Autisable Dads: Life with Autism from a Parents Perspective

Ever read a headline to a news article and something about it doesn't read right?

Yeah, that has been me constantly, as I regularly address things within the autism community.

I discovered years ago several different languages within the autism community that are spoken. And over the years it appears to have become more complicated.

There are different aspects of the community, and each has its own way of saying certain things.

Fir...

Our son likes to be at home, doing his own thing most of the time. It is interesting when he wants to go out, as they are typically an hour or two adventure - then back home we all go.

Crowds are a challenge, to begin with, and then add sensory issues on top of daily life, and you have an extra set of sensory issues to deal with. Let's just say that every time we go out as a family it requires an extra layer of planning and logisti...

Ever get that feeling that some days you are the bird, and other days you're the parked car?

Let's face it, we all have those days. But what is incredible is my son's ability to find joy in the midst of all the craziness.

Of course, there are moments where the sensory issues are a bit much, but even after those moments he will laugh and giggle.

Couldn't it be the same for us? We dive into this thing called life and can get stressed...

You'd think with a title like this I'd talk about something like insomnia. But long hours and sleepless nights are a common theme for families with autistic kids that have sleep routine challenges.

But long hours and sleepless nights have several medical side effects as well, including stress.

How does stress impact a parent?  in many ways.  Repeating ourselves is one, along with pouring over all the paperwork an...

Spring is upon us, and at our home, that means weather changes.

With temperature swings and barometric pressure changes, it's that time of year when we are keeping on top of meds, diet, and everything else. I shared about these sensory issues in a previous edition of this newsletter.

Now, add on top of this any routine changes, and the stimming just increases exponentially. Stimming isn't always just hand-flapping or clapping, it a...

Today I chat with Geoff Weber, the CEO of Heirloom Cloud.

Geoff is a fellow autism dad, who found a way of employment for his son, and soon for many other autistic individuals.

Heirloom Cloud helps to preserve priceless memories, digitally.

Listen in.

You can read the blog post associated with this podcast at: https://autisable.com/2022/04/01/s4-e13-employing-autistic-individuals-to-preserve-pric...

This week I chat with Michelle Babitz. She and her partner Robin have well over 30 years of experience as special ed teachers and have been on a mission in recent years to help special needs families with a great, affordable, legal resource.

I met Michelle and Robin when I attended an Autism Society of America conference many years ago in San Diego.  Her passion to share this legal resource, and to help promote a...

I’m cautiously cynical these days.

My in-laws gave me a sign to hang on the wall in my office that reads “Sarcasm, just one of the services I offer“. Yeah, they know me well. Maybe it’s a GenX thing, I don’t know. Some of us are just built this way.

In one of my cynical moments, I noticed an ongoing trend over the years as people kept sharing with me various research studies. So this week, I dive into this subject a bit, a...

It’s easy to assume someone’s ability - or inability - based on our perception of what their capabilities might be.  However, I’ve found that whenever I did this - I quickly discovered just how wrong I was.  Listen in as I share my personal perspective about this topic.

Click here for the blog post associated with this episode: https://autisable.com/2022/03/03/s4-e9-never-underestimate-resolve/

Thank you...

I don't often share is why after so many years I am more involved in the community now than I was before. To some, it's teaching the world about autism from a dad's perspective. And yes, I do that when it is possible for a teaching moment to occur. I've also shared openly that my selfish goal is to learn more about my son... and that has always remained the case.

But this journey has shown me one inherent truth: this effort is not ...

I've asked myself, "How many people are in the autism community in the United States?"

Well, I dive into the numbers in this episode.

Visit the blog post associated with this episode at
https://autisable.com/2022/02/18/s4-e7-the-impact-of-autism/

Thank you to all of our Patreon Supports, specifically:
- Cory
- Darryl
- Linda
-John
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When we finally received the diagnosis of PDD-NOS for our son, we thought "this is it! Let's get him the help he needs!"

Yeah, that didn't happen.

What followed was the onslaught of information about what that diagnosis meant, what services may or may not be available, and ultimately what wasn't relevant to our situation.

What we learned early on is that what worked for other kids on the spectrum, may not work for ours. Yet we kept...

Years ago, it was not uncommon for me to show up to work with bruised arms and broken glasses. One time I had to rush home from work due to one of my son's meltdowns. For those who worked with me, you may remember those days.

In this episode, I dive into what triggered our son's meltdowns, and how common this type of issue is.  We also found a solution that helped change and improves the quality of life in our home, f...

Here in the United States, when we get a diagnosis and it is determined that our kid may need to be enrolled through a special needs program, the amount of information you have to obtain is immense.  From IEPs and 504s, to legal options... parents are often thrown into a new world of terminology and effort that often they aren't used to and have to adapt accordingly.

Over the past dozen years or so I am asked for advi...

As a parent, it can be a challenge dealing with family members and friends, or even your own parents regarding your kid's diagnosis.  Some grandparents take the news in stride and help in wonderful ways.  Other grandparents may struggle with receiving the diagnosis and may not be willing to help at all.  Just know that there are ways to address these issues.

In this episode, I share a little of my own person...

Let's be honest, no one wants to hear anything is going on with their kid, whether it's about autism or not.  As parents, we often struggle with the stigma of a kid being labeled as one thing or another.

The reality is, we as parents need to be seeking answers.  At the very least, we need to make sure we know what actions we really need to take to help our kids be the best they can be - autistic or not.

...

As October is Down Syndrome Awareness Month, we introduce our guest Kimberly Sanders.

Kimberly Sanders naively imagined motherhood as a serene walk beside her children; however, she discovered it is more often unpredictable, fraught with struggle, and ultimately an invitation to sit beside her children in the muck and mystery.  In her first book, Beside You, Kimberly generously shares the unpredictable struggles and rich lesso...