Town Councillor Anne Stephenson chairs the Hampshire & Isle of Wight branch of the Huntington's Disease Association; she lost her husband to the disease some years ago.
Their recent AGM featured an IVF-type process that prevents the defective gene that causes the disease being passed on to children, which was a very uplifting story. but the big news was of a dramatic medical breakthrough which made the national and international news.
AMT 130 - delivered in one dose during brain surgery reduces the progression of the disease by 75% and they hope it will be approved by the end of 2026 in the US. There are also hopes the process could have other applications with diseases like Alzheimers'.
Anne speaks to Mike Waddington about Huntington's Disease, the prospects for a cure and the importance of all people affected coming together.
See Huntington's Disease Association - South East
See omnystudio.com/listener for privacy information.
Popular Podcasts
Stuff You Should Know
If you've ever wanted to know about champagne, satanism, the Stonewall Uprising, chaos theory, LSD, El Nino, true crime and Rosa Parks, then look no further. Josh and Chuck have you covered.
Cardiac Cowboys
The heart was always off-limits to surgeons. Cutting into it spelled instant death for the patient. That is, until a ragtag group of doctors scattered across the Midwest and Texas decided to throw out the rule book. Working in makeshift laboratories and home garages, using medical devices made from scavenged machine parts and beer tubes, these men and women invented the field of open heart surgery. Odds are, someone you know is alive because of them. So why has history left them behind? Presented by Chris Pine, CARDIAC COWBOYS tells the gripping true story behind the birth of heart surgery, and the young, Greatest Generation doctors who made it happen. For years, they competed and feuded, racing to be the first, the best, and the most prolific. Some appeared on the cover of Time Magazine, operated on kings and advised presidents. Others ended up disgraced, penniless, and convicted of felonies. Together, they ignited a revolution in medicine, and changed the world.
The Joe Rogan Experience
The official podcast of comedian Joe Rogan.