Episode Transcript
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(00:00):
Hello and welcome to the Sleeves Uppodcast, a collaboration
with the Southeast VaccineSuper Hub for People with Disabilities
and the Association of University Centerson Disability.
In the studio today,I have Stephanie Meredith.
Stephanie, welcome.
Thanks so much for having me again.
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And today, we're going to spend some time
looking at specific routinechildhood and adult vaccines.
Stephanie, tell us a little bitabout why these vaccines are important.
Well, these vaccines are obviouslyvery important because they protect people
from serious diseasesthat in the past killed
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kill people when they didn'thave the protections that we have now.
They also caused some long term damage.
For example, I have a cousin who gotshingles and he lost eyesight in one eye.
And so those are things that happenwhen people aren't able
to get the protectionsthat vaccines offer.
(01:06):
That's great.
And so let's just kind of dive in.
We are referencing a one page document
that is being developedby the Southeast Hub, and the link to
that is going to be available in the shownotes.
Sounds good.
And what we really try to do inthis document is outline
(01:27):
some of the specific elementsof each vaccine
that people with disabilitiesshould be aware of, because there are
some specific areas where some vaccinesare particularly helpful; or also
you might want to consult with your doctorbecause there's more likely risk.
And so some of the thingsjust starting off you should be aware of
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that is that for some of these childhoodvaccines, if they are missed as a child,
there are many of them for whichyou can still get them as an adult.
You also need to be carefuland things you need to look out for is
if you have egg allergies, vaccineallergies or other severe conditions.
Live vaccines are not recommended.
(02:09):
And that means it is even more importantfor families and caregivers
to get those vaccinesto protect the ones that they love
and to provide that shieldsince they can't get the live vaccines.
However,there are often for many of these live
vaccines, a non live version.
And so that's importantto be aware of too.
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What alternatives do you havethat are available?
And of course,if you're pregnant, have diabetes, chronic
liver disease or renal disease, thenrecommendations can also be different.
And so for any of theany of the, you know,
advice for giving today,this is not medical advice.
This is based onwhat is has been released by the CDC.
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And because every person is differentand has different
considerationsto be concerned about any vaccines
you need to consult with your doctor aboutand not rely on on
what we're saying here, particularlyif you have health conditions.
This is just a general guide to helpyou know what
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you can talk to your doctor aboutand to help guide those conversations.
But you definitely wantto be talking to your doctor.
So just looking at some of the basicchildhood vaccines,
you've got hepatitis Aand B, usually children get those.
But for hepatitis A, it's also importantfor adults who are at risk.
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And and there has been new guidancereleased actually about hepatitis
B vaccine,recommending that people also get
another round between 19 and 59 and
and people over 60 who are at risk.
And this is very important for peoplewith disabilities, especially if they
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live in a group home settingor if they're in a day program,
because those diseasescan be transferred in those settings.
And so it's really important for peopleto get their vaccine for that.
There's also the HIB vaccine,and that is also usually done
in childhood, but also is availablefor people, adults who are at risk.
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i particularly importantfor people with sickle cell disease
and DiGeorge syndromeand Wiskott-Aldrich syndrome.
Those are conditionsthat are particularly susceptible.
So people need to make sure that they'vegot those vaccines to protect them.
The other thingto circle back on with hepatitis A and B
is it's also very importantif you travel outside the U.S.
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There’s the HPV vaccine,and that usually doesn't
come up until people are 9 to 14.
And it's to help protect peoplefrom cancers that can develop.
And usually that disease is spreadthrough sexual contact.
And a lot of people think, oh, my gosh,you know, my kids,
9 to 14, they're not doing those things.
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And they're like, I don't you know,I don't want to get that vaccine
because that makes it seem like that'swhat they're doing.
But in reality, in the future,
your child likely will bewill have a sexual partner.
And even if they only haveone sexual partner,
that other personand whatever sexual activities
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they have engagedin will also expose your child.
So if they have this vaccine,it helps to protect them
from that human papillomavirusso that they
they then have a lower chanceof getting those types of cancers.
So that's that's really importantto be aware of.
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And for people with disabilities,
sometimes there's an assumptionthat, well, they're not going to have sex.
Well,that's definitely an outdated assumption.
And there are many peoplewith disabilities who engage in healthy
sexual activity, and we want to make surethat they are safe as well.
The MMR vaccine is also usually donein childhood,
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but it's available for adultswho did not get vaccinated in childhood
or who were born before 1957when it was standard practice.
The thing to know about it, though,is that it is a live vaccine,
so it is not recommended for peoplewith very poor immune systems
or DiGeorge syndrome.
So again, that's onewhere the people around them
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need to make surethat they are giving them herd immunity,
which means that everyone around themis getting that vaccine to protect them.
The pneumococcal vaccineis a really important one,
also usually given to children,but also adults 19 to 64
who are at risk and adults over 65.
And with that one, it'sactually very important for people
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with spina bifida,sickle cell disease and cochlear implants,
which again,that's really important to me.
I have family members and friends who havespina bifida and cochlear implants
and didn't realize this was a vaccinethat they need to be particularly mindful
about because of their increased riskfor infection.
Again, that's also an important onefor people with the DiGeorge syndrome,
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Wiskott-Aldrich syndromeor Chediak- Higashi syndrome.
Polio largely eradicatedin the United States thanks to vaccines.
It's an amazing success story.
And so it is often given again,usually to children,
but also adultswho are not vaccinated as children.
And that can happenwhen maybe someone is an immigrant
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from a country where they didnot have that as a common vaccine.
And so that's very importantif you are coming
from another countryto make sure that you have that vaccine.
TDAP,which is tetanus, diphtheria, pertussis.
Those are, again, very serious conditions,pertussis was known as whooping cough.
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About half the babies who get whoopingcough end up in the hospital.
It's very can be very deadly forthen tetanus.
If you get that, you get a deep cut,a rusty nail.
It can cause lockjaw and make itso people can't swallow, can't eat.
So this is a very important vaccinefor babies with disabilities.
And it's also something that you needto get every ten years as an adult.
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So it's important to stay up on thatso that if you accidentally step
on that rusty nail,
you're not worried about getting lockjawin this very serious condition.
Varicella is onethat's also usually given to children,
but also high risk adultswho were not vaccinated as children.
Again, this is a live vaccine,so it's not recommended
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for people with very poor immune systemsor DiGeorge syndrome.
But for most people it can really helpprevent you
from having a virusthat can have some serious side effects.
And so we want to make sure that we'reprotecting people as much as possible.
The MenACWY vaccine is usuallyfor children ages
11 through 12,and then you get a second dose at 16.
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But also important for high risk adultsto get that every five years.
And particularly, again, that'svery important for people with sickle
cell disease.
So our people with particularlythose blood disorders.
This is a very important.
These are very important vaccinesfor them to have.
Thanks, Stephanie.
That was a great rundownof all of those childhood vaccines.
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Now, as we move into other categories,these are vaccines
that are important on an annual basisfor most adult and children.
Absolutely.
And the flu vaccines,
probably our most prominent annual vaccinethat people need to be aware of.
And again, you know, people think, oh,the flu is just common.
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Right.
But there are actually tens of thousandsof people who die from the flu every year.
And, you know, we had the Spanish
flu epidemicin the beginning of the 20th century.
And so these are really deadly diseasesthat we now have vaccines
to help protect people.
And this is one that is recommendedevery year for adults and children.
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It's very important for peopleat high risk, for breathing problems.
And as kind of an example,my son Andy, who has Down syndrome,
used to get croup every year,and when he got croup,
he would get Strider, which is where your,you know, your throat closes up.
He couldn't breathe.
And it was really scary.He would turn blue.
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We would have to rush into the hospital
so he could get a breathing treatment,steroid shot.
And, I mean, there were timethere was one time where we were
fortunately only livedabout 10 minutes from the hospital.
But he was turning blue.
And we were I mean, making a beelineas fast as we could to get there.
And so some of our peoplewith disabilities
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have higher risk for differentbreathing problems.
And it's pretty common for kids with Downsyndrome, actually, to get croup.
And so the flu vaccine helpsto prevent them
from getting getting a virusthat can make their throat
swell and contributeto some of those breathing issues.
So this is a really important vaccine thatour family would always get every year.
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Not just Andy, but the rest of us,the siblings and the parents.
So that we were protecting him as well.
And there is an inactive versionthat's not live
and that tends to be preferred.
There is a live version.
Live and inactive version, which usuallyis the one that you get through your nose.
The other is a shot.
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My kids kind of wanted
the nose one when they were littlebecause they didn't want the shot.
But then we found outthat the shot actually
was more effectivemore quickly in our in our circumstance.
So that that tends to bethe preferred version
for peoplewith disabilities in their families.
Another adult vaccine
that's really important to getis the zoster or shingles vaccine,
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like I mentioned earlierthat my cousin dealt with.
And that's recommended for adultsover age 50
and also high risk youngeradults, specifically.
It's very that if there is a live version
of that and also an inactive version
and it's really in the inactive versionscalled recombinant.
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And it's really important for peoplewith DiGeorge syndrome,
Wiskott-Aldrich syndrome,or Chediak- Higashi syndrome
to get that recombinant versionof the shingles vaccine,
but not the live version,because that, again,
carries some of the risksfor very immunosuppressed people.
And 70 for that oneis it recommended annually.
(12:41):
For the shingles vaccine.
You just need to get one dose.
All right.
And finally, we're going to moveinto some more general vaccine.
All right.
So general vaccines, I think COVID-19 isstill kind of an outlier, right now
because we got our first doses
and that was 2 to 3 doses based onwhether you were high risk
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or you were in the general populationat high risk.
Got three doses. General population data.
And then there were boosters,there have been boosters.
So we had the COVID booster last yearand we have another booster this year.
And we don't know,is this going to be an annual vaccine?
Maybe.
So we'restill kind of trying to figure that out.
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And I think the most important thingthere is to stay abreast
of what theyou know, what the CDC is recommending.
We find out on the newsand what our doctors tell us to do.
So if there's another because there may becertain boosters that are only for high
risk people and there may becertain boosters that are for everyone.
So you kind of have to pay attention.
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And this particular vaccineis very important for people
with intellectual and developmentaldisabilities due to a higher death rate.
And we saw that when COVID first hit the
there was a higher death rateamong that population.
And of course, I was really worriedas the mom of a person with Down syndrome.
And so we were really very, so gratefulwhen we were able
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to get that first round of vaccinesand get that level of protection.
And so, you know, it's importantthen to stay up on those boosters
so that you keep that protection.
And then the other one that's more of ageneral vaccine is your MenB, vaccine,
and that's for adults up to age 23.
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If you didn't get thatwhen you were younger or high risk adults
who were not vaccinated during childhood,
and that is very importantfor people with sickle cell disease
especially,and also people going in for splenectomy.
Those are conditions
where that is a really important vaccineto protect them from being as vulnerable.
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Those are kind of the onesto be aware of as adults.
And we we're very fortunatethat there are some great resources
out there, too,for adults with disabilities.
There is guidance for vaccinatingolder adults and people
with disabilities at vaccine sites.
And there is a resourcefrom the CDC for that.
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There's guidance for vaccinatingolder adults and people with disabilities,
ensuring equitable COVID19 vaccine access.
That's another guide from there.
Then there's getoutthevaccine.org,which specifically
provides lots of tips for helping peoplewith disabilities get vaccines
and ways thatkeep them as healthy and safe as possible.
(15:33):
Stephanie,thank you for sharing this information.
It really is a pleasuregetting to sit down with you.
Thank you so much for having me today.
And honestly, I learned so muchfrom this exercise of putting this one
pager together, because a lot of timeswhen we pull out this information online,
it's written in some complicated language.
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And it's also hard to pieceeverything together
to know what's applicablefor our loved ones with disabilities.
And I think it was it was really helpfulto put it all together
and figure outexactly how it works for us.