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May 8, 2024 13 mins
We talk to Karen whose son, Jakey, passed away from cancer at the age of 5. She continues to raise money in his honor to this day for St. Jude Children's Research Hospital. #JakeysArmy

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Speaker 1 (00:01):
Today's Daily Highlight from Elvis Duran in the Morning Show.

Speaker 2 (00:05):
This is Elvis Duran in the Morning Show. It is
such an honor to have our next guest on for
you to meet. Everyone knows a story. This story incredible
and it's you know, rather than me tell any of it,
let's let her do it, Okay, I think that would
make more sense. Please say good morning to Karen douquay. Hi, Karen,

(00:26):
good morning.

Speaker 3 (00:28):
Good morning everyone.

Speaker 2 (00:29):
Thank you for having me, well, thanks for being had
thanks for being on with us. And it's just so interesting.
We're about to talk of course about Saint Jude Children's
Research Hospital, and of course Karen's son Jake. As a
matter of fact, we're getting texts doing a big hashtag
Jakie's Army. We've been getting those all morning.

Speaker 3 (00:47):
So obviously we have a big army. So I'm not surprised.

Speaker 2 (00:51):
Well it obviously it got out that you're going to
be on today, and I love that. I love that.
So it was two days ago Danielle here in the
room with me and Nate. We had hopped on a
plane and flew to Memphis to do yet another tour
of Saint Jude Children's Research hospital, Karen, and we've been
there several times, and every single time we're reminded of

(01:12):
the importance of Saint Jude, and we also learned new things.
And then I heard this morning that you're gonna be
on with us and tell Jakie's story and no one
can tell it like you. So do you want to
just go from the very beginning and share it with
everyone here because everyone's dying to hear this. This is
gonna be great.

Speaker 3 (01:26):
Yes. So when you were at.

Speaker 4 (01:29):
The facility, I'm sure you were on the grounds and
there's a big in the middle of the facility in Memphis,
there's a courtyard that has hope, and that's what Saint
Jude provides to everyone. So our son, Jakie, was diagnosed
at four years old with a cancer and it's a
terminal a cancer and it's called the fus in tristic
ponting glioma and the abbreviation of that is DIPG and

(01:53):
it's terminal. So our son went from fishing on our
backyard to being told that he had a terminal cancer
brings tumor that they gave us nine to twelve months
of living. We went from being in Miami on a
Thursday and relocating to Memphis, Tennessee on a Sunday.

Speaker 3 (02:10):
We were blessed to be able to go to Saint Jude.

Speaker 4 (02:13):
And I always say that no one wants to be
part of this world of cancer, pediatric cancer, but if
you are part of it, Saint Jude is the place
to be. It is like heaven on earth and one
y're in Saint Jude. It doesn't matter your economic standing,
your ethnic or your religious beliefs. It is your child
is fighting for their life and they're giving you a

(02:34):
fighting chance, all while doing research for other kids. I
am the biggest advocate and cheerleader and champion for them
because I know that a lot of people speculate does
it really go back to the child?

Speaker 3 (02:45):
Does it really go back to the family?

Speaker 4 (02:47):
And one hundred percent donations go back to the family,
and I am living proof of that. We have a
very big family and an army and a following and
which started this morning.

Speaker 3 (02:57):
Letting you guys know the love and what we did
was while.

Speaker 4 (03:00):
We were there, and we were there for eight months,
we invited them all to come up because we wanted
not only for them to experience Saint jud for themselves,
but for them to also be advocates and champions of
Saint Jude. We've been able to let everyone know and
I will to my time breath know what amazing things
they did for us. So although our child was diagnosed

(03:22):
with terminal cancer, our.

Speaker 3 (03:24):
Son had a fighting chance.

Speaker 4 (03:25):
But not only that, they took out an extra viral
blood to do more testing to give another child better odds.
You know the amount of research and the amount of
fundings that it takes for these research to be able
to find the cause. And the biggest thing is is
that unfortunately childhood cancer, it's always thought of, oh, it

(03:46):
doesn't happen to my child, or oh, you know.

Speaker 3 (03:49):
That happens to other people, but it's happening.

Speaker 4 (03:51):
Forty seven children daily get diagnosed with childhood cancer and
those numbers are growing.

Speaker 3 (03:57):
It's a scary number. But Saint Jude gave us that hope.

Speaker 4 (04:00):
And there's a reason why that that garden is it
has hope in the middle of it.

Speaker 3 (04:06):
So our experience in Saint Jude was amazing. We lived
in ron mc donnel house and.

Speaker 4 (04:10):
We were there and our son we were blessed for
her to be during COVID.

Speaker 3 (04:15):
So yes, we had our family come out.

Speaker 4 (04:17):
But then once COVID got stronger, we didn't have to
share our son, and our son not once thought that
he was dying. In fact, if you, if you buy
any chance to slipped in front of him and said
Jake's sick, he would tell you I'm not sick. God
made me better. So we are a family of faith.
And it's crazy because today is his birthday, and today's

(04:40):
birthday today he is nine years old in heaven. And
my daughter is a huge advocate of your show. She
listens to it in the morning commute with her daddy.

Speaker 3 (04:50):
Leilah's eleven, so we have an eleven year old.

Speaker 2 (04:53):
Oh my gosh, I just thought back to what we've
been talking about today.

Speaker 4 (04:56):
Well, yeah, listen, she listens to all the shouls and
all the dramas, the rolls. Uh.

Speaker 3 (05:04):
She loves it though. She loves it, and we are blessed.

Speaker 4 (05:06):
Two years after jak Past, we found out we were pregnant.
We have a rainbow baby.

Speaker 3 (05:11):
Hosts name is Sessi. So we are a family of
five and we are.

Speaker 4 (05:16):
Huge advocates for Saint Jude because the way that they
do things and the way that they care for children.

Speaker 3 (05:22):
But most of all. I always say that the world,
if we had.

Speaker 4 (05:25):
A little bit of Saint Jude and everyone, we would
realize that they have such empathy and compassion for those
children and those parents that are going to somewhere, you know.

Speaker 3 (05:35):
Basically as a last hope.

Speaker 4 (05:36):
And I mean in Ronald McDonald house, we met so
many different people and in the clinics and it's Saint Jude,
and you would literally see whether it be Mormon or
you know, people from you know, from overseas, or you know,
people didn't speak the language.

Speaker 3 (05:53):
There's blue phones in each of the hospital of the rooms.

Speaker 4 (05:58):
And basically those phones are as leaders that will be
able to accommodate any any language that the family it
feels comfortable with. Not only that they do research for
the child, but they did they tested Jaking on a
different genes and they found out that he had something
very rare and it was.

Speaker 3 (06:19):
A mutation basically called our wire.

Speaker 4 (06:21):
One malignant hypothermia, and it basically is if you're exposed
to gas and aesthetics, it's very dangerous. And they extended
that testing to my husband, my daughter, and myself and
me and my daughter have it.

Speaker 3 (06:33):
Le's some five percent of the world has it just
because of their research, they were able to do that
to us. So now me and my daughter now know
this knowledge that we would have never tested for.

Speaker 2 (06:42):
Well that's what does you know? They do? You know caring,
your point is is so incredible because Saint Jude shares
info not only with other scientists thereund around the world.

Speaker 1 (06:55):
They were saying when we were there, like they would say,
like say, we're doing some research on loomphon, but then
all of a sudden, we see something about another cancer.
So we might not be doing the research on that cancer,
but we'll take what we learned and send it over
to people who are doing the research on what we found.
And they said, it's just incredible how much sharing goes
on and how many things we learn from it.

Speaker 4 (07:17):
Yeah, And that's the thing is, I'm actually on the
board right now of how to share news and reports
and diagnostics with the parents for Saint Jude.

Speaker 3 (07:28):
And it's a research that they're doing.

Speaker 4 (07:30):
They're always doing research and there's always growing but a
lot of their researchers are past patients, right, Yeah, so
you know that they got treated there, or a lot
of people that work there were patients, so they got
treated there. And they came back to continue the cause
because listen, it takes we believe it, mustard see faith.
But it takes so many people to move that needle.

(07:50):
And as long as we're moving that needle for a
cause and avoiding one child to go through something, because
we shared the knowledge and we shared the research, then
why the hell not?

Speaker 2 (08:00):
You know, that's what's so interesting about this. A lot
of people listening right now, and maybe parents listening who
have children who are not going through cancer maybe saying well,
I don't know if I would ever need to pick
up a phone and call Saint Jude or do anything
with them ever again, because I lost I lost my child,
But Jakie who passed away, you're still on it. You're

(08:21):
you're fighting very hard for Saint Jude. So can you
explain to everyone, Karen, to everyone, Karen, why why?

Speaker 3 (08:27):
It's a great question.

Speaker 4 (08:28):
I've actually been asked that, Okay, because I didn't lose
my child.

Speaker 3 (08:34):
My child was My child had.

Speaker 4 (08:36):
A bigger purpose of which maybe it's harder for me
to understand, but I know he had a bigger purpose
and he started a movement that I cannot ignore. Look
at today his birthday, I could be selfish and not
want to talk to anyone, but this call of action,
I cannot turn away because Saint Jude did give me
a fighting chance and gave my family that hope that

(08:57):
when no one when basically I was told it was terminal,
and they never once treated him as a terminal patient.

Speaker 3 (09:03):
They treated him as a patient that had to fight
a chance.

Speaker 4 (09:06):
And for those reasons, I will always fight for Saint
Jude and I will always try and my hope is
that one day we do find a research a cure
for this terminal cancer diffuse interesting punts in glioma. Because
if that means that one parent doesn't have to do
what we had to do with our child, then you
know what my job here has done.

Speaker 3 (09:24):
And I contributed towards what my son started in US.

Speaker 5 (09:27):
And you know what, there's a lot of people that
do work at Saint Jude now that are former patients,
and that's because Saint Jude does have just such a
high success rate. I'm on the board for the Saint
Jude Country Cares radiothon we do every year where we
turn over our iHeart radio country stations for two days
to Saint Jude and we fundraise and I've been there.
And when you meet the people who Saint Jude has saved,
and when you see the parents who, yes, like you, Karen,

(09:49):
have unfortunately their child lost the battle, but yet they
live on, their memory lives on forever because they're doing
good for other kids. And it's very brave and strong
of you to say that, you know what, I lost
the battle. I'm going to get out, yet you continue
to fight on in Jaki's memory and that is absolutely unbelievable.

Speaker 2 (10:07):
Absolutely as well. Karen. Uh, oh my gosh, I love that.
I love I love the sound of children sounding curious,
totally plugged in with a moment like why are you
on the phone, mommy?

Speaker 3 (10:26):
What about me?

Speaker 5 (10:27):
A get?

Speaker 2 (10:28):
What are you doing? You're talking to Uh? It just
like we said earlier, it just so happened today, the
ninth birthday of Jakie who was in heaven, and having
you on is just it's a blessing. And to hear
your passion for Saint Jude, and us having visited Saint Jude,
we understand why you have the passion even more it's

(10:50):
it's it's an honor again to have you here, Karen.
Thank you so much for your time. Thank you very much.

Speaker 4 (10:54):
If I can just add, whenever you don't, they give
you sometimes.

Speaker 3 (10:58):
The shirt that says this shirt saves. If you ever
have a doubt, if you ever have that.

Speaker 4 (11:02):
Opportunity to give back, please get back to Saint Jude,
because it does go back to the patients, to the child,
to the parents, and to research most more importantly, So
please get back because I'm I'm living proof that Saint
Jude does give families hope and are doing you know
that that research light is never off because they're always
trying to find a cure for that next child.

Speaker 3 (11:24):
So thank you so much for having me this morning,
and happy for day to Jakie.

Speaker 2 (11:27):
There you go, Karen, Okay, thank you so much. Thank you.
I have a beautiful, beautiful day to day. Take care Okay,
I'll have one tow there you go. You know, every
single patient, every single family has a story, and you
just heard it an incredibly powerful one.

Speaker 5 (11:43):
So brave.

Speaker 2 (11:44):
Keep in mind, absolutely keep in mind, families never pay
a penny all the travels taken care of for them.
They're put up. For instance, in the Ronald McDonald House
is the one where they stayed in Memphis. And by
the way, that is the only Ronal McDonald in America
that is assigned to a hospital. One hospital.

Speaker 1 (12:05):
They have different rooms for like different sized families too,
like oh yeah everything. If you need more than a
couple of bedrooms, they have it a longer stay. They
have it.

Speaker 2 (12:12):
All, and they share the information with other countries who
are fighting the battle and not winning it. Like they
are winning it year.

Speaker 1 (12:19):
Their new goal now is like we're doing so well
here now, thank goodness. And obviously they're still doing so
much research, but other countries not as good as we
are here. So that's their new goal is to help
those other countries.

Speaker 2 (12:31):
And look into the future. Not only is it about
curing all these different types of cancers, it's also coming
up with ways that these currently patients are going to
have a great life ahead ears down the road. I mean,
it's so advanced, so there's not enough, not enough time
in the world to learn about everything they do at
Saint Jude. So if you want to help us, we've

(12:53):
already done it. We're going to do it again today.
Become a partner in hope. It's simple if you text
Elvis e Lvis for those need a spelling, text Elvis
to sixty two sixty two sixty two. You'll get their
brand new this Shirt Saves Lives t shirt and it's
easy to do. They'll send you a text back or
give you a they'll give you a link actually, and

(13:13):
it'll tell you how you can give. And it's not
You don't have to give like a big old load
of money right now. You can give a dollar, you
can give it whatever, whatever you want to give. Text
the word Elvis to sixty two sixty two sixty two
and get the ball rolling. Any thoughts from anyone.

Speaker 1 (13:29):
It's just a good sid. That woman is just amazing, man.
The fact that she wants to save so many more lives,
you know, and unfortunately lost hers. She is she is
brave and strong, and my goodness, there you go.

Speaker 2 (13:40):
Text the word Elvis to sixty two sixty two sixty
two
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