Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
Hello Internet, and welcome to my coffee break. I have
the coffee, though I've had the fish finger sandwich sandwich
between two rice cakes. As I'm always on a diet,
That's been my life on a diet. There is no
other way forward for me. It's always about the diet,
and that's because I have an uncontrollable urge for tasty food,
(00:21):
so unfortunately I have to be really strict. Anyway, Guys, look,
I am now a fundraiser for a wonderful cause, the
Autism Caravan, and I'm really really excited about it. My
grandson is autistic. I wouldn't say severely autistic, but definitely
(00:42):
noticeably autistic, and I look after him an awful lot
because his mum is very sick, she has a MS.
And really I was thinking about how trapped we are
in the house and how difficult it is to take
him to places where possibly he's going to be completely
overwhelmed and just not enjoy it. So these things sort
(01:05):
of led me to this project, which is creating a
safe space, a mobile safe space that goes around the
idea I think would be really that eventually we could
turn up in a town and go to a car
park for a bit or a fate or a fair
or fest definitely festivals, absolutely festivals, and just offer sort
(01:27):
of an hour off. You wouldn't be able to leave
your child unattended by an adult. You would have to
stay there with them, but just that little break, you know,
if the child is becoming a bit anxious or whatever,
and you can just come and sit under the awning.
It's going to be so peaceful and calm. There will
(01:50):
be sensory things inside the caravan. There'll be a quiet
space tent. There will be lots of tech. We like
tech the side of the side of the water. We
love tech. It's just you know, the way of the world.
And there is so much really good tech for neurodivergent
(02:11):
people anyway. So there will be I'm hoping ultimately for
three touch screens which will be used for various things,
very software and an app. Will have our own app.
But bean bags absolutely gorgeous, Just a big stack of
bean bags. You know, you don't need too much, but
(02:31):
you do need calm. So the calm space is going
to be really essential for the caravan. But then, as
an artist and a musician, obviously that my leanings are
towards those things. So there will be my tummy is rumbling.
Can you hear it? Probably not, let's hope you can't
hear it. You know, there will be an accent on creativity,
(02:57):
because it's just who I am, you know, get away
from it. So there'll be you know, drawing tables and
crafting tables and things like that, just for mucking around,
nothing too educational or rigid, just for dipping your toe
into the whole possibility. So I do think there will
(03:20):
be some instruments, the ones that are easy to play,
you know, tambourine might be a bit loud. Perhaps I
can modify instruments so they're quiet, So rattles and tamarines
and things. Perhaps some recorders, perhaps a keyboard with headphones.
You know, that would be really nice, wouldn't it, Because
(03:41):
you know, lots of times children haven't had access to
things because their parents are poorly, because their parents can't
deal with the meltdowns. And you know, certainly I've learned
a lot about meltdowns. Funnily enough, one of my daughters
has just been diagnosed as autistic and with ADHD, and
(04:04):
she's in her thirties and obviously well not obviously, but
this is why I'm going for my own testing at
some point. I'm on a waiting list, three Milt waiting list.
But she wasn't the one that had the meltdowns. Funnily enough,
there were other children. I had four children, and the
others were much more prone to meltdowns. And they haven't
(04:28):
all been tested. Two of my children have been tested,
and two of them are thought to be on the
spectrum or one's definitely autistic and one's Aspergers. That was
years ago, when he was about twelve, and we know
much more about it now. I didn't know anything about it.
I didn't understand what I was dealing with. And you know,
(04:50):
I do feel that my family really suffered because of that.
In so many ways, my mental health suffered. Certainly. We
know more now, guys, We know loads more now, and
we know more about what works, what doesn't work, what
might work, what might not work. We know more about
(05:12):
trying to force things on people is not the answer,
rarely the answer. Actually, trying to make a person who's
different toe the sameness a line, it's fool hardy that
you're going to fail right at the start. So you know,
this is what I've learned in the last few months
(05:34):
having my grandson with me, So I'm trying lots of
different things actually with him, and that there will be
a book, of course I will. I'm in two minds
whether to write a journal. I think it might be
quite nice and definitely a book about you know, thinking
outside the box and you know, making creating, carving your
(05:54):
own journey with your own organic parenting, because you are
the best person to do it. You're absolutely the best
person to do it. If your mum or dad and
I think we need to be careful, we don't overlook that.
And you will sense things that you're doing correctly and
send the things that you're doing incorrectly, and you will
(06:16):
adapt to those. And I do think parents have gut
reactions and they do act upon them despite what other
people tell them to do, you know what doctor Zeus
might say or whatever. You know, latest sort of fad
or crazy is about parenting. Parents know best because they're
with their children all the time. But we do need help.
(06:39):
I think definitely if I'd had some help way back,
and I you know, I'd like some granny help as
well now because grandparents do step up a lot of
the time. They have to they you know, they're the
last bought of call many times. So so yes, thinking
about all these things, and I've set up the fundraising
(07:00):
page on go fund me, which is a sort of
I'm not a registered charity or anything like that, yet
there are some things that I'm going to do. My
first appointment is well, I'm just waiting for it with
Caroline Dynage, who's our MP here in Gosport where I
(07:21):
currently reside in the Marina, and you know, I'm going
to pick her brains about what's available. So I want
to start off with small grants and move up to
bigger ones and eventually a fleet of caravans, a fleet
of them, you know, maybe ten that go all around
the country. That would be great, wouldn't it really really cool?
(07:44):
I think, But we'll start off with one. I mean,
we'll start off with nothing. Actually that's what we're starting
off with, absolutely nothing. So I'll be promoting I guess
as the word the go fund page a lot, and
it might get annoying my eBay shop, anything that sells
two pounds goes to the go fund me, So you'll
(08:04):
see these little incremental rises in the on the go
fund oh meter the go fund Me ometer. It has
a little dial and there's nothing in there at the moment.
Nobody's donated anything at this particular time. My mom says
she's going to but I don't, you know, people say,
(08:25):
don't they bless them, bless you, m'am. But we'll wait
and see if that happens. And actually, you know, a
pound is enough. It's the small things that build up,
isn't it. So I'm going to every sale that I
get on eBay, two pounds will go into the go
fund me page pot, and you know, then it's at
(08:49):
least something's moving, even if it's only coming from myself.
So we can't afford much more than two pounds. I'm
afraid because the postage is expensive, and you know, listing
is expect all of it. It's just so expensive. Everything online
now is really expensive. I think the days of being
(09:10):
able to set up shop online with nothing for nothing
are well and truly over. Even the websites cost money,
so you know, I mean, I've got a website for
a year on a budget one pound a month. So
I'm going to after this coffee, which I haven't even
(09:31):
made yet. Guys, the cup's empty in front of me.
I'll turn that into the Autism Caravan website. I think
that'd be really nice actually to have that, So we
will do that. So it's not costing me anything for
the next nine months, but after that it's about thirty
pounds a month. They think, wow, probably I'll probably have
(09:52):
to close it down. Then you know, you can't. You
can't pay that sort of money. You simply can't for
a wee website. It's you know, once you do that
and then you start, you know, you've got to invest
in other things. You might need to employ somebody to
do your marketing for you and all your social media
(10:12):
marketing and all that stuff, and you can run into thousands,
absolutely thousands over the year. You know, you've got to
be really careful about that. Every time I spend money
that isn't directly for the caravan, that's money taken away
from the caravan, do you see what I mean? So yeah, anyway,
(10:33):
also some children's books. So I'm keeping this podcast, the
l Sevlan podcast for my sort of personal journey. So
the personal journey fundraising and all things writing, I writing
my books and my music. Guys, I'm really getting on
with this double based stuff. I think I'm going to
be really good at it. Honestly, I think I can
(10:53):
say that now. I had a bit of a downfall
with the orchestra because I have terrible nerves, terrible, terrible nerves,
and I just don't think I can do that. But
I'm still going to go. I'm going to force myself,
but I don't think I'm ever going to get over it.
But we'll see, We'll see if I persevere. Perhaps you
never know. There are ways and means bit beta blockers
(11:16):
and things like that, you know, And if I'm diagnosed
with ADHDA, I might go on the medication because the
medication may help me with such things. I don't know.
I don't know if it will. So yeah, this podcast
is going to be specifically for my personal life, which
is embroiled currently in you know, making music and looking
(11:40):
after my grandson and the autism caravan. That's about the
sum of my parts. So yeah, stay tuned, stay close.
If you want to find anything more out about, you know,
the whole project and the list of what the things
(12:01):
that I'm hoping to have inside the caravan, you can
pop over to my blog. I have listed stuff everywhere.
I'm going to put all those details everywhere in a
minute on my eBay items as well. So I've lots
of promotion, lots of promotion, but I don't want to
ram it down everyone's throats. You know, people get annoyed,
(12:22):
don't they. People are like, oh God, I gave you,
I gave you a pound last week, now leave me alone.
You can't blame them, you know. You can't blame people
for not wanting to. I hate it when somebody shoves
a donation jar under my nose. I can't stand it. Right, guys,
I'm going to get this coffee because I'm gasping
Hello Internet, and welcome to my coffee break. I have
the coffee, though I've had the fish finger sandwich sandwich
between two rice cakes. As I'm always on a diet,
That's been my life on a diet. There is no
other way forward for me. It's always about the diet,
and that's because I have an uncontrollable urge for tasty food,
(00:21):
so unfortunately I have to be really strict. Anyway, Guys, look,
I am now a fundraiser for a wonderful cause, the
Autism Caravan, and I'm really really excited about it. My
grandson is autistic. I wouldn't say severely autistic, but definitely
(00:42):
noticeably autistic, and I look after him an awful lot
because his mum is very sick, she has a MS.
And really I was thinking about how trapped we are
in the house and how difficult it is to take
him to places where possibly he's going to be completely
overwhelmed and just not enjoy it. So these things sort
(01:05):
of led me to this project, which is creating a
safe space, a mobile safe space that goes around the
idea I think would be really that eventually we could
turn up in a town and go to a car
park for a bit or a fate or a fair
or fest definitely festivals, absolutely festivals, and just offer sort
(01:27):
of an hour off. You wouldn't be able to leave
your child unattended by an adult. You would have to
stay there with them, but just that little break, you know,
if the child is becoming a bit anxious or whatever,
and you can just come and sit under the awning.
It's going to be so peaceful and calm. There will
(01:50):
be sensory things inside the caravan. There'll be a quiet
space tent. There will be lots of tech. We like
tech the side of the side of the water. We
love tech. It's just you know, the way of the world.
And there is so much really good tech for neurodivergent
(02:11):
people anyway. So there will be I'm hoping ultimately for
three touch screens which will be used for various things,
very software and an app. Will have our own app.
But bean bags absolutely gorgeous, Just a big stack of
bean bags. You know, you don't need too much, but
(02:31):
you do need calm. So the calm space is going
to be really essential for the caravan. But then, as
an artist and a musician, obviously that my leanings are
towards those things. So there will be my tummy is rumbling.
Can you hear it? Probably not, let's hope you can't
hear it. You know, there will be an accent on creativity,
(02:57):
because it's just who I am, you know, get away
from it. So there'll be you know, drawing tables and
crafting tables and things like that, just for mucking around,
nothing too educational or rigid, just for dipping your toe
into the whole possibility. So I do think there will
(03:20):
be some instruments, the ones that are easy to play,
you know, tambourine might be a bit loud. Perhaps I
can modify instruments so they're quiet, So rattles and tamarines
and things. Perhaps some recorders, perhaps a keyboard with headphones.
You know, that would be really nice, wouldn't it, Because
(03:41):
you know, lots of times children haven't had access to
things because their parents are poorly, because their parents can't
deal with the meltdowns. And you know, certainly I've learned
a lot about meltdowns. Funnily enough, one of my daughters
has just been diagnosed as autistic and with ADHD, and
(04:04):
she's in her thirties and obviously well not obviously, but
this is why I'm going for my own testing at
some point. I'm on a waiting list, three Milt waiting list.
But she wasn't the one that had the meltdowns. Funnily enough,
there were other children. I had four children, and the
others were much more prone to meltdowns. And they haven't
(04:28):
all been tested. Two of my children have been tested,
and two of them are thought to be on the
spectrum or one's definitely autistic and one's Aspergers. That was
years ago, when he was about twelve, and we know
much more about it now. I didn't know anything about it.
I didn't understand what I was dealing with. And you know,
(04:50):
I do feel that my family really suffered because of that.
In so many ways, my mental health suffered. Certainly. We
know more now, guys, We know loads more now, and
we know more about what works, what doesn't work, what
might work, what might not work. We know more about
(05:12):
trying to force things on people is not the answer,
rarely the answer. Actually, trying to make a person who's
different toe the sameness a line, it's fool hardy that
you're going to fail right at the start. So you know,
this is what I've learned in the last few months
(05:34):
having my grandson with me, So I'm trying lots of
different things actually with him, and that there will be
a book, of course I will. I'm in two minds
whether to write a journal. I think it might be
quite nice and definitely a book about you know, thinking
outside the box and you know, making creating, carving your
(05:54):
own journey with your own organic parenting, because you are
the best person to do it. You're absolutely the best
person to do it. If your mum or dad and
I think we need to be careful, we don't overlook that.
And you will sense things that you're doing correctly and
send the things that you're doing incorrectly, and you will
(06:16):
adapt to those. And I do think parents have gut
reactions and they do act upon them despite what other
people tell them to do, you know what doctor Zeus
might say or whatever. You know, latest sort of fad
or crazy is about parenting. Parents know best because they're
with their children all the time. But we do need help.
(06:39):
I think definitely if I'd had some help way back,
and I you know, I'd like some granny help as
well now because grandparents do step up a lot of
the time. They have to they you know, they're the
last bought of call many times. So so yes, thinking
about all these things, and I've set up the fundraising
(07:00):
page on go fund me, which is a sort of
I'm not a registered charity or anything like that, yet
there are some things that I'm going to do. My
first appointment is well, I'm just waiting for it with
Caroline Dynage, who's our MP here in Gosport where I
(07:21):
currently reside in the Marina, and you know, I'm going
to pick her brains about what's available. So I want
to start off with small grants and move up to
bigger ones and eventually a fleet of caravans, a fleet
of them, you know, maybe ten that go all around
the country. That would be great, wouldn't it really really cool?
(07:44):
I think, But we'll start off with one. I mean,
we'll start off with nothing. Actually that's what we're starting
off with, absolutely nothing. So I'll be promoting I guess
as the word the go fund page a lot, and
it might get annoying my eBay shop, anything that sells
two pounds goes to the go fund me, So you'll
(08:04):
see these little incremental rises in the on the go
fund oh meter the go fund Me ometer. It has
a little dial and there's nothing in there at the moment.
Nobody's donated anything at this particular time. My mom says
she's going to but I don't, you know, people say,
(08:25):
don't they bless them, bless you, m'am. But we'll wait
and see if that happens. And actually, you know, a
pound is enough. It's the small things that build up,
isn't it. So I'm going to every sale that I
get on eBay, two pounds will go into the go
fund me page pot, and you know, then it's at
(08:49):
least something's moving, even if it's only coming from myself.
So we can't afford much more than two pounds. I'm
afraid because the postage is expensive, and you know, listing
is expect all of it. It's just so expensive. Everything online
now is really expensive. I think the days of being
(09:10):
able to set up shop online with nothing for nothing
are well and truly over. Even the websites cost money,
so you know, I mean, I've got a website for
a year on a budget one pound a month. So
I'm going to after this coffee, which I haven't even
(09:31):
made yet. Guys, the cup's empty in front of me.
I'll turn that into the Autism Caravan website. I think
that'd be really nice actually to have that, So we
will do that. So it's not costing me anything for
the next nine months, but after that it's about thirty
pounds a month. They think, wow, probably I'll probably have
(09:52):
to close it down. Then you know, you can't. You
can't pay that sort of money. You simply can't for
a wee website. It's you know, once you do that
and then you start, you know, you've got to invest
in other things. You might need to employ somebody to
do your marketing for you and all your social media
(10:12):
marketing and all that stuff, and you can run into thousands,
absolutely thousands over the year. You know, you've got to
be really careful about that. Every time I spend money
that isn't directly for the caravan, that's money taken away
from the caravan, do you see what I mean? So yeah, anyway,
(10:33):
also some children's books. So I'm keeping this podcast, the
l Sevlan podcast for my sort of personal journey. So
the personal journey fundraising and all things writing, I writing
my books and my music. Guys, I'm really getting on
with this double based stuff. I think I'm going to
be really good at it. Honestly, I think I can
(10:53):
say that now. I had a bit of a downfall
with the orchestra because I have terrible nerves, terrible, terrible nerves,
and I just don't think I can do that. But
I'm still going to go. I'm going to force myself,
but I don't think I'm ever going to get over it.
But we'll see, We'll see if I persevere. Perhaps you
never know. There are ways and means bit beta blockers
(11:16):
and things like that, you know, And if I'm diagnosed
with ADHDA, I might go on the medication because the
medication may help me with such things. I don't know.
I don't know if it will. So yeah, this podcast
is going to be specifically for my personal life, which
is embroiled currently in you know, making music and looking
(11:40):
after my grandson and the autism caravan. That's about the
sum of my parts. So yeah, stay tuned, stay close.
If you want to find anything more out about, you know,
the whole project and the list of what the things
(12:01):
that I'm hoping to have inside the caravan, you can
pop over to my blog. I have listed stuff everywhere.
I'm going to put all those details everywhere in a
minute on my eBay items as well. So I've lots
of promotion, lots of promotion, but I don't want to
ram it down everyone's throats. You know, people get annoyed,
(12:22):
don't they. People are like, oh God, I gave you,
I gave you a pound last week, now leave me alone.
You can't blame them, you know. You can't blame people
for not wanting to. I hate it when somebody shoves
a donation jar under my nose. I can't stand it. Right, guys,
I'm going to get this coffee because I'm gasping
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