Episode Transcript
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Taylor (00:04):
Welcome back to Inside
Rehabilitation Counseling.
I'm CRCC Director ofCommunications and Marketing
Taylor Bauer, and I'm excited tobring you another conversation
exploring the art and science ofrehabilitation counseling.
According to the World HealthOrganization, around 50 million
people worldwide have epilepsy,making it one of the most common
neurological disordersglobally.
(00:25):
Yet, one of the challenges ofepilepsy is that folks
experiencing the disorder can'talways get a precise diagnosis.
On top of that, many peoplemisunderstand epilepsy leading
to stigma and a lack of publicawareness of how to help someone
experiencing a seizure.
That's where organizations likethe Epilepsy Foundation of
Georgia come in.
The Epilepsy Foundation ofGeorgia serves over 110,000
(00:47):
residents facing epilepsy andseizure disorders, and Dr.
Courtney Dean, the director ofprogramming, is our guest for
this episode.
As a certified rehabilitationcounselor, Courtney utilizes her
skills and training to overseestatewide programming and
outreach initiatives and is aprime example of how CRCs can
utilize their expertise inleadership positions to drive
change for individuals withdisabilities.
(01:09):
Please enjoy this insightfulconversation.
Dr.
Dean, thank you so much forjoining us today on Inside
Rehabilitation Counseling.
I've really been lookingforward to this discussion with
you.
And I kind of want to start atthe beginning of your time as a
certified rehabilitationcounselor and even before then.
Let's hear a little bit aboutyour journey.
And can you tell me about thefirst time you learned about the
(01:30):
profession of rehabilitationcounseling and what drew you to
this work?
Courtney (01:34):
Of course.
Well, thanks for having me.
You can just go ahead and callme Courtney.
So, funny enough, I had neveractually heard of rehabilitation
counseling or the professionbefore I started looking at grad
programs.
Originally, I was aiming for adevelopmental psych degree.
So I just wanted to go straightto the PhD track after taking a
break from undergrad and, youknow, shooting for the stars,
(01:56):
trying to be an overachieverlike usual.
But then when I started lookingat master's programs just as a
backup plan, I saw clinicalmental health counseling at
Georgia State University.
Everybody knows about clinicalmental health.
But then in the corner, theyhad a secondary program and it
was the clinical rehabcounseling program.
And I've never heard of thatbefore.
So I was like, wait a minute,let me click on that, see what
(02:18):
that's about, just out of pureum curiosity.
And instantly I felt like Ifound something that just kind
of clicked and it fit for me.
So it kind of brought togetherthe two things that I care a lot
about, which is mental health,of course, and supporting people
who live with chronic illnessesand disabilities.
So I ended up applying about aweek and a half before the
deadline for the program,totally last minute.
(02:40):
And somehow it turned out to beone of the best decisions I've
ever made.
So honestly, thinking backtalking to you right now, um,
the spark really came earlier inmy work in nonprofit and my
after school work and kind ofjust volunteering growing up and
constantly seeing howsystematic barriers just kind of
outside of just medical needsshape people's opportunities.
(03:01):
So becoming a CRC has given methe tools to walk alongside the
clients that I work with on adaily basis and not even them,
but sometimes their family, andjust kind of see the person as a
whole with goals and dreams andchallenges.
And so it was just a naturalpassion and extension of myself
for a bridging equity andempowerment within the
community.
Taylor (03:20):
I love that.
And I think it's so funny for aprofession, so many people just
kind of stumble across howquickly you'll hear people like
yourself say, uh, this is such anatural fit.
This is exactly what I need tobe doing or what I want to be
doing.
And uh, I know we're certainlygrateful that you uh that you
found this profession and you'redoing the great work you're
doing.
You currently serve as thedirector of programming for the
Epilepsy Foundation of Georgia.
(03:41):
Um, can you tell me a littlebit about your time with the
organization, your current role,and just some of the programs
your organization offers thatyou work uh with closely?
Courtney (03:50):
Coming into it
initially, just like I hadn't
heard about the CRC profession,I've never heard about the
Epilepsy Progestion of Georgia.
And I had been, I relocated toGeorgia in 2015 and was working
at Georgia Tech as a programcoordinator at one of their um
outreach programs.
I was actually sitting in forthe president of our RCA grad
(04:11):
chapter in a board meeting, justto fill in I was the secretary.
And I was already an internshipat GVRA.
And after presenting to thatboard meeting, being a stand-in,
just a seat filler, the programcoordinator for the EF Works
program pulled me to the sideand asked me whether I'd be
interested in a secondaryinternship with the foundation.
And so after speaking it overwith our department head, they
(04:31):
was like, if you can manage it,go ahead.
So I ended up having twointernships with GVRA and with
the foundation, and I instantlyfell in love.
So I've been with thefoundation.
I started as an intern with oneof my classmates.
I pulled on with me from GVRAin 2018 in December, the week uh
a week before my birthday.
So December 7, 2018.
And I went from an intern tothe full-time employment
(04:54):
specialist running job club, um,the support group that we kind
of launched and different thingslike that helping on the
foundation side.
And then I worked my way up tothe operations and outreach
manager for the EF Worksprogram.
And then with its currenttransition with organization
structure, now I am the directorof programming and outreach for
the entire foundation and stillhave my hand in the EF Works
(05:16):
specialized vocational program.
And so being a director of allprogramming now for the
foundation, I oversee all of ourstatewide programs that support
individuals and the familiesaffected by epilepsy.
Um, this includes initiatives,like I just spoke, our EFWork
specialized vocational programthat helps people with epilepsy
and seizure disorders becauseeveryone isn't officially
diagnosed with epilepsy.
(05:37):
Keep me for employment, findnew employment.
Um, people who are not sure ifthey want to go to the work
field, we kind of talk about thecollege tracking, um, technical
training and differentapprenticeships and things of
that nature and how that works.
We have our medicationassistance program.
Um, so no one goes withoutmedication.
And sometimes recently we wereable to actually provide uh a
(05:59):
medical bed for a young man atCHOA.
So that was really cool.
That was something different.
And then um we also providefree seizure first aid training
across schools, workplaces, andcommunity groups.
So we're piling in a lot of newinitiatives.
Like recently, um, we'reworking on our lunch and learn
series, which um I think isreally cool.
And it's so exciting to seeprogramming grow because a lot
(06:21):
of times organizations get stuckand we get complacent, and the
community kind of there's a lag.
And so keeping that connectionand building something fresh and
hearing the voices.
And my goal essentially is tomake sure our services are not
only accessible, but areempowering and impactful.
So being more intentional withprogramming.
(06:43):
So helping people who live withepilepsy feel seen, supported,
and equipped to thrive.
It's incredibly rewarding work.
And I'm proud to be a part ofthis organization that truly is
changing lives all acrossGeorgia because we service the
entire state.
Taylor (06:55):
Yeah, that that's
fantastic and certainly
something that folks all acrossthe state need.
Um, and it's great to see thatyou kind of started as an intern
and been able to work your wayup.
And um I always find that to bea sign of both the organization
being a fulfilling place foryou to be working, and then also
them identifying early on yourpotential and your training and
(07:15):
skills and uh those mutuallybeneficial um uh processes of
being like, I feel valued, therethis organization's making me
feel valued, and they know thatI value them and doing my work
here, that leads to greatthings.
And it sounds like great thingsare happening there uh with you
and your team.
And we talked about likesystemic barriers and things
like that, and the challengesthat can come with epilepsy or
(07:38):
any sort of condition and havingto navigate um medical and
community resources and things,and uh, depending on when you've
been diagnosed and things likethat, or as you mentioned,
haven't even formally beendiagnosed, how are you gaining
access to those things?
And you know, on top of livingwith a disability or a
condition, it's so challengingfor a lot of people to navigate
those barriers.
(07:59):
And I find that to be somethingCRCs are especially equipped to
do is help people navigatethose barriers.
And um, the way that weconnected was I had you had put
a really thoughtful comment on aLinkedIn post of ours, which I
was very grateful, grateful for.
And on your uh LinkedInprofile, you talked a little bit
about those uh that concept ofdismantling systemic barriers
and particularly with thoseaffecting marginalized
(08:22):
communities.
Um, and you know, we know thatthere are a number of different
approaches to take withdismantling these barriers.
And uh you listed on yourLinkedIn that you like to do
this through creativeexperimental methods and
collaboration and reallyfocusing on community-based
strategies, which it sounds likeis happening there at the
Epilepsy Foundation of Georgia.
What are a few strategies thatyou've found to be particularly
(08:44):
successful in this area that youcan share with others who might
have a similar goal or callingto start dismantling some of
those systems that make livesharder for uh marginalized
communities that are alreadygoing through uh hard things
just because of the way that theworld is built?
Courtney (08:59):
Yeah.
Well, for me, first andforemost, um, dismantling starts
with really listening to thepeople who are most impacted.
Too often we have programs whomean well, but they are built
for the, they're not necessarilybuilt for the communities that
they're servicing.
And so that's where they fallshort, unfortunately.
(09:20):
So one of the most powerfulstrategies that I found is
co-creation.
So that's bringing people withthe lived experience into the
planning, into thedecision-making and the
evaluation process.
That's the kind ofcollaboration where real change
happens and it's long-lasting.
Um, we've actually kind of seenthis work with our recent
partnerships with organizationslike Florida Epilepsy Services
(09:41):
and Angels of Epilepsy here inGeorgia.
So together we're able to meetpeople where they are, whether
that's offering transportationto our local job club, whether
that's um taking trainers intothe schools or sharing resources
that one organization may notoffer, but the other one does.
Um, it's a powerful reminderthat we don't have to do
everything alone, and our impactmultiplies when we really work
(10:03):
together.
So I'm constantly piling thesmall ideas, taking creative
risks, and learning in realtime.
And I always center livedexperience as a tool for
advocacy.
And so dismantling barriersisn't one big act, it's a series
of intentional community-drivensteps.
So, my advice start small,listen deeply, and build your
(10:25):
community with the community,not just for them.
Taylor (10:29):
Yeah, I love that.
It's kind of like that, youknow, speak with us, not for us
mentality, you know.
Um, and I think involving thepeople who you're seeking to
impact the most from the get-go,you know, from hearing, not
only guessing like what would beuseful for them, but hearing
from them what would be usefulto you and what things, what
what needs aren't being met,what needs maybe are being met,
(10:52):
but going a little bit furtheror a little bit deeper could
make a huge change in theirlives.
And then also just again, kindof that concept of affirming
that you're here alongside themworking toward the goals that
are going to, you know,transform their lives.
And I think collaboration iskey.
There's this concept of likethinking big to change these
(11:13):
vast programs or systems that wewe exist around.
And it's it's not about solvingevery single problem on day
one.
It's like, where can we startand build some momentum, make
those partnerships andconnections that I think is a
really powerful thing that youpointed out.
Um, even just talking to peoplewho are in similar
organizations about the workthey're doing and kind of
(11:35):
bouncing ideas off of each otherand then saying, like, I think
it's worth taking this, like yousaid, creative risk to try
something new or take adifferent approach, or at the
very least, just listen topeople about what are we not
doing?
Let's say things are goinggreat, right?
Uh, what are we still not doingthat we could be doing better
or more of?
And I don't know, I think Ithink of it as a hunger.
And I think CRCs areparticularly um hungry
(11:58):
professionals where like I neverhear from folks, your peers,
that uh you have a day where yougo, okay, I've done it.
I've helped all the people Iwanted to help them.
We're done.
You know, it's this concept oflike, what's next?
What more can I be doing?
And, you know, that can be verychallenging sometimes to always
be looking for that new way toimpact.
Um, but I think you've pointedout there's a really powerful
(12:22):
strength and uh advocacy thatcomes with working alongside
people who are passionate withyou.
Courtney (12:26):
To encourage new
professionals or just people in
the community in general, um,when you're reflecting on how to
make a difference or how tomake an impact or we're
evaluating these programs orseeing what we can do, just to
sit back and then ask yourselfwhat do the people in front of
me need today?
How can I just remove at leastone barrier?
Because we can't solve themall.
We can't take them all away.
Taylor (12:46):
You know, CRCC as a
certification body, we work very
closely with CRCs across thecountry.
And um, we know that there's noshortage of challenges facing
the profession, uh, whether it'slicensure parity across
different states or um, evenlike you pointed out at the
beginning, people not knowingabout this field until they're
searching through a coursecatalog or a, you know, a
(13:07):
program catalog, and they go,rehab counseling, I don't know
what that is, or you know, somesome something sparks their
interest.
We know that there's noshortage of challenges that this
profession's facing, along withany profession, right?
But it really goes a long wayto say, like, what's a what's a
thing we can do here that couldlead to another opportunity for
us to continue to make progressand so on and so forth.
(13:29):
And I think, yeah, just takingthat approach of looking at
things as a as a step-by-steprather than like a whole
marathon can kind of help a lot.
And you'd be surprised whenlike you're passionate about
what you do and you'reknowledgeable about what you do
uh as you and other CRCs are,how quickly that progress is,
you know, identifiable andsomething that you can really
(13:51):
hold on to and say, like, we'rewe're doing something here
that's making a difference.
And um, that sounds like it'syou know integral to the mindset
of your organization and thework that you're doing, which is
fantastic.
One thing I was curious aboutwhen I was doing a little bit of
research about your work andsome of the stuff that you've
shared is this concept of suddenunexpected death and epilepsy
(14:13):
or SUDEP as an acronym and theimportance of normalizing
conversations around this.
What can you tell me aboutSUDEP and why it's so important
for us to talk about thisconcept?
Courtney (14:27):
Absolutely.
So, SUDEP is one of the mostdifficult and often unspoken
aspects of living with epilepsy.
Um, it essentially refers to aperson with epilepsy who has
passed away suddenly whenthere's no other um clear cause
but epilepsy.
And so while it's relativelyrare, it's real.
And for a lot of families andfriends and individuals living
(14:50):
with epilepsy, not talking aboutit does not make it any less
frightening.
So there's a disconnect betweenthe healthcare professionals
and the community and havingthat tough conversation.
So it's it's unfortunately it'snot normalized and it should
be.
So this is why it's soimportant to normalize having
that conversation around Sudep.
Talking openly about this topicwill allow people to be more
(15:13):
informed, um, make more informeddecisions about their health
and safety.
So, like being medicallycompliant and you know, adherent
to medications, of course,seizure tracking, having a
journal, making sure timing it,and is it in the daytime, is it
nighttime?
Have there been changes?
Um, and being mindful oflifestyle changes, all of that
can reduce risk.
And so it often gives space forgrief, awareness, and advocacy
(15:36):
when we have these toughconversations.
Silence does not protectpeople.
Um, misinformation does notprotect people, not having
conversations doesn't protectpeople.
Information does.
And so the more we talk aboutSuda, the more empowered the
community becomes around it.
And so going back to kind ofwhat I say earlier with the
lunch and learns, we're actuallysponsoring a lunch and learn
(15:59):
series.
Um, and we're gonna start withthe healthcare professionals in
November for Epilepsy AwarenessMonth.
And so one of our volunteers,Kai, and two of her classmates,
their third years in the Doctorof Umsteopathic Medicine
candidates at PCOM, Georgia.
And so I'm really proud ofthem.
And so the goal of this lunchand learn is to provide just a
(16:20):
candid and compassionate spacefor conversation to be had on,
you know, why and how healthcareprofessionals must lead these
tough discussions with familypatients and the broader
community to help break thatstigma around epilepsy related
deaths in the form, but asensitive way at the same time.
Taylor (16:36):
Those that that lunch
and learn format is so
impactful, I think, because youcan reach a lot of people and
really have it uh have anexploration of a concept or an
idea that might be a little bitnew to some people, depending on
what experience they've hadwith SUDEP, and just kind of
have a conversation about it.
And like you said, it might notbe something that is quote
(16:57):
unquote like common within theepilepsy community.
But I do think that it's a veryCRC approach to a rare
condition or experience to say,well, we do know it affects some
people.
So let's find out how what thisis, what this is like to go
through to have this happen tosomeone in your family or a
friend or something like that,and take what we do know, which
(17:18):
might not be the full scope ofeverything that you'd want to
know about this condition, butlet's collect everything we have
and talk about it and find outwhat ways we can start
normalizing this conversation sothat ideally maybe it inspires
other people to look more intoit and eventually get a broader
and better understanding ofmaybe not even how this might
(17:39):
occur, but what is the best wayto process this condition and
this experience and then whatcomes next, right?
Uh no one should have to gothrough anything uh like a
sudden unexpected death.
But um, if it is happening, howcan we be supporting those
people experiencing that in thebest way possible?
And a lunch and learn is aperfect way to get as many
(18:00):
people on board with that aspossible.
You mentioned that yourorganization, the Epilepsy
Foundation of Georgia, isn'tjust regional, it's a statewide
organization.
And I'm curious, specificallyto your knowledge and training
as a certified rehabilitationcounselor, how does your
background as a CRC equip you tomeet residents in Georgia where
they are and help them navigateepilepsy in their search for
(18:23):
employment, community, or justgeneral understanding?
Courtney (18:27):
So when I think about
that, and with the CRC training,
because it's so much, we get somuch information, and it's just
we want to give it all.
And specifically with thepopulation I work with in
Georgia, they're not just theirseizures, they're their
employment goals, their mentalhealth, their family, their
(18:47):
familial supports, and thecultural context in which they
live.
Because Georgia, whether you'rein a city, whether you're more
in a rural area, maybe you're ina mixed area, the way you
navigate that is different basedon where you are.
So as a CRC, my training isrooted in understanding the
intersection of disability,mental health, and meaningful
community participation.
So, especially around umemployment specifically, because
(19:10):
like I said, I came through asan intern on the EF work side.
So in Georgia, that meansmeeting people with epilepsy
exactly where they are, whetherit's locale or virtually, um,
and discussing, you know, thebarriers that they're facing and
whether they're newly diagnosedor navigating job loss or
facing just stigma in general.
Um, I help them buildconfidence, explore
accommodations reasonable totheir geographic area, and
(19:33):
connect them with employers andother resources that understand
their unique challenges thatthey may be facing.
Because, like we know, justlike with treatment plans,
nothing is one size fit all.
So all resources won't fit forthe same group of people and
even some people within the samehousehold.
And so, just beyond employment,it's about helping them find
belonging in their communities,in their identities, and in
(19:55):
their futures.
So, my role is essentially justto walk with them, break down
the systemic barriers and theones that I can at least, and
then remind them that epilepsyand everything else that they're
going through outside of thatdoes not define their potential
at all.
Taylor (20:09):
I love that.
Yeah, it's not a deficits-basedapproach, right?
Or deducing someone to you arethe epilepsy you experience,
right?
It's it's taking intoconsideration what what does
that epilepsy impact?
What do they want to do tonavigate that that condition?
And in what ways are theyneeding to make connections
(20:30):
within their community to thingsthat are going to help them get
to where they want to be?
And I think that knowledge andthat skill set of being able to
look at the vocational as wellas the community-based
approaches to providing servicesto someone is something in
particular that seems to be athrough line for CRCs.
Because, as you said, you'relooking at the person as a
whole.
And I think as a society, youknow, we've had more
(20:51):
conversations about mentalhealth and disability, and seems
like we're making a little bitof progress and not just looking
at someone who has a disabilityand going, oh, you're disabled
and that's it, you know?
But there is obviously a ton ofwork that continues to be done
to hopefully fight against moreof that stigma.
And I feel like CRCs are theones to lead that charge
because, like you said, you'renot looking at someone for what
(21:14):
they can't do, or you're notdefining them by their
functional limitations only.
It's identifying those andsaying, what other things do we
need to take into considerationto get you into the life that
you want to be living?
And I think that that's justreally powerful and uh inspiring
to watch.
And um, specifically youmentioned too, you know,
something that might work forone person might not work for
(21:36):
another, even in their ownhousehold.
I think that's a reallyinteresting concept.
And um I know the brain injuryCRCs who work closely with those
uh clients have told me in thepast, you know, if you meet one
person with a brain injury,you've met one person with a
brain injury.
It's not going to be one sizefits all.
And that goes a long way, Iwould imagine.
I I don't, I've never workedwith clients in the work that I
do, but I would imagine thatgoes a long way in them looking
(21:58):
at you and seeing and seeingthat like you care and that
you're here to support them andhelp them by not trying to fit
them into a box that's broaderthan their lived experience.
One thing that we've learnedover the last few months uh
about this podcast is we have alot of people who are in their
graduate program who arelistening and trying to gain as
much insight into this fieldbefore they graduate, pass their
(22:20):
CRC exam, and, you know, uhkind of get thrown into the deep
end, if you will.
Um, so I'm curious, you know,from your perspective, whether
it's a new counselor who'sgetting started in the field or
maybe just a member of thegeneral public who's curious
about learning more aboutepilepsy or this profession, um,
what are a few key things thatyou'd want everyone to know
about epilepsy if you had thechance to speak with them?
Courtney (22:42):
Hmm.
So one of the main things thatyou'll hear everyone say when
you ask them that if they workum with someone who has epilepsy
or seizure disorders is thatit's more common than you
realize.
You always hear that one in 26will develop it in their
lifetime, right?
So a couple things.
Um, one of the most importantthings I want everyone to know
is that it's not just aboutseizures.
(23:04):
Epilepsy is a complexneurological condition that
affects every persondifferently, like we've been
saying.
So people with epilepsy arejust that people with hopes,
with talents, with challengeslike everybody else.
So another key point is thatthe stigma and misconception
still exist and they can be asdisabling as the seizures that
as the seizures themselves.
(23:25):
So educating ourselves and thecommunity and others about what
epilepsy really is and what itreally looks like and what it
isn't helps break down thosebarriers.
And then finally, epilepsy ismanageable with the right
support systems and resourcesand understanding, people with
epilepsy can lead fulfilled richlives.
Whether you're a counselor, afriend, a community member, your
(23:48):
awareness and empathy can makea huge difference.
And also, just to throw thatout there, learn seizure first
aid.
It's simple, it saves lives, ithelps reduce fear, and it's
free.
You can do it in person, you'llthey'll have people come out no
matter where you are in all ofthe states, literally, or you
can do it self-paced online andget a two-year certification.
Taylor (24:08):
Wow, that's fantastic.
Yeah, you mentioned earliersomething about uh seizure first
aid.
And, you know, I remember inhigh school or when I've had
jobs in the community where youhave to take CPR training.
I feel like seizure first aidtraining would be just as
important, especially if you'reuh not used to being around
someone with epilepsy and youmight not know what to do in
that situation.
(24:29):
That could go a long way tohelping that person going
through that, as well as, youknow, in some moments of crisis,
right?
People kind of freeze upbecause they have no idea what
to do.
Yeah.
Informing and educatingyourself on the best practices
for, you know, helping in thatsituation could really help
people, you know, not be soscared if it were to happen,
right?
So um, yeah, that's I'm gonnahave to look that up when we get
(24:52):
off this call.
Um that's a really great idea.
Courtney, it's been reallygreat to get to talk to you and
I'm I'm grateful for your timetoday.
Kind of want to close out todayjust with a broad question we
love to ask everyone who comeson the podcast.
Um, as a CRC, as a director, assomeone who is clearly, you
know, working and doing workthat is so transformative.
(25:15):
What brings you joy in the workthat you do?
Courtney (25:19):
What brings me joy in
this work is seeing people
reclaim their lives and theirconfidence, seeing
transformation.
When a parent breathes, easierbecause, like you just said,
they know that their child'steacher knows he's the first
aid, right?
Or when someone lands a jobthat they thought they couldn't
reach because they've had thereceptive surgery.
So their cognitive abilityisn't what it used to be.
(25:39):
That's everything.
So my work is a calling becausethe joy that comes from seeing
people feel less alone and moreempowered.
As a CRC, I get to walkalongside individuals during
some of the toughest momentsthat they might have experienced
and witnessed their resilience,growth, and their
breakthroughs.
So knowing that little old meplayed a part in helping, you
(26:02):
know, someone realize theirpotential and live full of
lives, that just makes the workmore than a job.
It's a cause.
Taylor (26:08):
So thank you to Dr.
Courtney Dean for an excellentconversation on this episode of
Inside RehabilitationCounseling.
There are some really greatlinks to the work the Epilepsy
Foundation of Georgia is doingin the show notes, including a
link to a free on-demand seizurefirst aid training that I will
absolutely be doing after wewrap up this episode.
If you have any comments orinsights to share about today's
(26:30):
topic, email us at contact us atcrccertification.com.
You can also find us onFacebook, Instagram, and
LinkedIn by searching CRC Cert.
Like, subscribe, and rate theshow on your favorite podcast
platform, including Spotify,Apple Podcasts, or wherever
you're listening to us today.
And hey, if you have an episodeidea for a future show, let us
(26:52):
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Thanks for listening to InsideRehabilitation Counseling.
I'm CRCC, Director ofCommunications and Marketing
Taylor Bauer.
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