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May 25, 2025 53 mins

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The relationship between disability and personal identity is incredibly complex and navigating that can take a lot of work and self-analysis.

For Skye Shannon, growing up with Spina Bifida had an obvious impact on her life, but it wasn’t until she underwent an amputation in her adult years that she really felt the impact on her personal identity.

In this conversation, Skye Shannon shares her profound journey living with Spina Bifida, detailing her experiences from childhood through adulthood. She discusses the challenges of growing up with a disability, the impact of social dynamics in school, and the numerous surgeries she underwent to manage her condition. Skye reflects on her identity, the emotional toll of her amputation, and the ongoing struggle with phantom pain. Her story is one of resilience, independence, and the complex relationship between disability and self-perception. 

 

In this episode she shares:

 

-      What it was like growing up with Spina Bifida

-      What is Spina Bifida

-      The impact of her disability on her personal identity

-      Her journey to find someone who would help her do the surgery she needed

-      Life after her amputation and the difficulties she encountered

-      Her experiences with phantom pain

-      Understanding the impact of amputation

-      Her fears and challenges in daily life now

-      Her advice for those facing similar challenges

 

Key Quotes

 

“I ended up with maggots in my toes.”

 

“It had gotten to the stage where my hip had completely disintegrated.”

 

More Information about Skye

 

Follow her on Linkedin.

 

You can get involved with the podcast online

 

On facebook in our community: https://www.facebook.com/groups/challengesthatchangeus

Or on Instagram: @challengesthatchangeus

If you want to contact the podcast, email us here: support@challengesthatchangeus.com

Or check out our website: www.Challengesthatchangeus.com

 

If you want to find out more about what Ali does, check out her business via the website:

http://www.trialtitudeperformance.com.au

  

Interested in DISC personality profiling or a Burnout workshop for your team, get in touch with Ali today.


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