167 {Skye Shannon} How spina bifida and an amputation affected my personal identity

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May 25, 2025 • 53 mins

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The relationship between disability and personal identity is incredibly complex and navigating that can take a lot of work and self-analysis.

For Skye Shannon, growing up with Spina Bifida had an obvious impact on her life, but it wasn’t until she underwent an amputation in her adult years that she really felt the impact on her personal identity.

In this conversation, Skye Shannon shares her profound journey living with Spina Bifida, detailing her experiences from childhood through adulthood. She discusses the challenges of growing up with a disability, the impact of social dynamics in school, and the numerous surgeries she underwent to manage her condition. Skye reflects on her identity, the emotional toll of her amputation, and the ongoing struggle with phantom pain. Her story is one of resilience, independence, and the complex relationship between disability and self-perception.

In this episode she shares:

- What it was like growing up with Spina Bifida

- What is Spina Bifida

- The impact of her disability on her personal identity

- Her journey to find someone who would help her do the surgery she needed

- Life after her amputation and the difficulties she encountered

- Her experiences with phantom pain

- Understanding the impact of amputation

- Her fears and challenges in daily life now

- Her advice for those facing similar challenges

Key Quotes

“I ended up with maggots in my toes.”