some cool things that
are happening and coming up while Loupe runs through some
comments really quick, and we'll kind of go back and
forth because quite a few people have commented, yeah, I
said something, and I haven't been on that screen to
see them. But first and foremost, a quick shout out
to Charlie, you know who you are. Appreciate talking to
(21:19):
you on the phone and I'm sure we'll be talking
again soon. And thanks for listening to the show. Much
much appreciated, Charlie.
Speaker 1 (21:27):
Hi, Charlie. I wanted to show you something because I
told I don't know if Brian mentioned it or not,
but and I know that there are several books out
there that talk about show grants, but the one that
has helped me the most, and the one that I recommend,
is this book here. And I know it's Janet.
Speaker 2 (21:47):
Let's get a close up?
Speaker 1 (21:48):
Can you get a close up for war? Please?
Speaker 2 (21:54):
There we go.
Speaker 1 (21:55):
It's hard to tell, but it's called It's Green and
it says the Show and Syndrome Survival Guide. This has
helped me a lot, a lot of people newly diagnosed
that contact me. I recommend this book, and again I
know there's many, this is the one that has helped
me the most. It doesn't have a lot of medical terms,
(22:17):
so I highly recommend this. You'll have a lot of
aha moments.
Speaker 2 (22:21):
So, yeah, it's written in plain English. And I did, Charlie,
you did get the image. I text you the image
of it. So and you know what, that's a book
we've given away in the past. We haven't done it
give way in a while.
Speaker 1 (22:32):
I know we haven't, but we definitely have to do that.
And also, Charlie, everybody who's newly diagnosed, the Foundation, the
Chagrin's Foundation very helpful. You need to go check them out,
become members. They have a lot of information that's really helpful.
Speaker 2 (22:51):
And membership includes periodical that gets mailed to your home
on occasions, so a lot of great valuable information in that.
But the foundation was I think, in my opinion, the
biggest thing the foundation did for us was let her
know that she's not alone. And the support groups out there,
(23:14):
and it's just it's an awesome, awesome community. So check
the foundation out.
Speaker 1 (23:20):
Oh, the members of a Living show and strong I
wanted to apologize. Somebody snuck in and they've been spamming
and I don't know how long it's been going on
because I've been really busy, but I noticed a lot
of comments today and I went in and I blocked
that user, and I deleted most of the comments I think,
so my apologies. When you see something like that, please
(23:42):
feel free to report them and we go in right away.
So sorry about that.
Speaker 2 (23:47):
She's very protective.
Speaker 1 (23:49):
Oh my god, are you kidding me? Every post it
was like twenty thirty two days.
Speaker 2 (23:53):
So well, back to the foundation really quick. They are
actually doing a virtual one day conferences for childhood chogrins.
So if you are watching this, or stumble across this,
or know somebody that has a child with chogrins, they
might want to check this out. It is the eighteenth
(24:13):
of September eleven a m. Eastern. I think it was
running till three. There is a you know what, let
me put the link in the comment section for those
that want to check it out and or go to
the Chogrins Foundation's web page. I'm sure they will have
(24:36):
information there, but I'm pasting that in the comments right now.
YouTube and or Facebook, so you can check that out.
We don't know. We don't personally know chill any child
with chogrins, do we.
Speaker 1 (24:51):
I don't know. I'm in contact with on on Instagram
I think two.
Speaker 2 (24:58):
Two yeah, and we met one one year at.
Speaker 1 (25:01):
The walk we did. Yeah, she was newly diagnosed. She
went with her dad.
Speaker 2 (25:05):
Yeah, her dad's spent quite a bit of time.
Speaker 1 (25:07):
She heard about the walk.
Speaker 2 (25:10):
They came in from far away.
Speaker 1 (25:11):
Yeah, that was really cool.
Speaker 2 (25:13):
I remember that. Yeah, I remember that. And speaking of
the walk, it's not too late. You can come join
us for the twenty twenty one virtual Walk for Chogrins.
Link is in the show notes below. We have made
a team and we would love for you to join
us raising money for the foundation and helping them continue
(25:35):
doing all the awesome work that they are doing. And
we would love to have you virtually walk with us.
If you live in Orange County, La Riverside, Santa Barbara,
San Diego and want to meet up with us, let
us know. We will do our walk publicly like we
did last year. Probably gonna do. I want to do
the beach again.
Speaker 1 (25:57):
I know we're still kind of undecided.
Speaker 2 (26:00):
So the beach was cool.
Speaker 1 (26:03):
Yeah, but you know what, like if if we kind
of want to meet that a halfway point, right, so
if some people want to join, you know, you don't
have to drive all the way.
Speaker 2 (26:14):
Just tell us yeah, yeah, we're flexible.
Speaker 1 (26:17):
Well, we'll meet halfway. We'll meet halfway, definitely.
Speaker 2 (26:19):
But we will be walking. We'll be on the opening
ceremonies on our cell phones. We'll probably be walking during
the opening ceremonies.
Speaker 1 (26:30):
Get no steps in, try not to make anybody dizzy
this time.
Speaker 2 (26:33):
Yeah, well, we'll hold our cameras still and then, yeah,
walk with us if you want to. If you are
far away, you can still virtually walk with us. That's
the point of it being a virtual walk. And whether
you walk around your kitchen table, or leave the house
and walk the block, or go to a local park,
(26:54):
the whole point of it is to get out there
in your Shogrin's Walk t shirt and you know, help
raise awar us and raise some funds for the foundation.
Speaker 1 (27:03):
And if you can't walk, not because you can't, but
you know, if you just can't that day, to cast
us on your TV.
Speaker 2 (27:12):
Cast it on your TV. Wow, I really thought I'd
be on somebody's TV.
Speaker 1 (27:17):
Yeah, that's cool.
Speaker 2 (27:19):
And you know, if you're not in a position to
you know, walk with us, then you know you can
help us out by donating the team Showgunstrong and or
any of the other teams and or you know, anybody
that's participating in the walk. I I don't care if
the funds come to me or Loope or the team
or somebody else's.
Speaker 1 (27:39):
Team, but they're awful of the foundation.
Speaker 2 (27:41):
They go to the foundation, and the foundation does so
much for us. So if you can, that would be awesome.
And a link to Team Showgunstrong is also in the
show notes. Oh, and I talked about a t ball
and a French press. If you have no clue what
they are, actually put links in the show notes to
them a search page of them on Amazon, so you're
(28:02):
gonna get tons of different options there. And you know,
the French press is probably a little more expensive than
the tea ball, and it's called a tea ball strainer,
but they're under ten bucks, some of the small single
serve strainers, so it's not a huge investment. When you're
at the grocery store, grab some of these anti inflammatory
(28:24):
herbs and start making yourself a tea or two.
Speaker 1 (28:26):
Oh, Susan Barro has, how come I didn't say that
no processed foods? Hello?
Speaker 2 (28:31):
Yeah, processed foods.
Speaker 1 (28:33):
Bad processed food. Stay away from junk.
Speaker 2 (28:35):
Food, fresh veg.
Speaker 1 (28:39):
Your body will crave it. Also, Maggie says that she
loves her coffee press for her loose teas. So yeah,
health is dependent on our habits and nutrition, not medicine
through that. Actually, you know what, I wanted to make
a comment. Ever since I've been taking this concoction that
(29:03):
we made concoction, I don't know what to call it.
A concoction, concoction the show get concoction, That's what I
wanna coin it. My medicine, I'm always I always take
my Planconail because I've weaned myself off of it before
and it wasn't good for me. But like my my
(29:24):
pain medicine because I take Placo Nail and Dolo Bit.
It's a blue pill and it's an anti inflammatory. And
ever since i've been taking this tea. Again not a
medical doctor, but it's been working for me, I'm not
really taking my my blue pill, the Dolo bid, so yeah, yeah, yeah,
(29:45):
because if I go two days without my pain pill,
I start aching. And like I had a four day
weekend Friday, Saturday, Sunday and I didn't take it until
Tuesday and no pain.
Speaker 2 (29:58):
So that's pretty cool.
Speaker 1 (30:00):
So I'm loving it.
Speaker 2 (30:01):
That's pretty cool, you know, And it's funny. We've talked
about CBD ointments on the show before. And I noticed
from time to time you'll ask me to apply some
to you, and that's when I know you're in pain,
and that usually triggers me to remind you to take
your pill.
Speaker 1 (30:20):
Yeah, I bought this. I don't know the name of it,
so I'll post about it or we can talk about
it in the next episode. But the ointment that we
bought at Costco. Oh, yeah, I don't remember the name
of it, but it's for pain and.
Speaker 2 (30:42):
A rheumatologist.
Speaker 1 (30:43):
Yeah, yeah, but it's for pain. And it was I
believe it was thirty nine dollars and it was two
big tubes and then a smaller one for thirty nine dollars.
My mom she wasn't a lot of pain or her
hand I think it was, and I gave her a
a tube and she says, it's been really helpful. I
haven't needed it, but I was grateful.
Speaker 2 (31:06):
It wasn't a fifty five gallon drum coming from Costco,
so big armp on it. You haven't used it yet,
I haven't.
Speaker 1 (31:13):
No, I haven't needed it. I haven't needed it. I
haven't needed the cbd O men either.
Speaker 2 (31:18):
You know what, next time my shoulder hurts, let me
try that instead. Of the CBD so I can.
Speaker 1 (31:23):
Yeah.
Speaker 2 (31:24):
Cool.
Speaker 1 (31:24):
So anyways, that's what's helped me so well.
Speaker 2 (31:28):
Gang. Again, this show is kind of meant for the
newly diagnosed. However, we appreciate all of you watching and
or listening live. We will be back.
Speaker 1 (31:39):
Next that's the plan. That's the plan next week.
Speaker 2 (31:42):
Next week. Until then, you know, check us out on
social posts. Wow, social media. We post pretty regularly on
Instagram and the other platforms. And again, thanks for listening, and.
Speaker 1 (31:57):
Hold one more comment, hold on, hold on, hold on,
hold on. Two things that happened helping me so much.
Golden milk made with turmeric. Yeah, the CBD tincture, tink sture,
under the sure under the tongue. Well, how did you
know that? Oh you're reading it? Yeah, so yeah, share
(32:18):
with us what works for you.
Speaker 2 (32:20):
And Maggie, thanks for watching, Susan, thanks for watching, and
for those of you who didn't comment, thank you.
Speaker 1 (32:25):
And until next time, sit constantly and stay hydrated, guys,
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