Episode 1: Intro to Autoimmune Disease and Being Your Own Patient Advocate

Podcast Episode Summary: ChangeFuse - Igniting Support in Chronic Illness

Introduction: In the inaugural episode of "ChangeFuse: Igniting Support in Chronic Illness," host Michelle Andrea Williams explores two critical topics affecting countless lives. The focus begins with an insightful look into autoimmune disorders, emphasizing the importance of understanding these conditions in the landscape of chronic illnesses.

Context with Reputable Resources: Michelle provides essential context using reputable medical resources, including the American Autoimmune Related Diseases Association (AARDA), the National Institute of Allergy and Infectious Diseases (NIAID), and the Mayo Clinic. These resources lay the foundation for a well-rounded introduction to autoimmune disorders, aiming to shed light on these conditions, raise awareness, and offer support to those facing these challenges.

Personal Journey - Rheumatoid Arthritis: Before delving into autoimmune disorders, Michelle shares her personal journey with Rheumatoid Arthritis, a condition that significantly impacted her life. The challenges of diagnosis, the shift towards self-advocacy, and the importance of finding the right medical team are highlighted. Michelle's story serves as an inspiration to others facing similar challenges, emphasizing resilience and the ability to lead a fulfilling life despite chronic illness.

Transition to Being Your Own Advocate: The podcast then shifts focus to the crucial topic of being your own advocate in the realm of chronic illness. Michelle breaks down key points for self-advocacy, including advocating for yourself, finding the right medical team, empowerment through knowledge, navigating trial and error, prioritizing self-care, building a support network, and defining your life beyond the condition.

More about Michelle: www.michelleandreawilliams.com

Show Notes: Episode 1: Being Your Own Patient Advocate

Questions to Ask Your Doctor 1. "What is the diagnosis and what does it mean for my overall health?" 2. "Are there any tests or procedures I need? Why?" 3. "What are the risks and benefits of these tests or treatments?" 4. "Are there alternative treatment options?" 5. "How will this condition progress over time?" 6. "What lifestyle changes can support my health regarding this condition?"

Key Points for Being Your Own Self Advocate: 1. Ask Questions Freely:

• No question is too small; every query enhances your understanding.
• Silly questions don't exist in healthcare.

2. Honesty with Healthcare Providers:

• Be transparent about all symptoms, no matter how minor.
• Share details about medications, supplements, and treatments.

3. Maintain Documentation:

• Keep a record of medical history, treatments, and feelings.
• Valuable for discussions with medical professionals.

4. Resources for Self-Advocacy:

• Patient Advocate Foundation
• Agency for Healthcare Research and Quality's 'Questions Are the Answer' campaign
• Institute for Patient- and Family-Centered Care

5. Choosing the Right Doctor:

• Consider ability in treating your specific condition.
• Communication is crucial for a healthier doctor-patient relationship.
• Check credentials, reputation, and accessibility.

6. Deciphering Medical Information:

• Ask for clarification on unclear terms.
• Seek a second opinion if needed.
• Stay informed about your condition.

7. Trusting Your Instincts:

• If something feels off, seek a second opinion.
• Trust your instincts in decisions about your care.