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November 10, 2025 52 mins
What if dementia care could be guided by love and knowledge — not fear? Dr. Ethelle Lord joins Betsy Wurzel to share how education is changing caregiving forever.

In this enlightening episode of Chatting with Betsy, host Betsy Wurzel speaks with Dr. Ethelle Lord, founder of the International Caregivers Association (ICA) and a pioneer in transforming how dementia care is taught and delivered worldwide. Betsy and Dr. Lord share their personal caregiving journeys and the deep love that continues long after loss. Dr. Lord discusses her mission to empower family caregivers, professionals, and organizations through compassion, training, and advocacy — helping them understand the human side of dementia.

She introduces her groundbreaking Transactional Dementia Intelligence (TDI) Business Model of Dementia Care (SM) — a holistic system that blends education, coaching, and care across home and facility environments. This approach helps caregivers and staff move beyond routine care toward meaningful connection and empathy.

Together, Betsy and Dr. Lord explore the importance of caregiver education and the positive impact it has on both caregivers and their loved ones. They discuss how validation and understanding can prevent agitation, reduce stress, and restore dignity for individuals living with dementia. Dr. Lord also highlights the role of prevention — through healthy eating, regular exercise, and avoiding smoking, alcohol, and drugs — as part of overall brain health.

She introduces a fascinating “voice scan” test, a promising tool for detecting early signs of Alzheimer’s, diabetes, and other conditions. This conversation is filled with hope, insight, and inspiration. How Dr. Ethelle Lord Is Transforming Dementia Care reminds every listener that true change begins with education, empathy, and the courage to see caregiving as both an art and a mission. 

📌 Learn more at www.icacares.com or reach Dr. Lord at lordethelle@gmail.com

Become a supporter of this podcast: https://www.spreaker.com/podcast/chatting-with-betsy--4211847/support.

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Transcript

Episode Transcript

Available transcripts are automatically generated. Complete accuracy is not guaranteed.
Speaker 1 (00:00):
Hello, everyone, this is Betsy Worthal. You're a host of
Chatting with Betsy. I'm passion Roll Talk Radio Network, a
subsidiary of Global Media Network LLC. I'm a manstrs to educate, enlightened,
and entertain. The views of the guests may not represent
those of the hosts of the station, Folks. I am

(00:22):
like super excited today. I'm always excited when I do
my show and tell you it's no exception. I am
just so honored to have with me today a really
special guest, fierce advocate. I'm gonna tell you about my
guests before my guest COEs on to speak. My guest

(00:44):
today is doctor Tel Lord and she is a seasoned
dementia coach. She is a thru the caregiver for her
husband who I asked your dementia for twenty one years.
She is a management coach, an educator, a mother, a grandmother,

(01:08):
founding president the International Caregiver Association, Dementia Management consultant, creator
of the Transactional Dementia Intelligence business model, Dementia care to
the whole system, which includes management, training, care and coaching

(01:29):
which I could tell you, folks, and much needed, much
much needed. And she is also author of Alzheimer's Coaching,
taking a system's approach and creating an Alzheimer's friendly healthcare workforce.
Also That Should be Read, which will be in its

(01:53):
third edition in early twenty twenty six will be released.
And another book, How in the World and Now What
Do I Do? Is in four languages, which is desperately needed.
What do you do when you get a diagnosis? Most
people don't even know where to start. That's a much

(02:14):
needed book to be read. And I'm excited to have
with me today, Doctor Attel Lord. Welcome, Dr Lord to
Johnnick with that's me.

Speaker 2 (02:26):
Ohank you for this lovely introduction. It's entirely my poins
to speak with you today.

Speaker 1 (02:33):
Oh thank you. I am so honored to have you on.
Finally getting a chance. And before I forget, I just
want to tell the folks this is the middle of October,
but as I'm recording this, it's October sixteenth and probably
be out in November. November is National Caregivers Months and
National Alzheimer's Awareness Months. Folks, those of us who have

(02:58):
lived it, we don't need them. It's the public who does.
And I love to have resources people who are resources
on and I'm going to tell you right now, doctor
Hotel Lord is an excellent resource. She not only does
she have a book knowledge, she has personal experience. And

(03:21):
to me, do Lord, well, if I'm looking for someone
to help me to be a resource, I want that
to know what I went through. And when you have
the experience that you have as being a caregiver and
all of you've done, you're such a fierce advocate. You're
the go to person in my opinion.

Speaker 3 (03:46):
Thank you for saying that.

Speaker 2 (03:48):
But you know, I've even had nurses and the director
of nursing and nurses and skilled facilities tell me that
when they need an advocate, they certainly want to call
on me.

Speaker 1 (04:00):
Yes, yes, And I have to thank you publicly. I
told doctor Lord of before we recorded, and I publicly
want to say that doctor fol ChIL O Lord is
a fairs advocate. She has done so much for caregivers

(04:21):
and working at facilities and training people. So my hat
off to you. Thank you, Thank you from the bottom
of my heart of what you do and have done
for caregivers and their families. So I like to start
with d your Lord is how did you become such

(04:45):
an advocate? You're you're just so active founding president of
the International Caregiver Association. I mean, we definitely need that,
we places need to be trained your model, and there's
just so much to discuss here. So what would you
like to discuss first? I'll ask you.

Speaker 2 (05:06):
Well, first of all, how I became an advocate is
similar similar to your experience, Betsy, because I not I
noticed that my husband needed that kind of advocacy because
he was in danger sometimes of being hurt and neglected,
and I wanted nothing to happen to him while I

(05:28):
was able to take care of him. And so I
was as you said, so you used the word fearless,
I was fearless. Some people actually feared me when he
was in their care. I even had a doctor asked
me to sign a release so that he wouldn't be
held responsible for his care because we thought that he

(05:49):
could do just about anything to my husband and I
would accept it. So we have to ask family caregivers
we really have to be informed, in trained and know
what the rights are of our loved one, of our person,
and speak up, not to be afraid to be to
speak up.

Speaker 3 (06:08):
And so when I.

Speaker 2 (06:09):
Created the Transactional Dementia Intelligence, that was a big part
of it. The family caregivers can follow through and become
part of the care team now under the license of
the TDI, which is a transactional Dementia Intelligence That's really
really important because I noticed that sometimes families would come
in and they would be not received well and not

(06:31):
certainly not taken seriously.

Speaker 3 (06:34):
And that needs to stop, and especially now in.

Speaker 2 (06:37):
The way that healthcare is working and the services are
probably not going to have the money they used to
have from the government, especially here in the United States,
we need to involve the family caregivers and include them
in the care team. And this is what the license
of the does, and it improves the quality of care,

(06:59):
It reduces turnover and burn out, and it improves the
social references that the families have now about these care
systems because they can be part of it and they
can see what goes on from day to day. So
actually an organization can actually make more money. Return on
investment is better because it's run better with the dementia

(07:23):
coach at the center of the organizations.

Speaker 3 (07:26):
It's unheard off. For example, one of the benefits.

Speaker 2 (07:29):
Is that a CNA that's a certified nurse assistant that
does about ninety five percent.

Speaker 3 (07:36):
Of the work.

Speaker 2 (07:38):
They work only six hour shifts, but they're paid for eight. Now,
when my husband was in long term care, they worked
eight hours, sometimes ten hours, twelve hours. Well guess what
after six hours? I noticed they work pretty.

Speaker 3 (07:51):
Well worn out.

Speaker 2 (07:53):
And so I think that six hours is plenty to
lift on people, to feed them, to clothe them, to
bathe them, to do everything for them.

Speaker 3 (08:03):
So six hours is the limit.

Speaker 2 (08:06):
In long term care. Now I have a project going
on on adult day care. They even adopted the six
hours in adult day.

Speaker 3 (08:15):
Care, so.

Speaker 2 (08:17):
It's a welcome program. It's really changing everything about long
term care. And even in home care, we have the
same difficulties. People are undertrained and they're sent.

Speaker 3 (08:31):
Into the home.

Speaker 2 (08:32):
Move in physical therapists, occupational therapists, nurses are sent into
homes social workers and they're not prepared.

Speaker 3 (08:40):
They don't know how to open.

Speaker 2 (08:42):
A community communication and also to keep it going and
get compliance instead of resistance.

Speaker 3 (08:49):
So that's what it's all about.

Speaker 2 (08:51):
And so I also created some training to go along
with that, which I call Transactional Dementia Intelligence Fundamentals. And
then the advance for somebody who wants to become a
trainer or within an organization or on their own private practice.

Speaker 1 (09:09):
That I'll tell you what that that is like an
answer to prayer, not your lord, for people to be
properly trained and see it as working six hours and
get paid for eight. I know that people have done
double chefs because they're so sure. Somebody calls out and
they're working sixteen hours and that's just too much. It

(09:34):
is that is just too hornful.

Speaker 3 (09:37):
It's unaccessible that.

Speaker 2 (09:38):
You don't get care, you don't get good care, and
that's when you.

Speaker 3 (09:41):
Get neglect and abuse. So we're going to stop. Yeah,
we're going to stop that by showing.

Speaker 2 (09:47):
The shift work and uh and compensating people properly so
we keep the best, only the best, and they always
show up. You'll never you'll never not see them at
the door waiting to go in because they know that
they're going to be able to go home and not
be completely exhausted.

Speaker 1 (10:06):
That is such a great a theory and practice because
that is just so important because they do get burned out.
That's what it is a high turnover rate because the
say and A's or burnt down. There aren't the nurses
because they can't give the care that they were like

(10:29):
to give because they have too many patients to get up. Yes, yes,
I yeah, I know. This is going way back when
I as a teenager back in nineteen seventy four seventy five,
I worked at a nursing home. I had eight to
ten patients of not twelve to get up. That was

(10:50):
and they that was it's too much. I quit too
much and I saw too much. Yeah, and I saw abused.

Speaker 2 (11:00):
Yes, I saw abuse and I saw neglect while I
was with my husband. But the other thing is is
that when you add the family caregiver to that team,
your shift with eight or ten people, but if you
had a couple of family caregivers there to give you
a hand, you know, to answer something for their loved
one or to make sure they remain engaged and happy

(11:26):
where they are, that makes a big difference for that
caregiver that cne.

Speaker 1 (11:33):
Yes, it does. And to show appreciation, which my mother
in law was in a county nursing care facility and
I went to the director of nursing. I complimented this
one nurse in particular, who I thought he went over
and above, you know, bring in a used to bring

(11:53):
in cookies or give him a gift card My mom
used to give gift cards out just the show appreciation,
you know, like I appreciate you. It goes a long way.
I do have to ask you, how did the nursing
facilities get in touch with you to get this program

(12:16):
and their facility? Yes, go ahead, because this is so important,
and I hope every single facility, who here's the show.
By some chance someone from the facility, here's this show?
Please I beg you to contact uh doctor lord. This

(12:42):
is a program that is a must.

Speaker 4 (12:46):
Go ahead, Yes, thank you, thank you.

Speaker 2 (12:50):
First of all, I'm going to say about the training.
I see and you've heard that, and I'm sure you've
been trained to do that as well. But imagine uh
redirecting for ever people with dementia trying to get their attention,
trying to get their compliance so that they can give
them the services that they need at the time, whether
it's bathing, or whether it's going to.

Speaker 3 (13:13):
An activity, or.

Speaker 2 (13:15):
Whether it's going to eat and whatever it is. The
training that we do in one minute or less, one
minute or less, we get compliance, So it cuts down
on the time and the effort that people make to
try to get the attention and the compliance of maybe
at home would be their loved one, but in facility

(13:37):
would be their resident.

Speaker 3 (13:39):
So to get a.

Speaker 2 (13:40):
Hold of me, they can go to Ica Cares in
the plural dot com or dot c A for Canada,
so Ica cares dot com, Ica cares dot ca A
and my email is doctor Lord, d R period good
Lord LRD at ica cares dot com or ica cares

(14:06):
dot c A.

Speaker 1 (14:09):
Thank you. Yes, that's so important. I have to tell
you this to share a story with you, Doctor Lord,
and I helped hospice staff would receive this training, this education,
because it's so important. Unfortunately, my husband had the I

(14:29):
call it the Hospice Fund how experience, and the CNA
came one morning. I had already medicated macause he was
agitated and he was calm when she came and she
said him I left the room maybe for thirty seconds,
and I hear Matt screaming, and my son told me

(14:53):
that the aide didn't talk to Matt, just lifted him
up abruptly under his arms, and that got him going.
And she had an audacity to say to me, make sure,
mister Sloane that's my married name, is I'm medicated before
she comes. And I said to her. I had you

(15:16):
to know that Matt was medicated before he came, and
because you agitated him, I now had to medicate him again.
And I caught it the hospice. I said, don't bother
sending her. I could do this myself. I couldn't pullieve it.

Speaker 3 (15:35):
Yes, and that happened.

Speaker 2 (15:37):
That happened too often, too often, and instead of medication,
if they had proper training, there would be no need
for medication. That's exactly right. And I often say when
people say I don't know what happened. The person got
very excited, it started to throw things or starting wanting
to hit and I simply slowed down and I asked, how.

Speaker 3 (15:59):
Did you set it up that way?

Speaker 1 (16:03):
Yeah? Oh you know what? I could have used you,
doctor Lord, twenty twenty years ago, because my mother in law,
Matt's mom, she was diagnosed in two thousands. You know,
there was an information back then and nothing. And I
worked as a licensed practical nurse and I was never

(16:24):
I never heard the word Alzheimer's. Never. It was finality.
It was you know, organic brain syndrome. You never heard
the word Alzheimer's. And Matt's grandmother had it, but it
wasn't cool to Alzheimer's back then we just thought, you know,
she's seen now. But with Matt's mind, there wasn't any information.
Fast forward with my dad two thousand and eight, there

(16:45):
really wasn't much. Fast forward to twenty ten with Matt
with early on set there was still very little and
doctors didn't even know about early on set, which I
know they're more educated now. But thank God really for
you people like you who are making such a huge

(17:06):
difference for caregivers because people think, and I know you
notice that the Lord, because the people think that they're
in a memory care unit, those people are properly trained,
and they're not.

Speaker 2 (17:21):
No, they're not trained, and actually they're overworked and undertrained.

Speaker 1 (17:27):
Yes, yes, yes, so we're not.

Speaker 3 (17:32):
The thing that I like.

Speaker 2 (17:33):
To do too is talk about prevention and the younger
and younger people, because prevent sure go ahead. We know
that we're going to have so many by twenty and
fifty that it will break the back of any budget
that any country may have on healthcare.

Speaker 3 (17:51):
So we want to do some prevention.

Speaker 2 (17:53):
And I've had some young people ask me in their twenties,
how do we how do we prevent getting dementia? So
that's one thing we talk about too at the i
c A. It's very important diet, the way you live,
your lifestyle, and perhaps the supplements that you take to
help the brain support the brain, because everything that I

(18:16):
know is the origin comes back to mitochondria, and mitochondria
begins to deteriorate at age forty and after that a
lot of conditions come up, including cancer, diabetes, you name it.
So that's that's a very big, a very big culprit.

(18:38):
And we talk about that because we know if we
don't do anything, we're going to be in trouble.

Speaker 1 (18:46):
Yes, yes, that's very true. I interviewed doctor Klonowski, and
that's why about the diet, the prevention, I mean exercise, uh,
just going out walking, staying away from processed foods. And

(19:06):
we're fruits and vegetables, and I think, but pillow, when
you're young, you think you know you're immortal, but you're not.
And the way you eat in your twenties and thirties
is going to affect you later on in life. They
even refer some doctors referred to Alzheimer's as the type
three diabetes.

Speaker 2 (19:30):
Mm hmmm, yes, and also alcohol and smoking.

Speaker 3 (19:34):
Both of these chalophon and smoking.

Speaker 2 (19:36):
Will lead to a lot of conditions that we were
just a little smarter today about that. And I remember
one time, a long time ago, somebody said, if you
wanted to win a war against the country, make sure
you provide them with enough money to build some some
fast food, fast food restaurants, and you won't have to

(19:58):
go there to fight them.

Speaker 3 (20:00):
They'll all get sick.

Speaker 1 (20:04):
Yes, yes, such a huge that makes such a huge
difference your diet. And I even write with alcohol and
affects your heart, and they're telling people, you know, do
not drink alcohol every day. Matt's dad, and I didn't
know this at the time, he had alcohol dementia. He

(20:30):
had a liver shunt placed due to because he was
an alcoholic when he was younger, and that left him
with the type of dementia, which I didn't know at
that time. It was in eighty two eighty three. But
there's just so there's so much to know about the
gut and brain connection. You know, if our guts not healthy,

(20:54):
brain is it? They even gum disease that your lord,
I know you probab, we have heard of that. They
say if you have had gum disease, that could predispose
you to well, you know what, my husband had gum disease,
and when I read that, I said, I'm like, good,

(21:14):
yeah he did. And you know, we we could do
what we can to fight our genetics, like diabetes runs
in my family, Lord Willing, I'm going to be sixty
eight in December. I sometimes fluctuate between being, you know,
a normal blood sugar and pre diabetic. And I really

(21:37):
have to watch what I eat because once you get
diabetes is you know, but the buddance does it know?
That opens up a whole candle worms.

Speaker 2 (21:47):
You don't want, that's true, but you can get rid
of diabetes. And also if in the case like you
would just explain for yourself, we have voice worms is
simply listening to the vibrations of your voice and we
can it says if you were taking an MRI for
the entire body, it's very inexpensive and it tells you

(22:11):
exactly what's going on. And in the case of diabetes,
if you have a history of it, you can reverse that.
You can also avoid getting to the point of having
to reverse.

Speaker 3 (22:22):
Ye voice going voice scan.

Speaker 1 (22:26):
Wow, that's interesting. Now with the voice scan that can
detect if you're diabetic or if you're at Richford dementia.

Speaker 4 (22:37):
Or both both both.

Speaker 1 (22:39):
Oh wow, that uh, that's necessary. I read years ago
they say that you could tell. But I looked at
the eyes as a person might develop Alzheimer's, and I
asked my husband's eye doctor, you know, do you see anything?

Speaker 4 (23:02):
And he said no, and you can you can?

Speaker 1 (23:08):
But yeah, uh and I can.

Speaker 2 (23:11):
The voice scan actually confirms completely because it's like an MRI.
I mean that, that's unbelievable.

Speaker 1 (23:19):
Yes, how do you get that? Do you have the
doctor for that to do that?

Speaker 2 (23:25):
We have a doctor at the ICA that does that.

Speaker 1 (23:29):
Oh okay, it could be done smoltly.

Speaker 2 (23:32):
It couldn't be done anywhere in the world because it's
it's it's simply recording the voice. The doctor will will
do that, and then we'll give all the reports and
we'll also coach the person on what is needed, what's happening,
what what is evident from from this voice can and

(23:54):
so you can detect heart problems, neurological problems, diabetes, anything.
It looks at the vascular system, It looks at everything
about your system, every organ from head to toes.

Speaker 1 (24:12):
Wow, that is definitely incredible and much needed does you know,
does insurance pay for that?

Speaker 2 (24:21):
No, But if you're under sixty five, it's two hundred
and fifty. Sixty five and over it's one hundred and fifty.
And I just did an interview a podcast this week
and we'll be putting it out in November or at
the end of October, I think, and people who listen

(24:44):
to that and cannot afford it, cannot afford it, so
they're in the country where they can't or in situations
where they can't, it will be complementary.

Speaker 1 (24:56):
Well, that's very generous. That is really interesting. I never
heard of that before, doing you know that intense? Well,
that's amazing, and you know that's new developments are coming
out all the time. I think there's more much more

(25:19):
knowledge now, you know, than there was even five six
years ago. It was just and especially in twenty ten,
a lot of people don't realize doctor or that and
not everyone depends on the individual that their eyesight is affected.

(25:43):
I didn't know that.

Speaker 4 (25:45):
I found out and the hearing, Yes, yeah, that.

Speaker 1 (25:51):
Is and you know how they process the information that
just like blew my mind because I would say that
I would ask me, you know where something is, and
I would be let's right in front of you. Don't
you see it? No, you didn't see it. And you
know I found out why because I found out that
the tunnel vision and the peripheral vision and death perception

(26:17):
is all affected. But I realized his vision was affected
when he was driving. He was driving between two lanes
and not seeing stop signs. I have to say that
Alzheimer's just baffled my mind. Yeah, and how it's so
different with everyone, and just how it affects the individual.

(26:45):
It's really mind boggling. And even one of the doctor said, yeah,
it's even baffling to them. They're still baffled by it.

Speaker 2 (26:55):
And because I look at the brain as the conductor
of of an orchestra, and when the conductor is not
available or or needs to leave the post to conduct
the orchestra, you know, the orchestra is not working the same.
It's maybe just practicing. And that's what happens with Alzheimer's.

(27:17):
The brain is affected and they slowly go down. You know,
I look at the parent ego state, the adult ego state,
and the charldigo state. Eventually they're limited to.

Speaker 3 (27:27):
Child ego states.

Speaker 2 (27:29):
And it requires you and I as caregivers of our
loved one to form a symbiosis with them, to help
them to make decisions, to help them to see things,
to help them to hear things. We are almos.

Speaker 3 (27:43):
We provide the.

Speaker 2 (27:44):
Function of the parentego state and the adult ego state
for that person that only can function in the childigo state,
in the charldigo state. What happens is they are limited
to four basic feelings sad, glad, med, and scared. And
unless we know that, and we train people to understand
that and go to those feelings, then that person living

(28:08):
with dementia feels completely misunderstood, not appreciated, and are really
afraid to live in our world where they don't nobody
is supporting them.

Speaker 1 (28:21):
Yes, and that is I wish I knew with my
mother in law how to handle her delusions and her hallucinations,
and there wasn't the material. And I know firsthand, Doctor Lord,

(28:42):
of having education, being an informed caregiver and educated caregiver
makes such a difference and the journey for both of them,
For the caregiver and their loved one, it's night and day, really,
and it really is because I mean for like well,

(29:07):
I mean night and day, I mean the difference of
when you're educated and when you're not.

Speaker 2 (29:13):
That's right, exactly, exactly so in the case of your
mother in law with the delusions and so on and
so forth, which is very painful for them and painful
for you to witness, painful for you to witness, and
being feeling helpless, there are there are some things that
you can do with that, and there is one only
one medication that's fairly safe and in not one hundred

(29:34):
percent of the cases, but you could always try that
and see if it works and help that person to
not suffer so much. There's a lot of suffering.

Speaker 1 (29:45):
Yes, yes, And if people get insulted, like I know
that people who have Alzheimer's or other dementia, they say, oh, no,
we're not suffering. But what I saw, I feel that
my husband did suffer when he was hallucinating, that somebody

(30:07):
was hurting him. And because I knew to live in
his world when the time that started to hallucinate, I
was able to handle it and it was so much better.
And I told that her son, you know what to do,
and it was so much better than to, you know,

(30:29):
argue with them. And it's just amazing. I'm in a
lot of different caregiving groups that your lord, and they're
not being educated in these and a lot of these
caregiving groups and it and it's a shame. Well, I

(30:50):
think they.

Speaker 2 (30:51):
Really do need Yeah, I was part of some of
those caregivers groups years ago when my husband was living
and I was taking care of them, and what I
found there was more trouble than not because a lot
of them didn't want to know what I just told you.
And for example, when I said it's scary for them,
it's scary for you. But also another thing you didn't

(31:12):
mention that nobody mentions. But I know from experience with
my husband. He had awful headaches because as the brain.

Speaker 3 (31:18):
Atrophy, Yes, he could feel, he could feel.

Speaker 4 (31:21):
Yeah, yeah, they're all.

Speaker 3 (31:26):
They're in pain.

Speaker 1 (31:26):
Yes, doctor Lloyd, I'm hugging you through the airways, and
I'm going to tell you this. I'm going to tell
you the story. You're probably gonna fall off your chair.
Matt said to me. But this is near the end
of his life and he was on hospice. He said
to me, since you mentioned headaches, as clear as day,

(31:49):
I have a headache. I gave him talent. All the
hospice social worker who came because I supposedly pull Aposta
too much. That's because they weren't listening to me. And
I told her that Matt had a headache. He said,
it's fine as day. She said to me, he couldn't

(32:11):
possibly have a headache. That was a saquelle giving him
voices or noises in his head. And I said to her,
who are you to say he can't have a headache.
Do you have a dying brain? Do you know what
that feels like. I don't know what that feels like.
I know what a migraine feels like. How can you

(32:31):
say that he can't have a headache. So I'm glad
you said that. Mm.

Speaker 3 (32:38):
Yes, very few people I've never heard it mentioned.

Speaker 2 (32:40):
I thought I was the first one to say that,
And now I see that you have the same experience.
So that's wonderful. It just verifies what I know and
it makes sense. And then I spoke to a person
back who was in California had dementia and he was
able to speak more than my husband at that time,

(33:01):
so I wanted to have a lot of information studying
what that might be that experience, and he he confirmed
that the headaches are so bad that they may be
accompanied as you just said with H. You know that
you have to go to bed and stay in the dark,
uh and relax as much as possible. That there's nothing,

(33:21):
nothing to be done. Even tilan all may not touch it.
It's that bad.

Speaker 3 (33:26):
It's very, very painful.

Speaker 1 (33:30):
I am so glad you brought that up, doctor Lord,
I really am, because you just made me feel better
in a way because I felt that that was in pain,
which they didn't believe me. That caused his agitation. And

(33:50):
I also thought that he had the uh to clear
my skipped my mind internally agitation. Well he might have
had that, you know, but uh, terminal agitation, that's what
I'm thinking of that near the end of life. But

(34:12):
I knew Matt my husband never complained, So for him
to say that so clearly, I don't know how people
could not think that someone can't be in pain. It's
because they have dementia, and you know what, they do
think that, and that's not right. And they also think

(34:33):
that people who have come to disabilities don't have pain either.
Because I worked in the state facility before the severely
disabled and they had cancer. They would give them regular
tile and all my being to the doctor, they're in pain,
they're agitated because they're in pain, and you know, you

(34:55):
have to speak up. And it's a shame. Uh as
a travesty actually when you were in hospital and a
hostile situation that it was completely opposite from what it
should have been. And I think that they were trained,
and they had the training.

Speaker 4 (35:17):
That you.

Speaker 1 (35:19):
Offer their transactional dementia intelligence, they would they would have known.
I think they would have understood and they would have
known because I don't know how people can tell look
someone in the faith and say that person can't be
in pain. I just don't understand that at all.

Speaker 3 (35:39):
And it boils down, boils down to it boils down
to this. It's that that person.

Speaker 2 (35:44):
Does not understand what it means to be human. These
people are human. And if that person ever had a headache,
ever had a headache, they would know that when you
have a headache, you're you're not Your disposition will change,
your attitude will change, you won't have the energy.

Speaker 3 (36:02):
That you have when you don't have a hitting. This
is and when it gets.

Speaker 2 (36:06):
To the point of migraine, like that client that I
had in California, I'm telling you I felt for him.

Speaker 3 (36:14):
I really felt for him because I'm human, I know.

Speaker 2 (36:17):
So my whole program is about really introducing more humanitarian
approach to dementia care.

Speaker 1 (36:25):
That's what we need, absolutely, absolutely right. You do have
to speak up when you know as a caregiver and
you know your loved one better than anybody. Plus I
go by my gut instinct that they are in pain,

(36:49):
that they are agitated, and when a place is saying, oh, yeah,
i'll give it more of this, give it more, that
it's not working. And I told the social work why
are they're ordering the same medication. I'm telling you it's
not working. Hey, it's just as unbelievable. Even the well

(37:10):
the hospice nurse that came, she said, does Matt talk,
because Matt they been able to talk coherently at times,
And I said, yes, sometimes he does speak coherently. She goes, oh,
in three months, he won't be able to be on hospiceent.
I said why, she said, oh, because that's the Medicare protocol.

(37:31):
You know, he can't talk. I said, but even though
he's hallucinating and he's twenty four hour care. And I said, well,
don't worry, he won't be here in three months. I knew,
and I said he's dying. She goes, no, he's not.
He's walking, he's talking and eating. I said, I'm telling
you he's dying, and you need to get your face

(37:52):
out of her textbook and see what's going on. Everyone
sits a textbook picture of someone who's dying. And doctor
Woyd I've always been ahead of my time, and I
can guarantee probably within five years, if not less, there's
gonna be talk of the walking dead that are walking

(38:14):
around but they're dying. I should say the walking dying.
They will be walking around and dying and a hostas is.
They better wake up to this because the younger the
I feel, the younger the person when they're diagnosed, they
may not fit that textbook picture of being in bed
and dying. Matt was better in the last week of

(38:39):
his life because they had to be so medicated and
it was just you know, I know that it's probably
you with your experience with your husband, but the journey
with my husband had I found never know I had
such a big mouth, and that you find your strength

(39:02):
that you have to speak up to get what your
lud one needs.

Speaker 2 (39:09):
Well, it's like I said, you have to form that
symbiosis and that means that.

Speaker 3 (39:14):
Speak and act for them.

Speaker 1 (39:17):
Yes, yes, that's that is for sure. I mean I
had a little bit of practice with that to get
what my son needs because he has a cognitive disability.
And I you know, I call that hospice director and
know on certain terms. I was not happy. I said,

(39:39):
the way my husband I were treated, I know you
wouldn't stand for it. It's not acceptable, so don't expect
me to accept it. And people actually came in the room.
I never saw it before. They supposed they wanted to
check up on us. They wanted to see who the
big mouth was. I was surprised, to say, this petite woman,

(40:04):
the bank, now the youth. I'm going to ask about
your personal experience that you're Lloyd. Did you find with
your journey with your dear husband that you learned such
a deep, unconditional love because I found that. I I mean,
of course I loved Matt, but it just became such

(40:26):
a different type of love.

Speaker 2 (40:29):
Absolutely, And that's the gift of dementia.

Speaker 3 (40:33):
That's the gift of dementia.

Speaker 2 (40:34):
My next book is going to be The Call, the
Call the gifts of dementia a gift we have yet
to unwrap. So the biggest gift of dementia is to
learn what that means. To have unconditional love. It means
you want, you don't have anything in return. Your husband
may not have spoken. Even my husband didn't speak for
ten or fifteen years. At the end, he was sick

(40:56):
for twenty one years. And uh so it turns taught
me on conditional love. But I had many, many, many
gifts that he gave me. And no matter what the
example that's given to me, I can find a gift
for them if they don't know that there is a gift.

Speaker 1 (41:14):
Yes, yes, that is so true. And even you know,
we could teach our children so many valuable life lessons
from caring for someone who has any type of dementia.
They are more can teach to be compassionate, have empathy

(41:36):
for someone. Josh was great with his dad. He was
proud to be a caregiver, very proud to take care
of his father. And we can teach some of the lessons.
I used to say, used to do videos and I'd say, no,
what dementia may rob the brain, but it can never

(42:00):
ever read the heart of love, because the heart knows
love and well that's why we need to visit them.
When people say, oh, why should I visit they don't
know who I am? Well, they know your voice and
they know love.

Speaker 2 (42:16):
Yes, that's that's what they call a cellular memory that
they have. The other thing that you did not mention,
and I thought was the most precious to is that
they do function at a higher level of frequency when
you talk about energy and spiritual spiritual position or in life,

(42:39):
they do function at a higher frequency. So that and
I'll tell you an example of that. When my mother
in law died before my husband, of course, and I
wanted to tell him that his mother had died because
he was very close to her. And what happened is

(43:00):
I went to the skilled nursing facility was a VA facility,
and I was pushing his wheelchair and we went into
the assisted living side of the facility.

Speaker 3 (43:11):
Where on the right on my left was the director
of that unit.

Speaker 2 (43:15):
And then excuse me, two people to CNA standing on
my right. As soon as we crossed the door, he
lifted his left arm as if he was holding someone
someone's hand. He barely ever moved anything, but he lifted
his hand and he was like holding a hand and
he started crying profusely. Nobody was speaking because they were

(43:38):
shocked to see that. And I said, his mother just
came to say goodbye after he was done, or she
was done saying goodbye to him in spirit.

Speaker 3 (43:50):
He lowered his hand and he stopped crying.

Speaker 2 (43:54):
And I never had to tell him his mother died.

Speaker 3 (43:58):
That is a gift.

Speaker 1 (44:01):
Yeah, that is wow. I know they can sense our emotion,
you know, if we're frustrated or you know, anxious, then
they pick up on that. But that's real interesting. Yeah,
that's interesting that you said that. Yeah. Yeah, When Matt

(44:25):
would tell me that he saw his parents and his
brother who were ready de ceased, and I would say, oh,
the Chabaca visit with them, and he would actually believe
and maybe you know, he really did say them and
that was so real to him. And I would, you know, say, oh,

(44:45):
I tell myself, hi, you know, the next time you
see them. There's just so much you, right, doctor Lord,
that we can learn. While your new book sounds fascinating,
there are many guests I would say, you know, all
timers took a metaway, but I learned so much. I

(45:06):
came out a completely different person, you know, and doing
things I never thought that I would do. I'm actually
when people say, well, how can you say this, Betsy,
I'm actually grateful for that's journey because I, oh, yes,
you know, I'm I believe that journey was supposed to

(45:29):
bring me to where I am. Unfortunately, you know, Manhattan
and died, but his legacy is living on, just like
your husband's legacy. You're doing what you're doing, and you
know that's how we honor I were loved ones is

(45:49):
by living life, enjoying life and helping other people. And
you're just such a shinning example that I'm in awe
of you that your Lloyds. Oh lord, I really am.
You are amazing. Is there anything else you would like
to say to the audience that didn't get a chance
to say that I didn't ask. No.

Speaker 2 (46:12):
I just want to repeat about the voice scan because
it's so important. And if anybody writes to meet or
email me or even calls me, I'll give you my
phone number. The UH if they listen to that podcast
with doctor Grant, who is in charge of voice scan
at the i C eight, then they can make arrangements
with him and they'll listen at least to all the

(46:33):
description of it, how it works and the benefits of it.

Speaker 3 (46:36):
So if they want.

Speaker 2 (46:38):
A copy of that podcast, they simply can email me
at doctor Lord d R Period Lord l O R
d at ic a cares dot com or doctor d
R Period Lord at ica Cares dot ca A and
ask just request a copy of doctor Grant's podcast or

(47:03):
voice scan podcast and then listening to it and then
then ordering that voice scan for themselves to see where
they where their health is.

Speaker 1 (47:14):
Now.

Speaker 2 (47:14):
I've done that myself, so I wouldn't recommend that unless
I did it myself. I did that several times, and
I encourage everybody to do that.

Speaker 3 (47:24):
And then also if.

Speaker 2 (47:26):
People want to be up to date with the psychology
of the dementia brain, please contact me and I will
send you the two tier training program that we have
and or information about the transactional dementia Intelligence systems approach
for their facility or for their services, whether it's home care,

(47:48):
home health, adult day break, assisted living, or skilled nursing.

Speaker 1 (47:53):
Thank you, but oh you are welcome. Thank you, thank
you so much. I'm going to listen to this podcast
as myself. I'm very interested in that voice scan, so
I will be looking for it. Would you be having
that on your page by any chance on LinkedIn.

Speaker 3 (48:15):
Yes, that will be promoted on LinkedIn.

Speaker 2 (48:18):
I have somebody that is responsible for that, so it
will be promoted on LinkedIn, And okay, I can I can.

Speaker 3 (48:26):
Send you a notice when it comes out if you
would like.

Speaker 1 (48:31):
Oh great, yes, thank you, because I definitely want to
listen to that. I'm actually interested in that voice scan myself,
so I really definitely want to listen to that podcast. Folks.
I listen to other people's podcasts because I want to
learn too. I don't have all the answers, and I

(48:51):
like to listen to other people and educate myself. I
can't thank you enough, doctor Lord, for all that you
do coming on here, all that you've done for really
caregivers and their families, and you know, the different facilities
that you have trained people and have helped. You are

(49:14):
definitely shining light in this world. And thank you so much.
I'm looking forward to your next book. You'll have to
come back on Thanks about that about your new but
why might not be released?

Speaker 2 (49:33):
That won't be for a few years because now we're
working now on the third edition, which is coming out
in twenty twenty six early twenty twenty six and then
my publisher and I will be working and he told
me already it would be a two year project for
us to put it all together and then put it
up for publication.

Speaker 1 (49:52):
Wow. Yeah, it does take a while for books to
get you know, written, edited, published. A lot of work
goes into that. Never really appreciated that till I started
doing the show and talking to different authors, and really
what goes into a book. You know, we just take
it for granted when we pick up a book, but

(50:14):
all the work that goes into it is really quite remarkable.
And that's why authors they'd like to hear from people.
Send someone a note, you know, I really enjoyed reading
your book. Thank you, and tell them what you liked
about it about their book, But I thank you so much.

(50:36):
You heard doctor Attel Lord and I'm going to spell
the name E t h E l L E l
O r A D. You can't just stay on my
new Jersey accent and all the information will be in
the blog that Genie White produces the show, which writes
the blog. Who's the station manager? And I want to

(50:59):
take lolink hold Well, who's CEO of pastor Walt Talk
Radio Network? It makes it so all possible. I want
to thank you to the listeners. Thank you for listening. Subscribing.
If you're on the right subscribe, please do so. It's
for free. IM on Spotify, Spreaker, iHeart Amazon Music, and
please share the show. I want to help as many

(51:19):
people as possible, and so does that your Lord. She
wants to help as many people as possible. Please share
the show. If you know a nursing facility, hospice, and
just you know you know a caregiver, please tell them
to listen to the show because I need your help
and spreading the word because I want to help as

(51:41):
many people as possible. That's what chatting, what Betty is about,
is providing resources that I wish I knew about, or
that I wish I had when I was caregiving or
even in my youth. I want people to be informed
that there is help out there, and you could follow
me on Facebook. That's the e Worzel w or Z

(52:04):
e l And as I always say at the end
of my show, and the world could be anything, please
be kind and shine your life break because we need
it now more than ever before. This is that's de Worzel,
your host of Chiny with Betsy I'm pastor. Will Talk
Radio Network, a subsidiary of Global Media Network LLCING, Bye

(52:27):
Bye Now,
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