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September 23, 2025 β€’ 6 mins

BONUS EPISODE #10: My ME/CFS Clinic Appointment


Keywords: Long COVID, ME-CFS, medication, low dose naltrexone, GLP-1 agonist, health management, patient experience, community support

Summary: In this episode of Long COVID Real Talk, Katherine Marie discusses her recent appointment at the Stanford ME-CFS clinic, focusing on medication management, personal experiences with long COVID, and the importance of community support. She shares insights on her medication adjustments, including low dose naltrexone and GLP-1 agonists, and reflects on her lifestyle changes and interactions with listeners.

Takeaways:

  • The importance of medication management in long COVID treatment.
  • Adjusting dosages of low dose naltrexone can be challenging.
  • Personal experiences with medications can vary widely among patients.
  • Community support plays a crucial role in managing long COVID.
  • Lifestyle adjustments, like cold water showers, can impact symptoms.
  • Patient feedback is valuable for understanding treatment efficacy.
  • Engaging with listeners fosters a sense of community.
  • Anecdotal evidence is significant in the absence of large studies.
  • Communication with healthcare providers is essential for effective treatment.
  • Maintaining a balance between activity and rest is vital for recovery.


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Listen to our podcast here: www.longcovidrealtalk.com

https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments β€” or just want to say hey! I LOVE hearing from you! :)

Email: longcovidrealtalk@gmail.com

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DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site.

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

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