Lipedema Link

Lipedema Link

"Lipedema Link" is your essential podcast connecting individuals navigating the challenges of Lipedema. Join host Don-Ellen Ray, a passionate advocate and Lipedema survivor, as she explores this misunderstood condition. Through expert insights, personal stories, and empowering discussions, we provide support, information, and inspiration. Join our community, gain knowledge, and embrace resilience on your Lipedema journey. Tune in for valuable resources, practical tips, and a sense of unity. You are not alone—discover the power of the "Lipedema Link" today!

Episodes

October 22, 2023 49 mins

Get the inside scoop on conservative treatments for lipedema directly from Sandra, a physical therapist and lipedema warrior herself! 💪 In this info-packed episode, Sandra explains manual lymphatic drainage, compression garments, vibration plates, aquatic therapy, dry brushing, and more. You'll also learn exercises and lifestyle tips to reduce swelling and pain through movement. If you or a loved one lives with lipedema, don...

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Zahra shares her story of discovering she had Stage 1 Lipedema in her early teens. She details the frustrations of misdiagnosis, finding the right surgeon, insurance battles, weighing surgery vs conservative treatment, her experience with liposuction, and how she maintains a healthy mindset living with a chronic condition.

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Pattie shares her incredible journey of overcoming severe mobility issues from lipedema using strategic fitness and exercise. Learn how she went from barely being able to walk to completing triathlons and CrossFit in this motivational interview.

We cover her tough diagnosis struggle, how she created her own modified at-home workout program, and progressed to doing hardcore CrossFit training. She provides tips on pool exercises, yog...

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Struggling to get your lipedema surgery covered? In this jam-packed episode, the top lipedema patient advocate Antonio shares their best tips for navigating health insurance. Learn how to: Put together the STRONGEST pre-authorization package Work with both in-network and out-of-network surgeons Handle denials and successfully appeal Avoid paying high upfront costs With over 550 women helped and $40+ million in approvals, these e...

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In this episode of Lipedema Link, host Don-Ellen Ray interviews patient advocate Karie about tips for getting insurance coverage for lipedema surgery. They discuss the history of insurance coverage for lipedema, finding qualified surgeons, ensuring surgical safety, and being your own advocate. Karie provides insight into getting the right documentation and appeal strategies. She emphasizes doing thorough research on surgeon qualif...

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In this episode of Lipedema Link, dietician Bonnie Newlin joins hosts Don Ellen and Phil to discuss the best anti-inflammatory diets and supplements for reducing lipedema symptoms. Bonnie shares her experience with lipedema and weight loss, and provides an overview of popular diets like keto, Mediterranean, RAD, plant-based, and vegan. She explains how these diets can help manage lipedema inflammation through a focus on whole, unpr...

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In this week's episode of Lipedema Link, host Don-Ellen speaks with Karen LaVoy, who shares her journey living with advanced-stage lipedema. Karen talks about the challenges of getting diagnosed, finding the right doctor, and deciding to move forward with liposuction surgery. Karen shares her symptoms over the years like easy bruising, heavy and painful legs, and eventually arm involvement. After self-diagnosing and finding a ...

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In this eye-opening podcast episode, Don-Ellen Ray shares her personal journey with lipedema, a misunderstood and often misdiagnosed disease that affects millions of women worldwide. Lipedema is a chronic condition characterized by the abnormal accumulation of fat in the hips and legs, causing physical and emotional distress. Join us as we delve into the symptoms, challenges, and the uphill battle women face in getting proper diag...

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July 20, 2023 1 min

"Lipedema Link" is your essential podcast connecting individuals navigating the challenges of Lipedema. Join host Don-Ellen Ray, a passionate advocate and Lipedema survivor, as she explores this misunderstood condition. Through expert insights, personal stories, and empowering discussions, we provide support, information, and inspiration. Join our community, gain knowledge, and embrace resilience on your Lipedema journey....

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