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December 12, 2024 64 mins

Navigating a medical system that dismisses your pain ignites a fire to advocate for others who are overlooked.

Annie Segarra is an activist and content creator dedicated to disability rights, body positivity, and social justice. Annie opens up about her deeply personal experience living with Ehlers-Danlos Syndrome (EDS), discussing the emotional and physical toll of navigating a medical system that often dismisses or misdiagnoses those with chronic illnesses. She shares her frustrations with being gaslit by medical professionals and the resilience it has taken to continue advocating for herself.


Key Moments


2:54Accessibility in spaces

18:27 Living with EDS

31:28 Experiencing medical gaslighting

52:45 Advocating for inclusive training and support


Connect with  Annie Segarra
LinkedIn:https://www.linkedin.com/in/anniesegarra 

Website:https://invisibleproject.org/annie-segarra/ 

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