Podcast # 111 --- Uncertainties in Life --- Peter’s Confetti Brain & Afi’s Parkie

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In this episode, Gregg (Afi) opens up about his own vulnerabilities, sharing uncertainties in his life and the impact they have on anxiety and suffering. By bringing his personal experience into the conversation, we aim to shed light on how wisdom practices can guide us through life’s challenges and help transform uncertainty into growth,

 Both TSC and Parkinson’s bring real challenges — but also real opportunities for connection, creativity, and courage. This episode brings those stories to light, through the lens of family, love, and wisdom across generations.

What is Tuberous Sclerosis Complex (TSC)?

Tuberous Sclerosis Complex, or TSC, is a rare genetic disorder that causes non-cancerous tumors to grow in various parts of the body — most often in the brain, skin, kidneys, heart, eyes, and lungs.

TSC is caused by a mutation in either the TSC1 or TSC2 gene, which regulate cell growth. When these genes aren’t working properly, cells can grow uncontrollably, leading to these benign tumors.

We often call it “Confetti Brain” to reflect the beautiful, scattered uniqueness of grandson Peter affected — and to reframe the condition with compassion and imagination rather than fear.

What is Parkinson’s Disease?

Parkinson’s Disease is a progressive neurological disorder that affects movement, muscle control, and over time, cognitive and emotional functioning.

It is primarily caused by the gradual loss of dopamine-producing cells in a part of the brain . Dopamine is a chemical messenger that helps regulate movement and coordination.

Common symptoms include:

·       Tremors

·       Stiffness

·       Slowness of movement

·       Changes in speech or handwriting

·       Balance issues

·       Fatigue or depression

While Parkinson’s progresses over time, many people live long, full lives by managing symptoms through medication, exercise, therapy, and staying mentally and emotionally engaged.