Replay: Being a mum to a child with Prader-Willi syndrome (PWS) with Julie Foge

Replay: Best of 2024 Episode - Navigating Neurodivergence & Special Needs with Little Superheroes

In this special "Best of 2024" episode of Navigating Neurodivergence & Special Needs with Little Superheroes, we revisit a deeply moving conversation with Julie Foge, a devoted mother and advocate from Anchorage, Alaska. Julie shares her personal journey through the unexpected challenges of the NICU and the world of special needs parenting after her daughter Eliza's 2016 diagnosis of Prader-Willi syndrome (PWS). Tune in as Julie opens up about the impact of PWS on her family, the transformative power of advocacy, and the invaluable lessons she's learned through motherhood.

Guest Bio:
Julie Foge is the proud mother of three incredible daughters: Amelia, Eliza, and Caroline. Her life took a dramatic turn when Eliza was born in 2016, landing first in the NICU and subsequently entering the special needs world with a rare chromosomal condition called Prader-Willi syndrome (PWS). This pivotal moment redefined Julie's life, leading her into roles of fierce advocacy, profound connections, and a deep appreciation for the challenges and triumphs of parenting. Julie, alongside her husband Derrick, is deeply committed to raising awareness about PWS and empowering other families navigating similar paths from their home in Anchorage, Alaska.

In This Episode, You’ll Learn:

• The initial challenges and emotional turmoil of NICU stays.
• Insights into Prader-Willi syndrome and its impact on family life.
• Strategies for coping with the demands of special needs parenting.
• The importance of community and support in navigating health challenges.
• Julie’s transformation into a passionate advocate for her daughter and others with similar conditions.

Quotes from the Episode:

• "The journey through the NICU and into special needs parenting is fraught with challenges, but it is also filled with moments of profound growth and connection."
• "Advocacy isn't just about speaking up; it's about connecting hearts and fostering understanding."

Resources Mentioned:

• Prader-Willi Syndrome Association
• https://incm.org/three-ways-leaders-can-help-families-in-medical-crisis/ 

Connect with Julie Foge:

https://www.instagram.com/juliefoge 
https://www.leaningintolove.com/ 

New Therapy Slots Available: Due to popular demand, we opened up an extra day at her practice in Oxenford, offering revolutionary therapies for neurodivergent children. Limited spots available—click this link to inquire https://www.halaxy.com/book/little-superheroes/location/1140031

Consultation & Training Services: We also offer consultation and training services to childcare centres and schools with special needs departments. If you know anyone who could benefit, please contact us 0410 053 611 / [e-mail]

Connect with us:
- www.littlesuperheroes.com.au
- Instagram: https://www.instagram.com/littlesuperheroes_/
- Facebook: https://www.facebook.com/profile.php?id=100085361951225

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6

For inquiries, guesting opportunities, or collaborations, reach out to us at [e-mail]