Episode Transcript
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(00:00):
Good morning. You are listening toInsight, a show about empowering our community.
I'm Lorraine Ballard, Morral. Octoberis Breast Cancer Awareness month. We're
going to tell you about a specialdocumentary about the journey of three extraordinary women
and how they navigated their breast cancerdiagnosis. The film is called a Letter
to My Sisters. We always lovetalking about black excellence and that is a
(00:23):
phrase that fits Didrow Child Ross Hopkinsto a t. Dedro will be the
first African American woman to be inductedinto the Philadelphia Public Relations Association Hall of
Fame. First, the thirty seventhAnnual AIDS Walk Philly is coming up on
Sunday, October fifteenth, and wehave some folks here to tell us about
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the AIDS Walk and where the moneygoes and why it's so important still for
us to be aware and supportive ofservices that address the concerns of those living
with HIV and AIDS. Joining usright now is Rob Rychard, he is
executive director of the AIDS Fund Philly, and Jacqueline Floris Laba, who's manager
of care services for Congresso, whichis one of the recipients of the FUNDS.
(01:10):
So Rob I'm going to start withyou. What I love about the
AIDS Fund is that you have reallypivoted in terms of where the money goes.
You are very specific and intentional withthe funds that are raised, and
I wonder if you can tell usexactly how that works. Sure, we
went through a process where we lookedat where the greatest needs were today the
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epidemic has changed a lot, andwhat we found was there was a real
gap for clients people living with HIVwhen they would have a financial crisis.
And so we evolved our mission andwe now do emergency financial assistance with the
goal of keeping a financial crisis fromturning into a health crisis. Things like
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keeping somebody from being evicted because they'rebehind on their rent or utilities, or
if they're CouchSurfing or homeless or livingin a shelter, they finally get to
the top of the list for ahousing subsidy, but don't have that first
little bit of money, that bigchunk of money actually that they need to
get into a new unit. Orthere's other medical needs that aren't covered by
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insurance where sometimes people have fallen behindon their health insurance, so we want
to keep them in care. That'swhat makes this so when you do fundraising,
you know, you think big dollars, but you know that actually a
relatively small amount of money can makea huge difference because we want people to
be able to stay in care because, as we all know, at this
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point, HIV is manageable. Itis now a chronic disease that can be
controlled with medication as long as peopletake the medication right right. And on
top of that, Lorraine, wenow also know that those very medications if
somebody has an undetectable viral load,so they are on treatment, and they're
successfully on treatment and maintain their treatmentsand have an undetectable viral load, which
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means the virus they still have HIV, but the virus is so low in
their system that it can't be detectedby the tests. They will not pass
the virus onto somebody else. That'sbig. Yeah. In the thirty years
now that we've had, you know, this combination therapy for people living with
HIV, not one documented case ofsomebody with an undetectable viral load passing the
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virus onto somebody else. So it'sfrom a public health perspective that we need
to keep people in care to slowthe spread of the virus. Yes,
absolutely, that is huge. Now, Jacqueline Floris Sliva, you are a
manager of care services for Cornoresso tellus what has receiving this kind of funding
meant for the clients that you serve. It's amazing. Like Rob's sharing,
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we're able to support our clients withthe small financial needs that they might have.
We've been able to help our clientskeep their housing or move into safer
housing. We've also helped clients beable to receive medical equipment that they might
need, like walkers or braces.So it's an amazing, amazing program.
The changes that we can make inpeople's lives, or that the AIDS Fund
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has made in people's lives, it'samazing. One of the stories that really
has impacted me and the work thatI do is that through the AIDS Fund,
we were able to help a youngclient from Central America receive funds for
a translator. Because this client wastrying to get asylum here and he needed
to go to court for his lastcourt appearance, he needed a translator.
He didn't have the funds, hedidn't have the support, but through the
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AIDS Fund, we were able toget the money for the translator in this
client was granted asylum. He's thriving. This was a couple of years ago,
but this client is thriving. Soit's one of those stories that's always
with me. I'm so thankful forthe work that the AIDS Fund does every
year to collect money and get moneyso that they can support our clients because
it definitely makes the difference in theirlives. I love that story, and
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I think that what this really illustratesis that when you address the issue of
HIV and AIDS, that there areso many other moving parts to it.
It's not simply about getting the medicationand the treatment. It's really about creating
an environment in which the person hasaccess and also has the ability to continue
being treated. And what a wonderfulstory that you shared. Thank you so
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much for that. Now, Rob, just let's do a little check in
right now in terms of the stateof the state. Where are we at
in terms of the levels of HIVin the city of Philadelphia. Sure,
we have about nineteen to twenty thousandpeople living with HIV in the city of
Philadelphia and an additional close to tenthousand living in the suburban areas of Philadelphia.
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There's twenty seven thousand people living inthis region with HIV disease. There's
a full continuum of how they're doing. We see that communities of color are
disproportionately impacted, including poverty, disproportionatelyimpacted, which is why our program really
helps those who have the greatest need. And of course some people are thriving,
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but we want everybody to thrive andthat's our goal is everybody to live
a long and healthy life with HIV. In order to do that, we
have to address things like stigma,we have to prevent new infections, and
we got to keep people in care. Yeah, and that's really where you
come in. Jacqueline Floris Leva,you're manager of care services for Congresso.
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I wonder if you can tell usa little bit about how you're seeing things
on the ground in terms of HIVand AIDS. Yeah. So Congreso is
in the northern section of Philadelphia,so a lot of these people don't have
income, and that's where the AIDSfund comes in that they can support us
with the needs that the clients mighthave. We've also recently seen an influx
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of people coming from Central and SouthAmerica that are facing a lot a lot
of issues. They don't have accessto many of the social services out for
the community. Through programs like theAIDS Fund and the Formal Walks of Life
Fund, we are able to supporttheir needs and we are able to help
them. Well, let's get downto the specifics. The event is happening
on October fifteenth. Yes, we'llstart off at the Art Museum steps seven
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am with the reading of names.We always want to begin the day with
remembering and honoring those we've lost theepidemic. And we also have on display
twenty five blocks of the AIDS MemorialQuilt that's in partnership with the National AIDS
Memorial in San Francisco. These blocksmemorialize a loved one who's been lost in
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the epidemic. Usually the largest displayin this region each year. Yeah,
it's so moving to see it becauseeach one represents a human being that we've
lost, and the creativity and thecare and the love that goes into each
of one of those squares is justabsolutely moving. It's the largest community art
project in the world and there's overfifty thousand panels at this point. We
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then have our opening ceremonies with somewonderful hosts, including you, Lorraine.
Thank you for coming out and joiningus again this year. Wouldn't miss it.
Then we kick off the walk ateight thirty and the walk will be
on Kelly Drive this year along theboat House Row. We're excited there's actually
a regatta going on that day,so people will be able to see the
regatta happening while they're walking and thencome back to the Art Museum. We'll
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have music, we have some funactivities. We did a whole hoop contest
last year, and we'll have somethings for the little kids. We kind
of want that day to encompass allof those things, memorializing those we've lost,
raising lots of funds, and thencelebrating the strides we've made. The
timeline is always incredible. It's thiswhole I don't know exactly how to describe
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it, but they're like placards thatare set up from the beginning of our
awareness of HIV to right now,and it's just remarkable to see it in
physical form. That's something we're veryproud of. It's a walk through history
of the epidemic. Grew out ofmy work with talking to high school students
and college students to make sure thatthey understand what we've seen in our lifetime,
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Loraine, in the changes and howscary it was in the eighties.
Still can be scary, certainly ifsomebody who's getting a new and positive test
result is very scared. But we'vealso made tremendous strides, yes, and
so we need to embrace those strides, make sure everybody's aware of them,
and everybody has access to those medications, and also PREP Yes, I don't
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want to forget PREP right, whichis the preventative medication that people who are
sexually active can take that gets youprotected against infection. Now, if people
would like to shign up for theAge Walk, how do they do that?
They can visit our website at aidewalkPhilly dot org. Aidewalk Philly dot
org. They can call us attwo and five seven three one Walk Fantastic
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and Jacqueline Floris Labor. If peoplewould like more information about the HIV and
AIDE services provided by Congresso, howdo they find out more? They can
look for us online at Congreso dotnet and there they can find the information
to our program and all and allthe other programs that we have at Congresso.
Our program is called this for Us, so so they can go to
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the drop down menu and they'll findour program and all the information will be
there. Thirty seven years. It'sjust an incredible event and very moving event
to participate in. And we certainlyRob, you and I have seen so
many changes and evolutions. And youknow, we talk about a time when
it was a death sentence to bediagnosed with HIV and age and now you
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can live a normal life with theproper medication and support. Yes, we
need people to go out and gettested if they've been Everybody should get tested.
Knowledge is power, and we needpeople to go out and get tested
and if they come back with apositive result, there are services out there
for them. They come back witha negative result, they'll talk to you
about prep. So all very importantmessages to send out. Rob Record,
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executive director of the Age Fund,and Jacqueline Florist Laba, manager of Care
Services for Congresso, one of therecipients of the funds the microgrants that are
provided as a result of the moneythat is raised for this wonderful event,
The Age Walk Philly, happening onOctober fifteenth. Thank you both for joining
us today. Thank you women arestill dying of breast cancer. To tell
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us more about her breast cancer documentarycalled A Letter to My Sister, which
is specifically a documentary for young women. We are joined by doctor nia Imani
Bailey. She's a thirty year oldPhiladelphia native and she is She is a
radiation therapist, has been for thepast nine years and as such has come
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to meet and experience what women whohave breast cancer are going through. And
so she wrote this documentary and we'regoing to be talking about it. Thank
you so much for joining us today. Thank you for having me. I
really appreciate it, all right,So tell us a little bit of your
origin story. I did touch onit a bit, but tell us more.
Absolutely so. I always sort ofwanted to be a doctor. I
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didn't get m d. I gotPhD. But my goal in being a
radiation therapist was because of my father. He was diagnosed with prostate cancer when
I was a sophomore in high school. I'm a daddy's girl, so I
had to get in the same fieldthat cured him. I thought I only
knew that cancer can affect geriatric andpediatric I don't know where I was in
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the studies of in between and beinga radiation therapist. I was seeing so
many young women coming in for radiationtreatments. The youngest patient I had was
twenty four years old. She lookedjust like me. She had braids like
me, a gold anklie both likea similar Philadelphia wrap. And she passed
away and I said, what's happeninghere? And similar? You know.
I had the same story with KuaniaLopez, a feisty woman, and she
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said, you know, I'm havinga hard time realizing that i won't look
like how I used to look like. And she passed away too, and
I said, no more of thesestories. This is annoying. It's very
sad, annoying, frustrating. Whatcan we do? Coming out of finishing
my dissertation, I said, I'mtired of looking at books, I'm tired
of reading powerpoints. How about adocumentary. I think that's phenomenal to do.
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So I filmed at day Dream CreativeStudios in Ardmore and we were able
to interview some phenomenal, phenomenal women. These three women were actually my patients,
but we turned into friends. Thefirst woman, her name is Juanique
Ververa, now McGriff now that she'smarried. She is Jamaican, Chinese and
Puerto Rican and she was diagnosed withbreast cancer, triple negative breast cancer when
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she was twenty nine years old,and she tells her story of advocacy.
She really fought because she was toldthat she's too young for breast cancer,
and she said, I am not. You need to do something. It
turns out she was not too young. Yeah, she fought still. Cancer
metastasized from her breast to her lung. She fought still, metastasized to her
brain. She fought still and sheis still here today to tell her story.
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She's married now, has three beautifulchildren, and she's doing phenomenal.
So breast cancer does not have tobe a death sentence. But it's important
to know to advocate for yourself.You may run into doctors who say you're
too young, you don't need this. You keep pushing, you keep fighting.
The second woman, her name isBrenda Durancy. She is a beautiful
Mexican woman. Her interview is inSpanish. My best friend flew all away
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from California to Philadelphia to interview her. My best friend. She's from Ossavador,
Tatiana de la oh Brenda told herstory of being a strong Mexican woman,
and she said, Mexican women don'tget breast cancer. We don't have
time for that. She said,I have a husband, I have two
children, I have a million thingsto do. I never thought that we
could get it. I don't havetime for it. Because she was diagnosed
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with breast cancer, she finally hadto put herself first for the first time.
I'm not saying that breast cancer savedher, but she looks at it
in a different light that she finallyhas the chance to pour into herself,
which is so important in her story. She also talks about not having insurance,
but she was still able to getall her treatments and not get a
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copay and received the best treatment andstand of care. So not letting insurance
deter you, not having insurance deteryou from receiving care. And the last
woman, her name is Lenn Mitchell. She was diagnosed when she was forty
one years old and she is German, Swedish and Irish, and she tells
her story of being a single motherand fighting for her two children because she
needs to be here for her children. So I wanted to show that breast
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cancer does not discriminate. It doesn'tmatter what you look like, how old
you are, the language you speak, and the times that we have showed
this documentary. What the attendees receivedfrom it was knowing their family cancer history,
clinical trials, janet testing, advocatingfor yourself, and knowing what your
body looks like. And that's that'swhat we want. That is really important.
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All those things that you've said,I think the lesson of one of
your subjects was not to take nofor an answer. That so often women
are disregarded and disbelieved for what theyknow to be true for their bodies,
and it sounds like this particular individualreally fought to get the kind of care
that she deserved. You also talkabout how this Mexican person that you interviewed,
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Brenda Durantes, was able to getthe treatment that she deserved even though
she had no insurance. And alsofor so many women who have children,
they're not only fighting for themselves,but they're fighting for their families. And
I think also, I think youmade it also very good point, which
is that so oft when we puteverybody else first, sometimes there are lessons
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to be learned from the hardship andthe child challenges of having a disease like
this, which is all about pouringlife into yourself and taking care of yourself,
because we know that what they alwaystell you when you're in an airplane
that you're supposed to if it's crashing, you get the oxygen for yourself first,
then you take care of your kids, because if you don't do it,
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then no one's going to do itfor your kids. So these are
some very very important lessons to betold. Now, tell us this is
going to be shown at the PhiladelphiaMuseum of Art. This documentary a letter
to my sisters. Give us allthe details. Absolutely, we are so
excited that we're having it at thePhiladelphia Museum of Art, which is a
historical place. We're so blessed thatPhiladelphia Mayor Jim Kenny, he's coming,
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and the Speaker of the House PasylvaniaSpeaker of the House Representative joining A McClinton
she's coming too, And the phenomenalShari Williams from six ABC, she's going
to be the MC. So it'sa phenomenal event to get everybody out the
community out and just being there forour sisters and brothers because can get breast
cancer too. And the goal isto provide the community with tools and resources
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that they can then take for themselvesand others to lower their chance of getting
breast cancer. And the ultimate goalis to reduce the mortality rate, because
we don't want breast cancer to bea death sentence. We want to take
this sting out of breast cancer,and that is the goal. I'm so
fascinated. You have a path thatall started with being a daddy's girl and
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knowing that radiation therapy helped your dad, and being inspired to do that so
that now you're doing it. You'rea radiation therapist, and by doing that,
you've been meeting some extraordinary women,and you're taking all of those things
and creating this art that is goingto inform so many people and perhaps save
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lives. That's really kind of special. Thank you so much, you know
it's all about him. And thenend the documentary too, I pay tribute
to my friend Jacqueline Smith, whopassed away at the age of thirty third
triple neg to breast cancer. Andlike we keep saying, we don't want
that anymore, right, my dadhad to go through that and I'm said
he did, but he's doing fine. Now. We're also paying tribute to
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Jacqueline, highlighting Janique and Brenda andLynn's story and then hopefully this is a
thing of the past. That isthe goal. Yes, it would be
wonderful where we can say one daythere's no breast cancer. But in the
meantime, let's find out what wecan do to make sure that our lives
are long and healthy. And onething you can do is check out this
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documentary A Letter to My Sisters atthe Philadelphia Museum of Art Saturday, October
seventh, from one to two thirtyNorth Entrance. Do people need to register
or yes, they can register togo on my website doctor niya Imani Bailey
dot com. The link will beright there. Free parking which is huge,
Yeah, light, refreshments and foodand just joining a community. But
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yeah, just go to the Lincolnyou can register. And what's that website?
Yes, doctor nia Emani Bailey dotcom. Doctor nia Imani Bailey,
thank you so much for joining us. Thank you so much for having me.
I appreciate it. The Philadelphia PublicRelations Association will induct communications professional Deirdre
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child Ross Hopkins into its Hall ofFame on Wednesday, October eleventh, during
a luncheon ceremony at the African AmericanMuseum in Philadelphia. We have Deirdre joining
us here today. Congratulations, myfriend, Thank you so much. It
is my pleasure and it was sucha surprise honor. I'm just delighted.
You are certainly deserving of this honor, but also you are a groundbreaker because
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you become the first African American womanto join this Hall of Fame. How
does that feel? It feels amazing. The current president of the past president
of ppra A nominated me for this, and I didn't know it. They
contacted my daughter, Taran Thomas,who's an education tech leader, and they
said, hey, we want tonominate your mother, and they got my
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resume from her, they got allmy information from her, and I didn't
know that I was even nominated untilthe day that I won and they called
me to say that I won.So it was very exhilarating to feel that
your peers felt that your work andso much of my work has been here
in Philadelphia, that your work wasworthy of being recognized by your peers.
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And so it's just been a phenomenalthing. And I'm a blessing in my
life this year. Yeah, it'sa wonderful thing, and it is interesting
to mark that you are the firstin so many different areas. In twenty
nineteen, you made history by becomingthe first person of color to lead the
Philadelphia Public Relations Association in seventy fiveyears. So that is something worth noting,
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and I wonder if we can talka bit about what the journey is.
You know, all of us womenof color oftentimes are the first in
everything that we do. Right,That is so true? No, Lorraine,
You're so right. You know Ithink about you. You have a
string of first. You know Ihave a string of first. In some
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ways, it's bittersweet. When Ibecame president of Philadelphia Public Relations Association in
twenty nineteen, it was bittersweet.It was wonderful to be recognized by the
City Council, it was wonderful tohave receptions and friends speak about it,
but there was a part of methat felt a little bitter sweet. And
the bitter sweet aspect was that itwas seventy five years into the organization before
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that happened. And so while Iwas happy to receive that honor, I
also was able to reflect on thefact that in Philadelphia, a very diverse
city, it took seventy five years. Was very bitter sweet recognizing that here
too with Hall of Fame, youknow, it was established in nineteen seventy
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two, and here I am intwenty twenty three. Now there were two
other men of color there. Oneof them is the person that I deeply
respect and speak to like weekly andlove, David Brown, the Reverend David
Brown from Temple University, who hasjust been one of the most fantastic friends.
He's been involved in this organization.He supported me in this organization,
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but more importantly, he has helpedmentor me in public relations because I came
and from journalism world. I was, you know, at the Philadelphia in
Choir for sixteen years and before thatat the Washington Post. I had a
heavy journalism background. And David isone of the people who really welcomed me
into this organization, who really lookedat me and said, you know,
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you should be president at some pointand stood up and said, you know,
let's enter Dared into the Hall ofFame this year, and I heard
he spoke on my behalf and I'mvery grateful for the great friend across the
city who did this for me.Finally, I'd like to talk about how
critically important it is to have diversityin all fields, but certainly in public
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relations, because public relations, justlike journalism, is part of creating the
conversation in our culture, in oursociety, and having a person of color
who has had influence in that spheretell us what that means, you know,
I think it's about cultural awareness.So many times I have been the
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only person of color in a room. You know, at times, I
might have been the only person ofcolor in a meeting at the Philadelphia Inquirer.
I might have been the only personof color in a meeting at Temple.
I might be the only director instrac coms of color. And when
you look at these things, orsenior director, when you look at these
things, you realize that there arevoices within our city, within our region,
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within our country that are underrepresented.And sometimes I feel like a little
bit of the heaviness of that ofthe mission on me. But other times
I feel like I'm glad I washere because I presented a new perspective,
maybe not even a new perspective,just a different perspective. So I think
that enriches the cultural fabric of Philadelphia. It's one of the things I love
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about it. It's why, youknow, most of my career I'm from
LA and most of my career hasnow been in Philadelphia, because Michelle spoke
about that too. You've got totake a seat at the table, and
if there's no seat, you gotto grab the folding chair, you know,
and get in there. And havinga seat at the table is so
important when editorial decisions are made,when decisions are made about the allocation of
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resources. So I take it veryseriously. I love this city. I'm
so committed to this region. Ihave family here, my brothers in this
area who works for Mosaic Development.They did a lot of work rebuilding parts
of North Philadelphia. You know,they're rebuilding at the Navy Yard. We
have a great pride in this communityand that's what's made this honor so special.
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I hope people can come out joinus on October eleventh at the African
American Museum. That's the appropriate placefor this event for me, because we
know the museum is going to bemoving. We know the museum is going
to need all of our support sothat we can make it, you know,
that stellar palace that we deserve tohave that recognizes all of the diversity
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of culture in our cities and ourregion. So I'm just really thrilled,
really happy to be able to supportthe mission and the vision for a very
diverse community that's well represented. Well. I love that, And congratulations on
being honored. And I love theanalogy about having a place at the table
because once you have a chair,you can pull up another chair for the
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person to sit next to you.Right absolutely, And that's how I felt
about David in this instance, andthat's how I feel. Oh. As
a matter of fact, at theevent, I will have the opportunity to
sponsor young women to come to thisevent, to be among professional people,
to be mentored in this setting,to be there when you can meet a
Tamila Edwards, who's our keynote speaker, where you can meet some of the
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top people in public relations across thecity and communications across the city. John
McNichol from the Convention Center. Youknow, these are spaces that it's really
nice that we get to claim sometimes, and when we have those opportunities,
I hope everybody who leaves feels likea diamond. I really do, and
I'm really happy to be able togive this opportunities to some young women of
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color who I'd love to mentor intopublic relations and communications in the city.
So very happy about that part.But we're delighted and we're so thrilled that
you're being honored by the Philadelphia PublicRelations Association, which inducts communication professional Dedre
Childress Hopkins into its Hall of Fameon Wednesday, October eleventh, during a
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luncheon ceremony at the African American Museumin Philadelphia from eleven thirty am to one
thirty pm. If you'd like tickets, you can go to the website which
is p p r A dot nT DIDRA. Congratulations once again, a
great acknowledgment of what you've been ableto accomplish and what you are yet in
the future going to accomplish for allof us. Thank you, Thank you,
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it's my pleasure. You can listento all of today's interviews by going
to our station website and typing inkeyword Community. You can also listen on
the iHeartRadio app Keyword Lorraine with oneR. Follow me on Twitter and Instagram
at Lorraine Ballard I'm Lorraine Ballard Morrow, and I stand for service to our
community and media that empowers. Whatwill you stand for? You've been listening
(28:37):
to insight and thank you