Welcome to Untold Stories: Life with Myasthenia Gravis

With a rare neuromuscular condition like myasthenia gravis, or MG, everyone’s experience with the disease is unique and often filled with struggles and sacrifices. That’s why argenx has partnered with iHeartRadio to bring you “Untold Stories: Life with Myasthenia Gravis.” In each episode, host Martine Hackett will explore the lessons learned and obstacles overcome by real people living with MG and share their empowering perspectives. Listen every other week to find strength and inspiration in these stories from members of the MG community.

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Episode Transcript

Speaker 1 (00:03):
For people with myasthenia Gravis often called MG, their journey
through life takes many twists and turns. MG is a
rare disease that can cause debilitating muscle weakness and fatigue,
and each person's experience with it is unique. From onset
and severity of symptoms to obtaining an accurate diagnosis and
finding proper care and support, every person with MG has

(00:25):
a story to tell.

Speaker 2 (00:27):
Hi.

Speaker 1 (00:27):
I'm Martine Hackett, Associate Professor and Director of Public Health
Programs at Hofstra University, and I'm hosting the brand new
podcast Untold Stories Life with Myasthenia Gravis, an iHeartRadio production
in partnership with Ourgenics. In each episode, we will speak
to real people living with MG to share the challenges
and triumphs that they have experienced along their journey with

(00:51):
this rare disease.

Speaker 2 (00:54):
I owned a print shop in Maine and I had
to close it because I had my first myasthenic crisis.
Based on why I can do with most of my
good days with MG, I relaunched my web design business.
Just because you can't do what you used to do
doesn't mean that you still can't do other stuff.

Speaker 1 (01:12):
We will uncover the reality of life with MG and
discuss its disproportionate effect on underserved communities.

Speaker 3 (01:21):
My age rolled it out, my race rolled it out
like I'm a young black girl. But I also just
think had someone taken the time to ask me what
was going on, we might have gotten there sooner.

Speaker 1 (01:33):
From doctor visits and diagnosis to caregiving and coping, this
podcast will provide members of the MG community with a
new opportunity to make their voices heard, letting others with
MG and those who care for them know that they
are not alone. Join me on June twenty first for
our first episode of Untold Stories Life with Mayasthenia Gravis

(01:53):
to delve into the experiences of our guests who are
living with MG and learn from their unique perspectives. Listen
to Untold Stories Life with Mayasthenia Gravis on the iHeartRadio app,
Apple Podcasts, or wherever you get your podcasts.