Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support.
This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills.
Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.
If you'd like to reach out to Bobby, you can email him at glennrw@gmail.com.
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