All Episodes

December 4, 2024 59 mins
Anyone affected by PSP, CBD or MSA knows the importance of advocating for yourself. After years of limited awareness, 2024 marked a turning point for PSP, CBD and MSA advocacy with the historic passage of the National Plan to End Parkinson’s Act. From Congresswoman Jennifer Wexton’s announcement of her PSP diagnosis to the numerous messages that our community members sent to their local representatives, several factors emerged to create the momentum necessary for this landmark moment. 

To reflect on how we got here and what comes next, I spoke with two of CurePSP’s most dedicated advocates: Jessica Shurer, director of clinical affairs and advocacy, and Julie Balasille, longtime volunteer and macro social worker with extensive professional experience in legislative and community advocacy in both the US and Canada. We discussed strategies for empowering the community, lessons from previous legislative successes, the influence of Rep. Wexton’s advocacy, highlights from this year’s efforts and key moments to look forward to in the future.

For the latest updates and ways to get involved, visit CurePSP’s advocacy page here.
Mark as Played

Advertise With Us

Popular Podcasts

Stuff You Should Know
Dateline NBC

Dateline NBC

Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations. Follow now to get the latest episodes of Dateline NBC completely free, or subscribe to Dateline Premium for ad-free listening and exclusive bonus content: DatelinePremium.com

The Male Room with Dr. Jesse Mills

The Male Room with Dr. Jesse Mills

As Director of The Men’s Clinic at UCLA, Dr. Jesse Mills has spent his career helping men understand their bodies, their hormones, and their health. Now he’s bringing that expertise to The Male Room — a podcast where data-driven medicine meets common sense. Each episode separates fact from hype, science from snake oil, and gives men the tools to live longer, stronger, and happier lives. With candor, humor, and real-world experience from the exam room and the operating room, Dr. Mills breaks down the latest health headlines, dissects trends, and explains what actually works — and what doesn’t. Smart, straightforward, and entertaining, The Male Room is the show that helps men take charge of their health without the jargon.

Music, radio and podcasts, all free. Listen online or download the iHeart App.

Connect

© 2025 iHeartMedia, Inc.