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December 11, 2024 79 mins

In response to several requests from listeners, this episode is all about the complexities of giving medication to our neurodivergent kids.

Mark speaks to the tremendous Danielle Jata-Hall, who is an author, award-winning blogger and a disability campaigner. She has three children (13, 11 and 8 - all diagnosed Autistic with a PDA profile, as well as a blend of ADHD, Anxiety and potential bipolar disorder).

Mark and Danielle discuss the medication journeys they've been on with their own kids, from overcoming their initial misgivings and dealing with the judgement of others, to the administrative nightmare of trying to get medication prescribed by medical professionals.

They compare different prescription pathways and share their experiences of the difficult process of titration - not to mention the rigamarole of actually getting their kids to take the medication we've fought so hard to get for them.

 

LINKS TO STUFF WE MENTION IN THIS EPISODE:

"The Journey Into S.E.N.D Fatherhood" book - https://amzn.eu/d/0qwN0il

Danielle Jata-Hall blog - https://pdaparenting.com/

Newbold Hope -  https://www.newboldhope.com/

FII (Fabricated or Induced Illness) - https://www.nhs.uk/mental-health/conditions/fabricated-or-induced-illness/overview/

"The Parent's Guide to ADHD Medicines" book - https://amzn.eu/d/i2e73JM

Shared Care - https://www.england.nhs.uk/medicines-2/regional-medicines-optimisation-committees-advice/shared-care-protocols/

"I'm Not Upside Down, I'm Downside Up" book - https://amzn.eu/d/avsMxy2

"Black Rainbow" book - https://amzn.eu/d/he1Nd8K

"Steph's Two Girls" blog with tips on getting your child to take medication - https://www.stephstwogirls.co.uk/2020/01/top-tips-when-your-child-wont-take.html

"A boy less ordinary" blog - https://aboylessordinary.com/

 

CONTACT US

If you have any feedback about the show, ideas for topics or suggestions for neurodiversity champions you'd like us to give a shout out to, you can email: hello@neuroshambles.com FOLLOW US

Instagram: www.instagram.com/neuroshambles

TikTok: www.tiktok.com/@neuroshamblespod

Facebook: www.facebook.com/Neuroshambles

Threads: www.threads.net/@neuroshambles CREDITS

The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

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