In this episode, I speak to Andrew who lives with type 3c diabetes. Andrew has also been living with Von Hippel–Lindau disease (VHL), also known as Von Hippel–Lindau syndrome, is a rare genetic disorder with multisystem involvement. [2] It is characterized by visceral cysts and benign tumours with the potential for subsequent malignant transformation (information taken from Wikipedia). Andrew openly shares his journey living with both conditions and all the challenges that it brings. We also discuss:
- The benefits of having an official type 1 diabetes diagnosis in gaining access to diabetes technology
- Life with VHL and the impact this has on his type 3c diabetes
- Qualities gained whilst living with chronic illness
Useful links:
Andrew on Instagram
Daniel on Instagram
A bit about the show and host
The Talking Type 1 podcast is a diabetes podcast by Daniel Newman. Daniel brings to you interviews from members of the diabetes community sharing their journeys of the ups and downs of living with type 1 diabetes. You’ll hear from those who live with type 1 diabetes, provide care to those living with type 1, healthcare professionals and experts in their field.
The interviews will be an open and honest insight into life with type 1 diabetes that you can relate to and also provide the opportunity to learn more about the condition. Daniel will share his insights into his life living with type 1 diabetes. Daniel has lived with the condition along with for over 25 years. He also lives with diabetic retinopathy and received a kidney transplant in 2018.
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