Episode Transcript
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Don Priess (00:00):
When the world has
gotcha down, and Alzheimer's
(00:04):
sucks, it's an equal opportunitydisease that chips away at
everything we hold dear. And todate, there's no cure. So until
there is we continue to fightwith the most powerful tool in
our arsenal. Love. This is LoveConquers Alz, a real and really
positive podcast that takes adeep dive into everything.
(00:25):
Alzheimer's, The Good, the Bad,and everything in between. And
now, here are your hosts SusieSinger, Carter, and me, Don
Priess
Susie Singer Carter (00:40):
Hello, I'm
Susie singer Carter.
Don Priess (00:43):
And I'm Don Priess.
And this is love conquers all.
Hello, Susan.
Susie Singer Carter (00:47):
Hello,
Donald. How's it going?
Don Priess (00:50):
Terrific. It's a
lovely day outside, we actually
getting some, you know, actuallyweather more than 61 degrees for
the first time in forever. Yeah,
Susie Singer Carter (00:59):
we're not
going to talk about weather. Are
we?
Don Priess (01:01):
No, no, just wanted
to I looked outside. And that's
what came to mind. So. So what'shappening?
Susie Singer Carter (01:09):
So not much
was happening. Well, we're still
still brain dead from from, wedidn't finish in our
documentary, folks. So this isvery exciting. And we just doing
like all the spit and polish onnew country for old people. And,
you know, I'm gonna want tothank everybody for who has been
(01:34):
amazing supporters of thisproject, financially and also
just emotionally and spirituallyand in our in our vision vision,
you know, and I think that wecan't thank you enough because
it this has been a beast of aproject. And we are, we are
(01:55):
standing at the finish line.
Now, what do we do with it?
That's the next big streamers,which is like, you know, a case,
if anyone isn't in theentertainment industry, you
probably won't know howdifficult it is. Now, the
industry is so changed, and it'sjust turbulent. And not you.
(02:21):
There's no rhyme or reason. init. It's just like the wild wild
west out there. So we're, we'reforging ahead and trying to to,
to navigate this and find thebest home for No Country for Old
people so that the most peoplecan see it. Because it's really
important.
Don Priess (02:41):
Yeah, because
everyone just says, Oh, just put
it on Netflix. Not that quitethat easy. But Sure. Let's do
that. Right.
Susie Singer Carter (02:48):
Right.
Yeah. And what's interesting isthat, you know, like, we have
another film called my mom andthe girl, which is about the day
in the life of Alzheimer's withmy mom with Valerie Harper, and,
you know, and that, that got alot of distribution. And it's on
PBS, and PBS. Everyone thinks,oh, that's, that's fantastic,
(03:09):
which it is, but it's reallymore bragging rights, because it
doesn't really reach theaudience that we need to reach.
So so we're trying to to throw areally wide net
Don Priess (03:25):
very wide because
everyone needs to see this. It's
such an important message. Yeah,but
Susie Singer Carter (03:31):
yeah,
onward. Yes. Yeah. If anybody
has any connections to the bigstreamers, we welcome them. We
will. We will. Thank youimmensely. Yes. We're trying to
get into all of them. Any ofthem. And, and Hulu and
Paramount. Apple plus would begreat. And Amazon, do I mention
(03:55):
Amazon? And now
Don Priess (03:57):
you did. No, I
Susie Singer Carter (03:58):
did. So
yeah. Anything with you don
anything exciting? No,
Don Priess (04:04):
nothing. I mean, you
know, exciting is just the fact
that every day we get closer tofinishing, that's exciting. So
but no, nothing. Nothing inparticular.
Susie Singer Carter (04:13):
Sleep for
you. Sleep is exciting. Sleep.
It's very exciting.
Don Priess (04:16):
I I would know,
haven't had it in about 22
years. But yeah, let's go forthat. But not now. We are not
sleeping. Now. We have anamazing guest today. Yeah,
Susie Singer Carter (04:27):
yeah. Who's
really it's, you know what, I
have a lot of questions for ourguests. So get
Don Priess (04:34):
she has a lot of
answers. All right. Here we go.
Author practitioner, educator,management coach, presenter,
mother and grandmother. Dr.
Attell. Lord is a pioneer in thecontainment of dementia.
Spending 21 years in the care ofher husband Larry living with
vascular dementia andAlzheimer's truly motivated her
(04:54):
career path. A global DementiaCare shaper she has The founding
president of the Internationalcaregivers Association, a
dementia management consultant,and creator of the transactional
dementia intelligence or TDIbusiness model of dementia care,
a whole system, which includesmanagement, training, care and
coaching. She has also authoredthe enlightening book,
(05:18):
Alzheimer's and dementiacoaching, taking a systems
approach and creating anAlzheimer's friendly healthcare
workforce. As Dr. Lord says, oneof the biggest challenges people
face is the lack of basicinformation on where to begin
what to do and how to do it.
Well, this dementia warrior ishelping the world face those
(05:39):
challenges. And we are honoredto have her with us today. So
let's say hello to Dr. Attell.
Lord. Hello, Dr. Lord. Thank
Dr. Ethelle Lord (05:48):
you for having
me today. I appreciate it. Nice
to meet.
Susie Singer Carter (05:53):
You, you're
very I've been looking forward
to talking to you for a longtime. And, you know, social
media is so incredible becauseit opens our world to people
that we wouldn't normally get achance to, you know, be be aware
of, and I've been aware of yourwork. And I'm such a fan. And
I'm a fan of, of your approach.
And if you don't mind, I kind ofwant to just jump in and have
(06:17):
you explain exactly what yourapproach is, in terms of this
system that you've created thetrend, the transactional, which
I want to know why it's calledtransactional dementia
intelligence. TBI.
Dr. Ethelle Lord (06:34):
Thank you.
It's a system because we have asystemic problem. You cannot
approach a systemic problemwithout a systems approach. And
so the transactional dementiaintelligence business model is a
systemic systemic solution tothe problem we have now really,
basically to say than onesentence, it's opening a closed
(06:57):
system. We have a closed systemin dementia care today, and even
long term care all of iteverywhere is a closed system.
And I'm not sure if you're awarethat anytime you have a closed
system, you're open to neglect,abuse, and death.
Susie Singer Carter (07:18):
We are
aware.
Dr. Ethelle Lord (07:22):
So we are the
first ones to propose something
to open the system with this TDImodel, and I'm sure others will
come down the pike. We're justone example. But we happen to be
the first example we have tostart with one.
Susie Singer Carter (07:38):
Before you
go on, can you just tell me what
a closed system is? So we have aframework for what that means?
Dr. Ethelle Lord (07:44):
Yes, a closed
system. Let me give you a couple
of examples. Like we have somegroups, religious groups,
they're closed, you have tofollow all their dogmas and all
that and the very strict. And ifyou look really closely, there's
abuse in those systems,politically, the same thing. So
(08:07):
in the long term care system,you can put your mother in a
long term care system or yourfather. They'll welcome them as
a resident and a client, orwhatever they may call them. But
they don't welcome you. Right.
They don't want your advice.
They don't want to see you. Theypretend to want to see you, but
(08:30):
they are very uncomfortable. Andif you look at my latest post on
LinkedIn, you'll see I haveopened that that can of worms.
I've published many videos thatshow you the abuse that goes on
on a daily basis. We don't seethat. I was just visiting
nursing home this weekend inMaine. And the person I was
(08:53):
visiting is a lady 89 years old.
They said she threw herself outof her chair just the night
before because she wantedattention. It's horrible. What
happens. Horrible, it happenseverywhere. So we want to open
that system. And by opening it Imean, we're going to include
family caregivers and train themas TDI care partners. And they
(09:15):
will be wearing a lapel pin thatsays that so you can recognize
that person has taken trainingand is allowed there 24 hours a
day. So we're going to increasethe staff we're going to see
when third person falls down oris about to fall down. Somebody
is going to notice that somebodyis abused as being beaten up or
(09:35):
slapped with whatever they haveto slap them with. It's going to
stop because there'll be eyesthere a lot of more eyes and we
need more eyes. The TDI also isstructured because I have a
background in management andleadership. I made sure that the
system the approach that Icreated, was also favorable for
the ROI return on investmentbecause that's what is governing
(10:01):
the world today. Globally, it'smoney that you can make. Well,
the turnover and burnout is inthe CNA, which is certified
nursing assistant is over 100%over 100% in the United States.
So if you just take that one,figure one classification,
(10:23):
they're gonna make money,because the turnover won't be
there. Why? Because the systemI've created requires six hours
of training for CNAs, but eighthour pay, they want leave, they
will be trained every day, theywill be supported by a dementia
coach at the center of theorganizational chart. And
(10:44):
they'll be trained by thatperson supported everything
know, even nurses and doctorsright now, in long term care.
There's no support for anyoneyou're on your own. Most
administrators are simplymanagers for the business owner.
And so they look at at how theycan fill the beds or not filled
(11:04):
them, whatever it's it's moreadvantageous. Financially,
they'll do that. They'll takethat step. With the TDI it's not
a program that we sell, it's aprogram we license, why do we
license it, we license it so wecan keep control over the
quality quality control. We wantto make sure those CNAs do not
(11:25):
work more than six hours, butthey receive eight hours pay. We
want to make sure that thedementia coach is there every
day, to intervene with anychallenges that come up. When I
was visiting this weekend, forexample, one of the resident was
speaking French. There were noworkers who could understand
(11:45):
her. I was there and I conversewith her. She was very excited,
she wanted to go home, and shewants to get out of her
wheelchair and walk home. I wasable to calm her down, but
nobody there could do that.
Right.
Susie Singer Carter (12:00):
Right.
Right. So, you know, this isthis is touching very closely to
our documentary and the kinds ofissues that we're dealing with,
right with the systemic issuesand, and which are pervasive,
and especially when you'redealing with people who have
dementia with you know, in termsof ableism. So, my mom had
Alzheimer's and in the peoplethat are easily ignored are
(12:25):
going to be ignored. They're thefirst ones to be ignored and
dismissed and neglected andabused. And, and, you know, and
nobody is trained, like yousaid, in dementia or Alzheimer's
care. Really nobody is there'sso much misunderstanding and
assumptions and stigma. And fromin the end, it's rampid in the
(12:50):
healthcare system, it's not justyou know, the world it is, you
know, or civilians, as it were,it is the health care system
that really is untrained. So,that said, how do you get this
incredible system to be a part?
How do you get it accepted andembraced to be licensed, when we
(13:15):
know that these are, you know,for the most part, our long term
care are overrun by privateequity, who don't really care
about the quality, they careabout the profit.
Dr. Ethelle Lord (13:29):
That's right.
So that's why including profitin it. It's very attractive,
they're going to make moremoney, there's no doubt about
it. What's attractive about itis that we take the system you
have now the facility not thesystem, but the facility that
they that is exist in existence,and we adapt to that facility.
Let me tell you that in 10 yearsfrom now, 20 years from now, you
(13:52):
want to see what you see today.
Because one thing onerequirement of the TDI licensing
is to remove not only unlock butremove the memory care unit
doors that are locked right nowthey call them locked units.
(14:12):
Please remove that that isabsolutely crucial. That has to
be removed and has to be freecirculation. In 1020 years, I
can see the entire facility openand people can walk out for to
give me an example that ladythat wanted to go home. I would
have been able to take heroutside. Right I would have been
(14:35):
able to push her wheelchair andtalk with her until she changed
her mind and we could return tohers her space. The reason that
those units have been institutedis truly to protect the staff
not to protect the residents. Ihave seen people die behind
(14:56):
those doors. I don't thinkthat's acceptable. Mo, and
therefore I don't I find thesystem no longer acceptable.
That's why I created this newbusiness model this new systems
approach to dementia care. And Ican tell you, Susan, that what's
the good news about it? Is itgoing to affect the entire
healthcare system? Because ifthey could put a coach in
(15:21):
hospitals, in Psych units, wewould do better with patients.
So we need to look at the wholehealthcare system. I know
they're changing with AI. Nowthere's a lot of changes going
on, that maybe this is the righttime to introduce the TDI
because everybody seems to bedissatisfied with what's going
(15:41):
on. So you were asking me whattransactional means.
Transactional means exactly thatI want a person to be able to,
like I did this weekend,communicate with this person.
One time I had a man that waschasing me down the hall, a
resident with dementia, and hewas in tears. And I came back, I
(16:01):
said, let's go back to talk tothe nurse. When we got to the
desk, and the nurse said, I saidhe wants to talk to his brother.
And she said, Well, his brotherdied. And he was pounding on the
counter, I want to talk to mybrother, I want to talk to my
brother. And I said, and thenurse said he died and she had
tears in her eyes. And I said,That's so easy to fix. I started
(16:24):
pounding with him, and I said,You love your brother, don't you
and He loves you. And thepounding stopped immediately.
Because because your brain ishardwired for feelings. It's not
hardwired for reasoning orlogic. It's it's feeling sad,
mad, glad and scared. And so ifthe person that's dealing with
(16:46):
somebody with dementia cannotget down to the right side of
their brain and look at feelingsin that person, they never
understand them. And it's only aSkel escalates, goes to, to
anger, and then maybe someaggression as well. Dementia is
not an aggressive condition, atall, is the way that they are
(17:09):
treated. And misunderstood.
Right. Is that we want to agreewith you. No, yes,
Susie Singer Carter (17:17):
I agree
with you. 100%. I mean, I
couldn't agree with you more.
Again, I just maybe I just wantto understand, I love all of
what you're saying everything isis spot on there isn't you know,
like I learned the hard way,like most of us because we
aren't trained in it. Right. Andand, and, you know, I feel like
I got really good at it. And mymom and I could talk with no
(17:41):
words from her. We had full onconversations, though. For sure
we did. And you know, I had herlaughing I had her mug,
swooning. And you know, thewhole thing. She She was there
that took that took, you know,patience and figuring out, you
know, like you do with children.
(18:05):
And I'm not infantilizing. I'mjust saying when your brain
works a certain way it works acertain way. So you lean into
the strengths, which are likeyou said, emotions, feelings. So
Anywho. How do we get thiscorrupt system to see like you
said the value financial valuein it? Is there is that? Are you
(18:27):
being successful in it now? Orare you still working that out?
I'm fascinated to hear this?
Dr. Ethelle Lord (18:35):
Well, first of
all, it just we've just launched
a program late last fall. Sowe're negotiating now with and
talk in talking sessions withlarger organizations. There is
money definitely for them tomake. But let me tell you as it
is, right now, those systems areunsustainable. They cannot
(18:55):
sustain those much longer. Andso the government keeps coming
out with new regulations and newrules. And it's as thick as you
know, you can you can measureit, it's very thick. And so this
is going to simplify things.
Because we're putting thepressure or removing the
pressure from management andowners, and also the pressure.
(19:17):
That's the way they're treatingstaff is unbelievable. It's
almost they're like slaves. Soplease stop that. Please stop
that. We want to make sure that,for example, nurses and CNAs are
trained but tested on a regularbasis, not to see if they pass
or they don't pass. We want tokeep every one that that needs
(19:39):
to be there. But we want to knowwhere they might need more
information. They might needmore support more coaching.
That's the purpose of the thingis not to punish anyone and is
for for the dementia coach totake the pressure off top
management and The rest of them.
(20:01):
And the TDI is really trainingeveryone from owners, to
janitors and family caregiversin between. Now, we never start
with saying, Susan, you have anice business we would like you
to, to introduce a TDI we wantto serve, we want to assess
your, your capabilities for sowe give them a new evaluation
(20:25):
sheet that they need to, becauseI've already refused some
people. Why? Because I saw theywere like slum landlords, they
were there just to make themoney. And we don't take those
people, those people will neverchange.
Don Priess (20:40):
So what are such a
large there's such a large
percentage now that are theprivate equity that are making,
you know, handle money, handover fist that won't care, as
you say, but there's so many ofthem that are that it's it's,
it's probably the majority nowby far is private equity. So how
do we get around that? Or do wejust say, you know, what, like,
(21:02):
you just said, we can't fixthat. But we're going to do as
much as we can with those whoare not? That's
Dr. Ethelle Lord (21:07):
right. That's
what we'll do. We'll step over
those absolutely will refusethem. Eventually, they'll see
that they're not making thethey're not getting the
business. Because, like youSusan, wouldn't you rather put
your mother in a TDI facility?
Then? Where you know, okay,yeah, that's what we're looking
at. And that's what people wantright now create competition.
Susie Singer Carter (21:29):
But it also
educated Yes, competition, and
it's educating the public tounderstand that there is a
difference in care. Right. So,so that, you know, they can go
in and go, Well, do you havethis kind of service? Do you do
provide this? And if they don't,then you look elsewhere? That,
you know, one of our one of ourinterviewees who's a simply man
(21:52):
in New York was saying, that'sone of his, you know, cries is
to say, we need competition,because without competition,
everything is just staying thesame. You know, you'll, you'll
hear in our documentary how thechaplain told me, my mum, don't
worry about because she's gotshe has dementia, she has holes
in her brain, you don't have toworry about her. She doesn't
(22:14):
know anything. And I said, Ithink you got it wrong. Think
you got the holes in your brain?
You don't know. You don't knowanything about Alzheimer's
clearly. But you know, this iswhat you know. And that is
that's that's, it's a horrifyingfact. But that you know, that we
have these professionals thatdon't that are working in elder
care, where dementia is one ofthe you know, the main issues
(22:39):
that we deal with as we growolder, one form or another, and
yet they don't have anyunderstanding of it. And so
people are being basicallywarehoused in these kinds of
situations where they're justbilling and making money off of
them. Yes.
Dr. Ethelle Lord (22:58):
And to follow
up on Don some message just a
minute ago, they're not onlywarehouse, they're actually
doing elder trafficking, whichis unacceptable. The other thing
is that you have to when you seethe holes in the brain, what
happens with dementia to explainit quickly. There's a good
theory behind it, and I was theone to discover it. So I'm
(23:20):
teaching it now in the TDIcertification program. We have
two sides who are bringing aright brain and left brain. Now
both of us are using right andleft right now when we get to
emotions, we're into the rightbrain where we get to asking
questions, answering questions,were into our left brain, a
person living with dementia,most of their right brain, and
(23:42):
they retired their left braincompletely. Now you can imagine
if somebody comes to a personthat's in their right brain,
they no longer use their leftbrain. And they say to them,
what did you have for breakfasttoday? That's a question that
requires left brain information.
And they don't have it. So allthey're doing, they're pushing
them further into their, theirsadness, of losing memory, and
(24:05):
then they may get angry becausethey're embarrassed, whatever it
is. So unless the providerswhich means the doctors, the
physical therapists, the nurses,the CNAs, even your janitor, if
they do not enter that room,with their left brain and
already functioning, they willnot be able to communicate with
(24:29):
that person living with dementiais very sad. After that, after
they communicate with them, theycan go to the left brain because
the nurse might have to dosomething a treatment or
something that's a left brainproperty. It's not right. And so
we train people like that wehave a very, like a 10 week
training to get to become adementia coach.
Susie Singer Carter (24:54):
It's it's
great. It's wonderful. It's
something and I think I wasreading in your in your A PDF
that you sent about, you know,family members getting that kind
of education because it wouldhave saved us a lot of stress.
You know, my mom lived withAlzheimer's for 16 years. And so
we learned by rote, but it took,you know, it took a while, and
(25:18):
we cared about her. So, youknow, we were, we were really,
at least I was in my daughterswere very interested in figuring
out how to make the best of thesituation. And so, you know, but
not everybody has a family orfamily that has the time to, you
know, invest in learning asthey're tripping. So I think,
(25:38):
you know, in inserting what youadd your education, that kind
of, of knowledge is soimportant. And it should happen,
like early on.
Dr. Ethelle Lord (25:49):
Yes, actually.
Very, very good. And I liked thepoint that you raised about the
family caregiving, because eventhough your mother was in suits,
institutionalized familycaregiving, at that point, you
could have gone to the dementiacoach, and say, can you tell us
how to better do here, becausewe see my mother is not, is not
understanding what I want to do.
(26:14):
The dementia coach has allavailable solutions for
families, for workers fordoctors, I had doctors that came
in and did not know how toapproach my husband, and I'm
sure you saw that with yourmother. I had to fire a couple
of doctors, because they justdidn't seem to want to get it.
(26:36):
And they didn't ask for it. Ihad the oldest, the only doctor
that asked me was an olderDoctor ready to retire. And he
said, Please teach me.
Susie Singer Carter (26:47):
Ya know,
there, it's, it's, it's actually
horrifying. I mean, I rememberwhen my mom was in the early
stages, and I would take her tothe doctor and the doctor, would
they be lose their patientsreally? You know, and, and
really, it they actuallyexasperated any kind of behavior
that they didn't want by askingher questions that she couldn't
(27:10):
answer. So my mom being youknow, the force that she was she
was trying with, with all her,you know, sense of humor and her
Jawad Aviv to like, you know,step up and really, you know,
meet what they were asking for,but it couldn't. And instead it
just it I know what you said it,I certainly did embarrass her.
(27:30):
And it certainly did hurt her.
You know, and I did a lot ofdamage control. And that's just
so unfair. It's so unkind.
Dr. Ethelle Lord (27:39):
Yes, that's
right. And even when for dental
care with my husband, thedentist did no know how to they
were afraid. Why? BecauseBecause because there's a
there's something out there.
People say, I hear that all thetime that people can be
aggressive when they havedementia. Or the worst one I
heard the other day is a womansaid, my sister is living with
(27:59):
her husband and he's beendiagnosed with dementia, and
they sleep together. Do youthink she can catch it that way?
Oh, yes. Yes, yes. So thosekinds of things, you know, they
can be answered by the dementiacoach. Also, when you go to the
dentist, the dementia coachcould prepare you to help your
(28:19):
mother helped me with my husbandto do better. And I use a lot of
Reiki, you know, to call myhusband down and also to
communicate with him once. Oncehe couldn't speak anymore. Use
Reiki master Reiki was helpingme to understand him better.
That's
Susie Singer Carter (28:40):
amazing.
Can I tell you a really funnystory really fast, funny story.
My mom needed to get a biopsywhen she was living with me that
she had, perhaps a mammogramcame back and they needed to do
a quick biopsy. And I took herto the doctor and they were in
they said we're in the in, youknow, waiting and radiation and
they said, Okay, normos next,and I said, Okay, do you want me
to go in with you? Oh, no, wewere fine. I said, you know, she
(29:02):
has Alzheimer's, right? Thatwe're fine. Wasn't 30 seconds.
See here? We're back out therewith her. She's like, I'm not
getting on that table. Are youkidding me? Get me the hell
alone. Get away from me. And soI said, maybe you need to
reschedule. I said, Are youkidding? No, we're here. I'm
going in. I put on the coat. Igot under the table because she
(29:22):
had to go like sit on this tablewith a hole in it. Right for the
boob. And I said, I sang songs.
I made her laugh. I did. We gotthat biopsy. That's like, we're
not leaving. But I mean, theydon't know. They didn't know.
They were like, they had noclue. 30 seconds. They were
(29:43):
like, Yeah, we can't do it.
Dr. Ethelle Lord (29:46):
But it was
still traumatic for your mother
at first. Sure. And one thingthey asked me for my husband,
they wanted to do colonoscopyand I said no, he has Dementia.
And there's no more exams ofthat sort for him. He was live
and he lived for 21 years verywell.
Don Priess (30:10):
So, because because
family is such a big component
of TDI, and that Susie said, noteveryone has family or not
everyone has family who careenough to get involved. How does
it balance out? For those who donot have family? You know, how
does this a staff have to? Imean, how has that worked into
the equation? So everyone getssimilar care?
Dr. Ethelle Lord (30:33):
Right? Well,
when I was my husband was in
long term care, I acted as adementia coach, and I was the
family member for a lot offamilies. Because you're right,
a lot of them don't havefamilies or the families doesn't
want to get involved period.
I've heard of a story where theman brought his mother in and
said, Don't call me only call mewhen she's dead. So that person
(30:54):
was left alone. And with theTDI, we look for a small
percentage, not every familycaregiver will qualify to be a
TDI care partner, they have tobe well balanced, they have to
be intelligent enough tounderstand the training. And
they have to be willing to showup. So we have a lot of people
(31:15):
that wanted me out, we have alot of people that want to do
that, because they want to bethere for the last breath. They
want to be there to the end oflife. That's what commitment
means. When you're married, oryou have family. If it's your
mother or father, you want to bethere. But some people don't.
And that's fine. We don't wedon't discard that we don't look
(31:37):
down on them. We just take theones just like the
organization's the ones thatwill pass the assessment and are
willing to do it and trained andthey have a dementia coach to
back them up.
Don Priess (31:52):
Is there any
component of leaving this to me
because I know Suzy, when hermom lived with her for a year,
she still needed a caregiverwith her also to help. And for a
while she would be going tothese agencies, and they'd be
sending over these caregiverswho were, you know, supposedly
trained in Alzheimer's. And theywere just having one of them
after an hour was like, I'm outof here, you know. And Eric
Susie Singer Carter (32:17):
was
walking, talking and she was
going to that stage
Don Priess (32:20):
wasn't mean she but
she wasn't mean she was just
like, I don't have
Susie Singer Carte (32:24):
Alzheimer's,
you got Alzheimer's? Not me.
You're crazy. Yeah. She was indenial. And you know, and then
can
Don Priess (32:32):
can this system be
used? For the I mean, could this
type of training be used? Andthat because a lot of people are
in that situation? Where they'renot in a particular facility,
but they are utilizing those?
Those types of caregivers?
Susie Singer Carter (32:45):
Outside
caregivers? Yeah, yeah.
Dr. Ethelle Lord (32:47):
When we, when
we, when we say, dementia care,
we involve healthcare, homehealth care, home care, assisted
living, long term care daybrings all those system wherever
you deal with dementia care, youought to be trained for it. So
what you just described is Iwent through that as well. So it
(33:10):
was a one time there was a womanthat came in and she happened to
shuffle her feet. And my husbandsaid, I don't want her she
shuffling your feet too much.
And it was easy to replacepeople because none of them had
training. None of them hadtrained, right. And so when they
came into my home, I had totrain them the best that I
could, but with limitedresponsibilities, because I
(33:33):
could see they had no trainingwhatsoever. And I understood
they weren't paying very thepaid very well as either. That's
why we included that six hourwork for eight hour pay is much
better, right? And we don't wantwe don't want shifts, even
nurses cannot work long shiftsin our system, right? They can't
afford double shift like theyare asking for them to do now.
(33:56):
That has to stop. So it's goingto change everything. But Susan,
you would be involved you wouldhave been trained as a care, TDI
care partner, and we would havewelcomed you and you would have
had a ball.
Susie Singer Carter (34:12):
Oh, yeah,
no, I, I was I would have been
up for it. I was up for it.
Anyway, I learned on my own. Ifigured it out, you know, but I
was motivated. I you know, itwas it was, you know, if I
wasn't going to cure it, which Ithought I would try. I thought I
was going to cure it. Thatdidn't work out. So I can't cure
it. I will teach it who's boss.
(34:35):
And I tried my best but, youknow, I would I find it very
frustrating that and, you know,and I'm sure you do, too, that,
you know, we all know, asdoctors know this for a fact
that, you know, a very largepercentage of our well being
(34:56):
starts here, right? And so, youknow and It is it's so
important, you know, when you'regoing into surgery, and you
know, you'll hear doctors, youknow, you gotta go in with a
good, good, you know, positiveframework, and we know that it
helps healing, we know that it'snot Uyu it's for real, because
our bodies are our minds arevery strong. And for some
(35:19):
reason, you know, after acertain age, well, we know what
the reason is, it's calledageism, that component of the
healthcare system is notaddressed. And so it just
becomes, you know, addressingthe physical needs, you know,
and, and, and forgetting aboutthe other, the other component,
(35:41):
the, the mental, the emotionalcomponent of well being, you
know, and I would often say thatto the facility, what Ramon was
out is like, what quality oflife are we doing here? Like,
what is the quality? Like, youknow, let her eat, she wants to
eat, that's her life is eating,you know, if she chokes, she
(36:05):
chokes, but staring at a wallwith nothing to do, and that is
not life. And, you know, and Idon't know why it is not part
of, you know, geriatrics that wedon't deal with that part of
living, you know, otherwise,let's just all take a pill after
(36:27):
a certain age, right? I'm notI'm being funny, but not, you
know, I
Dr. Ethelle Lord (36:33):
think you know
the answer already. So, our
society does not respect theelderly. And yet, it's the most
beautiful part of life. Becauseby then you have experience, you
can relax, you can say whateveryou want, you know how to do
things, you've seen life, youlook at the younger ones. And
(36:53):
you wonder if they're suffering,because you have suffered, you
know, what it's all about, youhave empathy. So our society
needs to start to understandthat, just like they do in other
societies, that there's a lot ofwisdom in the elderly. Let's go
and see what that is. And you'reright, there is not enough life.
(37:14):
There's not enough activitiesthat are really what they call,
you know, centered, centeredcare. For, you know, you're
looking at what the person likesor dislikes, and you meet those
requirements. That's just to me,I've seen so much of it. And
I've heard so much that I thinkit's just words, let me see the
(37:35):
action. I want to see them inaction.
Susie Singer Carter (37:38):
Right? I
remember, you know, I took my
mom out of memory care, right?
Like she wasn't supposed to gointo memory care. My stepfather
who didn't have dementia, passedaway, they were just moving to a
new facility together, assistedliving. And when he passed away,
they said, Oh, well, she can'tgo into the regular side,
because he's not there to be,you know, to help out. So they
said, We're gonna put her inmemory care. And I mean, within
(38:01):
a month, I had her out becauseevery time I got there, she was
a my emotional Basket Case, likecrying. She was like, and I
remember when we first went in,or the first day, just getting
back to what you were sayingabout activities. There was all
these people sitting around atable cutting paper flowers, and
my mother said, What am I threeyears old? Get me the hell out
(38:23):
of here. What the hell is this?
She goes to Z, don't leave mehere. And I was like, I was
like, What am I and you know,and then they start in, you
know, which we addressed. And Idocumented that the gaslighting
is like, you're just you havecaregiver stress. This is what's
(38:43):
best for your mom, trust us.
She's this is good for this issafe. This is you know, it's for
this is where she belongs.
Donald tell you because we'vebeen friends forever, like my
daughter's and I went in thereone day, and I said, grab her
purses and start shoving herstuff in there. She's out, well,
I'm taking her home. This is nota place to live. Nobody should
(39:05):
live in those places like that.
It's awful.
Dr. Ethelle Lord (39:09):
Well, it's
similar to what I heard the
other day, when you take whenthey take your keys away,
because they can't drive out ofsafety and so on. It was
recommended that somebody takesyour keys for only one week,
only one week and see how thatfeels. But I understand what
you're saying. And personcentered care is not what they
(39:30):
do today. Most of the time,there's just very few instances
I've seen. I've seen a programlike that in Australia, in other
countries, but in the UnitedStates, it doesn't matter what,
what how much you pay. I had afriend from New York say, Oh my
gosh. And you know, in New York,there are places that are very,
very expensive. I imagined thatthe care is better. I said Not
(39:53):
really. It doesn't mean becauseyou pay
Don Priess (39:57):
It's better. It's
interesting. My mom's in
assisted living in She pays alot dearly, dearly. And it's a
beautiful, absolutely gorgeousfacility. And they've got great
food, a beautiful restaurant.
And the one of the things weliked is the caregivers, they
were very social with my mom,they just come, they'd sit down,
they'd spend time with her, allof a sudden, they get the
(40:19):
notice, no more socializing.
It's taking up too much of theof the CNAs time, you know, and
now they,
Dr. Ethelle Lord (40:28):
you know,
don't I'm sorry to interrupt
you, but it's a matter of time.
And the people that are there,the CNAs, there's not that many.
They allow them six to 16patients per person. It's
ridiculous. But imagine what theTV imagine with a TDI model,
your mother would have youthere, or Susan or myself would
(40:52):
be visiting. And we would helpher we would do the socializing.
Susie Singer Carter (41:02):
Right,
right. Right. Yeah. I mean, and
in terms of like, in terms ofjust to piggyback off what you
just said, Dr. Lord, about, youknow, all of us being involved
in the system. You know,Medicaid, once a person outlives
their their savings, and theyhave to go into Medicaid. Well,
(41:22):
Medicaid doesn't account forthose kinds of extras, which
they consider extras, you know,and so, or Medicare, you know,
as well, those all become extrasthat that, you know, it's really
about keeping the body alive.
And and the other parts aren'tpaid paid attention to that
emotional component is not paidattention to. And it's not
(41:45):
compensated through the programsthat we have in place now.
Dr. Ethelle Lord (41:52):
Yes, it's very
dangerous, we're looking at a
future that is not very good.
Unless the system's changes.
It's very bleak. They're goingto get rid of those people just
like that, right? Because, asHitler used to call them,
they're, they're uselessfeeders. But that's not true.
I'm telling you, their wisdomthat each one of those people
(42:15):
even with dementia, that's whymy next book, a gift of
dementia, and the dementia ofour gifts of dementia, a gift
that has yet to be unwrapped, isbecause it is a gift. I have
learned so much from my husband,if he had not lived like that, I
would I would be clueless ofwhat dementia is. But it's
(42:37):
beautiful.
Susie Singer Carter (42:38):
I second
that emotion. I second that
emotion. You know, I thinkeverybody that's gone through
this journey with me and myfamily, my friends have all been
enriched by it, you know, as sadas it was, and is to lose those
facilities. There's a wholenother way to look at life.
Right? And so, you know, it isthe epitome of Zen. It is in the
(42:59):
moment. You can't live any morein the moment than that. That's
all we have. We have. So to
Dr. Ethelle Lord (43:08):
know that
they're pointing it to us,
they're saying this
Susie Singer Carter (43:11):
is it. This
is mana. This is mana right
here. And that's really it. AndI learned that I learned that
with being with you know, like,I'm getting chills when I say
that because it's true because Ican it throws me back to being
sitting next to my mom's bed andjust, you know, surrendering,
not thinking about where I haveto be or where I was just
(43:33):
surrendering to the song thatI'm playing on my phone and
singing along to and making surethat she's liking this song. You
know, and that's all it was. Itwas that.
Dr. Ethelle Lord (43:47):
And you were
sharing a gift that's natural.
Susan. You were sharingnurturing. You're a nurturer.
And your mother was just soakingit up. Yeah.
Susie Singer Carter (43:58):
Yeah,
Don Priess (43:58):
you can see it, you
know, you can you could see it
when it was happening. In everyend. It's just literally moment
to moment to moment. It's notabout the past. It's not about
what's coming that Suzy was justsaying it's just it's literally
that moment. And, you know, andfor both for both the caregiver
and for the person. I
Susie Singer Carter (44:19):
mean, we
learn from our children, right,
I learned from my childrenwatching, you know, my children,
like take these social risksthat we don't do because they
don't have any fears or theydon't have any, you know,
filters or they haven't beenhurt yet. So they're very
fearless. And like you said asyou get older, you also get
(44:42):
fearless, you lose your yourfilters because you you kind of
got it you get it, you know? AndI love that. So I love watching
it and then what you know, we Igot to I got my mom, we were all
very grateful that my mom got tomeet my grandma otter who was
only got to meet her on Zoombecause of dementia, I mean,
(45:04):
because of COVID. And then whenfinally when the doors opened
up, she finally got to see mymom in person. She was two years
old and crawled right into bedwith her, and was loving on her,
looking at her face laying onher looking at her face, rubbing
her patting her and say, Nanny,Nanny nanny, and the two of them
(45:26):
just had a full conversationwithout any words.
Dr. Ethelle Lord (45:29):
That's
beautiful. Thank you for sharing
that. Yeah.
Susie Singer Carter (45:34):
Yeah,
beautiful. Because they didn't
need the words they knew eachother.
Dr. Ethelle Lord (45:39):
They know
because, again, I used to say
CNAs. Before you enter a room,make sure your energy is
positive. And you're relaxed.
Because people with dementiawill read energy faster than you
can blink an eye.
Susie Singer Carter (45:56):
So true. So
true. Children do the same
thing. They get they're veryperceptive. You know, when you
don't have language taking overyou are you connect this way?
And so it is it's so important.
I and I always did it in, youknow, I don't know where it came
(46:16):
from. But I always walked intomy mom's room took a deep breath
and was like, Hi, Mommy, I'mhere. Your daughter, your
favorite? Your favoritedaughter. Okay, whatever. I am
your only daughter, but I'mstill your favorite. You know,
just to remind her who I waswithout her having to guess. And
be up to be up so that she wouldbe up? Yes.
Dr. Ethelle Lord (46:43):
I remember one
of the caregivers that my
husband had. The privatecaregivers when he was still at
home was she would come indancing and singing into the
room every time and I ended upthat he asked to marry her. He
said he wanted to marry her. Isaid, Well, I think we can
arrange that. Ah, and he tookhis ring. Your
Susie Singer Carter (47:04):
Lord, I
love you. You're so great.
That's beautiful. Yes.
Dr. Ethelle Lord (47:10):
And then he
was he had fallen in love when
he was a young man, two youngofficers in the Air Force. And
that came all back because oldmemories come back. And he said
to me one day he says, I hope Iwon't offend you. I hope you
won't be sad. I love you. ButI've been thinking about this
woman that I was in love withwhen I was younger, was a young
officer. I said, you know if yougive me the name, I'm just like,
(47:33):
Colombo, I'll find her. And sohe gave me the name. I found her
in Chicago. And I kind ofcommunicated with her and to the
time of his death. She wassending him letters. She was
calling him when he was able totalk. Who
Susie Singer Carter (47:48):
are you?
You're so sweet. Oh my gosh.
Isn't this a great story? Youguys. I mean, this is the this
is this is true love. That'slove.
Dr. Ethelle Lord (47:59):
Yes, it is
true love. We don't own love. We
can only exercise when you wantto deliver gifts. Yeah, he
wanted to give her gifts for herbirthday. And I did that we went
out shopping so that he couldhave a full experience. But
here's the gift for me. The giftof dementia and that the gift
was I saw that young officerthat I never knew. Oh,
Susie Singer Carter (48:23):
yeah.
That's interesting. And you knowwhat? I Okay, I'll match you
with that. So all my mom mymom's life. I didn't know why
but all of my great aunts mygrandma's sisters and brothers
on those the those who sort ofCO raised my mom like they did
back in the day. And she was inNew Jersey. They all whenever
(48:44):
they see her they come and visitthey call her lovey that they
never called her Norma it waslovey. That was her name. Done
and done. All cards made out tolovey. And I never asked why
didn't know why I didn't thinkabout it. Because you know,
you're self centered child, youdon't know until you know. And
as my mom progressed, and was innursing home, and people I'd go
(49:07):
to visit my mom and every handsdown without any she wasn't even
speaking at that point is yourmom Norma. We love her. She's so
loving. She's so affectionate.
She's so and I said, Oh, that'swhere she got the name. That's
why she's so it was lovey. Andshe was exactly like that the
(49:29):
whole time to I mean, she's justpeople would walk by and when
she could still talk. She'd go,You're beautiful. You're
beautiful. And they'd go, thankyou. Thank you. And she meant
it. Yeah, she meant it. Shemeant it.
Don Priess (49:47):
But that came out
that was even after she had
stopped talking. The CNAs wouldalways comment oh my gosh, I
love your mother. I love she'sso I mean everyone without her
saying a word heard, that was
Susie Singer Carter (50:02):
a little
girl. This was my mom who she
was without all the other lifethat that weighs you down,
right? So I got, I got thechance to see her as a little
girl. With that freeze. I got tosee her like that. So I shared
that with her. And, and I'lltell you one of the things
you'll love this as a dementiaexpert, when, like three months
(50:26):
before she died, and she hadstopped talking, and the only
reason why she stopped talkingwas because she had been
intubated. Anyway, they didn'tgive her she could she could
have still talked. But she, theythey went out your feed. I was
talking to her and I was doingmy dog and pony show and I was
singing and I was trying to makeher laugh. And out of nowhere,
she just leaned forward andsaid, I love you. Like clear as
(50:50):
day. Like, like it was ever mymom. And I don was in the room.
And I was like, oh my god, mom,that was like a marathon you
just ran, because I know howhard it was. But she needed to
let me know. It never talkedagain. But that he did all those
things that she had to find thewords, bring them down, attach
(51:14):
them and get them out the mouth.
That's a lot. That's
Dr. Ethelle Lord (51:18):
a beautiful
sentence to leave leave you with
T shirt gave me by the way, I'mnot a dementia expert. I'm just
have knowledge. And I don't everwant to call myself an expert, I
see experts on the on theLinkedIn program there that are
maybe 20 years old or 30 yearsold. I can't imagine being
experts. It's a long, you know,you need to live live a lifetime
(51:42):
almost to say you're an expert.
But I always say that we don'tdiscover. We don't invent
anything. So experts kind ofinsinuate you invented
something, but we only discoverthings. They're all there to be
discovered. It's up to you todiscover them write
Don Priess (51:59):
good correction or
know if there's any true I don't
know if there's any true.
There's so much unknown aboutdementia, that I don't know if
anyone's really an expert. We
Dr. Ethelle Lord (52:08):
never, we
never will.
Susie Singer Carter (52:10):
Yeah,
right. Yeah. And it all comes
down to, you know, individuals,what that what part of their
everything we you know, there'sso many factors to that come
into play. So, yeah, it'sinteresting when to see a movie,
a screening of a film or anotherfilm on on dementia last night.
And, you know, it was it wasvery frustrating, no way been
(52:35):
been having been through thewhole journey. You know, and,
and having made a film, youknow, about Alzheimer's, and in
a, in a narrative way, I wasvery careful to be very honest
and open and, you know, as, astrue as I could bringing in the
comedy, but also bringing in thetruth. You know, and I think
(52:57):
that that, you know, it doesjust service, it does a
disservice to the public bothways, if you sugarcoat it, or if
you, you know, like, vilify it,you know, so you're only adding
to the stigma of it. So, eitherway, it's bad, we really need to
really understand the scope ofit so that we, we don't, you
(53:20):
know, dismiss it or, or, orignore it, you know, right. Or
Don Priess (53:25):
fear it, you don't
want to fear it, either.
Dr. Ethelle Lord (53:29):
That's right.
The Oregon we're talking aboutis the brain and it's the most
complex organ in the body. Andwe'll never understand that
fully. And what works with oneperson may not work for another
one. That's why the tips ondementia care are so important.
Because you you can have achoice. You can try things,
different things to make surethat you can shift the feelings
of that person and make and makethem feel safe and loved. That's
(53:53):
the only thing they want to besafe and to be loved. Yeah,
Susie Singer Carter (54:00):
yeah,
definitely. Just
Don Priess (54:02):
bringing back to the
TDI. I just wanted to clarify,
does the TDI program work withMedicare and MediCal facilities?
Or is it just private pay? Orcombination? There are no words
Dr. Ethelle Lord (54:14):
for every
every facility, it does not
matter if it's private pay, orMedicare or Medicaid. The
Medicaid situation is that inthis facility they have they can
only take so many fill in somany beds with Medicaid because
they pay so much less as lesspay. So they they want to make
(54:37):
money. There's billions ofdollars being made daily in long
term care. Don't fool yourself.
They're not running out of itand they're not underpaid or
anything. It's how they filltheir beds. And of course, if
you can pay with insurance, longterm care insurance or if you
have enough money that's that'sthe best way for them to do it.
(54:58):
There are some that are totallyprivate, the TDI will work very
well with any system does notmatter. Okay, great,
Susie Singer Carter (55:09):
thank you.
But it is a matter of likewhether that facility will
incorporate it. And you knowwhether they're going to bring
that system into their, theirfacility to use it on a on a
consistent basis. Can someonecan families request it and say,
you know, I guess you can't, Imean, you can request it, but it
(55:33):
doesn't mean it's going tohappen. So what you do is look
for a facility that that doesincorporate, it
Dr. Ethelle Lord (55:40):
wouldn't be
nice if families would say,
Well, you heard about the TDIbusiness model. Have you heard
about it, let's inquire. Butremember, they have to pass the
assessment. If it's a type ofbusiness that's just in it for
the money. And they provide verybad care and they intend to
continue, we can detect that inthe assessment stage. There's a
(56:02):
period of few weeks that we doan assessment. And we're very
honest about that. We'll tellthem exactly what's right. And
how
Don Priess (56:11):
many IDI facilities
are there right now?
Dr. Ethelle Lord (56:15):
We don't We
haven't signed anybody
officially, but we're stilldiscussing. And we, we will have
them this year. I'm sure. We canhave this discussion later on.
Don Priess (56:24):
I hope so.
Susie Singer Carter (56:25):
I really
do. Yeah, it's like I, you know,
learning about all thesedifferent models for like, the,
the greenhouse model, you know,and the the Eden Project, and
all those different, you know,all the person centered care
for, you know, long term care,which is all really good. And
(56:48):
it's well thought out. And and,you know, one of the interviews
that we did for the documentary,I asked a hard question, and I
said, you know, well, who is whois enforcing this, this
construct this this paradigm ofteaching? Or you know, or
Don Priess (57:07):
that's model
management model,
Susie Singer Carter (57:09):
right? You
know, because because, you know,
you if you send your child to,to a Montessori school, there,
there is licensing and there'sand there's, you know, there's,
you have to adhere to thatprogram, or you will lose your
license. And at the end, youknow, the woman who was running
this program, one of them not,it's, it's, it's an offshoot of
(57:32):
the greenhouse, said, therereally isn't anybody overseeing
the licensing, or the qualitycontrol, and it's really up to
the individual or, well, thatjust leaves everybody
vulnerable. But
Don Priess (57:44):
just right back
where we are, you know,
Susie Singer Carter (57:47):
it might
sound good, you know, we you
know, we've got a new andimproved we are the,
Don Priess (57:52):
it's just a
marketing tool at that point.
Dr. Ethelle Lord (57:56):
That's why
we're licensing the TDI we're
overseeing every step of it.
They have to even present thecurriculum, that dementia coach
has to submit their curriculum,the visit that we visit the
facilities on announced and wejust straightened out, whatever,
and we're there to support them.
Absolutely support them thewhole year, and is renewed every
(58:18):
year. It's a yearly license,it's not a forever,
Susie Singer Carter (58:22):
have you
thought about going to I'm sure
you have going to CMS and andyou know presenting this program
to them as as to, you know,incorporate into their system.
Dr. Ethelle Lord (58:35):
Unfortunately,
there are so large and I've been
I've been I have approached tothe government on this, but
there's other things driving thegovernment and not not
necessarily when it makes sense.
It's a better thing.
Don Priess (58:51):
That's like,
Dr. Ethelle Lord (58:53):
it's not it's
not a sure thing, but I don't
give up on them. I stillcontinue. I know the Alzheimer's
Association has a big say ineverything that might go come
down the pike. And that's beensubmitted to them, but they've
been ignored it completely,because they probably feel is
competition. less fun stories.
They're their drives. Yeah,
Susie Singer Carter (59:15):
yeah, yeah.
Yeah. Yeah. It's it's verycomplicated. But it's people
Dr. Ethelle Lord (59:20):
like you,
Susie, that in New Dawn that can
help us to change the course ofdementia care. And I beg you
that you did do that, please.
Susie Singer Carter (59:31):
I was just
going to say that, that that's,
that is our dream, my My dreamis to, you know, awaken the
collective conscience and reallylet people know that this is
their future. And, you know,it's all of our future in and
it's only going to getexponentially worse. If we don't
(59:51):
nip it in the bud now, and weare the only thing that's going
to change it. It's not going tobe you know, new legislation
because there's no one there toenforce that new legislation.
That's just platitude. So wereally need to take it into our
own hands and really take ourhealthcare back. And, you know,
and secure it, and ensure thatwe have, if we're going to try
(01:00:13):
to live longer, which we all aredoing, we really want to have
long longevity. Well, you don'tyou want to have quality with
it, too.
Dr. Ethelle Lord (01:00:22):
Yes, because
we are all going to end up old,
and we may, many of us will endup in, in a facility. Right?
Because as Don said, we haveneither no families. And one
thing that the internationalcaregivers Association strives
for is inclusivity. And imaginethose people have less family
(01:00:43):
than most people. Absolutely,because sometimes they're
abandoned by their originalfamily. And if they're left
alone, the partner is pastpassed on, I want the TDR care
partner there, to love thatperson to support them to offer
them safety. And know
Don Priess (01:01:00):
that even if you're
paying 10 or $12,000 a month in
a private, that does notguarantee the type of care that
these people need, because thosefacilities still don't
understand half of what to do.
And, you know, we needsomething. It's not something
like or TDI, you know, to bepart of the systems. So whether
(01:01:22):
you're getting being paid for byMedicare and Medicaid, or
private pay, the care has to becorrect, it doesn't just have to
pay out a lot of money doesn'tguarantee that
Susie Singer Carter (01:01:34):
you can't
find a lobby folks don't buy the
lobby, look behind the lobby,keep going really, really
investigate, because lobbies canbe very deceiving. Absolutely,
right.
Dr. Ethelle Lord (01:01:48):
Yes, I agree.
I agree. But the fact that wehave a dementia coach in the
center of the organization andone dementia coach in every
site, that that business mayown, so if they only have one
then they only have one dementiacoach, but if they have 600
different sites, we want 600dementia coaches right. And
right now as I know it, and I'veseen it all workforce, health
(01:02:11):
care workforce, we'd love tohave some that kind of support
that kind of training that kindof person that will come and
fend for them when there's aproblem.
Susie Singer Carter (01:02:27):
Absolutely.
Wow, I love much better
Don Priess (01:02:30):
it is for the for
the care for the health care
provider for those CNAs thosenurses, those doctors, if
everyone you know had thisknowledge in practice, their
jobs would be so much easier.
Well yeah, life would be so muchbetter. Yeah.
Susie Singer Carter (01:02:47):
It's like
sticking somebody who's a who's
a manicurist and go here go gohelp them out on a fire it's
absurd. It's insanity. It'sinsanity. We put unprepared and
uneducated people and to helppeople and you know, it's just
(01:03:08):
it's it's a disaster waiting tohappen. Of course it is.
Absolutely. Of course it is.
Well, I Is there anything weleft out that you wanted to
mention before we wrap up this,
Dr. Ethelle Lord (01:03:22):
if anybody
wants to get a hold of me they
can get a hold of me at theInternational caregivers
association.com website or ICAcares.com They can go through
there and there's a Contactpage, a lot of information on
the TDI we have three differentteams there. We have the
(01:03:42):
leadership team, we have theAdvisory Board, we have the
consulting group also that goesinto facilities and opens the
door for the TDI lovely so verywell qualified people all around
me
Susie Singer Carter (01:03:58):
take
advantage of it you guys you
know it's there for the taking.
Don Priess (01:04:04):
Take advantage push
for it push for it, start using
your voice and say this is whatwe need. This is what we want.
Yeah, yeah, let the facilitiesknow let let everyone know that
this is the type of thing thatwe absolutely must have in order
to ensure you know safe healthcare from for everybody. Quality
long term care and health carein general
Susie Singer Carter (01:04:25):
quality
Yeah, like you have to push that
you know you it's unfortunatebut we do we have to advocate
for ourselves and our loved onesand it will it takes it takes a
megaphones and don't have thedisease to please like me that
does not work. That does notwork. You have to be strong.
(01:04:51):
Okay, well, we i You'redelightful. I love what you're
doing. You're are a warrior youare a warrior with The Heart of
Gold.
Dr. Ethelle Lord (01:05:02):
Thank you.
Yep. Thank you for saying that.
Absolutely.
Susie Singer Carter (01:05:05):
Absolutely.
It's, it's, it's a pleasure toknow you, and I'm rooting for
you. And I hope that ourdocumentary makes some kind of
shift and allows, you know, anopen door for this everywhere.
So important. Yes.
Dr. Ethelle Lord (01:05:21):
So I think you
want to consider a documentarian
just on the TDI to change thecourse of dementia care.
Susie Singer Carter (01:05:27):
After I get
a break. It's like asking a
woman who just had a baby whenyou're going to have your next
babyI'm tired. No, I there's a lot
of documentaries that need to bedone. I hear you I hear you
know, but it's true. It's true.
(01:05:48):
Yeah. i Because, you know, I seethat very clearly. It's the the
it would write itself, it reallywould, you would write itself.
Well, this has been very lovely.
And it really plays to why we dothe show, which is why don mats
Don Priess (01:06:06):
because love is
powerful. Love is contagious,
and love conquers all. We thankeveryone for watching listening
today. Please like, share,subscribe. Check out TDI for
sure. And we'll see you nexttime.
Susie Singer Carter (01:06:21):
Yeah, and
one more thing I know that you
guys have a lot of differentpodcasts out there. And you
know, right now there's so manyand but you know, we've been
doing this for four years now.
And we we really do it becausewe love it. And we really love
to bring you the best people andI feel like you know, Dr. Lord
is one of them. So how have youall have a great, great week or
(01:06:41):
till our next episode and we'llwe'll be you'll hear from us
then. Bye.
Don Priess (01:06:48):
See you then bye
bye.