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August 12, 2025 49 mins

On June 22, 2023, Ron “Hobbo” Hobden’s life changed in a single sentence: You have motor neurone disease. No cure. No treatment. Just a brutal countdown he never saw coming.

A week earlier, the 40-year-old rugby player, devoted husband, and proud dad to Lizzie, 5, and Henry, 3, had been training for a marathon. Fit, strong, and full of plans, he had no reason to imagine his future would be cut short.

“I remember Annie sitting beside me, trying to hold back her tears,” Ron recalls. “All I could think about was our kids. How do you tell them their dad is dying?”

Instead of surrendering to despair, Ron made a decision that day: MND would shape his life, but it would not define it. It might take his body, but it would never take his fight, his love, or his determination to inspire others.

 

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