El trastorno del espectro autista: Más allá de una condición de discapacidad intelectual.

En este episodio de "Con las Pilas Puestas", nos embarcamos en un viaje para comprender, aceptar y empoderar a la Neurodiversidad en el contexto del Trastorno del Espectro Autista (TEA).

Episode Transcript

(00:00):
Start a space for you where learningand reflection will allow you to get to
know yourself better and focus on personalchange. If you like to learn about
your emotions, about love and otherelements of psychology applied to everyday life,
this is your space. The RosaristCenter of Emotional Education or Emotion and a

(00:21):
radio rosary present the podcast saga withthe batteries on, where you will find
keys to your personal growth and tobuild a better life. Netizens, we

(01:07):
welcome you to this edition of withstacks set, for twenty minutes we will
address an interesting topic that we havecalled the autistic expert disorder. Beyond a
condition of intellectual disability. We runthis program from the Rosarist Center for Emotional
Education and Uiry Emotion in Alliance withYu Rosario Radio. Today will be with

(01:27):
you Rocío Prieto, psychologist of Baremotionand who drives. Laura Highke, also
a psychologist at Livary Motions, andon this occasion we are accompanied by two
very special guests. Sebastián Orozco,psychologist at the Averiana University, with studies
in philosophy and anthropology, who iscurrently coordinator of the emotional well- being
of the cooperatively different. And weare also with Juan Manuel Ovalle, graduated

(01:51):
to the transition program with support toadult life or to tea, who in
turn is linked to the entrepreneurship offruits of the patch. From the same
cooperative. Remember internet users who canfollow us on Instagram, in mediocanature.
In this episode you will talk aboutpeople with disorder, the autistic aspect teas

(02:12):
their relationship with themselves and others,as well as the myths that are woven
around them and the personal, academicand work growth that they can achieve.
Thank you. Lauda for this becauseshe is here sharing the space, with
Sebastian and Juan Manuel. It's really good to have them here and

(02:36):
good. The song we were listeningto in the background is called wilget Be
in Spanish. We won' tfix them, played by the band Johnny
Or and dedicated to people with intellectualdisabilities. I was very struck by the
first stanza that talks about perhaps yourfeeling and a little too much your belt.

(02:58):
I would say from his experience andhe says maybe I don' t
speak very well, but I'm coming out of my shell and I
like to play alone if you don' t realize, I like to go
to school. If I' ma miracle and I' m glad to
be alive, I invite you tolisten. This song. It is really
very nice and very felt and asperhaps later, we could also get to

(03:25):
see or try to understand these people. And speaking of this issue, well,
the General Assembly of the United Nationsdeclared from the 2nd of April the
World Day of Awareness on autism,in order to raise awareness and raise awareness

(03:46):
about this condition and contribute to improvingthe quality of life of people who suffer
from it, so that they feeland are included in support with equal conditions
like others. Of course, whatis proposed is that the disorder of the

(04:09):
autistic aspect be understood as a conditionof development in which the areas of behavior,
behavior, communication, language and socialinteraction are involved, and not as
a disease, which invites us tounderstand that the person processes the information in
a different way and understands and perceivesthe world in another way, not like

(04:32):
the rest. We could do itor we do it in our everyday lives.
Some important data is that, accordingto color sef one in every hundred
children presents autistic spectrum disorder and,according to the statist statistics portal, in

(04:55):
two thousand twenty- two for everyten zero children in Colombia more than eighty
- five sebastian cases are reported.Thank you very much for being here with
us and we would like you toshare our listeners in a general way,
how we could understand a person withintellectual disabilities. Of course, sometimes we

(05:17):
do see that some people have difficulties, but we really can' t understand
beyond a reading or stigmatizing them andhaving certain positions towards them, such as
rejection or mockery. What is this, tell us good, first of all,
thank you so much for inviting usto Juan Manuel Ami for allowing us

(05:42):
to share this space with you.I really think that one thing that is
very important is to be able torelate to them very horizontally. All human
beings have a great ability to buildan image about each other and who the
other is. We are very ableto recognize who is different Yes, by

(06:05):
physical traits, by their behavior,by the way they interpret life and how
they express their feelings in front oflife. I think it is very important
to keep in mind that autistic peopleare very sensitive people, very affectionate and

(06:26):
with a great ability to precisely feeland to focus their attention on certain stimuli.
But then I think yes, itis very important that we are very
skilled when we have the possibility torelate to an autistic person, to know,
to be interpreters in what they areexpressing to us and to recognize also

(06:51):
what they are feeling, because,although to be part of this world and
this reality we all share, theyhave the same needs as we, needs
of love, needs of food.They also sometimes have difficulty recognizing what they

(07:15):
need and we, from there,must be very skilled to help them and
interpret what they are feeling and tohelp them to move through it so that
they can express it in the bestway. Yes, because there are times
that we think. It' snot that they get frustrated, easy,
it' s not that they don' t understand. Yes, there may
be things you don' t understand, but to the extent that we'

(07:39):
re sensitive, we' re goingto be able to interpret precisely what they
want to express to us. Thereis one thing that is I think it
is a common feature of many autisticpeople, is that they, they can
feel the anger feel the sadness.They can feel the desire to have something,

(08:05):
the desire to live something, butnot know how to express it,
they can be frustrated then, Fromthere it is very important that I be
skilled and that we are able tointerpret what they want, what they feel,
what they want to communicate, sothat for them it is easy to
be able to express that which theyare feeling and so that for them it

(08:28):
is easy to also be able tofeel a psychic discharge as much as they
could, they could say it andthey could get that which they wanted.
Of course you talk about these abilitiesthat would allow us how to do that
reading towards what they, at somepoint are asking No how rather from their

(08:50):
need or that they are expressing.But those skills, let' s say,
are acquired. Of course, ahno, there is no tr Yes,
it is not training to see.It' s not easy for us
to make those readings, because let' s call it so it' s
not the day to day. Yeah, it' s not the same as

(09:11):
you are. I don' tknow with people who are neuroatypical, I
know that we' re with peoplewho have this neurodiversity and that we don
' t get what they need.These skills and abilities can be achieved from

(09:33):
the family, very surely from friends, from friends. But not only is
this campaign being carried out as well, or this World Day of awareness of
the autistic spectrum also invites us toput ourselves as on this side, to

(09:56):
learn, to be aware and justas we accept other diversities, why not
accept this other diversity, which isalso interesting. And besides, they are
these sensitive people, who are lovingand who have a world to explore and
who sometimes we do not allow.Well, you' ve said something that

(10:18):
' s very important and very interesting. You tell us about the importance of
training. Well, I have totell you that, for example, it
does not go cooperatively different through thisagreement with the University of Rosario, in
the program or it has been proposedas an objective that these young people like

(10:39):
Juan Manuel have an independent life withsupport yes and here at the University.
One thing we have seen is that, for example, the people in charge
of the care, of the physicalplant, of the university, of the
persons in charge of the toilet,the persons in charge of the security,
the persons in charge of the cafeteria, although they do not have that training

(11:05):
to the extent that day by daythey are caring for these children and they
are interacting with them, that approachto them, that relationship with them and
the bond they build with them basedon the needs they have in this scenario,
has facilitated and allowed them to help, understand and facilitate their life in

(11:31):
this scenario. From there, somethingthat has been very, very fruitful for
the lives of these children and theirfamilies is precisely the social interaction of these
children in this scenario, which isbroader than the scenario of their homes,
because, of course, without adoubt, the family is the fundamental support
for everyone, for me, foryou, for Juan Manuel, for anyone.

(11:52):
They have to go out into myfamily' s society and help me.
They are the first to teach mehow to interpret the world, how
to know it as it is clear, To a degree in which I go
out into a wider scenario, Ican assimilate new schemes of interpretation about reality
and I can learn you, JuanManuel and I anyone. Yes, from

(12:16):
there, more than training, itis important that there be a scenario that
constitutes a support network, yes,that offers those supports, those tools that
allow us all. In this case, Juan Manuel, his peers can understand
what is the right way to relateto us in this scenario, which is

(12:41):
different from my case, is likea mutual learning both for them and for
society, It is a mutual learningin the day- to- day and
in the daily coexistence. What Ican tell you is that what has been
seen right now about some myths,is true, related to the issue of
autistic spectrum disorder, and is that, just as from childhood we are taught

(13:03):
to interact with others, because whymake it different with people with autism where,
on the contrary, sometimes they areenclosed, they are isolated from society
and are rejected for many reasons.Not then, of course, they don

(13:26):
' t. They don' thave that, they don' t have
that experience of living with each other, with the other human being, of
sharing, of talking, of looking, of how I can understand and understand
people with autism knowing that we canmake a difference so that they can become

(13:48):
immersed in our society and be onemore of us. Yes, of course,
with some conditions. Yes, butthey also feel, they have feelings,
and what you said is empty inthe sense that they are very valuable
people and that they have some isalso very great levels of learning. Sure,

(14:13):
look at all these guys. Thatis, as I said at the
beginning, the fundamental thing is torelate to them horizontally. Yes, because
all human beings, that is,all sadly tend to relate to them from
above. Many times we live likean adult man, we treat him like
a child, without thinking that heis an adult man who already thinks like

(14:35):
an adult, already feels like anadult, already wants as an adult,
already has a knowledge and an experienceclose to life and already has a criterion
formed. That is essential to treathim as an adult, of course,
knowing that he needs support and helpinghim identify the supports he needs, to

(14:56):
accept those supports and giving him theconfidence so that he can say it.
I need support on this in particular. Okay, thanks, thanks to Sean.
And taking back a little bit abouttrue myths or about people with intellectual
disabilities, I would like to mentionsome, bearing in mind that this is

(15:16):
a broad spectrum and that it cangenerate not only generalizing a diagnosis, but
stigmatizing it. No, and that' s why we see ourselves as being
carried as human beings, and toput on signs that neither, nor have
they, which is not and shouldnot be from our society. But it

(15:37):
has been seen that this is theway of conduct. Sure. Now there
is something that is very important,and that is that culture is determining.
In this sense, it needs eachcommunity, each human group, if it
has a very different look at thepeople who are part of that group,
yes and in this case, theirdisability status. There are territories in Colombia,

(16:06):
in Latin America, in the worldwhere people with intellectual disabilities, the
community, society, culture, theirimmediate stage offers them more possibilities of realization
in life and offers them the possibilityof having an independent life. Like where
Spain, or if interesting. InSpain there are life models. Many years

(16:27):
ago, very serious models of qualityof life and models are being worked out
with support for people with intellectual disabilitiesto have an independent possibility. From here,
from the cooperative with Minde, thereis a program called Vica, which
is an independent model of life withsupports, where there is an apartment here
riba incitivo, where four young peoplefor five weeks live independently, make their

(16:53):
market, wash their clothes, organizetheir apartment, live together with a support
teacher who goes during the evenings accompanyingthem. But it is they who give
order to their lives. They're students, college students, clear with

(17:15):
all senses and cars. They havea support aha, but they are independent
and the idea is that from therethey too can project an independent, independent
life in the future, if tothink that of course not all life they
will be with their parents. Lifegoes on, but they have to have
the possibilities to face life, tolive life and to realize life. Okay,

(17:41):
interesting. OK. While, withinthese myths we named earlier, some
who are the most common ones thereare who live in their own world or
who have their own world. Yes, of course we all have and share
the same world. So, inan exact inner reality. Yeah, yeah,

(18:02):
then what would they do different.It' s not that we'
re in this and it' show it invites us to see that other
people, and like people with intellectualdisabilities, can see it in a different
way and that they can' tus, that we can' t eh
ajus, that they can' t. Rather they adjust to live that way
or to understand it that way,but that we, if we can make

(18:26):
a different reading for them of howthey see their own reality and how they
live it, also yes, andthe other is no, do not care
to relate to others. And sowe, some people, have some difficulties
relating to others, but in themselves, because they do so in their own

(18:52):
way. We don' t allrelate to everyone, too. Well,
I, if I would go infront of that and if there I have
to say what that is lying,I mean if there' s something that
distresses them and that' s causefor suffering for them. It is precisely
this difficulty to relate to other peopleand to reality. Yes, because sometimes

(19:14):
because of a lack of socialization,because of a lack of relationship, they
have difficulty in recognizing what are thechannels of communication and the means to interact
with other people, but they havea deep interest in harming each other and,
as I told them in the beginning, they are deeply sensitive and affectionate

(19:36):
and affectionate people and as authentic,yes, very authentic, and I consider
I have or I do. Isay it like that, an autistic doesn
' t lie. No, yes, yes, they are very transparent,
very, very transparent, real.Well, we' ve lived, or
there' s also things like theyfeel and don' t lie. Always

(19:57):
believing the real thing. Of course, yes, there is so much mask
never and as for all people withautism are the same, because no,
we are not the same. It' s the same, yes, no
one, absolutely no one. Well, it' s very interesting all that
counts. Let' s just sayit to close a little. It is

(20:18):
this partcipa, it seems super interestingand closing is the related theme from horizontality,
which is not so difficult for humanbeings. So all this makes us
think about awareness, because the disorderof the autistic aspect theatrics and I consider
that the work carried out by thedifferent organizations, because it will allow each
time people with a telectural discapacient,have the same rights and feel included in

(20:41):
the social one. That is whywe are now going to our tax and
negative section on what you think aboutour subject of the day. This is
the space for you to send yourquestions and opinions with the hashtag, with

(21:03):
the stacks set, connect or thetime comes to learn and reflect on the
theme of the day through the voiceof an expert. This is, in
positive and negative or thanks, JuanManuel, for being here in this space.

(21:56):
How rich you really can know whatyou are doing in this cooperative cooperative
group and knowing that since the RosarioUniversity has an agreement with this cooperative and
that it has also allowed us toshare this space with you. I'

(22:18):
d like you to tell us alittle bit about how you become part of
the cooperative. First I was inNoad and then, in August of the
two thousand nineteen, something happens tobe part of COPA currently Juan Manuel Bueno.
I think it' s also importantthat you tell us how you got

(22:41):
to the cooperative, how you bonded, how that story went. Tell us
a little bit about that. First, on December 7th of the two thousand
nineteen, Magra oy Edward in theremoval of Mutis and then becomes part of
the Copatically since you' re here, i e, for you what people

(23:02):
has it been easier to relate to? And what people have been harder to
relate to? With my teachers andwith my companions, with your professional companions
it has been easier. And,sir, thank you very much to Manuel
and what has been that that hasallowed you to be easier to relate to
them. First I have friends andcompanions and to those who have already been,

(23:23):
with those who have gone and withthem yes, it has been very
easy to relate to me valuables,Yes, because it has been easy for
You are friends. You want themwhat' s happened and I love them,
but it' s just that Iknow them and they' re back
from these respective schools. What's more. You liked to be here

(23:44):
at the University to be kicking ande colmente and what you do at Codmanty
I do part of Patch, butbefore I was at the botanical spation And
what you were doing there, onthe botanical expedition for you, s at
the events of the space boot andsuch Ok and in comment. What are

(24:04):
you doing? What do you dowith this venture we know you have.
What do you drive, what doyou do there, what activities do you
have to do, tell us alittle bit what you do in the day,
what a maple it was. Sometimeswe have fairs. Yeah, see,
some people call disces, but noteveryone and there at the fairs what

(24:25):
they do, what those fairs arelike. We sell dehydrated fruit products.
I have eaten them and I amvery ri Yes, we agree if here,
at some point we had the opportunityto consume more. Yes, certain
accounts of which fruits, mango,pineapple, apple, pita ya uy rich

(24:48):
and which is the richest, whichyou like the most I told me like
the pitaya ok and within these activities, Juan Manuel, what it is that
you like to do and operating Mondayand Wednesday aha and there what asis.
Sometimes we go to the plant,we do functions like putting platter fruit.

(25:08):
Sometimes we work with aromatics, sometimeswe pack thirty- five grams, sometimes
trata and OK grams. And there' s something that you found difficult to
be here, for example, workingwith aromatics ok. Why it makes it

(25:30):
difficult, why it is difficult toput dickess to if you want to ok
the marks, out there reads thestamps, if tickets ok. As you
realize. For Juan Manuel his experiencehas been very significant and he goes through
this space. Yeah. In fact, when we told him that in this

(25:52):
space he said no, but forme I have to be on the road
with my colleagues. Ah yes,yes, that is, the social interaction
he has had has been very effective. For him, it' s been
very valid and for all these guys. Let' s say the importance.
Again I insist that we treat themas equals that truth they have the same

(26:14):
capacity that we have and just aswe also need supports, which suddenly need
more support than we do. Butto the extent that, that is,
let us realize how this horizontal treatmentand how the form, that is,
the whole means of relationship that JuanManuel has, is so significant to him.
And with this, with this,I also want to mention something and

(26:37):
it is that since I will makemotion, I had the opportunity to work
yes with two. As they callit, I just don' t know
if they call them practitioners. Youcall the boys who do work in certain
offices of the University of Rosario practitioners. If they are good within the cooperative
or a part of the form,they are n n n NS programmer,

(27:00):
which is a transition program to independentadult life with support within that program.
They perform socio- work practices hereat the University, at the Hospital de
Medir and mainly the work in socio- work practices and then also later they
are linked to the enterprises that inthis case are fruits of the patch and

(27:22):
botanical expedition, which is like atour that these guys make inside the museums
of Bogotá, like the Museo delOro. They are the work of guides,
but then, because in their styleyes, it is that I wanted
to tell our listeners and it isthat I had the opportunity to have all

(27:48):
practitioners already doing socio- labor practicesand it was a truly enriching experience.
Yes, of course each one fromhis intellectual condition, but but able people
sociable. Yes, and I wantedto rescue this because that experience was very

(28:08):
nice for me in the sense ofbeing able to meet them and share with
them a work space where, ofcourse, they require support. But this
support was truly wonderful, to beable to share with them, not only
the work space, but to beable to understand a little yes who they

(28:30):
are, how they are. No, and I' m sure that but
a support for you that helps youdo many things that you needed to do
totally, totally. So, yes, I agree with Sebastian, Well,
then I don' t know ifJuan Valet wants to tell you to give
a farewell message to those who arehearing us. You don' t want

(28:52):
to say goodbye, Mrs Espidete,to all those who are hearing us,
goodbye to being followed on social networks, social networks like brute epache and botal
expedition. All right, and thankyou, thank you very much. Thank
you for Lena, Yes, thanksto Juan Manuel and Sebastián. He suddenly
wants to tell us something. Finishhow this section is. Thank you all

(29:15):
the same for this invitation and forlistening to the Bank, very enriching for
us and understanding not good. Ido believe that, as all of us
realize, we share the same needsin the face of life. No,
and we all also have high expectations. And how we have high expectations of
life, he also wants to feelrealized like us. But precisely because it

(29:41):
is our duty to be your supportso that you can interpret this world and
adapt in the best way. Alsoyes, that you can live in the
most comfortable and quietest way, becauselet us be honest. But sadly we
are always one of the obstacles ofothers. Yes, and sadly, as

(30:03):
we see them as different people,we will be a much greater obstacle.
Yeah, so, from there,yeah, it' s important that we
have a very clean look and sayit like that. Yes, it is
important that we have a lot oflove, not just to treat Juan Monely,
his parents, but to treat eachother. Yes, to make a
community closer. Thank you, thankyou, true inclusion. Sure, that

(30:30):
' s the truth. Even wellok Thank you very much. We believe
it is important to give some tipsor recommendations to understand people with intellectual disabilities.
We make this call not only becauseit has been the International Autism Awareness
Day, but because we are peopleand because we are human beings, it

(30:53):
is appropriate to learn and have alittle more acquaintances about allowing us to participate
and have the opportunity to be withthese wonderful people. So a person with
an intellectual disability is more than adiagnosis. We cannot reduce everything a person

(31:15):
is to his condition of disability.If you have a relative or friend with
an intellectual disability, support him orher so that he or she can build
goals in his or her life,encourage him or her, and rejoice for
each of his or her accomplishments.Everyone has the right to choose, to
have an independent life, to offerthem things that are negotiable. Understanding their

(31:40):
language invites us to be aware that, although they want to ask for something,
they don' t know how todo it, because it' s
not because they can' t orbecause they don' t want to.
He just doesn' t know howto ask. He doesn' t know
how to do it in difficult situationsStay calm. We sometimes despair why with

(32:00):
ourselves, because we cannot understand whatit is like to lose calm with a
person with intellectual disabilities, when wecould do something wonderful for them. He
also learns to observe and interpret theirdemands, that is, their requests for
help. Thank you very much.Well, we said good- bye.

(32:21):
We thank Rocío and our guests Sebastianand Juan Manuel very much for sharing their
knowledge and experiences. Rossi where wecan contact her. OK. Thank you,
Laura, you can contact me inthe mail Lidia dot prieto, arroba
or rosario dot eduto com Ok andSebastián and suddenly someone has and you want
to like to deepen this or alsoknow the program where you can contact them.

(32:45):
Well, those who want to knowthe program can contact us through the
mail tell Gmail, com or againfrom my mail orozco that point commente arroba
Oluke com ok of new. Thankyou very much. Remember internet users that
you are listening to us on ourradio rosary website or as on broadcast platforms

(33:08):
as it says, Spotify, Apple, post in he Radio. This was
with the batteries on. You canfollow me on my dean on Instagram and
my deca natura on Facebook. We' re with master control of Nelson Duarte
and the General Directorate of Mario Castro. This was with the batteries on.

(33:29):
We' ll wait for you inour next podcast or w t. I

(34:24):
used to love to sing if youliked to learn about your emotions, about

(35:00):
love and other elements of psychology appliedto everyday life. Don' t forget.
This is your space, the RosaristCenter of Emotional Education UAR Emotion and
a radio rosary presented the podcast sagawith the batteries put where you found keys
to your personal growth and to builda better life