August 15, 2025 • 30 mins
In this powerful episode of the Aligned & Elevated Podcast, Dr. Alison Feldt welcomes back Bella Perez for a deep and eye-opening conversation on endometriosis.
Together, they dive into: ✨ What hysterectomies really mean for endometriosis care ✨ The misconceptions around C-sections and endo ✨ Why pelvic floor physical therapy & regenerative medicine are game-changers ✨ The genetic and environmental factors at play ✨ The emotional and personal side of living with endo
Bella also shares her own story of advocacy and resilience—reminding us all that endometriosis is NOT your fault.
Whether you’ve been diagnosed, suspect you may have endo, or want to better support a loved one, this episode is filled with knowledge, compassion, and hope.
🔗 Be sure to check out Bella’s first appearance on the podcast if you haven’t already!
💬 Share this episode with someone who needs to hear that they’re not alone in their journey.
#Endometriosis #WomensHealth #PelvicFloorPT #AlignedAndElevatedPodcast
Together, they dive into: ✨ What hysterectomies really mean for endometriosis care ✨ The misconceptions around C-sections and endo ✨ Why pelvic floor physical therapy & regenerative medicine are game-changers ✨ The genetic and environmental factors at play ✨ The emotional and personal side of living with endo
Bella also shares her own story of advocacy and resilience—reminding us all that endometriosis is NOT your fault.
Whether you’ve been diagnosed, suspect you may have endo, or want to better support a loved one, this episode is filled with knowledge, compassion, and hope.
🔗 Be sure to check out Bella’s first appearance on the podcast if you haven’t already!
💬 Share this episode with someone who needs to hear that they’re not alone in their journey.
#Endometriosis #WomensHealth #PelvicFloorPT #AlignedAndElevatedPodcast
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Transcript
Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
Welcome to another episode of the Aligned and Elevated Podcast.
(00:03):
I'm your host, doctor Allison Felt, and I have back
on the second time guest Bella Perez, and we are
gonna dive a little deeper and talking more about endometriosis.
We got a lot of good feedback about the episode,
about the endo episode, and so let's do another one.
Run it back, but we're gonna dive a little deeper
(00:23):
into some research that you've dug up based on questions
that people ask us through DMS and whatnot.
Speaker 2 (00:28):
So we're gonna hit those and then I just have
to tell you a little story before we Okay, it
start too, Okay, So my mom ended up getting finding.
Speaker 1 (00:37):
Out that she had cancer in her uterus and it
was like super early found and they ended up actually
just being pre cancerous cells, and so got this diagnosis,
was able to get in for the hysterectomy to take
everything out, did the ovaries, fallopian tubes, uterus, cervix as well,
just to like make sure that there wasn't anything left
(01:00):
for cancer to be in really good indications, like only
pre cancer cells, nothing has spread to the lymph. They
do these dye tests when they're in there to determine
which lymph nodes drain the uterus, and then they make
then when they do that die test, that's those are
the lymphtones they dissect because those are what during the
(01:20):
uters So if the uter cancer has spread, they would
they dissect those lymphones make sure that those lymphones are cleared.
Speaker 2 (01:27):
So that was a really good sign.
Speaker 1 (01:29):
So they just had to shape those lymphones and the
uterus and every you know, everything that I just mentioned.
So they end up taking the uterus and they're like
really happy with how it looks. Of course it's going
to pathology and like that would be a very you know,
well analyzed. Even though they analyze it during the surgery
as well. It's a pretty long surgery. It's like a
(01:50):
three hour surgery. While they're like exploring for cancer and
things not like that, they end up finding enimeytriosis on
her uterus.
Speaker 2 (01:58):
Wow, and my mom, you know, and of course my
mom my brothers are like, what's endometriosis?
Speaker 1 (02:02):
And I'm like, hell, endothelia like tissue that can lay
epesians down. And so my mom never had what she
thinks is symptoms, but now I'm like, mom, these can
all be symptoms. Constipation can be symptoms, pelic pain can
be symptoms, and painful menstruation. And my mom's like, my
aunt was there and she was like my aunt was like, well,
(02:24):
she got her period when she.
Speaker 2 (02:26):
Was like twelve and thirteen.
Speaker 1 (02:27):
Like I just remember she was in Bedford days she
would just miss school and like, but like that was
back then, Like there was no answer for that. So
could that endometriosis have been there since she was twelve thirteen?
My mom was like, no way, I'm like, yeah, like
it really could be, and like grateful that it wasn't
all over. How skilled was resurgeon to like really see if,
(02:49):
because that's not what they were looking for at all.
Speaker 2 (02:51):
It's just like a it was just an aftermath. So
I was just fascinated by this.
Speaker 3 (02:56):
And what we do find is that when we look
at sometimes fetal tissue also has endometriosis in it, so
we do know at least in some cases it can
be pre pubescine. Even so there's some indication. There's a
lot of different theories about why endominutriosis exists and how
(03:17):
it's caused, and we'll get into that a little bit later,
but there is some evidence that some people are born
with it.
Speaker 1 (03:25):
Absolutely, that's incredible to know. And also just so everybody
has an awareness. In case you didn't listen to the
first end of podcast, you should absolutely go and listen
to that podcast that Bella and I did a few
weeks back. You'll find it on our YouTube channel, You'll
find it in our like everywhere you get your podcasts. However,
I do just want to know that Bella is self researched.
She is currently studying to become a physical therapist. She's
(03:47):
going into her sophomore year at UCLA, and she is
a student of nimatriosis and it has been like she
just dives into every single all the research and she
knows how to read rea search with a really diligent eye,
not to believe every single study.
Speaker 2 (04:03):
And so that's really what she's brought to my table.
Speaker 1 (04:06):
And you know, we're so fortunate to have her at
the clinic this summer and I've kind of just lean
on her to be an expert, and she truly is.
She has made herself an expert in the field, and
so I just absolutely love having you on and you know,
go back and listen to her story because it is
really inspiring how she really advocated for herself to find
out how that she had adometriosis, and really she explored
(04:27):
for herself what the best solution would be for her
own body. Since, yes, since we've talked, you've had pelvic
floor physical vity here, and so.
Speaker 2 (04:37):
I'm excited about that.
Speaker 1 (04:38):
And of course that just is good for everyone, but
especially when you have endoed.
Speaker 2 (04:43):
Just because they rice resect, it doesn't mean.
Speaker 1 (04:45):
That there's not residual scar tissue left over from those surgeries.
So I'm glad you're getting that work done. I know
I'm talking a lot here, and I'm gonna give you
the platform for the rest of the time.
Speaker 2 (04:56):
I swear, you know.
Speaker 1 (04:58):
And how much is a hippo violet when someone just
shares it on the street. I'm sitting in the waiting
room yesterday waiting for my mom to get out of surgery,
and there's another guy there and his wife was in
surgery because vendometriosis, getting a hysterectomy at twenty nine, and
you know, you just your heart goes out, Your heart
goes out to that and like they're at their wits end, right,
(05:19):
Like he's like this, like we're actually like really excited.
They already had a k they have one child, so
obviously this takes away any opportunity to have another.
Speaker 2 (05:27):
And she told me that they were.
Speaker 1 (05:29):
Leaving a part of her ovary so she could at
least have her hormones, because again, only twenty nine, not
not paring menopausal, not menopausal, needs those hormones. And he
was like, he was like, we're just like we're just
hoping that this is the answer to all the pain,
you know, yeah, And I was just like, yeah.
Speaker 2 (05:45):
I hope so too. And I was like, does she
have a pelvic floor pat? Yeah?
Speaker 1 (05:49):
And he's like, yes, yeah she does. Sounds like great,
and like the hard her conversation kind of ended there.
I was like, I've a you know, I work with
people with endo all the time. I'm a pelic floor pet.
But it just it kind of breaks my you know,
to hear a twenty nine year old has to lose
their uterus to do that. And obviously, like they were
blessed to have another child and maybe that's all they
wanted anyways, but it's just it's it's hard, Like there's
(06:13):
this diagnosis is hard. Having endometriosis is really challenging. So yeah,
I'm excited to dive further into the research, So why.
Speaker 2 (06:21):
Don't you do you want? I wanted to add on that, please.
Speaker 3 (06:24):
So a lot of times we do think of a
hysterectomy as kind of just fixing any type of problem,
but actually a hysterectomy does not cure endometriosis.
Speaker 2 (06:34):
So I do just want to put this out there that.
Speaker 3 (06:38):
It's definitely something to be discussed with the doctor and
all of that stuff, but ultimately, with ENDO, it's on
the outside surrounding organs a lot of the time, so
it's not like a definitive cure. So I just wanted
to like clarify for people that, even though they're like
super excited about that, and I'm sure they've talked with
the doctor and that's the best decision for them, getting
(07:00):
hysterectomy doesn't actually.
Speaker 2 (07:02):
Cure this disease in a lot of cases or any cases.
Speaker 1 (07:06):
But yeah, well, and that also goes to say, getting
HYS directly start getting endometrio lesions removed isn't gonna cure
you from not having more endometrials lesions in the future.
So it's a management solution, not a cure. Across the board,
any surgery even for you. Yes, So, yeah, I think
that's great. I'm glad you denoted that.
Speaker 2 (07:28):
Yeah, I think.
Speaker 3 (07:29):
I mean, people are so hoping to be out of pain,
and oftentimes it can be marketed as a his directomy,
but really the gold standard is excision surgery, and that
is what is recommended that to see the best treatment
that we have to offer people with ENDO in terms
of surgeries, I guess.
Speaker 1 (07:50):
I can we add in there even though this isn't
research based, because I've been just reflecting so much, like
this is what kicks me up at night kind of thing,
because I've been thinking about like my mom's uter and
like this stuff. And so I also really believe that
like gold standard of management of enemetriosis has to be
pelvic fluor fete and regenerative medicine. I think the shockwack
(08:11):
therapy that we've like that the protocols that we've created
to help women have not painful periods help them.
Speaker 2 (08:17):
Conceive, has just been huge.
Speaker 1 (08:20):
It's been huge for our clients with endometriosis and with undiagnosed.
Speaker 2 (08:25):
Endometriosis, you know.
Speaker 1 (08:26):
So I just think I really wish that like there's
no research studies on that you know, and how we
use the AMPTTA and shockwave as our regenerative tools.
Speaker 2 (08:35):
Even red light.
Speaker 1 (08:36):
You were like red lights helping so much, and it's
some of those cramping and it's like, these are our
regenerative tools that I think go hand in hand. And
nothing can do the work of actually stretching the muscles
and stretching the fashion that pelvic chlorophysical therapy does when
it's high quality internal work, and that can really help
loosen up the adhesion so that you're not which doesn't
(08:57):
mean that they go away. It just simply means that
there is more movement in the tissue. So there tends
to be less pain because there's more blood flow and
more movement in the tissue. But anyways, I digress this.
So I wish that was gold standard. So please make
a research study and include us in it or figure
(09:17):
out how we can do that, because like, gosh, wouldn't
it be cool if you were already of research like
based scientist before you go to pet school. Yeah, I
don't figure it out, and I'll get you data, like
I'll just be your data.
Speaker 2 (09:27):
Perfect whatever you want to do. Yeah, Okay, this is
going to go on forever. If I don't get to
the point.
Speaker 1 (09:32):
So I got we got one DM in the in
the instagram and it said like it was saying that
c sections can lead to endometriosis, and we want to
make it and so and that is like a common
misconception of course, and so we want to be super clear.
Speaker 2 (09:52):
So that kind of like dove us into fighting all
this research.
Speaker 1 (09:55):
So tell us what you found in relationship to like
that it wasn't necessarily question but more of statement.
Speaker 2 (10:00):
So kind of like break it down.
Speaker 3 (10:02):
What a lot of people are referencing when they talk
about c sections causing endometriosis is actually the study in
Sweden that was done between the seventies and I think
two thousand and four, okay, And so what this did
was attract all the births in Sweden and it said
is this a vaginal birth or a sea section delivery?
(10:23):
And then they followed those women throughout these years about
ten years on average, and they looked and said, what
is the lifetime risk that women who get.
Speaker 2 (10:35):
Sea sections have been demetriosis diagnosis later versus vaginal delivering.
Speaker 3 (10:39):
What they found was actually that women who have sea
sections are more likely to later be diagnosed with endome
and there's a couple of reasons that we can attribute
to that to other than c sections actually causing ENDO.
Speaker 2 (10:55):
So the first reason that we.
Speaker 3 (10:56):
Can kind of look at is that women are actually
one point eight eight six times more likely to have
a sea section if they have endometriosis.
Speaker 2 (11:06):
So this is a huge this is actually a really
huge problem.
Speaker 3 (11:10):
There's more likely to have pregnancy complications in people with ENDO,
and when we look at the population who are getting
sea sections, maybe they already have ENDO and that's leading
to this higher percentage who are later diagnosed. So there
could be people who aren't diagnosed and have ENDO and
then have a se section and are later diagnosed, So
(11:32):
that's one possibility. A lot of times in researching, we
make sure that we remember that correlation doesn't mean causation.
So it is true that this one study in Sweden
like twenty years ago did show people with c sections
were more likely to later receive a diagnosis, but that
doesn't mean that c sections cause the disease itself. And furthermore,
(11:57):
what we can look at is a lot of times
when people have dominal surgery with endometriosis, there is a
possibility that especially if it's not an excision surgery, there
is a possibility of creating more scar tissue. Most of
the time, in about ninety percent of cases there's more
scar adhesion than that type of stuff, and so it
(12:18):
can make it more apparent for a later surgeon to
see more spread endometriosis. And then what I do want
to touch on though, is there is this phenomenon where
c sections can cause This is a little bit of
limited research, but there is some research that se sections
can cause a spread of endometriosis. So what I'm referring
(12:40):
to is abdominal wall endometriosis and also C section scar endometriosis.
So we do see and I think it was zero
point one percent of times after a C section, not
including people who already diagnosed with endometriosis, but zero point
one percent of the time there is a neometriosis now growing.
Speaker 2 (13:03):
In the sea sectional scar tissue.
Speaker 3 (13:05):
And obviously that would not be happening with imaginal delivery,
so that can lead to people having this misconception.
Speaker 1 (13:12):
But ultimately, yeah, and so what I think, just to
like get it a little more lay person words, is
that just because you have a C section, it doesn't.
Speaker 2 (13:25):
Mean you're being predisposed to enomatrisis.
Speaker 1 (13:27):
If you have enometriosis, it might be it might become
exacerbated or symptoms can show up after the sea section.
But the sea section itself isn't going to cause endometriosis,
is what I'm hearing.
Speaker 3 (13:41):
We don't have data that it does or doesn't, but
we most certainly don't have data that says it causes.
Speaker 2 (13:46):
Again, it's not.
Speaker 3 (13:47):
Researched entirely that the opposite is true either, but just.
Speaker 2 (13:54):
Yeah, so there's not evidence that it causes it.
Speaker 1 (13:57):
Okay, Okay, can I give you mine, like, yeah, doctor,
perspective from a clinical standpoint, not the research laboratory, is
that when you have a sea section, that scar tissue
becomes adhered.
Speaker 2 (14:11):
And so what I think could be happening as well.
Speaker 1 (14:14):
So sea section scars can really reac havoc on the body,
and it can cause sciatica, low back pain, a lot
of other things. So what I also think can be happening.
It can cause pelvic pain, painful intercourse, difficulty with your
a nation, whether it's urgency and continence. The list goes
on and on and on. Abdominal scar tissue is massive
in females and probably in males, but I'm not in
(14:36):
that world. I'm in the female world, and so and
that's who we see and obviously.
Speaker 2 (14:40):
Treating the clinic.
Speaker 1 (14:41):
So when people have abdominal scars issue, it can recap it,
it can cause even just like underlying hit pain.
Speaker 2 (14:46):
For years and years and years.
Speaker 1 (14:48):
So all of this I say to note that, like,
if you're having adominal pain, or pelvic pain or severe
mental cramping, all of which can be caused by sea sections,
if you go in and do an endoscopy or sorry,
a labotrophic surgery after that sea section, it could be
(15:10):
that the symptoms were caused by the C section scar,
but then they incidentally find endometriosis, and so maybe you
blame the symptoms on the endometriosis. But really truly, any
scar tissue, whether it's endo scar tissue and adhesion or
C section scar tissue and adhesions, can cause that discomfort.
So I think that you're you know, cause a ton
of symptoms, but I think that you're probably more likely
(15:32):
to actually find the ENDO because people with see sections
actually end up having more symptoms because of that C
section scar. Does that make sense from like a That's
what I think from a clinical standpoint, so we might
just be finding.
Speaker 2 (15:46):
It more in the women that have sea sections.
Speaker 1 (15:49):
But it might not necessarily mean that the women with
se sections have more likelihood of ENDO.
Speaker 4 (15:53):
Yeah, and there is silent endometriosis as well. It's a
little bit a kind of controversial topic because is silent
endometriosis silent or are women ignored?
Speaker 3 (16:07):
So with your mom, what she was.
Speaker 4 (16:08):
Kind of describing sounds a little bit like what doctors
might refer to as silent endometriosis, where you have this
person come in and surprise, there's this incidental finding of endometriosis,
and she's like, there's no way, like, I don't have
any symptoms. But when we look back, being bedridden for
weeks on end is absolutely not silent. That is a
(16:31):
huge quality of life issue and that's just a really
unacceptable symptom. I would say, So there are absolutely people
who do not have any symptoms at all. It's kind
of hard to narrow down the percentage of those people
out of the total people who have a diagnosis, But
it's just a very kind of hot button topic if it. Yeah, yeah, absolutely,
(16:56):
I just have to throw in there. This is not
about endometriosis, but kind of is. If you have painful periods,
that's not normal. If you have severe heavy bleeding, that's
not normal.
Speaker 1 (17:06):
If you're bleeding through pads and tampa, get it checked out,
of course, off to your healthcare provider, Go to pelvi
floor pet, get an exam by a pelvic floor pet
and an obg an.
Speaker 2 (17:15):
And if you don't.
Speaker 1 (17:16):
Get answers, go to another one, and go to another one,
go to another one. Just don't stop, because it is
not okay that if you spend more than one hundred
days of your year debilitated by your cramping in your
menstrual cycle, that's messed up, right, And so there are
a ton of solutions, like we help people with painful
periods every day all day. And also you could have
(17:38):
underlying endometriosis as well. And when you have this type
of pelvic pain or severe debilitation because of periods, you
want answers, like it's not fun to go from doctor
to doctor or even.
Speaker 2 (17:53):
Just feeling in your bed being like, what the hell
is wrong with me?
Speaker 1 (17:55):
How come I can't stretch this out, ice this out,
massage this out right?
Speaker 4 (18:00):
Well, yeah, anyway, I really like what you said about
going to both an obgyn and a pelvic floor therapist,
and I think it's really great to combine those two
options for me. That's been the most effective in getting help.
Speaker 1 (18:15):
I would say, is there a genetic component too endo?
Speaker 2 (18:20):
Tell me about that and hold this just in case.
Speaker 3 (18:24):
Yeah, so let's see, I don't know the exact statistic,
but there is absolutely a genetic component where if your
mother or grandmother has endometriosis, you're much more likely to
also have ENDO yourself. So kind of the issue with
discovering this genetic component is because our mothers, our grandmothers
(18:45):
did not get the health care. I mean, we barely
get the health care we deserve, but our grandmothers and
mothers really did not get any help with this. So
there's I mean, even within the percentage of people that
we estimate have ANDENO, there's huge rings between one and nine,
one and eleven. So there is definitely a genetic component,
(19:08):
but it's kind of hard to pin down exactly how
strong that is because the fact is people were not
getting diagnosed and people still aren't really getting diagnosed, but
especially back then. Yeah, I appreciate you diving, Incent. I
don't mean to throw you questions without you know, you
having prepared the data. But I think that's a good
(19:29):
that's good to know.
Speaker 1 (19:30):
So is there an exact gene that they've identified that
carries a predisposition for this.
Speaker 3 (19:38):
Let's see, I'm not really sure. I don't know of one. Yeah,
I don't know of one.
Speaker 1 (19:42):
I'm not sure.
Speaker 3 (19:44):
There's not like BRACKA of breast cancer. I can say
that that there's not like a very specific one where
you can be like, this is the problem gene. I
can say that. I think there have been some genes
that have been identified, but it's not as strong as
like the bracket to gene with breast cancer and stuff
like that.
Speaker 1 (20:04):
But if they're finding it in fetal tissue, that means
that there's more than just an environmental probably component. I mean,
there could be an environmental component I guess from like
the pregnancy, the embryo, like that situation. There's definitely an
environmental component to endometriosis. We have a ton of estrogens
in our world, right, and you can't really, no matter
(20:26):
how cleaning your lifestyle is, you can't really protect yourself
from all that, right, and so that can is that
a misconception, am am?
Speaker 2 (20:33):
I spreading bad news.
Speaker 3 (20:34):
No, So what we do know is that it can
be in people who are pre pubescent, it can be
in fetuses, So we do know that there is definitely
a possibility of endometrial type tissue being in someone's body
without having like their cycle. So what we also know
(20:58):
is that we have a genetics, so we have certain
genes that can be turned on and off, and so
there is a lot of theories about what causes emimutriosis.
In one of these theories is that certain genes are
activated by environmental factors that cause the dmetriosis. So there's
absolutely evidence towards a lot of different theories and people
(21:19):
really don't know what causes this. But what we do
know is some people have this type of lesions at birth,
like this tissue displaced at birth, And we also know
that environmental factors can worsen it.
Speaker 2 (21:34):
So people with smoke or how higher a BMI are
more likely to be diagnosed.
Speaker 3 (21:41):
Who knows, again, as we touched on the C section right,
who knows really what that all means, But there's absolutely
a case for environmental factors as well.
Speaker 1 (21:53):
Thank you so much for sharing that, So let's dive in.
You looked at a lot of other data and study
is do you wanna share? I would love to know,
just like what stood out to you. What do you
feel like the people need to know? Will you share
some of that? I don't have a specific question, I
just know I would love to know a little bit
about more what you looked into Bella's scol scholarly interests,
(22:16):
and really investment in enometriosis. I feel like is benefiting
all our patients because she's educating all our doctors. She's
now you know, been on the podcast, this will be
other second time. So I'm just truly am grateful for
the knowledge that you're spreading and the advocacy work that
you're doing.
Speaker 2 (22:32):
So yeah, take it over. Awesome.
Speaker 3 (22:36):
I think the main thing to keep in mind with
ENDO is that really it's just not your fault.
Speaker 2 (22:41):
Like, you can have these symptoms, you can do everything right.
You can be doing COVID floor pet, you can be getting.
Speaker 3 (22:48):
Surgery, you can be taking the hormones, you can be
doing all of these things, and the fact is we
don't have a cure, which sounds very discouraging and it is,
but it can be changing your diet.
Speaker 2 (23:01):
All of these things can help.
Speaker 3 (23:02):
But if you are still in pain after doing all
of that stuff, like it is just a really painful disease.
And this isn't to spread hope that it can't get better,
because I do believe that there are options, and I
do believe that.
Speaker 2 (23:15):
Science will hopefully.
Speaker 3 (23:16):
Advance in a way where maybe we will have a
care or it will have better treatment options. But if
you're feeling really discouraged and you feel like you're doing
all of these things right and you're still having pain,
like it is just a really tricky disease to deal with,
and like I feel like I'm doing everything right personally, I.
Speaker 2 (23:35):
Mean, like yeah, really, and I really know though everything.
Speaker 3 (23:38):
You know, I still drink my coffees, which you're not
really supposed to do. But I feel like I'm doing
most a very reasonable amount.
Speaker 2 (23:46):
Of right things. And I still have symptimes.
Speaker 3 (23:49):
And I got surgery, and I got hormones and I
got pulp pete. I did the most I can and
it's helped a lot. But I'm not back to symptom freight,
I would say, And that's really like not something I
feel the need to be like that about let myself,
for especially, it was really comforting to me to find
(24:10):
out that people before puberty had and don't, so it
wasn't like something I caused. Like it's really no one's fault.
It's just a weird thing that happens and we just
don't have enough support or research around it.
Speaker 2 (24:24):
But h that's so beautiful to me. And No Matrio says,
is not your fault, and I love that. I absolutely
love that.
Speaker 1 (24:38):
And I think and that's what I've spoken too many
times in this episode of I'm the Previous. It's like
the determination though and work to get yourself out of pain.
Speaker 2 (24:47):
From a higher level, I believe we're all put on
a cert and we're given our journeys. No one has
an easy life.
Speaker 1 (24:55):
Everybody has traumas, whether there are macro tram macro traumas,
massive terrible things that you can't even wanna fathom to
like little traumas that have them on the playground, right,
they all affect us. They're all traumas, and we work
on healing and developing and evolving to become the people
that we wanna be that can hopefully contribute some kind.
Speaker 2 (25:14):
Of good to the world.
Speaker 1 (25:15):
And we're all delivered different journeys and we I believe
have to make the best of it, and then we have
to play and enjoy in order to learn and grow
and and you know, have as much of a positive
mindset as I think we can.
Speaker 2 (25:32):
And so I hope this doesn't come off as like some.
Speaker 1 (25:37):
Privileged bitch that doesn't have hando sitting there saying this,
But I do believe that like when you have to
fight through like you said, this started pending for you
in your teenage years, like when you started menstruating, right,
is that when the endre thing like oh, eleven and eleven, Yeah,
I was eleven and two when I.
Speaker 2 (25:52):
Go by yeah, And.
Speaker 1 (25:58):
What I think is just so important, like if you
can take the mindset to say, like when you can
start to see the these lessons that whatever disease.
Speaker 2 (26:09):
You end up getting, whatever disease your partner has, whatever.
Speaker 1 (26:12):
Disease or trauma or bad thing you end up having
to go through, these are these are things that when
you do go through them, they make you stronger, they
make you more resilient.
Speaker 3 (26:24):
Right.
Speaker 1 (26:24):
And I would never wish this upon anyone, of course,
but I do think like there's just some grit that
you get when you have to fight for yourself like, like,
you learn how to use.
Speaker 5 (26:36):
Your voice at a really young age, you know. I'm
still learning how to use my voice. And I have
a podcast. No I'm not kidding, but it's it's real,
you know. And and I think many.
Speaker 1 (26:46):
Women are in that category of having them use their voice.
And so it's almost like maybe that is your gift
that you got, you know. And when we can start to.
Speaker 2 (26:56):
Almost have gratitude, I guess for.
Speaker 1 (26:59):
The shit right in our lives, I'll just like I'll
say just the l Since I spoke with my mom
in the beginning of the podcast, we both laughed because
when we found out she had cancer two weeks ago,
we were like, well, thank god you had psiantica.
Speaker 2 (27:13):
So she had this like terrible bout of siyatica.
Speaker 1 (27:15):
She was coming to the clinic and she was finally
what wand it out completely with the MTTE, and she
was like if my mom's super cheap, like and she's
like I She's like, I can't even believe I kept
the MRI, like I am pain free, Like I don't
need my back in Marie gool incidentally, they find the
uterine cancer.
Speaker 2 (27:35):
Wow, And so it's like my mom's.
Speaker 1 (27:38):
Like I can't believe I'm saying this, but I'm really
grateful I had ziatica and was debilited.
Speaker 2 (27:42):
In for six months.
Speaker 1 (27:43):
Yeah you know, and you're like, yeah, like there's like
it's life is funny. Yeah, but it's like when you
can start to see like, yeah, like I actually am
grateful for all that pain I went through m and
also like it there was nothing lessons that came of that.
Speaker 2 (27:58):
Like, you know, let's our bodies as tiptop as we can.
She was grumpy, she hated like she was not her
best self, and she didn't love that about herself.
Speaker 1 (28:07):
When and then when I'm I've been seeing myself go
through this bad pain, I'm like I'm the saint and
I can be just a complete and other bitch.
Speaker 2 (28:14):
And it's like and I have no energy when I
have pain, and.
Speaker 1 (28:17):
Like you're just like it just it gives me another
level of compassion and empathy for you know, for women
that go through this and still have to raise their
family and show up to work. So what I'm saying,
and I'm not trying to be an asshole about it,
is like when you have endometrialists or some kind of disease,
it's like what lessons can we take here? And obviously
you're taking the lessons, you're letting your pain, you're advocating
(28:40):
in these massive, amazing ways. And maybe that's like your myths,
like your that's what like in people in Judaism call
like your purpose, okay, And so I'm not Jewish, but
like I listened to a lot of different religious authors
and so I get to learn what they.
Speaker 2 (28:54):
Say, and so that's just it's like.
Speaker 1 (28:57):
That's your purpose, you know, and maybe who knows, but
like those are your contributions like Anometrius's songs, and you
got to now use this to advocate and change the
world for a many many women that are also going
through this experience. Right, So I don't know, that's where
I'm at, that that's what I you know, I think
it's just it's totally not your fault, and how can
(29:19):
we use this to get you to the best possible
place possible to manage this right now until there's a
uh forever here, and also how can it benefit your life?
Speaker 2 (29:29):
Positively? I guess it's very beautiful. Absolutely absolutely.
Speaker 3 (29:37):
I think that it's a super challenging thing and it
doesn't have to be a net positive, but it can be.
Speaker 2 (29:42):
A little positive in some ways, and I think a
lot of things can.
Speaker 3 (29:47):
Be like that, where it's still not really worth going through,
but there are things that I can take from it,
I guess.
Speaker 2 (29:53):
Yeah.
Speaker 1 (29:55):
Yeah, Well, thank you and thank you for sharing your story.
Well that's a wrap. We hope you gain some inside
And if you're listening to this and you have endometriosis
or you suspect suspecially you have endometriosis, I think Bella,
let us know it is not your fault.
Speaker 2 (30:08):
That was the most beautiful Freddy's ever. I just love that,
So thank you for saying that. Ye, we want you
to live.
Speaker 1 (30:16):
Your best life and get asked symptom free as possible,
because what this is all about is helping you unlock
your potential so you can contribute your gifts.
Speaker 2 (30:26):
To the world.
Speaker 1 (30:27):
And you can't do that when you're suffering, when you're
suffering in silence, So we wanna get you as comfy
as possible and get you in the right hand.
Speaker 2 (30:35):
So hopefully this gave you some insight or.
Speaker 1 (30:37):
Clarity into what you're experiencing or what your friends might
be experiencing. So like and share and send this out
to the world. Thanks for joining me. I'm doctor Allison
felt bela PREZ until next time.
Speaker 2 (30:50):
Thank you,
Welcome to another episode of the Aligned and Elevated Podcast.
(00:03):
I'm your host, doctor Allison Felt, and I have back
on the second time guest Bella Perez, and we are
gonna dive a little deeper and talking more about endometriosis.
We got a lot of good feedback about the episode,
about the endo episode, and so let's do another one.
Run it back, but we're gonna dive a little deeper
(00:23):
into some research that you've dug up based on questions
that people ask us through DMS and whatnot.
Speaker 2 (00:28):
So we're gonna hit those and then I just have
to tell you a little story before we Okay, it
start too, Okay, So my mom ended up getting finding.
Speaker 1 (00:37):
Out that she had cancer in her uterus and it
was like super early found and they ended up actually
just being pre cancerous cells, and so got this diagnosis,
was able to get in for the hysterectomy to take
everything out, did the ovaries, fallopian tubes, uterus, cervix as well,
just to like make sure that there wasn't anything left
(01:00):
for cancer to be in really good indications, like only
pre cancer cells, nothing has spread to the lymph. They
do these dye tests when they're in there to determine
which lymph nodes drain the uterus, and then they make
then when they do that die test, that's those are
the lymphtones they dissect because those are what during the
(01:20):
uters So if the uter cancer has spread, they would
they dissect those lymphones make sure that those lymphones are cleared.
Speaker 2 (01:27):
So that was a really good sign.
Speaker 1 (01:29):
So they just had to shape those lymphones and the
uterus and every you know, everything that I just mentioned.
So they end up taking the uterus and they're like
really happy with how it looks. Of course it's going
to pathology and like that would be a very you know,
well analyzed. Even though they analyze it during the surgery
as well. It's a pretty long surgery. It's like a
(01:50):
three hour surgery. While they're like exploring for cancer and
things not like that, they end up finding enimeytriosis on
her uterus.
Speaker 2 (01:58):
Wow, and my mom, you know, and of course my
mom my brothers are like, what's endometriosis?
Speaker 1 (02:02):
And I'm like, hell, endothelia like tissue that can lay
epesians down. And so my mom never had what she
thinks is symptoms, but now I'm like, mom, these can
all be symptoms. Constipation can be symptoms, pelic pain can
be symptoms, and painful menstruation. And my mom's like, my
aunt was there and she was like my aunt was like, well,
(02:24):
she got her period when she.
Speaker 2 (02:26):
Was like twelve and thirteen.
Speaker 1 (02:27):
Like I just remember she was in Bedford days she
would just miss school and like, but like that was
back then, Like there was no answer for that. So
could that endometriosis have been there since she was twelve thirteen?
My mom was like, no way, I'm like, yeah, like
it really could be, and like grateful that it wasn't
all over. How skilled was resurgeon to like really see if,
(02:49):
because that's not what they were looking for at all.
Speaker 2 (02:51):
It's just like a it was just an aftermath. So
I was just fascinated by this.
Speaker 3 (02:56):
And what we do find is that when we look
at sometimes fetal tissue also has endometriosis in it, so
we do know at least in some cases it can
be pre pubescine. Even so there's some indication. There's a
lot of different theories about why endominutriosis exists and how
(03:17):
it's caused, and we'll get into that a little bit later,
but there is some evidence that some people are born
with it.
Speaker 1 (03:25):
Absolutely, that's incredible to know. And also just so everybody
has an awareness. In case you didn't listen to the
first end of podcast, you should absolutely go and listen
to that podcast that Bella and I did a few
weeks back. You'll find it on our YouTube channel, You'll
find it in our like everywhere you get your podcasts. However,
I do just want to know that Bella is self researched.
She is currently studying to become a physical therapist. She's
(03:47):
going into her sophomore year at UCLA, and she is
a student of nimatriosis and it has been like she
just dives into every single all the research and she
knows how to read rea search with a really diligent eye,
not to believe every single study.
Speaker 2 (04:03):
And so that's really what she's brought to my table.
Speaker 1 (04:06):
And you know, we're so fortunate to have her at
the clinic this summer and I've kind of just lean
on her to be an expert, and she truly is.
She has made herself an expert in the field, and
so I just absolutely love having you on and you know,
go back and listen to her story because it is
really inspiring how she really advocated for herself to find
out how that she had adometriosis, and really she explored
(04:27):
for herself what the best solution would be for her
own body. Since, yes, since we've talked, you've had pelvic
floor physical vity here, and so.
Speaker 2 (04:37):
I'm excited about that.
Speaker 1 (04:38):
And of course that just is good for everyone, but
especially when you have endoed.
Speaker 2 (04:43):
Just because they rice resect, it doesn't mean.
Speaker 1 (04:45):
That there's not residual scar tissue left over from those surgeries.
So I'm glad you're getting that work done. I know
I'm talking a lot here, and I'm gonna give you
the platform for the rest of the time.
Speaker 2 (04:56):
I swear, you know.
Speaker 1 (04:58):
And how much is a hippo violet when someone just
shares it on the street. I'm sitting in the waiting
room yesterday waiting for my mom to get out of surgery,
and there's another guy there and his wife was in
surgery because vendometriosis, getting a hysterectomy at twenty nine, and
you know, you just your heart goes out, Your heart
goes out to that and like they're at their wits end, right,
(05:19):
Like he's like this, like we're actually like really excited.
They already had a k they have one child, so
obviously this takes away any opportunity to have another.
Speaker 2 (05:27):
And she told me that they were.
Speaker 1 (05:29):
Leaving a part of her ovary so she could at
least have her hormones, because again, only twenty nine, not
not paring menopausal, not menopausal, needs those hormones. And he
was like, he was like, we're just like we're just
hoping that this is the answer to all the pain,
you know, yeah, And I was just like, yeah.
Speaker 2 (05:45):
I hope so too. And I was like, does she
have a pelvic floor pat? Yeah?
Speaker 1 (05:49):
And he's like, yes, yeah she does. Sounds like great,
and like the hard her conversation kind of ended there.
I was like, I've a you know, I work with
people with endo all the time. I'm a pelic floor pet.
But it just it kind of breaks my you know,
to hear a twenty nine year old has to lose
their uterus to do that. And obviously, like they were
blessed to have another child and maybe that's all they
wanted anyways, but it's just it's it's hard, Like there's
(06:13):
this diagnosis is hard. Having endometriosis is really challenging. So yeah,
I'm excited to dive further into the research, So why.
Speaker 2 (06:21):
Don't you do you want? I wanted to add on that, please.
Speaker 3 (06:24):
So a lot of times we do think of a
hysterectomy as kind of just fixing any type of problem,
but actually a hysterectomy does not cure endometriosis.
Speaker 2 (06:34):
So I do just want to put this out there that.
Speaker 3 (06:38):
It's definitely something to be discussed with the doctor and
all of that stuff, but ultimately, with ENDO, it's on
the outside surrounding organs a lot of the time, so
it's not like a definitive cure. So I just wanted
to like clarify for people that, even though they're like
super excited about that, and I'm sure they've talked with
the doctor and that's the best decision for them, getting
(07:00):
hysterectomy doesn't actually.
Speaker 2 (07:02):
Cure this disease in a lot of cases or any cases.
Speaker 1 (07:06):
But yeah, well, and that also goes to say, getting
HYS directly start getting endometrio lesions removed isn't gonna cure
you from not having more endometrials lesions in the future.
So it's a management solution, not a cure. Across the board,
any surgery even for you. Yes, So, yeah, I think
that's great. I'm glad you denoted that.
Speaker 2 (07:28):
Yeah, I think.
Speaker 3 (07:29):
I mean, people are so hoping to be out of pain,
and oftentimes it can be marketed as a his directomy,
but really the gold standard is excision surgery, and that
is what is recommended that to see the best treatment
that we have to offer people with ENDO in terms
of surgeries, I guess.
Speaker 1 (07:50):
I can we add in there even though this isn't
research based, because I've been just reflecting so much, like
this is what kicks me up at night kind of thing,
because I've been thinking about like my mom's uter and
like this stuff. And so I also really believe that
like gold standard of management of enemetriosis has to be
pelvic fluor fete and regenerative medicine. I think the shockwack
(08:11):
therapy that we've like that the protocols that we've created
to help women have not painful periods help them.
Speaker 2 (08:17):
Conceive, has just been huge.
Speaker 1 (08:20):
It's been huge for our clients with endometriosis and with undiagnosed.
Speaker 2 (08:25):
Endometriosis, you know.
Speaker 1 (08:26):
So I just think I really wish that like there's
no research studies on that you know, and how we
use the AMPTTA and shockwave as our regenerative tools.
Speaker 2 (08:35):
Even red light.
Speaker 1 (08:36):
You were like red lights helping so much, and it's
some of those cramping and it's like, these are our
regenerative tools that I think go hand in hand. And
nothing can do the work of actually stretching the muscles
and stretching the fashion that pelvic chlorophysical therapy does when
it's high quality internal work, and that can really help
loosen up the adhesion so that you're not which doesn't
(08:57):
mean that they go away. It just simply means that
there is more movement in the tissue. So there tends
to be less pain because there's more blood flow and
more movement in the tissue. But anyways, I digress this.
So I wish that was gold standard. So please make
a research study and include us in it or figure
(09:17):
out how we can do that, because like, gosh, wouldn't
it be cool if you were already of research like
based scientist before you go to pet school. Yeah, I
don't figure it out, and I'll get you data, like
I'll just be your data.
Speaker 2 (09:27):
Perfect whatever you want to do. Yeah, Okay, this is
going to go on forever. If I don't get to
the point.
Speaker 1 (09:32):
So I got we got one DM in the in
the instagram and it said like it was saying that
c sections can lead to endometriosis, and we want to
make it and so and that is like a common
misconception of course, and so we want to be super clear.
Speaker 2 (09:52):
So that kind of like dove us into fighting all
this research.
Speaker 1 (09:55):
So tell us what you found in relationship to like
that it wasn't necessarily question but more of statement.
Speaker 2 (10:00):
So kind of like break it down.
Speaker 3 (10:02):
What a lot of people are referencing when they talk
about c sections causing endometriosis is actually the study in
Sweden that was done between the seventies and I think
two thousand and four, okay, And so what this did
was attract all the births in Sweden and it said
is this a vaginal birth or a sea section delivery?
(10:23):
And then they followed those women throughout these years about
ten years on average, and they looked and said, what
is the lifetime risk that women who get.
Speaker 2 (10:35):
Sea sections have been demetriosis diagnosis later versus vaginal delivering.
Speaker 3 (10:39):
What they found was actually that women who have sea
sections are more likely to later be diagnosed with endome
and there's a couple of reasons that we can attribute
to that to other than c sections actually causing ENDO.
Speaker 2 (10:55):
So the first reason that we.
Speaker 3 (10:56):
Can kind of look at is that women are actually
one point eight eight six times more likely to have
a sea section if they have endometriosis.
Speaker 2 (11:06):
So this is a huge this is actually a really
huge problem.
Speaker 3 (11:10):
There's more likely to have pregnancy complications in people with ENDO,
and when we look at the population who are getting
sea sections, maybe they already have ENDO and that's leading
to this higher percentage who are later diagnosed. So there
could be people who aren't diagnosed and have ENDO and
then have a se section and are later diagnosed, So
(11:32):
that's one possibility. A lot of times in researching, we
make sure that we remember that correlation doesn't mean causation.
So it is true that this one study in Sweden
like twenty years ago did show people with c sections
were more likely to later receive a diagnosis, but that
doesn't mean that c sections cause the disease itself. And furthermore,
(11:57):
what we can look at is a lot of times
when people have dominal surgery with endometriosis, there is a
possibility that especially if it's not an excision surgery, there
is a possibility of creating more scar tissue. Most of
the time, in about ninety percent of cases there's more
scar adhesion than that type of stuff, and so it
(12:18):
can make it more apparent for a later surgeon to
see more spread endometriosis. And then what I do want
to touch on though, is there is this phenomenon where
c sections can cause This is a little bit of
limited research, but there is some research that se sections
can cause a spread of endometriosis. So what I'm referring
(12:40):
to is abdominal wall endometriosis and also C section scar endometriosis.
So we do see and I think it was zero
point one percent of times after a C section, not
including people who already diagnosed with endometriosis, but zero point
one percent of the time there is a neometriosis now growing.
Speaker 2 (13:03):
In the sea sectional scar tissue.
Speaker 3 (13:05):
And obviously that would not be happening with imaginal delivery,
so that can lead to people having this misconception.
Speaker 1 (13:12):
But ultimately, yeah, and so what I think, just to
like get it a little more lay person words, is
that just because you have a C section, it doesn't.
Speaker 2 (13:25):
Mean you're being predisposed to enomatrisis.
Speaker 1 (13:27):
If you have enometriosis, it might be it might become
exacerbated or symptoms can show up after the sea section.
But the sea section itself isn't going to cause endometriosis,
is what I'm hearing.
Speaker 3 (13:41):
We don't have data that it does or doesn't, but
we most certainly don't have data that says it causes.
Speaker 2 (13:46):
Again, it's not.
Speaker 3 (13:47):
Researched entirely that the opposite is true either, but just.
Speaker 2 (13:54):
Yeah, so there's not evidence that it causes it.
Speaker 1 (13:57):
Okay, Okay, can I give you mine, like, yeah, doctor,
perspective from a clinical standpoint, not the research laboratory, is
that when you have a sea section, that scar tissue
becomes adhered.
Speaker 2 (14:11):
And so what I think could be happening as well.
Speaker 1 (14:14):
So sea section scars can really reac havoc on the body,
and it can cause sciatica, low back pain, a lot
of other things. So what I also think can be happening.
It can cause pelvic pain, painful intercourse, difficulty with your
a nation, whether it's urgency and continence. The list goes
on and on and on. Abdominal scar tissue is massive
in females and probably in males, but I'm not in
(14:36):
that world. I'm in the female world, and so and
that's who we see and obviously.
Speaker 2 (14:40):
Treating the clinic.
Speaker 1 (14:41):
So when people have abdominal scars issue, it can recap it,
it can cause even just like underlying hit pain.
Speaker 2 (14:46):
For years and years and years.
Speaker 1 (14:48):
So all of this I say to note that, like,
if you're having adominal pain, or pelvic pain or severe
mental cramping, all of which can be caused by sea sections,
if you go in and do an endoscopy or sorry,
a labotrophic surgery after that sea section, it could be
(15:10):
that the symptoms were caused by the C section scar,
but then they incidentally find endometriosis, and so maybe you
blame the symptoms on the endometriosis. But really truly, any
scar tissue, whether it's endo scar tissue and adhesion or
C section scar tissue and adhesions, can cause that discomfort.
So I think that you're you know, cause a ton
of symptoms, but I think that you're probably more likely
(15:32):
to actually find the ENDO because people with see sections
actually end up having more symptoms because of that C
section scar. Does that make sense from like a That's
what I think from a clinical standpoint, so we might
just be finding.
Speaker 2 (15:46):
It more in the women that have sea sections.
Speaker 1 (15:49):
But it might not necessarily mean that the women with
se sections have more likelihood of ENDO.
Speaker 4 (15:53):
Yeah, and there is silent endometriosis as well. It's a
little bit a kind of controversial topic because is silent
endometriosis silent or are women ignored?
Speaker 3 (16:07):
So with your mom, what she was.
Speaker 4 (16:08):
Kind of describing sounds a little bit like what doctors
might refer to as silent endometriosis, where you have this
person come in and surprise, there's this incidental finding of endometriosis,
and she's like, there's no way, like, I don't have
any symptoms. But when we look back, being bedridden for
weeks on end is absolutely not silent. That is a
(16:31):
huge quality of life issue and that's just a really
unacceptable symptom. I would say, So there are absolutely people
who do not have any symptoms at all. It's kind
of hard to narrow down the percentage of those people
out of the total people who have a diagnosis, But
it's just a very kind of hot button topic if it. Yeah, yeah, absolutely,
(16:56):
I just have to throw in there. This is not
about endometriosis, but kind of is. If you have painful periods,
that's not normal. If you have severe heavy bleeding, that's
not normal.
Speaker 1 (17:06):
If you're bleeding through pads and tampa, get it checked out,
of course, off to your healthcare provider, Go to pelvi
floor pet, get an exam by a pelvic floor pet
and an obg an.
Speaker 2 (17:15):
And if you don't.
Speaker 1 (17:16):
Get answers, go to another one, and go to another one,
go to another one. Just don't stop, because it is
not okay that if you spend more than one hundred
days of your year debilitated by your cramping in your
menstrual cycle, that's messed up, right, And so there are
a ton of solutions, like we help people with painful
periods every day all day. And also you could have
(17:38):
underlying endometriosis as well. And when you have this type
of pelvic pain or severe debilitation because of periods, you
want answers, like it's not fun to go from doctor
to doctor or even.
Speaker 2 (17:53):
Just feeling in your bed being like, what the hell
is wrong with me?
Speaker 1 (17:55):
How come I can't stretch this out, ice this out,
massage this out right?
Speaker 4 (18:00):
Well, yeah, anyway, I really like what you said about
going to both an obgyn and a pelvic floor therapist,
and I think it's really great to combine those two
options for me. That's been the most effective in getting help.
Speaker 1 (18:15):
I would say, is there a genetic component too endo?
Speaker 2 (18:20):
Tell me about that and hold this just in case.
Speaker 3 (18:24):
Yeah, so let's see, I don't know the exact statistic,
but there is absolutely a genetic component where if your
mother or grandmother has endometriosis, you're much more likely to
also have ENDO yourself. So kind of the issue with
discovering this genetic component is because our mothers, our grandmothers
(18:45):
did not get the health care. I mean, we barely
get the health care we deserve, but our grandmothers and
mothers really did not get any help with this. So
there's I mean, even within the percentage of people that
we estimate have ANDENO, there's huge rings between one and nine,
one and eleven. So there is definitely a genetic component,
(19:08):
but it's kind of hard to pin down exactly how
strong that is because the fact is people were not
getting diagnosed and people still aren't really getting diagnosed, but
especially back then. Yeah, I appreciate you diving, Incent. I
don't mean to throw you questions without you know, you
having prepared the data. But I think that's a good
(19:29):
that's good to know.
Speaker 1 (19:30):
So is there an exact gene that they've identified that
carries a predisposition for this.
Speaker 3 (19:38):
Let's see, I'm not really sure. I don't know of one. Yeah,
I don't know of one.
Speaker 1 (19:42):
I'm not sure.
Speaker 3 (19:44):
There's not like BRACKA of breast cancer. I can say
that that there's not like a very specific one where
you can be like, this is the problem gene. I
can say that. I think there have been some genes
that have been identified, but it's not as strong as
like the bracket to gene with breast cancer and stuff
like that.
Speaker 1 (20:04):
But if they're finding it in fetal tissue, that means
that there's more than just an environmental probably component. I mean,
there could be an environmental component I guess from like
the pregnancy, the embryo, like that situation. There's definitely an
environmental component to endometriosis. We have a ton of estrogens
in our world, right, and you can't really, no matter
(20:26):
how cleaning your lifestyle is, you can't really protect yourself
from all that, right, and so that can is that
a misconception, am am?
Speaker 2 (20:33):
I spreading bad news.
Speaker 3 (20:34):
No, So what we do know is that it can
be in people who are pre pubescent, it can be
in fetuses, So we do know that there is definitely
a possibility of endometrial type tissue being in someone's body
without having like their cycle. So what we also know
(20:58):
is that we have a genetics, so we have certain
genes that can be turned on and off, and so
there is a lot of theories about what causes emimutriosis.
In one of these theories is that certain genes are
activated by environmental factors that cause the dmetriosis. So there's
absolutely evidence towards a lot of different theories and people
(21:19):
really don't know what causes this. But what we do
know is some people have this type of lesions at birth,
like this tissue displaced at birth, And we also know
that environmental factors can worsen it.
Speaker 2 (21:34):
So people with smoke or how higher a BMI are
more likely to be diagnosed.
Speaker 3 (21:41):
Who knows, again, as we touched on the C section right,
who knows really what that all means, But there's absolutely
a case for environmental factors as well.
Speaker 1 (21:53):
Thank you so much for sharing that, So let's dive in.
You looked at a lot of other data and study
is do you wanna share? I would love to know,
just like what stood out to you. What do you
feel like the people need to know? Will you share
some of that? I don't have a specific question, I
just know I would love to know a little bit
about more what you looked into Bella's scol scholarly interests,
(22:16):
and really investment in enometriosis. I feel like is benefiting
all our patients because she's educating all our doctors. She's
now you know, been on the podcast, this will be
other second time. So I'm just truly am grateful for
the knowledge that you're spreading and the advocacy work that
you're doing.
Speaker 2 (22:32):
So yeah, take it over. Awesome.
Speaker 3 (22:36):
I think the main thing to keep in mind with
ENDO is that really it's just not your fault.
Speaker 2 (22:41):
Like, you can have these symptoms, you can do everything right.
You can be doing COVID floor pet, you can be getting.
Speaker 3 (22:48):
Surgery, you can be taking the hormones, you can be
doing all of these things, and the fact is we
don't have a cure, which sounds very discouraging and it is,
but it can be changing your diet.
Speaker 2 (23:01):
All of these things can help.
Speaker 3 (23:02):
But if you are still in pain after doing all
of that stuff, like it is just a really painful disease.
And this isn't to spread hope that it can't get better,
because I do believe that there are options, and I
do believe that.
Speaker 2 (23:15):
Science will hopefully.
Speaker 3 (23:16):
Advance in a way where maybe we will have a
care or it will have better treatment options. But if
you're feeling really discouraged and you feel like you're doing
all of these things right and you're still having pain,
like it is just a really tricky disease to deal with,
and like I feel like I'm doing everything right personally, I.
Speaker 2 (23:35):
Mean, like yeah, really, and I really know though everything.
Speaker 3 (23:38):
You know, I still drink my coffees, which you're not
really supposed to do. But I feel like I'm doing
most a very reasonable amount.
Speaker 2 (23:46):
Of right things. And I still have symptimes.
Speaker 3 (23:49):
And I got surgery, and I got hormones and I
got pulp pete. I did the most I can and
it's helped a lot. But I'm not back to symptom freight,
I would say, And that's really like not something I
feel the need to be like that about let myself,
for especially, it was really comforting to me to find
(24:10):
out that people before puberty had and don't, so it
wasn't like something I caused. Like it's really no one's fault.
It's just a weird thing that happens and we just
don't have enough support or research around it.
Speaker 2 (24:24):
But h that's so beautiful to me. And No Matrio says,
is not your fault, and I love that. I absolutely
love that.
Speaker 1 (24:38):
And I think and that's what I've spoken too many
times in this episode of I'm the Previous. It's like
the determination though and work to get yourself out of pain.
Speaker 2 (24:47):
From a higher level, I believe we're all put on
a cert and we're given our journeys. No one has
an easy life.
Speaker 1 (24:55):
Everybody has traumas, whether there are macro tram macro traumas,
massive terrible things that you can't even wanna fathom to
like little traumas that have them on the playground, right,
they all affect us. They're all traumas, and we work
on healing and developing and evolving to become the people
that we wanna be that can hopefully contribute some kind.
Speaker 2 (25:14):
Of good to the world.
Speaker 1 (25:15):
And we're all delivered different journeys and we I believe
have to make the best of it, and then we have
to play and enjoy in order to learn and grow
and and you know, have as much of a positive
mindset as I think we can.
Speaker 2 (25:32):
And so I hope this doesn't come off as like some.
Speaker 1 (25:37):
Privileged bitch that doesn't have hando sitting there saying this,
But I do believe that like when you have to
fight through like you said, this started pending for you
in your teenage years, like when you started menstruating, right,
is that when the endre thing like oh, eleven and eleven, Yeah,
I was eleven and two when I.
Speaker 2 (25:52):
Go by yeah, And.
Speaker 1 (25:58):
What I think is just so important, like if you
can take the mindset to say, like when you can
start to see the these lessons that whatever disease.
Speaker 2 (26:09):
You end up getting, whatever disease your partner has, whatever.
Speaker 1 (26:12):
Disease or trauma or bad thing you end up having
to go through, these are these are things that when
you do go through them, they make you stronger, they
make you more resilient.
Speaker 3 (26:24):
Right.
Speaker 1 (26:24):
And I would never wish this upon anyone, of course,
but I do think like there's just some grit that
you get when you have to fight for yourself like, like,
you learn how to use.
Speaker 5 (26:36):
Your voice at a really young age, you know. I'm
still learning how to use my voice. And I have
a podcast. No I'm not kidding, but it's it's real,
you know. And and I think many.
Speaker 1 (26:46):
Women are in that category of having them use their voice.
And so it's almost like maybe that is your gift
that you got, you know. And when we can start to.
Speaker 2 (26:56):
Almost have gratitude, I guess for.
Speaker 1 (26:59):
The shit right in our lives, I'll just like I'll
say just the l Since I spoke with my mom
in the beginning of the podcast, we both laughed because
when we found out she had cancer two weeks ago,
we were like, well, thank god you had psiantica.
Speaker 2 (27:13):
So she had this like terrible bout of siyatica.
Speaker 1 (27:15):
She was coming to the clinic and she was finally
what wand it out completely with the MTTE, and she
was like if my mom's super cheap, like and she's
like I She's like, I can't even believe I kept
the MRI, like I am pain free, Like I don't
need my back in Marie gool incidentally, they find the
uterine cancer.
Speaker 2 (27:35):
Wow, And so it's like my mom's.
Speaker 1 (27:38):
Like I can't believe I'm saying this, but I'm really
grateful I had ziatica and was debilited.
Speaker 2 (27:42):
In for six months.
Speaker 1 (27:43):
Yeah you know, and you're like, yeah, like there's like
it's life is funny. Yeah, but it's like when you
can start to see like, yeah, like I actually am
grateful for all that pain I went through m and
also like it there was nothing lessons that came of that.
Speaker 2 (27:58):
Like, you know, let's our bodies as tiptop as we can.
She was grumpy, she hated like she was not her
best self, and she didn't love that about herself.
Speaker 1 (28:07):
When and then when I'm I've been seeing myself go
through this bad pain, I'm like I'm the saint and
I can be just a complete and other bitch.
Speaker 2 (28:14):
And it's like and I have no energy when I
have pain, and.
Speaker 1 (28:17):
Like you're just like it just it gives me another
level of compassion and empathy for you know, for women
that go through this and still have to raise their
family and show up to work. So what I'm saying,
and I'm not trying to be an asshole about it,
is like when you have endometrialists or some kind of disease,
it's like what lessons can we take here? And obviously
you're taking the lessons, you're letting your pain, you're advocating
(28:40):
in these massive, amazing ways. And maybe that's like your myths,
like your that's what like in people in Judaism call
like your purpose, okay, And so I'm not Jewish, but
like I listened to a lot of different religious authors
and so I get to learn what they.
Speaker 2 (28:54):
Say, and so that's just it's like.
Speaker 1 (28:57):
That's your purpose, you know, and maybe who knows, but
like those are your contributions like Anometrius's songs, and you
got to now use this to advocate and change the
world for a many many women that are also going
through this experience. Right, So I don't know, that's where
I'm at, that that's what I you know, I think
it's just it's totally not your fault, and how can
(29:19):
we use this to get you to the best possible
place possible to manage this right now until there's a
uh forever here, and also how can it benefit your life?
Speaker 2 (29:29):
Positively? I guess it's very beautiful. Absolutely absolutely.
Speaker 3 (29:37):
I think that it's a super challenging thing and it
doesn't have to be a net positive, but it can be.
Speaker 2 (29:42):
A little positive in some ways, and I think a
lot of things can.
Speaker 3 (29:47):
Be like that, where it's still not really worth going through,
but there are things that I can take from it,
I guess.
Speaker 2 (29:53):
Yeah.
Speaker 1 (29:55):
Yeah, Well, thank you and thank you for sharing your story.
Well that's a wrap. We hope you gain some inside
And if you're listening to this and you have endometriosis
or you suspect suspecially you have endometriosis, I think Bella,
let us know it is not your fault.
Speaker 2 (30:08):
That was the most beautiful Freddy's ever. I just love that,
So thank you for saying that. Ye, we want you
to live.
Speaker 1 (30:16):
Your best life and get asked symptom free as possible,
because what this is all about is helping you unlock
your potential so you can contribute your gifts.
Speaker 2 (30:26):
To the world.
Speaker 1 (30:27):
And you can't do that when you're suffering, when you're
suffering in silence, So we wanna get you as comfy
as possible and get you in the right hand.
Speaker 2 (30:35):
So hopefully this gave you some insight or.
Speaker 1 (30:37):
Clarity into what you're experiencing or what your friends might
be experiencing. So like and share and send this out
to the world. Thanks for joining me. I'm doctor Allison
felt bela PREZ until next time.
Speaker 2 (30:50):
Thank you,
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