🎧 Dawn O’Hara: Building Inclusive Solutions Beyond What NYS Offers

What happens when families stop waiting for the system to fix itself—and start building what their loved ones need?

In this episode of Finding Common Ground, Heather and Steve sit down with Dawn O’Hara, a mother of two adult children with disabilities, to explore what it really takes to support independence, dignity, and inclusion. From leaving behind one system in Pennsylvania to navigating New York’s evolving landscape, Dawn shares what she’s learned and why she refuses to sit on the sidelines.

Early in the episode, Dawn shares a moment no parent forgets: watching her daughter work hard for a paycheck—only to lose her benefits because of it. It’s a gut‑punch that too many families know too well, and it raises critical questions about what we’re really incentivizing in our systems. Dawn reflects, “You are your children’s strongest advocate and their loudest voice.” Her honesty speaks directly to those who may feel defeated or unsure—reminding us that staying quiet doesn’t serve our kids.

Steve adds his own challenge to the status quo: “If OPWDD didn’t exist, families would still find a solution. They’d fix it.” It’s a powerful reminder that waiting for change isn’t the same as creating it—and families have always led the way when the system came up short.

• Family Support Services (FSS) is a New York State program that provides limited but essential help—like respite, reimbursement, and recreational opportunities—for families caring for a loved one with a developmental disability at home. Learn more and explore how to get involved with a local FSS Advisory Council here: https://app.box.com/s/4rlpx9opnrwgm44ywo33064mw4t7wg5p

Whether you’re just beginning your journey or facing the hard questions of what happens after you're gone, this episode will remind you: we are the cavalry we’ve been waiting for—because, as Heather says, “we can’t afford to wait for the people in boardrooms to save us.” There’s power in linking arms with others who get it. Tune in now to feel seen, supported, and recharged.

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