CURE Epilepsy

CURE Epilepsy

Promoting and funding patient-focused research.

Episodes

Former NINDS Director Dr. Walter Koroshetz on Current Challenges and Promise in Epilepsy Research

September 2, 2026
Former NINDS Director Dr. Walter Koroshetz discusses the state of epilepsy research, the critical role of federal funding, and the advances bringing new hope to people and families impacted by epilepsy.
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Epilepsy, Identity, and AI: Processing the Impacts of an Adult Onset Diagnosis

August 5, 2026
Katie Czyz talks about being diagnosed with adult-onset epilepsy at age 39 after more than a decade of symptoms and how she utilized AI as one tool to help her process the impacts of her diagnosis.
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Nicole Teeny on Epilepsy, Endurance, and Running with Horses

July 1, 2026
Writer, filmmaker, and podcast creator Nicole Teeny shares her journey with adult-onset epilepsy and the deeply personal story behind her ESPN 30 for 30 audio documentary, GIRL v. HORSE.
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Epilepsy and Medical Trauma: Recognizing, Accepting, and Healing

June 3, 2026
Neuropsychologist Dr. James Jackson discusses the concept of medical trauma and the often-overlooked emotional toll of living with epilepsy on individuals and families.
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Subtle Seizures, Big Impact: A Young Woman’s Personal Epilepsy Journey

May 6, 2026
Skylar Swatt shares her epilepsy journey, from a stroke that caused seizures shortly after her birth to the onset of “mini-seizures” when she was a child which eventually resulted in a tonic clonic seizure and an epilepsy diagnosis in her teens. Skylar details her treatment journey including an initial misdiagnosis of her seizures as muscle spasms and the mental health impacts of her diagnosis and epilepsy medications.
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Putting the Heart in Brain Surgery: A Pediatric Neurosurgeon’s Philosophy of Care

April 1, 2026
Pediatric neurosurgeon Dr. Howard Weiner shares his philosophy of care that places the human element at the center of the patient/provider relationship, infusing technical skill with compassion, communication, and connection.
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Living, Working, and Dating with Adult-Onset Epilepsy

March 4, 2026
Landis Wiedner shares her journey with adult-onset epilepsy after being diagnosed at the age of thirty-two. She describes how seizures impacted her life and work, explains how a stay in and epilepsy monitoring unit led to a life-changing medication change, and shares her experiences dating with epilepsy.
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Stanzi Potenza: Pursuing Dreams, Creating Content, and Advocating for Epilepsy

February 4, 2026
Comedian, actress, and podcaster Stanzi Potenza shares her experiences growing up and living with epilepsy while pursuing her dreams of a career in entertainment.
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A Trailblazing Career in Epilepsy and Clinical Trials

January 7, 2026
Dr. Elinor Ben-Menachem, epileptologist, researcher and professor at Sweden’s University of Gothenburg, shares insights and experiences from her 40-plus years working with clinical trials and providing care to refractory epilepsy patients.
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Epilepsy for Dummies: Your New Handbook for Better Understanding Epilepsy

December 3, 2025
Journalist Lauren Aguirre and Dr. Elizabeth Thiele, the authors of the recently published “Epilepsy for Dummies,” discuss their collaboration and explain why their perspectives as epilepsy patient/parent and provider were essential in creating a reliable resource for those living with epilepsy and those who love them.
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A Mother and Neurologist Shares Her Son’s Amazing Journey From Traumatic Birth to Seizure Freedom

November 5, 2025
Dr. Kendra Cagniart shares her son’s journey with epilepsy, from a traumatic birth in which he arrived in status epilepticus through his current period of seizure freedom at the age of 9. This is an amazing and ultimately hopeful journey of a young boy living with epilepsy.
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Turning the Tragedy of SUDEP into Hope: The Story of the Joanna Sophia Foundation

October 1, 2025
In honor of SUDEP Action Day on Wednesday, October 15th, we speak with Maria Teresa Ioannou of the Joanna Sophia Foundation who tragically lost her nine-year-old daughter Joanna Sophia to SUDEP in 2018.
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On the Brink of Breakthrough: How an Arthritis Med Could Stop Seizures

September 3, 2025
Dr. Olivia Hoffman, post-doctoral researcher in Dr. Avtar Roopra’s lab at the University of Wisconsin-Madison, discusses one of the most exciting discoveries in epilepsy research in recent years, a repurposed drug that has shown remarkable promise in eliminating seizures and restoring cognition in mice.
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10 Years of Ella’s Race: Raising Awareness & Finding Hope in Fundraising for Epilepsy Research

July 2, 2025
Longtime CURE Epilepsy Champion and current board member Shalee Cunneen comes back to the podcast to share her family’s journey with epilepsy and fundraising efforts for a new CURE Epilepsy research initiative.
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Advocating for a National Plan for Epilepsy in Uncertain Times

June 4, 2025
Dr. Dan Lowenstein discusses the current efforts to push Congress to adopt a National Plan for Epilepsy, explaining who is behind it, what it is, and what it could mean to the epilepsy community.
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Using Basketball to Fight Stigma and Empower Kids Living with Epilepsy

May 7, 2025
Mike Simmel shares his epilepsy journey, explains how his passion for basketball helped him navigate the impacts of epilepsy, and recounts how a personal experience with epilepsy stigma inspired him to help kids with epilepsy and other challenges.
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Music Therapy for Neurologic Conditions: Understanding How It Works

April 2, 2025
Dr. Connie Tomaino, music therapist and co-founder of the Institute for Music and Neurologic Function, discusses how music therapy is used to treat neurologic conditions and explains what we know about the power of music to heal the brain.
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Despite Medical Training, A Young Doctor’s Epilepsy Goes Undiagnosed for a Decade

March 5, 2025
This month on Seizing Life® Dr. Kelly Tyson shares her decade-long journey to an epilepsy diagnosis. Despite numerous visits to various medical experts through the years and majoring in neuroscience in college, Kelly was never referred to a neurologist, nor did she recognize the “episodes” she experienced as seizures. Kelly details how she managed these episodes through college, graduate school, and medical school, and ...
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Joey’s Song Musicians: Rocking for Epilepsy Research is Personal

February 5, 2025
This month Seizing Life® goes on location at the Joey’s Song Freezing Man Festival to speak with Kay Hanley and John Cowsill, two musicians with personal connections to epilepsy who participated in the multiday music festival to raise money for epilepsy research.
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Fostering a Good Relationship with Your Child’s Epilepsy Care Team

January 8, 2025
Patricia Dean, ARNP and the Epilepsy Network Specialist in the Comprehensive Epilepsy Center at Nicklaus Children’s Hospital in Miami, discusses managing the relationship with your child’s epilepsy care team.
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