In this powerful episode of This Ability Podcast, host Mary Baudoin sits down with Jayce Romero, a young DeafBlind advocate from Lafayette, Louisiana, who lives with Usher Syndrome Type 1B. Jayce shares his deeply personal story—from his early diagnosis, educational journey, and family discoveries to his commitment to raising awareness about DeafBlindness. With the help of his interpreter Shirley Delahousie, Jayce offers insight into what life is like navigating the world with both hearing and vision loss, and why visibility and representation matter.
Listeners will hear about Jayce’s training experiences at Affiliated Blind of Louisiana and the Helen Keller National Center, his passion for helping others with Usher Syndrome, and his plans to attend Gallaudet University. He also opens up about his battles with depression, his dreams of entering politics or psychology, and how the DeafBlind community has shaped his sense of identity and independence.
This episode is a reminder of the resilience and strength within the disability community. Whether you're a parent of a child newly diagnosed with Usher Syndrome, an educator, or simply someone wanting to learn more, Jayce’s story is both educational and inspiring. A full transcription is available on the Buzzsprout website, and a visual podcast version will premiere on YouTube on May 31st.
Part Two of Jayce's Episode will launch as the season two finale. Stay tuned to our social media pages for release date.
Thanks for listening to This Ability Podcast. If you are enjoying our podcast, be sure to like us on Facebook at This Ability Podcast page and subscribe to our YouTube channel.
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