July 9, 2025 • 36 mins
Welcome back for Season Two! This season is all about you: our dedicated community members. Your commitment is the glue of our organization, a guiding light that inspires others and grows our network. For community members Chris and Mike, commitment to each other — and to making the most out of every single day — has been transformative. It has allowed them to complete an incredible 118-mile pilgrimage on the Camino de Santiago, successfully advocate for federal legislation in Congress and redefine what partnership looks like in the face of a PSP diagnosis.
Chris was initially diagnosed with Parkinson's in 2015, but received a revised PSP diagnosis in 2021, a common experience in our community. Rather than retreating, they've embraced a philosophy of making the most of their time together.
You'll hear how Mike's background as a social worker has informed their approach to finding resources and maintaining Chris's independence, how sharing personal stories can be a powerful advocacy tool and their practical strategies for staying active despite PSP's unpredictable symptoms.
Their journey is a powerful reminder that while PSP brings challenges, it doesn't have to limit what's possible when you have determination, partnership and the right support system.
For more information and the latest updates on CurePSP’s advocacy efforts, click here.
Chris was initially diagnosed with Parkinson's in 2015, but received a revised PSP diagnosis in 2021, a common experience in our community. Rather than retreating, they've embraced a philosophy of making the most of their time together.
You'll hear how Mike's background as a social worker has informed their approach to finding resources and maintaining Chris's independence, how sharing personal stories can be a powerful advocacy tool and their practical strategies for staying active despite PSP's unpredictable symptoms.
Their journey is a powerful reminder that while PSP brings challenges, it doesn't have to limit what's possible when you have determination, partnership and the right support system.
For more information and the latest updates on CurePSP’s advocacy efforts, click here.
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