Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
For some reason, people think that if you've got a skin rash or hives or something, that is
(00:08):
something external, like touching your skin. And it's for me, it never is. For me, it's always
internal. My body is like reacting in a way to let me know that there's something going on inside
of me that I had a goiter. And my body basically was shutting down. Like I had all kinds of crazy
(00:29):
symptoms and by the time that my mother forced me to go to the doctor, it had gotten so bad
that they did radioactive iodine treatment on it.
Welcome to The Health Fix Podcast, where health junkies get their weekly fix of tips, tools,
and techniques to have limitless energy, sharp minds, and fit physiques for life.
(00:51):
Hey, Health Junkies.
On this episode of The Health Fix Podcast, I'm interviewing Nicole Bonaville.
She's a video media marketing guru and she's the co-host of the Homance Chronicles.
Now I've been on her podcast before and so this is how we connect it but Nicole has an
interesting story.
She is dealing with a mystery illness and is having trouble figuring out what in the
(01:13):
world is causing it and what to do to resolve it.
And man, she's had the run around with the conventional medicine system.
She's taking all kinds of supplements and even medications and nothing seems to be working
or she's not tolerating them well.
And yeah, I can totally sympathize with her in terms of her patients running thin and
(01:34):
the financial and time investments that she is putting in to trying to figure out her
health.
So her story, unfortunately, is quite common.
And I see it a lot in my practice.
And I really wanted to help her to spread the word about mystery illness and what you
(01:54):
to advocate for yourself. So we're going to talk about that. We're also going to talk about how she was stopped by Border Patrol for being radioactive.
And we're just going to talk all about the struggles and also the positives about going through mystery illness and what she's learned, what she's discovered,
(02:18):
and how she may be able to help you or someone that you know in your family, that may be struggling
and wondering, "What do I do? How can I self-advocate? What to say to my doctor?"
And really the value of trusting your intuition when it comes to tough cases like this.
And because Nicole is very similar to a lot of the clients I see at the Center for Human Restoration
(02:46):
in Crandon, Wisconsin, I decided that I would do a little consult with her after the podcast.
So stay tuned for my summary at the end.
Alright, let's introduce you to Nicole Bonneville.
Nicole Bonneville, welcome to the Health Fix podcast.
Thank you for having me. I appreciate the time.
(03:07):
Man, we had such a great time on your podcast some years ago when I was still in Washington.
And here we are, you know, three years later, and you've had a lot going down.
And because, you know, we kind of reconnected, you reached out.
I was like, yes, please, please come and talk to me.
Yeah, my podcast partner and I, we are on, we do the Home Ants Chronicles podcast.
(03:32):
But when you came on, we were talking about self improvement, self-help, those types of discussions.
discussions and now we talk about women in history.
So my podcast is actually not a platform that's great for me
to talk about my health issues because it wouldn't make sense.
(laughs)
(03:53):
But my podcast partner and I have both dealt with autoimmune
conditions for quite some time.
I initially was diagnosed with Graves' disease
and it's since turned into Hashimoto's
and I've been dealing with that for about 20 years.
and then Sarah, my co-host, she has my stenigravus.
(04:15):
So part of our self-help discovery
and trying to have people like yourself
who are interested in non-traditional forms of medicine
to expand our horizons and figure out
if there's a better way to heal or at least cope
(04:38):
with these types of diseases.
So yeah, it has been a couple of years
and I've unfortunately developed some other issues
since we last chatted.
- What is it with, you know, in this one of these things
we'll get into it, you know, it's like
once you've got one autoimmune condition
sometimes they tend to build on each other.
(04:59):
And the whole urticaria otherwise known as hive situation,
like I'm seeing this over and over in my practice
to when I'm like, are we becoming just more sensitive
to our environment?
Is there more stuff in the air?
Is there just more stuff in the food?
Yes.
(laughs)
- Right.
- Well, what is it?
- Check, check, check.
- Yeah.
(05:20):
So tell us a little bit of like, okay,
went from graves all the way over to Hashimoto's,
which I think a lot of people don't even realize
that that happens.
Like I think a lot of people don't realize
that we can go from a hyperthyroid state
to a hypothyroid state.
And you said over the course of 20 years,
give us a little background on that.
(05:41):
And that will kind of go forward.
'Cause I think for a lot of people,
we don't fully understand
that sometimes in the hyperthyroid state,
we're not even diagnosed.
We don't even know in some way.
'Til we switch over to the other side.
- With me, I was quite young.
So there was not a reason to test for my thyroid.
(06:03):
There was no, I guess, natural progression in probably the traditional medical community
to think that that would be a consideration because I was like 19.
And ultimately looking back on it now, I was extremely stressed out.
I was not eating well.
I wasn't getting enough sleep.
(06:24):
I wasn't taking care of myself in a way that anybody should, but also there's this thing
that happens when you transition from high school to college or from kid to adult where
(06:45):
you're expected to work, go to school, figure out how to cook for yourself.
do all these things. And so most people don't have the dramatic reaction that I had, which
is that I had a goiter. And my body basically was shutting down. Like I had all kinds of
crazy symptoms. And by the time that my mother forced me to go to the doctor, it had gotten
(07:12):
so bad that they did radioactive iodine treatment on it. She says that I looked like a lion
backer that like my chest in our area was like so swollen from the goiter because I there was a
bit of denial I think to being that young to want I didn't want to believe that there was
(07:34):
something seriously wrong you know um so I immediately um got into a specialist within two weeks
had the radioactive iodine treatment, which basically kills off the gland. My thyroid
is about the size of a pee now. And I actually had to quarantine in my basement away from
(08:00):
all of the family. And I, again, being 19 and in Michigan, the cool thing to do was
to go to Canada because the bar's there, you could drink it 19. Yeah. Yeah. Oh yeah. I kept pushing it
right and was like okay I did my six weeks. I got stopped at the border. I set off the alarm at
(08:23):
border patrol from my iodine treatment. I was still radioactive that they were like
intruder. Oh my gosh. I know. And so some people who have thyroid cancer or other things that would
(08:45):
cause them to have like thyroid removal or reduction may cause them to go on a hormonal
supplement pretty quickly. But for me, because I was young, my body kind of bounced back on its own.
And I was 19, 20-ish somewhere around there when I got the radioactive iodine done.
(09:07):
I didn't go on to level thorax in or centroid hormone replacement until I was about 25.
And at that point, it was like I had an underactive thyroid and needed this
supplement. But then over time, it was diagnosed with Hashimoto's eventually.
And a lot of women who are like mid 30s tend to be diagnosed with Hashimoto's just kind of more out of the blue.
(09:37):
My story, I guess, is a bit unique because there was such a long history before I got there.
Yeah. Oh my goodness.
What did they do at the border?
Did they like have to like, did they tell you to go home?
Like I'm so curious.
I'm like, but wait, what happened at the border?
So I was actually with three friends.
(09:58):
So there was four of us.
They brought us all in to,
I guess like what you call their offices.
And my three friends had to sit out front in the lobby
and I got taken into the back
and they basically shot this like radar detection gun
at me kind of like, if you're speeding
and you see a cop pointing a gun,
like that is what they pointed at me.
(10:21):
And I think they knew that I wasn't a terrorist
or anything, they just had to do their due diligence.
So they were actually very kind.
They gave me like some peanut M&Ms to like hold me over.
And I think called me down a little bit
because we were on our way back from going to the bars.
(10:41):
So it was probably two, three in the morning, maybe,
when this was happening.
So I'm like sequestered in the back,
having a radar gun pointed at me and my friends are all in the front just like what is happening.
Eventually they let me go. So I didn't, I mean eventually they're just like, okay, you can go home.
(11:03):
So like there was no like don't worry about driving drunk just don't drive
irradiated in this case. Oh my goodness. Wow. Well I'm glad that you didn't get
detained and they gave you peanuts. I mean, I guess if you did get detained enough to have
M&M peanuts, I mean, that's a good treatment. Oh my goodness. So, you know, all laps aside,
(11:27):
I mean, I think a lot of people do experience these kinds of situations. I mean, I've had the,
like people who have had the grapes kind of situation, they didn't know, and then they didn't even have
the radiation down or anything. Like, they just went straight into to Hashimoto's from there. And
and there's like lots of scenarios.
But I think for a lot of people,
this is a more common situation with thyroid stuff.
(11:49):
And more women, maybe not the graves,
but more and more women are coming up
with hypothyroid and Hashimoto's states.
And once you have an autoimmune condition,
it's more common to get others.
And this is kind of what you and I'm talking about
in terms of like where your body went with things.
- So, okay, so you got the thyroid,
(12:12):
you're cruising along with the hypothyroid for a little bit,
and then what?
Developed, next, give us this.
- How could it play out?
'Cause I bet your story, like,
and this is why I love when folks share this for me,
because it might have someone be like,
oh shoot, that's me here.
Oh shoot, that's my sister or my cousin
or somebody and we can help them.
- Sure.
So before I jump into like my current situation,
(12:37):
As things progressed, I like shortly after going on
Synthroid and being, I guess diagnosed hypothyroid.
I would say within probably three years of that,
I started having a lot of digestion issues.
So I was having hives where I'd wake up
(13:03):
with them in the morning and didn't know
where they were coming from.
And my PCP was like, you know,
check laundry detergent.
It's like all external things.
Like for some reason,
people think that if you've got a skin rash
or hives or something,
(13:24):
that is something external,
like touching your skin.
And it's for me, it never is.
For me, it's always internal.
My body is like reacting in a way
to let me know that there's something going on
inside of me, but I didn't know this until I finally figured out that it was a gluten
sensitivity.
(13:44):
So what would happen is I'd eat dinner and then I'd go into a digestion state overnight
and I'd wake up with the hives from being sensitive to the gluten.
And so I was like borderline celiac, which is also autoimmune, but I was able to control
it by not eating gluten. I became lactose intolerant. I developed GERD. So I actually
(14:13):
probably always had an acid reflux issue because even when I was a kid I had symptoms. And
the other crazy thing is that my parents didn't really tell me a lot of like what happened
when I was a kid until I started experiencing as a adult.
(14:36):
So when I was a baby, I couldn't have regular formula.
I had to have lactose free formula.
But as a child of the 80s, they just continue to give you milk and say,
get over it.
I think is what happens.
Yeah.
Yeah.
It's so then, you know, now I'm 30 and I'm lactose intolerant.
My mom's like, Oh yeah, I couldn't give you regular formula.
(14:58):
And I'm like, okay.
So there's underlying things that I continue to probably push through or were ignored or I didn't even know that we're a problem.
But then they all started coming to a head basically is after the Hashimoto's kicks in.
(15:18):
I have all these food sensitivities. I have acid reflux. I
Can't like
Digest things normally without taking additional enzymes and then
What prompted me to reach out?
recently is that I was diagnosed with
(15:42):
Chronic
Or to Korea and there's a couple of different kinds and whether it's considered spontaneous or idiopathic
I mean who cares it really doesn't matter
but basically chronic types with no known cause and
that is also tied to immune and or should they auto immune conditions and
(16:06):
Especially women who already have thyroid issues
so
It's a bit of a mystery though.
All of these other things I've experienced
were not as mysterious.
It was much more clear cut besides the whole
like having hives from gluten,
(16:27):
which was a mystery that took a little while,
but at least there was an answer
and it was easy to figure out once I found
the right internal medicine doctor
to test her the right thing.
But with this one, it's like loads and loads and loads
of tests and no answers.
That is unfortunately, you know, what I've seen typically by the time folks to come to
(16:49):
me or now my partner at the Center for Human Restoration up in Wisconsin.
Yeah, we, we, we, they've had every test under the sun.
Now, I want to step back and go, what was the test for the celiac?
Was it the trans, the trans tissue glutaminase?
What was, what was the series of tests that they used to confirm it for you that yes,
(17:10):
were teetering in that department of going full celiac.
- So they did a blood test,
and I don't remember what the name of it was
because on the results,
and this was also now about 10 years ago,
but on the results, it was basically like celiac disease
(17:33):
and then next to a scale.
- Gotcha.
- So I don't remember what the exact test name was,
I eventually ended up doing a blood test.
I had already been to an allergist before
prior to all of this happening because
I developed allergies as an adult as well.
(17:58):
But when they did the skin prick test,
I don't even know if gluten was a thing.
Like that's how long ago.
- Yeah.
- It might have been like 2007 or something.
And so they were testing for like Peanuts,
shellfish, pet dander, all the typical stuff.
(18:20):
It took me finding an internist who is a little bit more,
I'd say on the naturopath's side
before somebody ran a blood test for it,
which may not be the case anymore.
like now it's much more well known or prevalent.
(18:41):
And it's not uncommon to have this food sensitivity
connection to auto-immune.
So if I went and got a skin practice today,
they might include it, but that was not my path,
unfortunately.
It was a test sample.
- Well, I mean, 10 years ago makes sense.
(19:01):
We've come a long way with the recognitionization
of like, yes, Celiac,
I could lose a thing and it's on the rise.
So going into the chronic hives, because so many people struggle with this.
I often in my practice, I hear people talking about it, and they're kind of like,
"Well, I'm on Clerits in this month, the next month I might switch to XerTech,
(19:22):
because sometimes switching them up works and then lonese works for the stuffiness that I sometimes
get." What was happening with you? How were you working on trying to manage the hives while you
were figuring out things. Oh my god it was a disaster. I mean 100% it was awful awful awful so
(19:45):
because I already have allergy I was on a lego in the morning and their ticket night before this
all started to happen. I was already aware of all my food sensitivities. I get that done probably
I don't know, every other year or so, every couple of years.
Because they do fluctuate, right?
(20:06):
But I knew what the heavy hitters were,
and I'm really good about avoiding them.
I already use no perfume, no whatever, no dyes,
and all of my soaps and whatnot, right?
So a lot of people from what I'm gathering
is if they don't have those things already in play, they will have to go through that whole process
(20:33):
of the doctor being like, "Change to die free." And here, take some elaborate, well, well, I
called up my allergist that I had seen back in 2007 and was like, "Well, technically,
I've been a patient before," even though at this point they don't really count it because it was
(20:54):
So long ago, but I was like, this is bad.
Like I'm having hives head to toe every day.
And I'm already doing all of the things.
So he was able to kind of work me into the schedule quickly,
but my going to my allergist was not my first route.
(21:14):
I, I started getting the hives
immediately after eating the inside,
like the patty of a McDonald's hamburger.
So because I have all these food sensitivities
and whatever, right?
I don't typically go through fast food.
(21:35):
That's not a normal thing for me.
And I was just running a bunch of errands,
whatever, the fries smelled really good, you know?
So I succumb to the, the pressure of my stomach going,
that would be delicious.
And I actually dissect the hamburger.
(21:57):
Like I said, I only eat the patty.
So I have to wait till I get home, wash my hands,
do the whole thing, wipe off the patty, blah, blah.
So I ate it about 10, 15 minutes later,
I had a big hive on my thigh.
But because I'm used to getting reactions to things
and McDonald's is not typical food for me,
(22:21):
I was like, whatever, you know,
I hives our life for me, you know, it'll go away.
It progressed over the weekend.
And so it got to a point where then it took over
both thighs, hips, but I had to put in a zone pack at home
that my neurologist had given me
(22:42):
for when if you get like a really bad migraine attack.
So I took the prednisone and they went away.
And I didn't even want to take the whole pack
if I didn't have to.
I'm like, OK, great.
They went away.
So I took like half the pack.
They came back with a vengeance.
And so then I went to my PCP and was like, OK,
(23:06):
I'm dealing with this hive situation.
And they did a bunch of blood tests.
They thought it was a parasite.
I still think it possibly could be, to be honest with you.
And unfortunately, after I tell you what I went through
the parasite could still be there.
(23:27):
So I went on Ivermectin,
which I got from a compound pharmacy.
Saw no improvement.
then I did doxycycline.
I saw three different chiropractors
to have muscle testing done.
(23:48):
They all said parasite.
So I went on a woodworm complex with garlic
and like a whole slew of other supplements
and things to support like my adrenals and my liver
and all of that.
But in the meantime, while trying to address
whatever the root cause was, I was on,
(24:09):
back on the prednisone.
And when I finally did get into the allergist,
he almost like, didn't even want to continue
to running more tests in a way.
Like I had to kind of push him to order more tests.
(24:29):
He was coming from the stance of,
Well, with Hives, like, what I was experiencing,
we may never know.
And so he just kind of was like,
well, you're already on all the,
you're on the Allegro, the Zertak, the Pepsid,
the, a Meppersalt, like you're already doing all the things.
So like, we just may never know.
(24:50):
And he kind of threw his hands up and was like,
you know, we can get you Zolair,
which is a monthly injection.
Personally, I didn't wanna do that.
I felt like injecting myself with something
while my body was already in this heightened inflammation
state wouldn't be the best route.
But unfortunately, I couldn't get any clear answers
(25:13):
and to run any more tests was kind of silly
because the prednisone was going to alter the test results.
And it eventually succumbed to getting
the Zolair injection while I still am in parallel
trying to figure out what's going on
because the prednisone was making me lose my mind.
I was like super anxious. At one point I was OCD.
(25:37):
I was not in a good space.
So yeah, it was terrible.
I mean, it was bad.
And then even through the course of this, like I learned a lot about the medical
system considering I thought I already knew a lot.
Right.
(25:58):
- Right.
- What would like give us some scoops
as to what you've learned?
'Cause I mean, I, okay, twofold.
This cat, come here silly cat.
- I've got my dad's cat, cause in trouble.
We're gonna just bring him over here.
Come here, crazy man.
- Um, so what did you learn?
Because I think for a lot of people,
(26:18):
you know, in the natural space, they're always like,
"Oh, I failed, I had to take Zolar,
"I had to do this or that."
And I'm like, "No, no, sometimes we have to just stop
"the train, other way."
the body will just keep revolting and we've got to like bring it down a baseline.
Tell us, tell us what you learned. Tell us what kind of things with advocacy because I know that's a big thing.
(26:39):
Give us a little background. I think a lot of people at this point would be like, "Oh man, what do I do?"
Yeah, yeah. So, as I mentioned with the allergist, I had to push him a little bit for some of the tests.
And I mean to his point, like some of them came back a little unclear, but there were
others where like he run a mast cell activation syndrome test and I thought that it could
(27:09):
have been that or a histamine intolerance or something.
But the test results didn't show that.
But he also ran a blood test for chronic urticaria and it came back as zero.
So I was like, that's the diagnosis you're giving me, but my test result doesn't indicate
it.
So that was an eye opener, was like, okay, you're giving me a diagnosis that doesn't
(27:32):
match a test result.
Also if a doctor is kind of, I don't know, pushing back or resistant about certain tests,
you can say to them, okay, well then I'd like for you to note that in my chart that you
refused this test.
And then they usually will do it because they don't want it documented that they said no
(27:54):
to something.
The parasite situation was extremely interesting because at one point when I was like in between
the I think the Ivermectin and the antibiotic and whatever and none of it was working I
(28:17):
I was not taking the prednisone and the hive got so bad that I went to an urgent care and
they gave me a steroid shot which lasted about like 48 hours.
However, that doctor was like, well, how do you know you have a parasite if they didn't
(28:39):
do a stool sample test?
And so then I did a stool sample test.
The lab literally lost my shit and I had to do it again.
And it was stupid for me to even do it twice because I found out that they only test for
like two of them.
So even if like, let's say, like, let's use like a dog, for example, like if they poop
(29:04):
and you see like a worm in their poop, you can send that off to a lab and a lab will say
that everything's fine that there's no parasite,
because that's not on their list of tests
that they test for for that particular worm.
You can visibly see it, but they won't even note it.
They won't even say like saw worm input,
but we don't test for it, right?
(29:25):
So I went through all this like,
what I would call like traditional testing and lab work
for lackluster results or information.
because the other interesting thing was like I felt pretty confident in my chiropractors who do
(29:49):
muscle testing and they kept saying like parasite and bacteria but they are not able to delineate
down to which exact parasite. So when I talked to like my mom's friend who's a doctor she was like
like a little dismissive of it because she goes,
(30:11):
well, what one is it?
Like which parasite is it?
And I'm like, well, they're doing muscle tests.
And you know, like, I don't think she understood
what muscle testing was maybe.
And so she was very much like wanting to help,
but also adamant about like, I needed to have a diagnosis
or I needed to know the exact parasite or whatever.
(30:32):
And I was like, well, I have a diagnosis,
but the diagnosis doesn't even match the blood work.
So how was that helping you?
like I don't understand, you know?
(laughs)
- Oh my gosh.
- So through all of this,
I mentioned, you know, I like worked my way
until the allergist office because after a certain point,
they basically destroy records
(30:54):
or you're not considered their patient anymore.
And so even if you've seen a doctor before,
they want you to go in as a new patient.
In order to go in as a new patient, it's a two month wait.
And I basically just begged and pleaded
and was like, my quality life is so bad.
(31:16):
Like, I'm already doing all these other things.
I've already got all these tests to motion.
Like I had to like sweet talk with the nurse
and just play on her emotions
to get them to kind of like squeeze me in
or override their process.
But you have to do that.
You have to advocate for yourself because otherwise,
you'll sit there for months waiting for an appointment
(31:40):
and then you can get to that appointment
and still clearly not get answers.
So if you want answers, you need to keep pushing
because even my primary care physician who I love
and will run every test known to man
is not gonna call and check on me
and ask me to how I'm doing or what, you know,
(32:03):
you have to be the one to make sure you're scheduling
the follow appointments, to make sure that you're asking
for all the tests, to make sure that, you know,
they understand that where you're at mentally
and where you're at with your quality of life.
I've learned that at, you know, at some point I'm like,
(32:23):
okay, well, I'm suffering to this extent.
And if you're honest with them and transparent about it,
you can sometimes get a little,
I don't wanna say sympathy,
but you can get a little bit more attention.
- Right, right.
Yeah, yeah, the, you know, it's unfortunate
(32:44):
that that's where we're at here in this place and in time,
but it is the truth and I hear this over and over again.
Now, the one thing I will say about the parasites things,
you're absolutely right with the testing,
it's very hard to even capture them on a test.
And it's something that, you know, I struggle with too.
(33:08):
Now there are some test kits for muscle testing
that actually will break down individual ones.
- Oh wow, really?
- That's awesome.
- Yeah, my girlfriend up in Wisconsin has those.
I'm like, we need to connect and run it virtually
and see and figure out what we got.
'cause we will often do them where it's every,
(33:29):
like crazy parasites, like things I've never heard of
and I'm reading the thing, like, what the hell's that?
- Yeah.
- But stranger things have happened
and definitely the times that is one of the things
I've seen over time.
Now, where are you at now?
Like what's the latest?
What have you been doing now?
(33:49):
And then what's--
- Well, I went on the Zolair shot in mid-
December and we're recording this January 21st. So it's been about a month and a half.
So I've actually had two injections because they're monthly. One of my biggest complaints
(34:14):
about things that are helpful to patients is that you're not fully aware of everything
that's in the cocktail that you're injecting in yourself. And so despite my ability to
(34:34):
do research and read everything and whatever, I got my first Zolair shot and while I was
in all this, my cheeks swelled up and turned red and it was like I was having an allergic
response to it. And the allergist was like, well, that's weird. Like I said, like, it's an uncommon
(35:00):
reaction or something. I did do my own research and found out that like,
sinus swelling and sinusitis are side effects of Zolair. So I was able to get off of the prednisone
like I tapered down off of that because the Zolair is working in regards to not giving
me the hives, but it doesn't work for everyone. So I'm not saying it's like a miracle drug,
(35:24):
but for me, it at least made it so I could sleep because the hives were so bad that they were
waking me up after like four or five hours of sleep. So I was like super sleep deprived.
So at that point, I was like, I just, I need a full night sleep, just anything, right?
But so it gave me the opportunity to taper down off of the prednisone.
(35:44):
However, then I got a really bad sinus infection because my cheeks were so swollen,
like my sinuses were so swollen that I don't think that they were like draining properly.
So I ended up on an antibiotic for the sinus infection because it was so bad.
So once I got off the prednisone and the antibiotic, I did a cleanse.
(36:10):
I did a 369 cleanse, which is more of like a liver based and it was from the medical medium.
And I was just thinking like this would be a good way to get me back to a baseline.
derivative, whatever's kind of in there from all the chemicals and the pills and the whatever.
(36:33):
And so I did the cleanse and I got more blood work done. The blood work has shown that my
IgE level is still really high. So despite the fact that the hives are at bay, like there's still
stuff going on inside. And then I got a second Zolir shot, thankfully did not have the same reaction.
(36:57):
I had a little bit of like sinus pressure and so I I've been able to stay off all the extraneous
pills and whatnot. I was able to move forward and so then I actually just did a stool sample but with
(37:23):
a lab where they test for bacteria, viruses, parasites, everything. It's very extensive.
The test was like $450. I'm waiting on the results of that because to me, now with the
clearer blood test results, it's not seeming as though it's autoimmune related. I mean,
(37:45):
there could still be an element there, but with my IGE so high, it does seem like I'm having an
allergic response to something. That's why I feel like it could still be a parasite or a bacteria
or something that I'm actually having an allergic response to. And in the past, I've had like H.
Pi-lory and when I was a kid, I had mono. So I've had Epstein-Barr like, and I know those things
(38:12):
kind of live in you. They don't just go away, right? And once I get the test results from
the stool sample kit, I will meet with my primary care physician. And if she doesn't
have enough insight into how to read the results, I'll meet with a functional doctor or natural
(38:36):
path doctor and probably also continue down the path of seeing my chiropractors who can
muscle test me to make sure that whatever they're prescribing will work for me because
some of the biggest issues that I've had through this process is taking things and them not
(38:56):
working for me.
I would rather do a natural supplement path.
It's just that I have to test my patients
and see how long I'm willing to let that process
continue on.
So right now, I mean, things are still in motion
and unfortunately still no clear understanding.
(39:21):
It continues to be a mystery.
And this is where a lot of people sit sometimes,
and unfortunately it is par for the course,
some of the things, folks we see too,
it's the same kind of thing.
It takes a little bit to kind of break the layers off almost
and just peel them back and get to the next one
(39:42):
and get to the next one because it definitely
chronic mystery illness stuff can be multi-factorial.
Now I know a lot of people listening to this podcast are like,
is the test a GI map?
Is it a, you know,
It is. Yeah. Yeah. I'm laughing. Yeah. Okay. Pretty good task to identify a lot of things. And,
(40:03):
you know, I hope I hope it gives you some insight for sure. Now, one of the things I would say,
you know, even and I'm glad you've got your chiro friends that can help you with the muscle
testing muscle testing, even the herbs, like the black walnuts and all those things. Because
Yeah, we unfortunately end up, and this is where I cringe in my world, is there's the
(40:25):
lost soul supplement basket or box that happens.
I bet you've probably tried a lot of supplements along the way too, and nothing happened along
that line.
Yeah.
And the other thing is, with me having three different chiropractors who do three different
(40:47):
types of muscle testing.
Well, a lot of times they would like have a consensus or maybe like agree not that they know that they don't know that I cheat on them. They don't know that I have multiple
But so let's say one would say no, this doesn't work. The other one would say yes, it would work and or one would say like maybe
(41:11):
take two of these a day and the other would say take four a day. So throughout this process,
I've really had to listen to my body, get very in tune with it. And the one doctor that I was
seeing, I would say he was the more aggressive approach as far as trying to either kill off the
parasites or bacteria. I flat out told him, like, I tried to do the four a day of the black walnut
(41:40):
in the sixth day of the garlic and the whatever. And I ended up having to not take them together
and do process of elimination because some of them were making the hives worse.
And not that that doesn't mean that they wouldn't work, but like for where my was in that state,
I didn't need anything else helping the hives make their way across my body.
(42:08):
You know, like, and so I had to parse it out.
And especially if it was like, take four of these a day,
I wouldn't take all four at one time.
Like I would take two with lunch, two with dinner,
whatever the case may be.
But when I went back to him and I told him how I adjusted his regimen,
(42:33):
he like, re-muscled tested me for what I was doing.
he's like, you're like right on as far as what your body needs. And so as much as I as it's kind
of ironic that this is all happening in my gut, I'm like, still listen to your gut, like, you know,
(42:53):
it's it's kind of like, well, it's whatever's going on is definitely happening in my gut. And
unfortunately, I think a lot of people don't even know that much when it comes to why they're
suffering or have the resources or the wherewithal to do all of this. I mean, it's costing me thousands
(43:15):
and thousands of dollars to do all of this and time, right? Yeah, yeah. I can imagine somebody
who's got small kids, there's no way that they can, you know, get to all these different
doctors and do all this work.
No, no.
No, the cost alone is cringeworthy, for sure, for sure.
(43:41):
How much do you think on average you've spent over the last like 10 years?
Like per year on healthcare?
I mean, some years are higher than others, but when in some years, I am more determined to restore my gut health and try to figure out how I can not only heal things but prevent things.
(44:20):
And so I will do a lot of parallel pathing.
Tenderam might be a little bit on the high side,
but just I'm thinking the last few years
because I'm self-employed.
My insurance has got an extremely high deductible.
And I hit it, so.
(laughs)
(44:41):
That's why I'm like, well, yep, probably.
- And are you, I mean, are your chiropractors
in your insurance network too?
Are you doing this mostly with
with your high deductible insurance or are there out of pockets to just just see if folks
are sensitive like what your blend is. It's all of it. So I have one of the chiropractors that
does take my insurance and thankfully you can get like an adjustment and do the muscle testing
(45:07):
in one appointment. They don't charge you for like two separate appointments. The other one
that I would that was like I said like the more aggressive like I would consider him more in
the wellness space. If you wanted to do adjustments and a wellness appointment, they're separate
and they did not take my insurance. So that's out of pocket. The third guy,
(45:28):
I've been seeing him for Nate treatments, which are allergy treatments for forever.
And he's never taken my insurance. I mean, he might do like a cash discount, but I'm still
going to pay at least probably 60, 65 dollars per visit. And then like the the
(45:53):
GI mapping was like 450. The Zolair shot itself is $1,500 but there's a
manufacturer coupon so you can get it for free at least for six months. And the hangup
(46:14):
with it though is the first three injections you have to have at the doctor's office. For
me, a specialist copay visit is $85. So if I'm seeing the allergist, I'm paying $85 for
for them to do an injection in my arm that I could do.
'Cause eventually you can do it yourself at home,
(46:35):
but they make you go in.
So that means the first three injections
you're spending almost $300, right?
So I've seen functional doctors before
and they're just visit, just their appointment with them,
250, 300.
(46:56):
Yeah, so thankfully, like my primary care physician, I usually start with her.
And if I get tests even done elsewhere, I'll take it back to her first because she's just
a regular copay of like $30.
But any supplements that I take are not going to be covered, you know?
(47:22):
And she oftentimes will like try to do a supplement versus a prescription.
But like I mentioned in the Ivermectin, they wanted me to get it from a compound pharmacy.
So that was 60 bucks.
The I ended up taking albendazole for the Paris, because after I've never met and didn't
work, I tried to write albendazole.
That was $75 for three pills.
(47:47):
So yeah.
It adds up.
adds up and definitely I turned on high side of this space because I mean I am in that space, right?
And trying to figure out what to do to be the most bang for your buck. It's huge.
And you've had quite a journey. You've had quite a journey.
(48:07):
So yeah, we got to tell folks what's next. You've got the results,
G.I. map and then what else are you looking into? What kind of things? What kind of advice would you
give folks who are in your same situation right now and trying to figure out what in
the world to do.
Yeah.
As I continue to wait for test results, I am doing a very gentle Candidia cleanse that
(48:38):
would help with any kind of like fungal thing.
And so it's a dropper version that you just mix in with water and take on an empty stomach.
but because it's gentle, it takes a long time.
So I'm still doing that in parallel
with all these other things.
And we're just hoping that it's helpful.
(laughs)
(48:59):
But if somebody else who's in my situation,
one of the most helpful things that I found was that
for chronic earth carriers specifically,
There were Facebook groups of other patients
and similar people to me who are just
(49:23):
beside themselves with what's happening
and not getting any answers.
So it made me feel much less alone in this journey
because despite having great friends and family,
they just don't get it.
because there's days where having chronic hives
and then being head to toe
and you're just resisting the itch
(49:45):
and your fatigue because you're not sleeping
and all this stuff, like your patience is thin,
you're irritable, like you're trying
all these different diets.
So I tried a low histamine diet
and it was like helpful-ish, but not enough.
So I would say like finding a group that even if you just are watching what's going on,
(50:13):
you don't have to participate because it gave me the realization of how all of these different
people are either getting the hives or dealing with them.
I found a lot of the people in this one group,
(50:34):
it was a women's only group,
but there was 25,000 people in it.
And to me, it was like, okay,
I've never heard of this before.
Nobody around me has experienced this.
It's not hereditary from what I could tell.
Like, I just felt very alone.
And so to have 25,000 women who were all saying,
(50:57):
This is wild.
You're like, thank you.
Like you feel justified.
And one of the trends that I saw in that group was that it was a lot of women
who were experiencing these like spontaneous random hives in there, I would
say early to mid forties.
So there is a possible hormonal connection.
(51:19):
It's just so hard to test for a hormonal connection to this, but you can get
down an estrogen histamine loop.
And to have your peers explain it to you
is a lot easier than reading like medical journals.
- I think it's great to be able to interact with others
(51:43):
and that can, you can just learn.
Like you said, you could sit back
and just see what other people are saying
and kind of help validate a lot of what you're experiencing
because I know that especially in the case
with a third of care.
It's very maddening to feel like it is.
And I will research till the ends of the earth.
Like I will get to the last page of Google on my own,
(52:06):
but then that will put you in a spin cycle.
- Yeah, yeah.
Oh my goodness.
Well, I'm glad that you're sharing about it.
I think it's gonna help a lot of people
just to hear your story.
I know a lot of people are gonna resonate.
And I guess the next question I have is,
where can folks reach out to you?
I know the podcast, the Homanz podcast
(52:27):
took a different direction, but if folks are curious,
they wanna know, reach out to you,
they wanna know where you're hanging out,
where can we tell them?
- Sure.
My email address is info@nicolebannaville.com.
So if you Google me, I have a website
because I am a self-employed marketer.
So you can find me through my website, you can email me.
(52:51):
I'm also on Instagram and be media marketing.
So it's all kind of towards my business,
but I'm more than happy to talk to people
about anything related to healthcare or mystery illness.
- Awesome.
We appreciate it.
I hope to see maybe some coaching or something
in the future out of you, maybe, maybe.
(53:12):
- Maybe, maybe, I mean, yeah, if somebody wants to reach out
this speaking opportunity or any of those options, I'm just kind of letting it lead.
And in this whole situation, one of the biggest takeaways was also just follow your intuition.
Like, as I listen to your body a lot, like, if you are feeling really tired and just can't
(53:37):
do it, some days it's fine to just not do it, right?
And so, whatever the universe wants to provide, I will listen.
I hear it in learning how to listen to your body.
Like you said, muscle testing yourself, you know, looking into that.
I think that just, I think it's all we got it.
We got to go back within as my big message to.
(54:00):
So thank you, Nicole, so much for coming on.
I sincerely appreciate it.
No, thank you.
I appreciate it.
Well, we'll look forward to hearing more from you in the future and how things turn out.
Thanks.
I'll have to send you an email if I ever find out what the deal is.
I'm here for it, I'm here for it.
So after my podcast with Nicole, we sat down and chat a little bit further about our condition
(54:24):
and we ended up doing some muscle testing.
I ended up reviewing her GI map testing for in addition to all of the other testing that
she had had over the last year.
And it does turn out that she is quite a complicated case.
She looks to be very TH2 dominant, which is a type of inflammation response in the immune
(54:46):
system where she's popping off a lot of white blood cells and a lot of IgE, which is your
body's immune marker for high amounts of allergic response within the body.
So, my recommendations are to work on her body's hyper immune response versus trying to kill
(55:07):
things versus trying to attack what may be in the body because it does seem that overall
she has a compromised immune system from all of this and it's probably been compromised
for a while.
It may be related to some of the medications she's taking as well.
And my thought is perhaps let's take a different angle and let's rebuild her and help her immune
(55:31):
system and see if we can get it to regulate itself a little bit better.
Now there's no doubt that her case is a tough one and I never make any promises but what
I'll say to you guys is we'll keep you posted as to what we find out and what we discover
in this journey and know that in the journey of mystery illness a lot of times at the root
(55:58):
of a lot of this is working on the nervous system
and working on your nervous system response
connected to your immune system.
And more often than not, we can go on hyper alert
when our nervous system and immune system become
dysregulated and especially in the case
of the high IgE immune response that she's having.
(56:19):
So we're gonna dive into a couple different things.
We'll share with you here at a later date how it goes
And yeah, mystery illness, tough stuff,
but can be overcome and so crucial to self-advocate
but learn the importance of trusting your intuition.
(56:41):
All right, thanks for watching this podcast
or listening to this podcast.
I hope to bring more stories and how we can help you
and give you some inspiration along the way.
And I'd love to hear feedback from you all as to what you want to learn about.
And also, if there's any conditions you're curious about, maybe I've seen them and how
(57:04):
I can help you self-advocate.
Let me know.
All right.
Have a great day, whatever you're doing.
Hey, fellow health junkie.
Thanks for listening to the health fix podcast.
If you enjoy tuning in, please help support me to get the word out about the podcast,
subscribe, rate and review and just get that word out. Thanks again for listening.