FabryCast
The FabryCast brings the human element of living with a rare disease. It’s a podcast for important conversations that teaches small bits of information, practical insights, and things you can do today to positively impact your life with Fabry. Hear from experts in the field, have the opportunity to “Ask a Doctor Anything” and keep up to date with what's happening in the Fabry space.
Episodes
Caregiver, On-call Chaplain, & Counsellor, we are honored to be joined by Sam Wu for this episode of the FabryCast. Sam believes that no one should walk alone, especially when they are feeling sick, & offers up some profound positivity for patients & caregivers alike! This is a must listen for anyone struggling in life, as Sam provides hope for those who need it most. Be rare, be you!
On this episode we are joined by another hero in the community, National Program Manager at the Canadian Fabry Disease Initiative, Kaye LeMoine. With an immense amount of compassion & knowledge, Kaye takes us behind the lab coat so that patients can better understand Fabry testing & why it is so important to get your tests done. We hope this encourages others to take their power back in a positive way. Be rare, be you!
On this episode of the FabryCast: Vancouver based Naturopath & CFA Board Member, the always amazing Dr. Seema Kanwal, guides listeners towards optimal health via perspective, encouragement, & advice on living with Fabry.
On this episode of the FabryCast we answer questions that have come in from the patient community. Dr. Aneal Khan thoughtfully gives insight to the questions listed below:
- Is Fabry an inflammatory disease?
- What comes first; left ventricular hypertrophy (LVH) or cardiac fibrosis?
- Patients have reported they experience pain when flying on an airplane - why do you think this could act as a trigger for pain?
- Is gabapentin okay to be...
What is Fabry Disease and how is it passed on in families? Learn about the symptoms patients experience, what parts of the body are affected, and when symptoms usually begin.
Have you heard people describe Fabry as “classic, or non-classic?” What does that mean and how do you know what type you have? Learn the foundations of Fabry and why females have such variability on this episode of the FabryCast.
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