Spondycast
Introducing Spondycast, the newest and most exciting source of information and inspiration for people with spondyloarthritis. Every week, we bring you in-depth conversations with the leading experts in the field, who will share their knowledge and experience on topics related to the diagnosis, treatment, and management of this complex condition. Whether you are a patient, a caregiver, or just someone who wants to learn more about spondyloarthritis, Spondycast is the perfect place for you. Spondycast is made possible from donations by members of the SAA, including our corporate member AbbVie, who support Spondycast. www.spondylitis.org
Episodes
Stephen Shedletzky, author of Speak Up Culture, discusses how people living with spondyloarthritis can find their voice to advocate for their needs.
Carrie Kellenberger, SpA advocate and award-winning blogger of myseveralworlds.com discusses her journey with spondyloarthritis while being a Canadian living in Taiwan.
Jennifer Visscher, Founder of the annual Walk Your AS Off event discusses her journey with spondyloarthritis, her advocacy and awareness efforts, and transitioning the Walk Your AS Off event to SAA’s stewardship.
Dr. Taylor Chastain Griffin, National Director of AAI Advancement for Pet Partners, discusses the connection between animal-assisted interventions and mental and physical health benefits for people living with SpA.
Sarah Louden discusses her journey with spondyloarthritis and how she strives to live her best life as an entrepreneur, mother, and wife while living with axSpA.
Ocular rheumatologist Dr. Michael Paley M.D. Ph.D., SAA’s 2023 Early Career Investigator Award Winner, discusses his research.
Simon Korte, PhD, neuroscientist, and SpA Warrior, discusses fatigue, brain fog, and its relation to spondyloarthritis.
John Frazier, physical trainer and author of the book Through the Pain, discusses his journey with AS and how it has impacted his own physical fitness and his work with others.
Link to book:
Through the Pain by John Frazier
Amy Muscoplat, Writing Teacher, Creative Facilitator & Owner of Joyfestivalindustries.com, discusses how to use mindful journaling and expressive writing to manage chronic pain.
Dr. Christina Downey, rheumatologist, and Chair of the Government Affairs Committee for the American College of Rheumatology, explains step therapy, its challenges for SpA patients, and strategies to get the medications you need.
Dr. Megan Wilde, Clinical Psychologist, discusses self-care, healthy boundaries, and support for caregivers and loved ones.
Rheumatologist and Researcher Lianne Gensler, MD, discusses ethnicity, racial, and gender differences in spondyloarthritis.
Heidi Waltz, patient advocate and SAA educational support group leader, discusses her journey with SpA and how she became involved in peer support groups.
https://spondylitis.org/resources-support/support-resources/support-groups/
Bruce Pierce, an advocate for the SpA community, discusses how his family turned a tragedy into an opportunity to educate first responders and anesthesiologists about the potential dangers of intubation for those with SpA.
https://spondylitis.org/resources-support/educational-materials-resources/for-medical...
Michael Weisman, MD, FACP, rheumatologist, and SAA Medical & Scientific Advisory Board Member, discusses Enteropathic arthritis or arthritis with inflammatory bowel disease.
Dentist and SAA Board Member Craig Gimbel, DDS, discusses how spondyloarthritis may impact your dental health and visits with your dentist.
Dr. Jana Bolduan Lomax, Licensed Clinical Psychologist, and specialist in Health Psychology, discusses parenting with a chronic illness, the challenges faced and some strategies too.
Host Jill Miller shares highlights from the first year of Spondycast.
Kristi Nelson, the author of “Wake Up Grateful,” talks about the practice of gratefulness while living with a chronic health condition.
Internationally respected yoga teacher and author, Larry Payne, PhD, discusses the positive impact that yoga has on managing SpA.
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